Good news in CA!

Liza

New member
Hi everyone. Things have been quiet lately. We got good news on Friday. They are going to let Anna go home this coming Friday! I think he was ready to let her go that very day but we said we wanted to stay and get in one more appt. before heading back. Not to mention we were not prepared to leave that very day or even the next. We've been here for way too long and have collected too much junk. We are excited and ready! We'll be back in a month for another clinic visit, they want to be sure the transition goes well between here and the new temporary program. Anna will come home to Texas, that's the temporary part, then after a few months she'll head back to school for summer session.

I want to thank everyone here for all the support, love and prayers you have given us. Without you guys this would have been so much more harder than it already was.

We'll still be here for the rest of the week trying to get stuff seen that we couldn't pre-transplant then my husband will fly in to fly home with Anna. I'll be taking a little break and drive home with a friend. They won't let Anna drive home. Then it's time to press the resume button on life. <img src="i/expressions/sun.gif" border="0">
 

Liza

New member
Hi everyone. Things have been quiet lately. We got good news on Friday. They are going to let Anna go home this coming Friday! I think he was ready to let her go that very day but we said we wanted to stay and get in one more appt. before heading back. Not to mention we were not prepared to leave that very day or even the next. We've been here for way too long and have collected too much junk. We are excited and ready! We'll be back in a month for another clinic visit, they want to be sure the transition goes well between here and the new temporary program. Anna will come home to Texas, that's the temporary part, then after a few months she'll head back to school for summer session.

I want to thank everyone here for all the support, love and prayers you have given us. Without you guys this would have been so much more harder than it already was.

We'll still be here for the rest of the week trying to get stuff seen that we couldn't pre-transplant then my husband will fly in to fly home with Anna. I'll be taking a little break and drive home with a friend. They won't let Anna drive home. Then it's time to press the resume button on life. <img src="i/expressions/sun.gif" border="0">
 

Liza

New member
Hi everyone. Things have been quiet lately. We got good news on Friday. They are going to let Anna go home this coming Friday! I think he was ready to let her go that very day but we said we wanted to stay and get in one more appt. before heading back. Not to mention we were not prepared to leave that very day or even the next. We've been here for way too long and have collected too much junk. We are excited and ready! We'll be back in a month for another clinic visit, they want to be sure the transition goes well between here and the new temporary program. Anna will come home to Texas, that's the temporary part, then after a few months she'll head back to school for summer session.

I want to thank everyone here for all the support, love and prayers you have given us. Without you guys this would have been so much more harder than it already was.

We'll still be here for the rest of the week trying to get stuff seen that we couldn't pre-transplant then my husband will fly in to fly home with Anna. I'll be taking a little break and drive home with a friend. They won't let Anna drive home. Then it's time to press the resume button on life. <img src="i/expressions/sun.gif" border="0">
 

Liza

New member
Hi everyone. Things have been quiet lately. We got good news on Friday. They are going to let Anna go home this coming Friday! I think he was ready to let her go that very day but we said we wanted to stay and get in one more appt. before heading back. Not to mention we were not prepared to leave that very day or even the next. We've been here for way too long and have collected too much junk. We are excited and ready! We'll be back in a month for another clinic visit, they want to be sure the transition goes well between here and the new temporary program. Anna will come home to Texas, that's the temporary part, then after a few months she'll head back to school for summer session.

I want to thank everyone here for all the support, love and prayers you have given us. Without you guys this would have been so much more harder than it already was.

We'll still be here for the rest of the week trying to get stuff seen that we couldn't pre-transplant then my husband will fly in to fly home with Anna. I'll be taking a little break and drive home with a friend. They won't let Anna drive home. Then it's time to press the resume button on life. <img src="i/expressions/sun.gif" border="0">
 

Liza

New member
Hi everyone. Things have been quiet lately. We got good news on Friday. They are going to let Anna go home this coming Friday! I think he was ready to let her go that very day but we said we wanted to stay and get in one more appt. before heading back. Not to mention we were not prepared to leave that very day or even the next. We've been here for way too long and have collected too much junk. We are excited and ready! We'll be back in a month for another clinic visit, they want to be sure the transition goes well between here and the new temporary program. Anna will come home to Texas, that's the temporary part, then after a few months she'll head back to school for summer session.

I want to thank everyone here for all the support, love and prayers you have given us. Without you guys this would have been so much more harder than it already was.

We'll still be here for the rest of the week trying to get stuff seen that we couldn't pre-transplant then my husband will fly in to fly home with Anna. I'll be taking a little break and drive home with a friend. They won't let Anna drive home. Then it's time to press the resume button on life. <img src="i/expressions/sun.gif" border="0">
 

coltsfan715

New member
That is great news that they are letting her go home.

I am not trying to question your docs judgement by my next statement so please don't take it that way at all.

I find it odd that they would let her fly and NOT want her driving. Did they give any reason for that? Just curious cause I know there are alot of risk factors to take into account with flying is why I ask. I just assumed that flying would be more of a problem than driving.

