moonshynchik
New member
FAMILY NOT UNDER STAN WHY U WILL NOT DO TREATMENTS
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FAMILY NOT UNDER STAND
- Thread starter moonshynchik
- Start date
LoveShines4Austin
New member
Moonshy,
What is your family not understanding? Are you not doing the treatments your doctor has asked you to do? Tell me a little about your situation please.
What is your family not understanding? Are you not doing the treatments your doctor has asked you to do? Tell me a little about your situation please.
moonshynchik
New member
UM WELL
like i will start to be doing good on treatments
and than slack on them and my mom will ask me
why do you not do them and i say i hate doing them
and she goses do you want to die and i say no i dont
and like they do not understand that being a kid and
doing treaments is hard like when my friends are out side
playing i have to be inside doing my treaments and i think that
just really such i hate it and like it is just really hard because i do
not get to go to school because my health so i do not get to be were
a lot of kids are and i do not really play sports so i still do not get to be
with friends and when i am at school kids do not talk to me and so it is
just hard because they do not under stand at all of what i am going threw
holly<img src="i/expressions/rose.gif" border="0">
like i will start to be doing good on treatments
and than slack on them and my mom will ask me
why do you not do them and i say i hate doing them
and she goses do you want to die and i say no i dont
and like they do not understand that being a kid and
doing treaments is hard like when my friends are out side
playing i have to be inside doing my treaments and i think that
just really such i hate it and like it is just really hard because i do
not get to go to school because my health so i do not get to be were
a lot of kids are and i do not really play sports so i still do not get to be
with friends and when i am at school kids do not talk to me and so it is
just hard because they do not under stand at all of what i am going threw
holly<img src="i/expressions/rose.gif" border="0">
teknogeek1300
New member
I'm sorry to hear that. Health is very important but I know EXACTLY how you feel. I had the same attitude toward my diabetes, and still fuss with it. How bad is your condition, and how much treatment are you supposed to be receiving daily?
moonshynchik
New member
um well it is not really really bad but it is ok
i am spouse to do 3 vest and 3 abuterall and 3 pulzime and 2 tobie
i am spouse to do 3 vest and 3 abuterall and 3 pulzime and 2 tobie
LoveShines4Austin
New member
Holly,
You sound pretty frustrated and well, I'd rather you be frustrated than not care at all. I'm sure you're hurting and maybe even scared? As a parent of a teenager with CF, I must tell you, sometimes I don't understand it when he slacks with his insulin or after 13 years, sometimes forgets to take his enzymes. But that's what being a mom is about...we worry. We love our babies and we want to keep them with us...for as long as possible.
Austin gets on me because I nag at him. Too darn bad! LOL If I didn't nag, he would most likely forget to eat!
Your parents just want you to take care of yourself, because if you don't, you won't be well enough to go out and play with your friends or go places. I try to put myself in my son's shoes and I get pretty scared. Maybe you might try to put yourself in your parent?s shoes, and see just how scared they may be? I have no idea what your home life is like, but here, we love each other deeply enough to worry about one another and go out of our way to talk about our feelings...tell your parents how you feel...OK?
You sound pretty frustrated and well, I'd rather you be frustrated than not care at all. I'm sure you're hurting and maybe even scared? As a parent of a teenager with CF, I must tell you, sometimes I don't understand it when he slacks with his insulin or after 13 years, sometimes forgets to take his enzymes. But that's what being a mom is about...we worry. We love our babies and we want to keep them with us...for as long as possible.
Austin gets on me because I nag at him. Too darn bad! LOL If I didn't nag, he would most likely forget to eat!
