Hi, I am new to this whole thing...

[ellarine23]

Hello,<br>
<br>
    I have been doing some research on CF the
past day or two in response to some news my partner and I received.
 I was found to be a carrier of CF, and I knew it ran in my
family, but the surprise was that my boyfriend was also found to be
a carrier.  While I am grateful that I have a 3 in 4 chance
everything will be ok, I am finding that I want to be prepared for
the 25% possibility that the child will have CF.  I have an
appointment Friday (tomorrow) with a genetics counselor, and they
want me to undergo CVS, chorionic villi sampling.  I was
curious if anyone had undergone that, what their experience was
like, and how accurate they found the results to be.  I am
really concerned about the risks regarding that procedure
(miscarriage, birth defects, infection, etc).<br>
<br>
    Also, I am hoping to get other people's
experience, strength, and hope regarding raising children with CF,
what it is like day in and day out, and what some of the things
I've read about on this website mean, various forms of measuring
health, lung function, etc.  Anything anyone has to say would
be welcome.  I'm scared stiff, to be honest, and trying to be
realistic and positive, and would be appreciative of some
information on a personal level of what it's really like to raise
children who have CF.  Thanks for your time.

 

[ellarine23]

Hello,<br>
<br>
    I have been doing some research on CF the
past day or two in response to some news my partner and I received.
 I was found to be a carrier of CF, and I knew it ran in my
family, but the surprise was that my boyfriend was also found to be
a carrier.  While I am grateful that I have a 3 in 4 chance
everything will be ok, I am finding that I want to be prepared for
the 25% possibility that the child will have CF.  I have an
appointment Friday (tomorrow) with a genetics counselor, and they
want me to undergo CVS, chorionic villi sampling.  I was
curious if anyone had undergone that, what their experience was
like, and how accurate they found the results to be.  I am
really concerned about the risks regarding that procedure
(miscarriage, birth defects, infection, etc).<br>
<br>
    Also, I am hoping to get other people's
experience, strength, and hope regarding raising children with CF,
what it is like day in and day out, and what some of the things
I've read about on this website mean, various forms of measuring
health, lung function, etc.  Anything anyone has to say would
be welcome.  I'm scared stiff, to be honest, and trying to be
realistic and positive, and would be appreciative of some
information on a personal level of what it's really like to raise
children who have CF.  Thanks for your time.

 

[ellarine23]

Hello,<br>
<br>
    I have been doing some research on CF the
past day or two in response to some news my partner and I received.
 I was found to be a carrier of CF, and I knew it ran in my
family, but the surprise was that my boyfriend was also found to be
a carrier.  While I am grateful that I have a 3 in 4 chance
everything will be ok, I am finding that I want to be prepared for
the 25% possibility that the child will have CF.  I have an
appointment Friday (tomorrow) with a genetics counselor, and they
want me to undergo CVS, chorionic villi sampling.  I was
curious if anyone had undergone that, what their experience was
like, and how accurate they found the results to be.  I am
really concerned about the risks regarding that procedure
(miscarriage, birth defects, infection, etc).<br>
<br>
    Also, I am hoping to get other people's
experience, strength, and hope regarding raising children with CF,
what it is like day in and day out, and what some of the things
I've read about on this website mean, various forms of measuring
health, lung function, etc.  Anything anyone has to say would
be welcome.  I'm scared stiff, to be honest, and trying to be
realistic and positive, and would be appreciative of some
information on a personal level of what it's really like to raise
children who have CF.  Thanks for your time.

 

[my65roses4me]

There are other procedures that you can have done to lessen the chance of having a child with cf. They are relatively pricey but worth it in my opinion. The one I am thinking of is PGD. They are able to eliminate the the embryos that have the cf genes and implant the healthiest ones into your uterus. I am not familiar with CVS so I am not any help there.
I will warn you to be careful with this subject because it can become pretty heated on here. It is a hot topic.
Having said that you can do a search on this topic and see what others have said. You will learn a lot about the disease and how we all deal with it differently. No one can tell you what the right thing to do for you and your husband only you know what to do.
Cf is not an easy disease to deal with I will say that. Its hard on the parents and the extended families as well. And not to mention the one with cf. You can also learn alot about the disease by going to CFF.org. That is the foundations website. I wish you luck in what you both decide to do.

