I have been in the hospital probably 7 times, each time was something really wrong, collapsed lung, issues from surgery from collapsed lung, lung bleed - you get the picture, as in I didn't have a choice. But given the choice I avoid it at all costs.
I am curious how you all cope with being in the hospital. I have serious anxiety when I am there, i worry about my port - whether they will flush it right or put heparin in. I always have to ask for my meds cause they never come when I want them, according to <i>my</i> schedule. I am usually at the bottom of the patient list because I am sooo capable of doing things myself. The vinyl mattresses make me sweat, I can't sleep because someone thinks a 2 am weigh-in and temp is important (as in they came in I wake up and thus it is a good time) as well as a 4:30 blood draw. And manual CPT is God's gift to mucus clearance. Plus I never get enough exercise.
So for me it seems pointless, at least at home I feel comfortable and can sleep in my own bed. And manual CPT never seems to work for me, I feel like it is a waste of time to have someone beating on me when I get nothing out. Plus my parents are willing to beat on me also (I do the vest three times a day). So right now I am not gaining any ground and I compromised with my Doc that I would get admitted on Monday if the new IVs didn't work. He said okay.
Am I being unreasonable? And can someone tell me how to get all this mucus sh*t out of my lungs. UGH. I am sick of it. And I do exercise, just hard when all i do is cough on the elliptical - but I guess that is the point.
My new regimen will be Gent, Ceftaz, Prednisone. I haven't done Prednisone with IV's like this but thanks to all the info here I brought it up to my doc. I just got a new long lasting inhaler with a steroid in it.
Am I the only one that hates the hospital this much? Am I a strange CFer?
Thanks for reading my rant.
I am curious how you all cope with being in the hospital. I have serious anxiety when I am there, i worry about my port - whether they will flush it right or put heparin in. I always have to ask for my meds cause they never come when I want them, according to <i>my</i> schedule. I am usually at the bottom of the patient list because I am sooo capable of doing things myself. The vinyl mattresses make me sweat, I can't sleep because someone thinks a 2 am weigh-in and temp is important (as in they came in I wake up and thus it is a good time) as well as a 4:30 blood draw. And manual CPT is God's gift to mucus clearance. Plus I never get enough exercise.
So for me it seems pointless, at least at home I feel comfortable and can sleep in my own bed. And manual CPT never seems to work for me, I feel like it is a waste of time to have someone beating on me when I get nothing out. Plus my parents are willing to beat on me also (I do the vest three times a day). So right now I am not gaining any ground and I compromised with my Doc that I would get admitted on Monday if the new IVs didn't work. He said okay.
Am I being unreasonable? And can someone tell me how to get all this mucus sh*t out of my lungs. UGH. I am sick of it. And I do exercise, just hard when all i do is cough on the elliptical - but I guess that is the point.
My new regimen will be Gent, Ceftaz, Prednisone. I haven't done Prednisone with IV's like this but thanks to all the info here I brought it up to my doc. I just got a new long lasting inhaler with a steroid in it.
Am I the only one that hates the hospital this much? Am I a strange CFer?
Thanks for reading my rant.