Your parents just want you to take care of yourself, because if you don't, you won't be well enough to go out and play with your friends or go places. I try to put myself in my son's shoes and I get pretty scared. Maybe you might try to put yourself in your parent?s shoes, and see just how scared they may be? I have no idea what your home life is like, but here, we love each other deeply enough to worry about one another and go out of our way to talk about our feelings...tell your parents how you feel...OK?
moonshynchik
New member
i have kinda tryed telling them but they just do not under stand still
but i just hate doing treatments and happen to not be able to go to
shool because of my oxygen being low and not feeling up to it
i hate that i do not get to see some of my friends
i hate that i pepole look at me and go aww how cut how
old are u like 7 in it is just really hard for me
and i just really do not like it and maybe there is some people
that are bader than me and i hate that for this specilly the little ones
but yet i still do not like it they have tryed every thing in the world to get me do
treatments ETC and it just doses not work out all
and i told my friend who has cf that treatments is not a treat
and going to the cf docks is like punishment i hate having cf
HOLLY<img src="i/expressions/rose.gif" border="0">
but i just hate doing treatments and happen to not be able to go to
shool because of my oxygen being low and not feeling up to it
i hate that i do not get to see some of my friends
i hate that i pepole look at me and go aww how cut how
old are u like 7 in it is just really hard for me
and i just really do not like it and maybe there is some people
that are bader than me and i hate that for this specilly the little ones
but yet i still do not like it they have tryed every thing in the world to get me do
treatments ETC and it just doses not work out all
and i told my friend who has cf that treatments is not a treat
and going to the cf docks is like punishment i hate having cf
HOLLY<img src="i/expressions/rose.gif" border="0">
teknogeek1300
New member
I know. How old are you? I've been going threw allot of new changes in CF and it's not very fun. I used to have to do nothing about it besides take my normal pills. Now I have take insulin, take all my vitamins, take anti biotics, and do Tobi. I know how stressful it can get.
moonshynchik
New member
YEA I KNOW
U M I AM TURNING 13 IN DEC
AND WHEN I WAS YOUNGER I DID NOT HAVE MAY PROBLEMS WITH MY HEALTH BUT NOW IT FEELS
LIKE IT HAS KINDA BADER OVER THE YEARS I HATE THAT 2 AND I HAD TO GET A FEEDING TUBE IT HAS HELPED BUT
MY BROTHER HAS CF AND HE NAGS TO ME ABOUT EATING AND YET I HAVE A FEEDING TUBE
THEY PUT ME ON A PEELTO HELM ME EAT BETTER BUT I JUST DO NOT LIKE THEM NAGING TO ME
ALL THE TIME ON HOW I NEED TO DO THIS AND THAT I KNOW I NEED TO DO I JUST REALLY DO HATE IT
AND STUFF
HOLLY <img src="i/expressions/rose.gif" border="0">
U M I AM TURNING 13 IN DEC
AND WHEN I WAS YOUNGER I DID NOT HAVE MAY PROBLEMS WITH MY HEALTH BUT NOW IT FEELS
LIKE IT HAS KINDA BADER OVER THE YEARS I HATE THAT 2 AND I HAD TO GET A FEEDING TUBE IT HAS HELPED BUT
MY BROTHER HAS CF AND HE NAGS TO ME ABOUT EATING AND YET I HAVE A FEEDING TUBE
THEY PUT ME ON A PEELTO HELM ME EAT BETTER BUT I JUST DO NOT LIKE THEM NAGING TO ME
ALL THE TIME ON HOW I NEED TO DO THIS AND THAT I KNOW I NEED TO DO I JUST REALLY DO HATE IT
AND STUFF
HOLLY <img src="i/expressions/rose.gif" border="0">
spicyone18
New member
Sometimes family will never understand. We just have to learn to deal with it. Easier said then done. My mom nags, sister nags, friends nag everyone nags at me "are you doing your treatments, have you tested your blood, blah blah blah" You have to remember that they love and worry about you. I know if me and my sister switched shoes I would do the same thing to her. They want you to live a happy life like all the other kids but in order for you to do that you have to take care of yourself by doing your meds. Trust me we would all like not having to do treatments but theres nothing we can do about it.
Well anyways I hope this helps a little bit.