 

[my65roses4me]

There are other procedures that you can have done to lessen the chance of having a child with cf. They are relatively pricey but worth it in my opinion. The one I am thinking of is PGD. They are able to eliminate the the embryos that have the cf genes and implant the healthiest ones into your uterus. I am not familiar with CVS so I am not any help there.
I will warn you to be careful with this subject because it can become pretty heated on here. It is a hot topic.
Having said that you can do a search on this topic and see what others have said. You will learn a lot about the disease and how we all deal with it differently. No one can tell you what the right thing to do for you and your husband only you know what to do.
Cf is not an easy disease to deal with I will say that. Its hard on the parents and the extended families as well. And not to mention the one with cf. You can also learn alot about the disease by going to CFF.org. That is the foundations website. I wish you luck in what you both decide to do.

 

[my65roses4me]

There are other procedures that you can have done to lessen the chance of having a child with cf. They are relatively pricey but worth it in my opinion. The one I am thinking of is PGD. They are able to eliminate the the embryos that have the cf genes and implant the healthiest ones into your uterus. I am not familiar with CVS so I am not any help there.
I will warn you to be careful with this subject because it can become pretty heated on here. It is a hot topic.
Having said that you can do a search on this topic and see what others have said. You will learn a lot about the disease and how we all deal with it differently. No one can tell you what the right thing to do for you and your husband only you know what to do.
Cf is not an easy disease to deal with I will say that. Its hard on the parents and the extended families as well. And not to mention the one with cf. You can also learn alot about the disease by going to CFF.org. That is the foundations website. I wish you luck in what you both decide to do.

 

[Scarlett81]

As Khristina said, this is a controversial topic, but so personal and up to the individual. I personally would chose to not have a baby biologically if I was in that situation-but Cf runs in my family, and I have 2 cousins that were carriers and founds their spouses to be carriers, and even though they are familiar with the family members (like myself) that struggle with cf-they decided to have children-1 out of those 4 births (total) resulted in Cf. My sister is a carrier as well as her hubby, and they decided to have a baby-the baby doesn't have cf.

With all these family members deciding to do this-you can imagine there were many battles, tears, fights, controversies going on!! But, my little cousin is just a cute and precious as all the others-the family would not be the same without her. She is unique, she's a smart strong little girl. So, what can you say? I'd still say yes to be born all over again! I'm glad I'm here and all my loved ones are glad too. Cf has also made me a more mature, strong person and given me an outlook on life that few have so early on. I try to really live!

All that being said-being a person with cf is HARD. It has its real challenges. Being a parent to a cfer is REALLY hard. (I'm sure) I figured you asked about what its like to have it and live with it.

Maintaining Cf properly means finding a good Cf doctor, and when healthy going for checkups every 3 months. (according to the Cf foundation). At those appointmetns the doc listens to your lungs, you have chest x rays, bloodwork, a sputum culture, and do a PFT test (pulmonary function test). You blow into a machine and measures how well your lungs are working and how much of them function properly. The results of the test are called FEV's-what we talk about all the time on the site. FEV's are a good reflection of how well you are, and sometimes how much of your lung is really left.

The biggest part of Cf care is inhaling treatments through a nebulizer machine 2-3 times a day. There's many different things to inhale, depending on the individual and the doctor. But typically you do 3-5 different meds. After inhaling you have to either clap your child's back-a technique you'd be instructed on, or there's a special compression vest they can wear also. The purpose here is to get the mucus out of the lungs every day, and as much as possible.

The key to living to the fullest with Cf is maintenance. You have to be scheduled and disciplined. I honestly have lived a very normal life. I'm married, I've held full time jobs, I own a home, I went to a few years of college, and I'm about to (hopefully) get pregnant. Not everyone is so lucky. And that's hard but true. But there's hope. There's some sad stories out there, I'm sure you've read some. Cf is a terminal illness-but the "term" is different for most. Remember too-to a very large extent you can control your lung disease. If you take the best possible care of your child they'll more than likely face a somewhat normal life like I have. I love my mom-but when it came to my health care, man she was a relentless b*tch!<img src="i/expressions/heart.gif" border="0"> I say that with love....but here I am, right?

I wish you the best. Good for you for coming here and being brave enough to question things and learn. As long as you really know what you are getting into-that's all you can do. Educate yourself as much as possible. Not everything here will apply to you, but take what you need and leave the rest.

