I agree with Tammy G needing to find ways to treat her 4 year old who cannot make these decisions for himself. PLEASE Tammy , learn all you can before neglecting the needs of your child. I would say however, that if your CF clininc does not support your questioning some meds and procedures, try another. I dont recommend blindly doing what every doctor says, but research each side effect/long term effect/ and make your decisions with a health care profesional based on your compiled information.
I am impressed with the mother of 3 who has endured so much scrutiny unnecessarily! You are my hero mom, caring so for 3 children with CF has got to be taxing on you! I hope each of you find strength and courage to help our children fight this battle with Cystic Fibrosis, its ugly, its painful, its uncomfortable. BUT IT DOESNT go away..I hope my son will be like the 46 year old Dad who defys all CF logic, and has a child of his own. I suspect he appreciates every breathing moment life gives him!
Teaching your son early to be compliant with his treatments, will enable him to make his own health care decisions as a teenager. Not assisting him or teaching him really makes that decision for him, to ignore it. As a mother of a teenager, I respect my son a great deal for doing his treatments 3 times a day! Sure its a hassle, but SAMAZING knows its in his best interest, and he rarely misses. Rebellion is settling in in some areas of his life and I am preparred to give him some leway. If I had not taught and encouraged him since he was diagnosed, that treatments were part of his daily routine. Where would he be today, or would he even be here?!