Not to nag, but pleeeeeease do your treatments! <img src="i/expressions/nebulizer.gif" border="0">
<img src="i/expressions/face-icon-small-wink.gif" border="0">
Well anyways I hope this helps a little bit.
Not to nag, but pleeeeeease do your treatments! <img src="i/expressions/nebulizer.gif" border="0">
<img src="i/expressions/face-icon-small-wink.gif" border="0">
moonshynchik
New member
YEA
I KNOE BUT IS GETS REALLY OLD TO ME I JUST DO NOT LIKE HEARING IT
IT IS KINDA LIKE A SONG THAT COMES ON THE RADIO OVER AND OVER AND THAN IT GET
REALLY BLAA
BUT I KNOW THEY CARE IT IS OLD AND SPECILY MY BROTHER AND HIM NAGING AND I TELL
HIM A I HAVE A MOM AND DAD BUT HE STILL KEEPS ON AND THAN I GET REALLY MAD LIKE
SAYING THING I DO NOT MEAN TO I JUST HATE THEM NAGING I GUSES I LOVE THE WORD HATE
I DONT NO WHAT TO DO
HOLLY<img src="i/expressions/rose.gif" border="0">
I KNOE BUT IS GETS REALLY OLD TO ME I JUST DO NOT LIKE HEARING IT
IT IS KINDA LIKE A SONG THAT COMES ON THE RADIO OVER AND OVER AND THAN IT GET
REALLY BLAA
BUT I KNOW THEY CARE IT IS OLD AND SPECILY MY BROTHER AND HIM NAGING AND I TELL
HIM A I HAVE A MOM AND DAD BUT HE STILL KEEPS ON AND THAN I GET REALLY MAD LIKE
SAYING THING I DO NOT MEAN TO I JUST HATE THEM NAGING I GUSES I LOVE THE WORD HATE
I DONT NO WHAT TO DO
HOLLY<img src="i/expressions/rose.gif" border="0">
spicyone18
New member
There is nothing you can do, they will continue to nag. I am 22 and my mom still gets onto me even though she knows I am doing my meds. Just make sure you stay on top of it all and do your meds and maybe they will not nag as much. Wish I could help you a little better, but thats all I have for now! <img src="i/expressions/heart.gif" border="0"><img src="i/expressions/face-icon-small-wink.gif" border="0">
moonshynchik
New member
I WILL TRY TO KEEP ON DOING MY TREATMENTS LIKE I SHOULD
BUT LIKE I SAYED I DO NOT LIKE ODING THEM
AND I HATE THAT SHE WILL PROBLY NAG MORE
I DO NOT NO WHAT ELSE TO SAY
HOLLY<img src="i/expressions/rose.gif" border="0">
BUT LIKE I SAYED I DO NOT LIKE ODING THEM
AND I HATE THAT SHE WILL PROBLY NAG MORE
I DO NOT NO WHAT ELSE TO SAY
HOLLY<img src="i/expressions/rose.gif" border="0">
moonshynchik
New member
DOSES ANY ONE FEEL THE SAME OR IS IT JUST ME THINKING THEY DO NOT UNDER STAND
HOLLY<img src="i/expressions/rose.gif" border="0">
HOLLY<img src="i/expressions/rose.gif" border="0">
teknogeek1300
New member
They DO understand. They just see it differently than you do.
