G551D -VX770

jbrandonAW

New member
I was searching for a topic on this but I couldnt find one. I wasn't sure if those of you with G551D had even seen the so far promising effects of the VX-770 pill. Heres a link from cff.org <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/FAQs/VX-770/">VX-770 </a>.

Of course I'm thrilled about it b/c I have this mutation.

Just wanted to let everyone know in case they hadnt seen it.
 

jbrandonAW

New member
I was searching for a topic on this but I couldnt find one. I wasn't sure if those of you with G551D had even seen the so far promising effects of the VX-770 pill. Heres a link from cff.org <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/FAQs/VX-770/">VX-770 </a>.

Of course I'm thrilled about it b/c I have this mutation.

Just wanted to let everyone know in case they hadnt seen it.
 

jbrandonAW

New member
I was searching for a topic on this but I couldnt find one. I wasn't sure if those of you with G551D had even seen the so far promising effects of the VX-770 pill. Heres a link from cff.org <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/FAQs/VX-770/">VX-770 </a>.

Of course I'm thrilled about it b/c I have this mutation.

Just wanted to let everyone know in case they hadnt seen it.
 

jbrandonAW

New member
I was searching for a topic on this but I couldnt find one. I wasn't sure if those of you with G551D had even seen the so far promising effects of the VX-770 pill. Heres a link from cff.org <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/FAQs/VX-770/">VX-770 </a>.

Of course I'm thrilled about it b/c I have this mutation.

Just wanted to let everyone know in case they hadnt seen it.
 

jbrandonAW

New member
I was searching for a topic on this but I couldnt find one. I wasn't sure if those of you with G551D had even seen the so far promising effects of the VX-770 pill. Heres a link from cff.org <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/FAQs/VX-770/">VX-770 </a>.
<br />
<br />Of course I'm thrilled about it b/c I have this mutation.
<br />
<br />Just wanted to let everyone know in case they hadnt seen it.
 

Chilemom

New member
lou lou is enrolled to the next 2-a trial. My daughter has this mutation and i had wrote to scientist that studie this mutation (not from the vertex company) and they think that this pill would be efective. They have done a lot of studies in labs with g551d and they know that is possible.
In march when they explain the first results of the first trial with people with g551d some one post that she participated in the trial.
if you know anything new please post it.
 

Chilemom

New member
lou lou is enrolled to the next 2-a trial. My daughter has this mutation and i had wrote to scientist that studie this mutation (not from the vertex company) and they think that this pill would be efective. They have done a lot of studies in labs with g551d and they know that is possible.
In march when they explain the first results of the first trial with people with g551d some one post that she participated in the trial.
if you know anything new please post it.
 

Chilemom

New member
lou lou is enrolled to the next 2-a trial. My daughter has this mutation and i had wrote to scientist that studie this mutation (not from the vertex company) and they think that this pill would be efective. They have done a lot of studies in labs with g551d and they know that is possible.
In march when they explain the first results of the first trial with people with g551d some one post that she participated in the trial.
if you know anything new please post it.
 

Chilemom

New member
lou lou is enrolled to the next 2-a trial. My daughter has this mutation and i had wrote to scientist that studie this mutation (not from the vertex company) and they think that this pill would be efective. They have done a lot of studies in labs with g551d and they know that is possible.
In march when they explain the first results of the first trial with people with g551d some one post that she participated in the trial.
if you know anything new please post it.
 

Chilemom

New member
lou lou is enrolled to the next 2-a trial. My daughter has this mutation and i had wrote to scientist that studie this mutation (not from the vertex company) and they think that this pill would be efective. They have done a lot of studies in labs with g551d and they know that is possible.
<br />In march when they explain the first results of the first trial with people with g551d some one post that she participated in the trial.
<br />if you know anything new please post it.
<br />
 
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