 

[Scarlett81]

As Khristina said, this is a controversial topic, but so personal and up to the individual. I personally would chose to not have a baby biologically if I was in that situation-but Cf runs in my family, and I have 2 cousins that were carriers and founds their spouses to be carriers, and even though they are familiar with the family members (like myself) that struggle with cf-they decided to have children-1 out of those 4 births (total) resulted in Cf. My sister is a carrier as well as her hubby, and they decided to have a baby-the baby doesn't have cf.

With all these family members deciding to do this-you can imagine there were many battles, tears, fights, controversies going on!! But, my little cousin is just a cute and precious as all the others-the family would not be the same without her. She is unique, she's a smart strong little girl. So, what can you say? I'd still say yes to be born all over again! I'm glad I'm here and all my loved ones are glad too. Cf has also made me a more mature, strong person and given me an outlook on life that few have so early on. I try to really live!

All that being said-being a person with cf is HARD. It has its real challenges. Being a parent to a cfer is REALLY hard. (I'm sure) I figured you asked about what its like to have it and live with it.

Maintaining Cf properly means finding a good Cf doctor, and when healthy going for checkups every 3 months. (according to the Cf foundation). At those appointmetns the doc listens to your lungs, you have chest x rays, bloodwork, a sputum culture, and do a PFT test (pulmonary function test). You blow into a machine and measures how well your lungs are working and how much of them function properly. The results of the test are called FEV's-what we talk about all the time on the site. FEV's are a good reflection of how well you are, and sometimes how much of your lung is really left.

The biggest part of Cf care is inhaling treatments through a nebulizer machine 2-3 times a day. There's many different things to inhale, depending on the individual and the doctor. But typically you do 3-5 different meds. After inhaling you have to either clap your child's back-a technique you'd be instructed on, or there's a special compression vest they can wear also. The purpose here is to get the mucus out of the lungs every day, and as much as possible.

The key to living to the fullest with Cf is maintenance. You have to be scheduled and disciplined. I honestly have lived a very normal life. I'm married, I've held full time jobs, I own a home, I went to a few years of college, and I'm about to (hopefully) get pregnant. Not everyone is so lucky. And that's hard but true. But there's hope. There's some sad stories out there, I'm sure you've read some. Cf is a terminal illness-but the "term" is different for most. Remember too-to a very large extent you can control your lung disease. If you take the best possible care of your child they'll more than likely face a somewhat normal life like I have. I love my mom-but when it came to my health care, man she was a relentless b*tch!<img src="i/expressions/heart.gif" border="0"> I say that with love....but here I am, right?

I wish you the best. Good for you for coming here and being brave enough to question things and learn. As long as you really know what you are getting into-that's all you can do. Educate yourself as much as possible. Not everything here will apply to you, but take what you need and leave the rest.

 

[Scarlett81]

As Khristina said, this is a controversial topic, but so personal and up to the individual. I personally would chose to not have a baby biologically if I was in that situation-but Cf runs in my family, and I have 2 cousins that were carriers and founds their spouses to be carriers, and even though they are familiar with the family members (like myself) that struggle with cf-they decided to have children-1 out of those 4 births (total) resulted in Cf. My sister is a carrier as well as her hubby, and they decided to have a baby-the baby doesn't have cf.

With all these family members deciding to do this-you can imagine there were many battles, tears, fights, controversies going on!! But, my little cousin is just a cute and precious as all the others-the family would not be the same without her. She is unique, she's a smart strong little girl. So, what can you say? I'd still say yes to be born all over again! I'm glad I'm here and all my loved ones are glad too. Cf has also made me a more mature, strong person and given me an outlook on life that few have so early on. I try to really live!

All that being said-being a person with cf is HARD. It has its real challenges. Being a parent to a cfer is REALLY hard. (I'm sure) I figured you asked about what its like to have it and live with it.

Maintaining Cf properly means finding a good Cf doctor, and when healthy going for checkups every 3 months. (according to the Cf foundation). At those appointmetns the doc listens to your lungs, you have chest x rays, bloodwork, a sputum culture, and do a PFT test (pulmonary function test). You blow into a machine and measures how well your lungs are working and how much of them function properly. The results of the test are called FEV's-what we talk about all the time on the site. FEV's are a good reflection of how well you are, and sometimes how much of your lung is really left.

