<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>zander152</b></i>
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<br />I realize that we all might not have cf on here but I do and I could use some time to talk to another cf person, preferably older than I so I can bounce questions off them, and get a better grasp of the disease that has a horrible grasp on me. This disease has tested my patients, and sanity. In the last 2 weeks I have been diagnosed with Burkholderia Cepecia and now yesterday MRSA. I am wondering how bad this is? Am I over reacting by being scared? Do I need to wear a mask in public from now on? Can I pass this to my daughter who has asthma, how about her father that also has asthma... and if I do will it affect them negativly or will it do like it does to most normal people and just lye dormant?...please someone help me understand this.
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<br />Thanks Josh Benjamin</end quote>
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<br />Please talk to your CF doctor about cross infection and the implication of your new colonizations on your lungs. Every person is different. It does suck to find out you've colonized something new, especially the "scarier" bugs, so I can empathize with you. I have cultured MRSA once and in subsequent cultures, it hasn't shown up. It's frustrating because medicine isn't black and white, but on the same vein, it's reassuring that even though others may have had poor outcomes, others have not.
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<br />Good luck!
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<br /><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stillkicking</b></i>
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<br />Hey sorry you're going through such a tough time. I don't have B. Cepacia, that I'm aware of, I haven't done a culture in over 2 yrs. All my cultures before then were resistant to antibiotics and nothing has helped me since that time, so now I'm in an ignorance is bliss mode. Just wanted you to know you're not alone. I can't really answer your questions, but I don't think your over-reacting. Both bugs are bad. It doesn't mean the end of the world, by any means, but it can increase the difficulty level. I would definitely ask your doctor on the mask or risk of transferring it to your daughter or others with respiratory issues. The only cases of cross infection that I've heard of are between CF patients. But better safe than sorry. Hope things improve for you and that someone with more experience in your particular area responds.</end quote>
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<br />Sorry to go off-topic, but you do know that bugs that were previously resistant to antibiotics can become sensitive again. Sometimes, bugs will disappear altogether, and you can acquire new ones.
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<br />This is only my opinion, but I think that you should reconsider not getting cultured. Things can change. I have had bugs be resistant to a certain med, and after months of not using the med, it became sensitive again.
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<br />My doctor does a culture whenever I have an exacerbation, which is necessary because all three strains of PA have differing sensitivities and resistance. We want to make sure that we are treating the right bugs.
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<br />I am not sure what stage of lung disease you are in, but as you said - "better safe than sorry".
