I think my daughter has CF

[becabee]

Hi. My grandson is 9 and has a rare CF gene. He is mostly sinus and gastro. However, if he does get colds it hits him hard and as he ages his lungs are getting more affected. My daughter is 28 and also has 2 CF genes and the sweat test came out negative. Drs have told her she has CF, others say she doesn't have it but she has bronchitis and Pneumonia more than she doesn't and coughs up blood. I believe she has it. She has always had bowel problems but Drs. never tested her for CF when she was young. She showed no signs of it except that issue until she had pneumonia about 4 years ago. I'm beyond frustrated with the doctors and the insurance. I think she should be on the vest, enzymes and other treatment for cfers. Its hard for her to walk from one room to another without being out of breath. I don't believe for a minute that this is just Asthma. Any advise? Her genes are TG115T and TG117T