The biggest part of Cf care is inhaling treatments through a nebulizer machine 2-3 times a day. There's many different things to inhale, depending on the individual and the doctor. But typically you do 3-5 different meds. After inhaling you have to either clap your child's back-a technique you'd be instructed on, or there's a special compression vest they can wear also. The purpose here is to get the mucus out of the lungs every day, and as much as possible.

The key to living to the fullest with Cf is maintenance. You have to be scheduled and disciplined. I honestly have lived a very normal life. I'm married, I've held full time jobs, I own a home, I went to a few years of college, and I'm about to (hopefully) get pregnant. Not everyone is so lucky. And that's hard but true. But there's hope. There's some sad stories out there, I'm sure you've read some. Cf is a terminal illness-but the "term" is different for most. Remember too-to a very large extent you can control your lung disease. If you take the best possible care of your child they'll more than likely face a somewhat normal life like I have. I love my mom-but when it came to my health care, man she was a relentless b*tch!<img src="i/expressions/heart.gif" border="0"> I say that with love....but here I am, right?

I wish you the best. Good for you for coming here and being brave enough to question things and learn. As long as you really know what you are getting into-that's all you can do. Educate yourself as much as possible. Not everything here will apply to you, but take what you need and leave the rest.

 

[Buckeye]

Ellarine23 - I'm confused - are you pregnant now and that's how you
figured out that both you and your partner are carriers or are you
thinking of becoming pregnant in the future?

 

[Buckeye]

Ellarine23 - I'm confused - are you pregnant now and that's how you
figured out that both you and your partner are carriers or are you
thinking of becoming pregnant in the future?

 

[Buckeye]

Ellarine23 - I'm confused - are you pregnant now and that's how you
figured out that both you and your partner are carriers or are you
thinking of becoming pregnant in the future?

 

[amber682]

I was under the impression she is already pregnant, and just found out that she and her partner are carriers. The docs want to do CVS to see if the baby has CF.

If this is the case, I wish I knew more about CVS to give you some advice. I thought amniocentisis was an option as well to test the baby. I also found out I was a carrier while pregnant and I was freaking out. But the blood test my partner had showed he wasn't a carrier. Turns out the test only screened for the more common mutations, so it missed that he was actually a carrier. Our son was diagnosed at 4 months old.

As far as raising a child with CF, it can be hard sometimes, and worrisome. But my son is very healthy and happy and we expect to keep him that way. I do worry sometimes about his future and such, but no one's future is guaranteed (cf or no cf). Cf is not a death sentence, and there are so many new drugs out there for treating or preventing symptoms, plus a lot of interesting research on trying to correct the basic defect of CF. The median life expectancy rises so fast, I can't imagine what it'll be by the time my son is an adult. I'm very hopeful, as are most CF doctors and people researching CF.

My son is 19 months old now, and we go to the CF center every 3 months for a check up. At his age they pretty much just listen to his lungs, do a throat culture to see if he's got any bacteria growing in his lungs that needs to be treated, take weight and height to see how he's growing, and we see a respiratory therapist to see how the chest pt is going. (chest pt is chest physical therapy where we sort of clap a hand on different areas of his chest for a few minutes to loosen up the mucus and get it moving a couple times a day) We also see a dietician to keep track of how well he eats and how to keep his weight up. Once a year they do blood tests for vitamin levels and x-rays to see how his lungs look.

Raising him is like raising any other child, but with some extra work. Extra doctor appts. and a couple extra medicines and some extra time for treatments (chest pt or maybe a nebulizer treatment) and lots of extra calories (some people with cf are pancreatic insufficient and some aren't, so some don't digest fats very well and need enzymes or extra fat and calories). There's also extra worry, of course. It can be hard sometimes. Sometimes I'm jealous of friends whose children don't have CF and don't have to do all of these "extras".

If you do research of your own on the internet, just make sure its up to date. There's a lot of old info floating around out there that could scare you unnecessarily. (I read some 10 year old info when I found out I was a carrier that was way off) If there's any thing else you want to know about don't hesitate to ask. I tried to give you a general overview of my particular situation, but all CFers are different. Let me know if you want more specifics. And of course, I hope all goes well with the testing and that your little boy/girl doesn't have CF. Try not to get to worried until you know for sure.

 

[amber682]

I was under the impression she is already pregnant, and just found out that she and her partner are carriers. The docs want to do CVS to see if the baby has CF.