Anyway - I am so excited for you all and so glad that she is going to be going home YAY!!!

Take Care. Have a safe trip home ... both of you and I hope that the packing goes quickly - as quickly as can be expected anyway.

Love Linds
 

coltsfan715

New member
That is great news that they are letting her go home.

I am not trying to question your docs judgement by my next statement so please don't take it that way at all.

I find it odd that they would let her fly and NOT want her driving. Did they give any reason for that? Just curious cause I know there are alot of risk factors to take into account with flying is why I ask. I just assumed that flying would be more of a problem than driving.

Anyway - I am so excited for you all and so glad that she is going to be going home YAY!!!

Take Care. Have a safe trip home ... both of you and I hope that the packing goes quickly - as quickly as can be expected anyway.

Love Linds
 

coltsfan715

New member
That is great news that they are letting her go home.

I am not trying to question your docs judgement by my next statement so please don't take it that way at all.

I find it odd that they would let her fly and NOT want her driving. Did they give any reason for that? Just curious cause I know there are alot of risk factors to take into account with flying is why I ask. I just assumed that flying would be more of a problem than driving.

Anyway - I am so excited for you all and so glad that she is going to be going home YAY!!!

Take Care. Have a safe trip home ... both of you and I hope that the packing goes quickly - as quickly as can be expected anyway.

Love Linds
 

coltsfan715

New member
That is great news that they are letting her go home.

I am not trying to question your docs judgement by my next statement so please don't take it that way at all.

I find it odd that they would let her fly and NOT want her driving. Did they give any reason for that? Just curious cause I know there are alot of risk factors to take into account with flying is why I ask. I just assumed that flying would be more of a problem than driving.

Anyway - I am so excited for you all and so glad that she is going to be going home YAY!!!

Take Care. Have a safe trip home ... both of you and I hope that the packing goes quickly - as quickly as can be expected anyway.

Love Linds
 

coltsfan715

New member
That is great news that they are letting her go home.

I am not trying to question your docs judgement by my next statement so please don't take it that way at all.

I find it odd that they would let her fly and NOT want her driving. Did they give any reason for that? Just curious cause I know there are alot of risk factors to take into account with flying is why I ask. I just assumed that flying would be more of a problem than driving.

Anyway - I am so excited for you all and so glad that she is going to be going home YAY!!!

Take Care. Have a safe trip home ... both of you and I hope that the packing goes quickly - as quickly as can be expected anyway.

Love Linds
 

CountryGirl

New member
They wont let me drive home because there is so much open space in West Texas...theres hours to the hospitals. So it would be more dangerous for me to drive because if anything happened we might not be able to get to a hospital in a good amount of time. We are flying business class as to hope that the possibility of infection will be a little lower. We tried to ask Angel Flight but we are 300 miles over their limit of 1000 miles. Its pretty ridiculous if you ask me, 300 miles isnt much when youre flying and someones health is otherwise at risk. The other place we contacted only flies cancer patients and bone marrow transplants...not to sound bias but I think thats stupid seems like they dont care about other patients who are immune suppressed. Its like we're left out in the dust sometimes.
 

CountryGirl

New member
They wont let me drive home because there is so much open space in West Texas...theres hours to the hospitals. So it would be more dangerous for me to drive because if anything happened we might not be able to get to a hospital in a good amount of time. We are flying business class as to hope that the possibility of infection will be a little lower. We tried to ask Angel Flight but we are 300 miles over their limit of 1000 miles. Its pretty ridiculous if you ask me, 300 miles isnt much when youre flying and someones health is otherwise at risk. The other place we contacted only flies cancer patients and bone marrow transplants...not to sound bias but I think thats stupid seems like they dont care about other patients who are immune suppressed. Its like we're left out in the dust sometimes.
 

CountryGirl

New member
They wont let me drive home because there is so much open space in West Texas...theres hours to the hospitals. So it would be more dangerous for me to drive because if anything happened we might not be able to get to a hospital in a good amount of time. We are flying business class as to hope that the possibility of infection will be a little lower. We tried to ask Angel Flight but we are 300 miles over their limit of 1000 miles. Its pretty ridiculous if you ask me, 300 miles isnt much when youre flying and someones health is otherwise at risk. The other place we contacted only flies cancer patients and bone marrow transplants...not to sound bias but I think thats stupid seems like they dont care about other patients who are immune suppressed. Its like we're left out in the dust sometimes.
 

CountryGirl

New member
They wont let me drive home because there is so much open space in West Texas...theres hours to the hospitals. So it would be more dangerous for me to drive because if anything happened we might not be able to get to a hospital in a good amount of time. We are flying business class as to hope that the possibility of infection will be a little lower. We tried to ask Angel Flight but we are 300 miles over their limit of 1000 miles. Its pretty ridiculous if you ask me, 300 miles isnt much when youre flying and someones health is otherwise at risk. The other place we contacted only flies cancer patients and bone marrow transplants...not to sound bias but I think thats stupid seems like they dont care about other patients who are immune suppressed. Its like we're left out in the dust sometimes.
 