Holly,
As a kid my parents do not "nag" me or "push" me to do my treatments. They believed I wouldnt live very long so I should just enjoy the time that I had. Well here I am 30 years later paying for the lack of discipline with my treatments. I hate my treatments. I feel like I am missing out on things during those hours that I am stuck in the chair doing them. I feel like the world is passing by. I also know that if the treatments dont get done that the world will still pass by & I will still miss out. The only difference is it will be because I am sick enough to be in bed or the hospital. Honestly I didnt realize how much the treatments make a difference for me until this year. I got so use to being congested & coughing that I just worked around it all. I didnt know what it felt like to feel good except when I was in the hosital. Now that I can see the difference, I choose to do them even tho I still hate them. I also have found that I cant do them one day then skip them a day & do it the next day & expect to feel my best. The treatments need to be done every day. Are there days that I skip one of them. Yes. I try not to because it does make a difference for me, but there has to be some flexability. Maybe your Mom wouldnt be on your case as bad if you did them on a regular basis & the right way.......she needs to give you some room also. However; you have to earn that room. Show her that you can take care of yourself the way you need to. Life isnt fair sometimes. As you get older you will encounter things that seem a lot less fair then you having to do treatments for your CF. Its a fact. Then you will realize that even tho you hate them, it could be a lot worse. I dont want to lecture you because I am sure you get enough crap from everyone trying to get thru to you. Just know that I have been there & every word I am saying is completely from the heart & completely from personal experience as a person living with CF. From a kids point of view.......my daughter, Jazmine, hates the fact that I have to do treatments. She feels it really cuts into our fun time etc. She also knows that without those treatments I can end up in the hospital. Compared to the amount of time you spend on the computer, I bet you could have a few treatments done.
As a kid my parents do not "nag" me or "push" me to do my treatments. They believed I wouldnt live very long so I should just enjoy the time that I had. Well here I am 30 years later paying for the lack of discipline with my treatments. I hate my treatments. I feel like I am missing out on things during those hours that I am stuck in the chair doing them. I feel like the world is passing by. I also know that if the treatments dont get done that the world will still pass by & I will still miss out. The only difference is it will be because I am sick enough to be in bed or the hospital. Honestly I didnt realize how much the treatments make a difference for me until this year. I got so use to being congested & coughing that I just worked around it all. I didnt know what it felt like to feel good except when I was in the hosital. Now that I can see the difference, I choose to do them even tho I still hate them. I also have found that I cant do them one day then skip them a day & do it the next day & expect to feel my best. The treatments need to be done every day. Are there days that I skip one of them. Yes. I try not to because it does make a difference for me, but there has to be some flexability. Maybe your Mom wouldnt be on your case as bad if you did them on a regular basis & the right way.......she needs to give you some room also. However; you have to earn that room. Show her that you can take care of yourself the way you need to. Life isnt fair sometimes. As you get older you will encounter things that seem a lot less fair then you having to do treatments for your CF. Its a fact. Then you will realize that even tho you hate them, it could be a lot worse. I dont want to lecture you because I am sure you get enough crap from everyone trying to get thru to you. Just know that I have been there & every word I am saying is completely from the heart & completely from personal experience as a person living with CF. From a kids point of view.......my daughter, Jazmine, hates the fact that I have to do treatments. She feels it really cuts into our fun time etc. She also knows that without those treatments I can end up in the hospital. Compared to the amount of time you spend on the computer, I bet you could have a few treatments done.
also, know that your whole life, people that love you are going to nag, nag, nag. I used to nag my hubby all the time, and I know it made him crazy, but I couldn't help it. Face it, you're loved, and people want you to stick aorund. SO we nag, cause we can''t just hold you down or do them for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">
greendaygurl16
New member
Hey holly, man i feel the same as you do...i dindnt do my treatments and stuff, but that landed my in the hospital and now i am doing 100% better...talking to you right now..lol
Hey Austin...can i talk to you..i am 16 also...
Hey Austin...can i talk to you..i am 16 also...
teknogeek1300
New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>greendaygurl16</b></i><br>Hey holly, man i feel the same as you do...i dindnt do my treatments and stuff, but that landed my in the hospital and now i am doing 100% better...talking to you right now..lol
Hey Austin...can i talk to you..i am 16 also...<hr></blockquote>
Check PM's <img src="i/expressions/face-icon-small-happy.gif" border="0">.
Hey Austin...can i talk to you..i am 16 also...<hr></blockquote>
Check PM's <img src="i/expressions/face-icon-small-happy.gif" border="0">.
greendaygurl16
New member
what are pm's