If this is the case, I wish I knew more about CVS to give you some advice. I thought amniocentisis was an option as well to test the baby. I also found out I was a carrier while pregnant and I was freaking out. But the blood test my partner had showed he wasn't a carrier. Turns out the test only screened for the more common mutations, so it missed that he was actually a carrier. Our son was diagnosed at 4 months old.

As far as raising a child with CF, it can be hard sometimes, and worrisome. But my son is very healthy and happy and we expect to keep him that way. I do worry sometimes about his future and such, but no one's future is guaranteed (cf or no cf). Cf is not a death sentence, and there are so many new drugs out there for treating or preventing symptoms, plus a lot of interesting research on trying to correct the basic defect of CF. The median life expectancy rises so fast, I can't imagine what it'll be by the time my son is an adult. I'm very hopeful, as are most CF doctors and people researching CF.

My son is 19 months old now, and we go to the CF center every 3 months for a check up. At his age they pretty much just listen to his lungs, do a throat culture to see if he's got any bacteria growing in his lungs that needs to be treated, take weight and height to see how he's growing, and we see a respiratory therapist to see how the chest pt is going. (chest pt is chest physical therapy where we sort of clap a hand on different areas of his chest for a few minutes to loosen up the mucus and get it moving a couple times a day) We also see a dietician to keep track of how well he eats and how to keep his weight up. Once a year they do blood tests for vitamin levels and x-rays to see how his lungs look.

Raising him is like raising any other child, but with some extra work. Extra doctor appts. and a couple extra medicines and some extra time for treatments (chest pt or maybe a nebulizer treatment) and lots of extra calories (some people with cf are pancreatic insufficient and some aren't, so some don't digest fats very well and need enzymes or extra fat and calories). There's also extra worry, of course. It can be hard sometimes. Sometimes I'm jealous of friends whose children don't have CF and don't have to do all of these "extras".

If you do research of your own on the internet, just make sure its up to date. There's a lot of old info floating around out there that could scare you unnecessarily. (I read some 10 year old info when I found out I was a carrier that was way off) If there's any thing else you want to know about don't hesitate to ask. I tried to give you a general overview of my particular situation, but all CFers are different. Let me know if you want more specifics. And of course, I hope all goes well with the testing and that your little boy/girl doesn't have CF. Try not to get to worried until you know for sure.

 

[amber682]

I was under the impression she is already pregnant, and just found out that she and her partner are carriers. The docs want to do CVS to see if the baby has CF.

If this is the case, I wish I knew more about CVS to give you some advice. I thought amniocentisis was an option as well to test the baby. I also found out I was a carrier while pregnant and I was freaking out. But the blood test my partner had showed he wasn't a carrier. Turns out the test only screened for the more common mutations, so it missed that he was actually a carrier. Our son was diagnosed at 4 months old.

As far as raising a child with CF, it can be hard sometimes, and worrisome. But my son is very healthy and happy and we expect to keep him that way. I do worry sometimes about his future and such, but no one's future is guaranteed (cf or no cf). Cf is not a death sentence, and there are so many new drugs out there for treating or preventing symptoms, plus a lot of interesting research on trying to correct the basic defect of CF. The median life expectancy rises so fast, I can't imagine what it'll be by the time my son is an adult. I'm very hopeful, as are most CF doctors and people researching CF.

My son is 19 months old now, and we go to the CF center every 3 months for a check up. At his age they pretty much just listen to his lungs, do a throat culture to see if he's got any bacteria growing in his lungs that needs to be treated, take weight and height to see how he's growing, and we see a respiratory therapist to see how the chest pt is going. (chest pt is chest physical therapy where we sort of clap a hand on different areas of his chest for a few minutes to loosen up the mucus and get it moving a couple times a day) We also see a dietician to keep track of how well he eats and how to keep his weight up. Once a year they do blood tests for vitamin levels and x-rays to see how his lungs look.

Raising him is like raising any other child, but with some extra work. Extra doctor appts. and a couple extra medicines and some extra time for treatments (chest pt or maybe a nebulizer treatment) and lots of extra calories (some people with cf are pancreatic insufficient and some aren't, so some don't digest fats very well and need enzymes or extra fat and calories). There's also extra worry, of course. It can be hard sometimes. Sometimes I'm jealous of friends whose children don't have CF and don't have to do all of these "extras".