CountryGirl

New member
They wont let me drive home because there is so much open space in West Texas...theres hours to the hospitals. So it would be more dangerous for me to drive because if anything happened we might not be able to get to a hospital in a good amount of time. We are flying business class as to hope that the possibility of infection will be a little lower. We tried to ask Angel Flight but we are 300 miles over their limit of 1000 miles. Its pretty ridiculous if you ask me, 300 miles isnt much when youre flying and someones health is otherwise at risk. The other place we contacted only flies cancer patients and bone marrow transplants...not to sound bias but I think thats stupid seems like they dont care about other patients who are immune suppressed. Its like we're left out in the dust sometimes.
 

coltsfan715

New member
That does make sense Anna. Yeah that does stink too about the angel flight and the other flight you pursued.

I am sure you will be fine flying. Honestly I have gone to Walt Disney World twice in the past 3 weeks and I have managed perfectly well and am only 5 months out (celebrated my 5 months IN Disney lol).

I am sure they have told you and you already do practice common sense and wear your mask the entire time and I am sure you will be fine. And I will through this out there too for my own sake cause I always forget the obvious stuff. Take sanitary wipes like a pack of "wet ones" or something and a snack that way if you feel uncomfy eating the snack they give you you will still have something if you need it.

I will shut up now cause I know you are with it enough to think of this stuff but just wanted to put it out there cause like I said I sometimes forget to think of the simple stuff.

Take Care and Have a WONDERFUL TRIP HOME!

Love Linds
 

coltsfan715

New member
That does make sense Anna. Yeah that does stink too about the angel flight and the other flight you pursued.

I am sure you will be fine flying. Honestly I have gone to Walt Disney World twice in the past 3 weeks and I have managed perfectly well and am only 5 months out (celebrated my 5 months IN Disney lol).

I am sure they have told you and you already do practice common sense and wear your mask the entire time and I am sure you will be fine. And I will through this out there too for my own sake cause I always forget the obvious stuff. Take sanitary wipes like a pack of "wet ones" or something and a snack that way if you feel uncomfy eating the snack they give you you will still have something if you need it.

I will shut up now cause I know you are with it enough to think of this stuff but just wanted to put it out there cause like I said I sometimes forget to think of the simple stuff.

Take Care and Have a WONDERFUL TRIP HOME!

Love Linds
 

coltsfan715

New member
That does make sense Anna. Yeah that does stink too about the angel flight and the other flight you pursued.

I am sure you will be fine flying. Honestly I have gone to Walt Disney World twice in the past 3 weeks and I have managed perfectly well and am only 5 months out (celebrated my 5 months IN Disney lol).

I am sure they have told you and you already do practice common sense and wear your mask the entire time and I am sure you will be fine. And I will through this out there too for my own sake cause I always forget the obvious stuff. Take sanitary wipes like a pack of "wet ones" or something and a snack that way if you feel uncomfy eating the snack they give you you will still have something if you need it.

I will shut up now cause I know you are with it enough to think of this stuff but just wanted to put it out there cause like I said I sometimes forget to think of the simple stuff.

Take Care and Have a WONDERFUL TRIP HOME!

Love Linds
 

coltsfan715

New member
That does make sense Anna. Yeah that does stink too about the angel flight and the other flight you pursued.

I am sure you will be fine flying. Honestly I have gone to Walt Disney World twice in the past 3 weeks and I have managed perfectly well and am only 5 months out (celebrated my 5 months IN Disney lol).

I am sure they have told you and you already do practice common sense and wear your mask the entire time and I am sure you will be fine. And I will through this out there too for my own sake cause I always forget the obvious stuff. Take sanitary wipes like a pack of "wet ones" or something and a snack that way if you feel uncomfy eating the snack they give you you will still have something if you need it.

I will shut up now cause I know you are with it enough to think of this stuff but just wanted to put it out there cause like I said I sometimes forget to think of the simple stuff.

Take Care and Have a WONDERFUL TRIP HOME!

Love Linds
 

coltsfan715

New member
That does make sense Anna. Yeah that does stink too about the angel flight and the other flight you pursued.

I am sure you will be fine flying. Honestly I have gone to Walt Disney World twice in the past 3 weeks and I have managed perfectly well and am only 5 months out (celebrated my 5 months IN Disney lol).

I am sure they have told you and you already do practice common sense and wear your mask the entire time and I am sure you will be fine. And I will through this out there too for my own sake cause I always forget the obvious stuff. Take sanitary wipes like a pack of "wet ones" or something and a snack that way if you feel uncomfy eating the snack they give you you will still have something if you need it.

I will shut up now cause I know you are with it enough to think of this stuff but just wanted to put it out there cause like I said I sometimes forget to think of the simple stuff.

Take Care and Have a WONDERFUL TRIP HOME!

Love Linds
 
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