If you do research of your own on the internet, just make sure its up to date. There's a lot of old info floating around out there that could scare you unnecessarily. (I read some 10 year old info when I found out I was a carrier that was way off) If there's any thing else you want to know about don't hesitate to ask. I tried to give you a general overview of my particular situation, but all CFers are different. Let me know if you want more specifics. And of course, I hope all goes well with the testing and that your little boy/girl doesn't have CF. Try not to get to worried until you know for sure.

 

[RiRi]

Like many others have said you need to do what makes you feel comfortable. I have a 2 year old son with CF and a baby on the way. I never knew I was a carrier and neither did my husband. We had no record of CF on either side. I had no testing with my first baby franky because it did not matter to me either way and I did not want to take the risk of harming the baby with an amnio. I work in the medical field and see missdiagnosis all the time.
With the second child I plan to do no testing once again. Because 1 it does not matter to me either way and 2 I want to get life insurance set up on the baby before any diagnosis (dx) is made. This would be important too if I needed to get privatehealth insurance. But since the baby will be on my group coverage through work it will not matter when the dx comes, if it does come.

Sure a child with CF is extra work. But would I trade it? No way. We aren't promised the car ride home from the hospital. Becoming a mom (whether by having or adopting a child) is one of the the greatest joys on Earth.

Should CF be a concern? Yes but there at 1000's of other things out there that one could "have" or could go "wrong" that are simply not worth worrying about.
I do not know you religious preference. But I am Christian and I say pray about the matter. If you make a decision based on what you feel God is telling you to do you may just find peace no matter what the outcome.

 

[RiRi]

Like many others have said you need to do what makes you feel comfortable. I have a 2 year old son with CF and a baby on the way. I never knew I was a carrier and neither did my husband. We had no record of CF on either side. I had no testing with my first baby franky because it did not matter to me either way and I did not want to take the risk of harming the baby with an amnio. I work in the medical field and see missdiagnosis all the time.
With the second child I plan to do no testing once again. Because 1 it does not matter to me either way and 2 I want to get life insurance set up on the baby before any diagnosis (dx) is made. This would be important too if I needed to get privatehealth insurance. But since the baby will be on my group coverage through work it will not matter when the dx comes, if it does come.

Sure a child with CF is extra work. But would I trade it? No way. We aren't promised the car ride home from the hospital. Becoming a mom (whether by having or adopting a child) is one of the the greatest joys on Earth.

Should CF be a concern? Yes but there at 1000's of other things out there that one could "have" or could go "wrong" that are simply not worth worrying about.
I do not know you religious preference. But I am Christian and I say pray about the matter. If you make a decision based on what you feel God is telling you to do you may just find peace no matter what the outcome.

 

[RiRi]

Like many others have said you need to do what makes you feel comfortable. I have a 2 year old son with CF and a baby on the way. I never knew I was a carrier and neither did my husband. We had no record of CF on either side. I had no testing with my first baby franky because it did not matter to me either way and I did not want to take the risk of harming the baby with an amnio. I work in the medical field and see missdiagnosis all the time.
With the second child I plan to do no testing once again. Because 1 it does not matter to me either way and 2 I want to get life insurance set up on the baby before any diagnosis (dx) is made. This would be important too if I needed to get privatehealth insurance. But since the baby will be on my group coverage through work it will not matter when the dx comes, if it does come.

Sure a child with CF is extra work. But would I trade it? No way. We aren't promised the car ride home from the hospital. Becoming a mom (whether by having or adopting a child) is one of the the greatest joys on Earth.

Should CF be a concern? Yes but there at 1000's of other things out there that one could "have" or could go "wrong" that are simply not worth worrying about.
I do not know you religious preference. But I am Christian and I say pray about the matter. If you make a decision based on what you feel God is telling you to do you may just find peace no matter what the outcome.

 

[LouLou]

I wonder if my parents had birthed another child afte rme and it had cf if I would be angry with them. I think I would be. The thing is they didn't have the testing inutero options that you RiRi do have. I don't know what to say. I hope that the baby doesn't have it. Definitely encourage your kids to discuss things regarding this subject from a young age so it doesn't build up and become a psychological issue for them.

 

[LouLou]

I wonder if my parents had birthed another child afte rme and it had cf if I would be angry with them. I think I would be. The thing is they didn't have the testing inutero options that you RiRi do have. I don't know what to say. I hope that the baby doesn't have it. Definitely encourage your kids to discuss things regarding this subject from a young age so it doesn't build up and become a psychological issue for them.