I'm a carrier...

M

meNdanny

New member
My husband and I just found out that we're both carriers for CF (different mutations, he's Delta F508 and I'm Delta I 507) We're scheduled to see a genetic counselor, but I'm just so overwhelmed by the enormity of it all that I can't sleep and am anxious for answers. My emotions are all over the map. I've gone from being heartbroken at the thought of not being able to have "my own" children to feeling ridiculous for even contemplating not doing so, after seeing how many people are living into midlife and getting married, having kids of their own, etc.
It sounds like living with CF is really challenging and being a parent of someone with such an awful disease is a daunting prospect, but now that i know we could pass this disease on to our children, the idea seems almost irresponsible. I don't know... how does a parent "roll the dice" or "leave it in God's hands," as one of my friends said, when they have to look at a suffering child every day and know that they could have alleviated that suffering. On the other hand, if you believe that each being is a unique combination of nature & nurture, each of my eggs is half of a person unlike any other. Is CF enough of a reason to deny that being life if God would grant it?

Please forgive me if I'm being too moralistic (maybe callous to your situation?) I'm so new to this, I'm just overflowing with all of these questions. And (of course) my husband had retreated into an emotional bubble, surrounded by a barricade of work and football. Family and friends are trying to be supportive but are surprisingly tactless...

So, I guess what I'm wondering is what sort of wisdom y'all can provide. It sounds like some of you who have CF are trying the IVF route. Is this common in the CF community? How did you come to that decision? Did any of you who are parents of CF kids know you were carriers before you had them? If so, what influenced that decision?
 
M

meNdanny

New member
My husband and I just found out that we're both carriers for CF (different mutations, he's Delta F508 and I'm Delta I 507) We're scheduled to see a genetic counselor, but I'm just so overwhelmed by the enormity of it all that I can't sleep and am anxious for answers. My emotions are all over the map. I've gone from being heartbroken at the thought of not being able to have "my own" children to feeling ridiculous for even contemplating not doing so, after seeing how many people are living into midlife and getting married, having kids of their own, etc.
It sounds like living with CF is really challenging and being a parent of someone with such an awful disease is a daunting prospect, but now that i know we could pass this disease on to our children, the idea seems almost irresponsible. I don't know... how does a parent "roll the dice" or "leave it in God's hands," as one of my friends said, when they have to look at a suffering child every day and know that they could have alleviated that suffering. On the other hand, if you believe that each being is a unique combination of nature & nurture, each of my eggs is half of a person unlike any other. Is CF enough of a reason to deny that being life if God would grant it?

Please forgive me if I'm being too moralistic (maybe callous to your situation?) I'm so new to this, I'm just overflowing with all of these questions. And (of course) my husband had retreated into an emotional bubble, surrounded by a barricade of work and football. Family and friends are trying to be supportive but are surprisingly tactless...

So, I guess what I'm wondering is what sort of wisdom y'all can provide. It sounds like some of you who have CF are trying the IVF route. Is this common in the CF community? How did you come to that decision? Did any of you who are parents of CF kids know you were carriers before you had them? If so, what influenced that decision?
 
M

meNdanny

New member
My husband and I just found out that we're both carriers for CF (different mutations, he's Delta F508 and I'm Delta I 507) We're scheduled to see a genetic counselor, but I'm just so overwhelmed by the enormity of it all that I can't sleep and am anxious for answers. My emotions are all over the map. I've gone from being heartbroken at the thought of not being able to have "my own" children to feeling ridiculous for even contemplating not doing so, after seeing how many people are living into midlife and getting married, having kids of their own, etc.
It sounds like living with CF is really challenging and being a parent of someone with such an awful disease is a daunting prospect, but now that i know we could pass this disease on to our children, the idea seems almost irresponsible. I don't know... how does a parent "roll the dice" or "leave it in God's hands," as one of my friends said, when they have to look at a suffering child every day and know that they could have alleviated that suffering. On the other hand, if you believe that each being is a unique combination of nature & nurture, each of my eggs is half of a person unlike any other. Is CF enough of a reason to deny that being life if God would grant it?

Please forgive me if I'm being too moralistic (maybe callous to your situation?) I'm so new to this, I'm just overflowing with all of these questions. And (of course) my husband had retreated into an emotional bubble, surrounded by a barricade of work and football. Family and friends are trying to be supportive but are surprisingly tactless...

So, I guess what I'm wondering is what sort of wisdom y'all can provide. It sounds like some of you who have CF are trying the IVF route. Is this common in the CF community? How did you come to that decision? Did any of you who are parents of CF kids know you were carriers before you had them? If so, what influenced that decision?
 
M

meNdanny

New member
My husband and I just found out that we're both carriers for CF (different mutations, he's Delta F508 and I'm Delta I 507) We're scheduled to see a genetic counselor, but I'm just so overwhelmed by the enormity of it all that I can't sleep and am anxious for answers. My emotions are all over the map. I've gone from being heartbroken at the thought of not being able to have "my own" children to feeling ridiculous for even contemplating not doing so, after seeing how many people are living into midlife and getting married, having kids of their own, etc.
It sounds like living with CF is really challenging and being a parent of someone with such an awful disease is a daunting prospect, but now that i know we could pass this disease on to our children, the idea seems almost irresponsible. I don't know... how does a parent "roll the dice" or "leave it in God's hands," as one of my friends said, when they have to look at a suffering child every day and know that they could have alleviated that suffering. On the other hand, if you believe that each being is a unique combination of nature & nurture, each of my eggs is half of a person unlike any other. Is CF enough of a reason to deny that being life if God would grant it?

Please forgive me if I'm being too moralistic (maybe callous to your situation?) I'm so new to this, I'm just overflowing with all of these questions. And (of course) my husband had retreated into an emotional bubble, surrounded by a barricade of work and football. Family and friends are trying to be supportive but are surprisingly tactless...

So, I guess what I'm wondering is what sort of wisdom y'all can provide. It sounds like some of you who have CF are trying the IVF route. Is this common in the CF community? How did you come to that decision? Did any of you who are parents of CF kids know you were carriers before you had them? If so, what influenced that decision?
 
M

meNdanny

New member
My husband and I just found out that we're both carriers for CF (different mutations, he's Delta F508 and I'm Delta I 507) We're scheduled to see a genetic counselor, but I'm just so overwhelmed by the enormity of it all that I can't sleep and am anxious for answers. My emotions are all over the map. I've gone from being heartbroken at the thought of not being able to have "my own" children to feeling ridiculous for even contemplating not doing so, after seeing how many people are living into midlife and getting married, having kids of their own, etc.
It sounds like living with CF is really challenging and being a parent of someone with such an awful disease is a daunting prospect, but now that i know we could pass this disease on to our children, the idea seems almost irresponsible. I don't know... how does a parent "roll the dice" or "leave it in God's hands," as one of my friends said, when they have to look at a suffering child every day and know that they could have alleviated that suffering. On the other hand, if you believe that each being is a unique combination of nature & nurture, each of my eggs is half of a person unlike any other. Is CF enough of a reason to deny that being life if God would grant it?

Please forgive me if I'm being too moralistic (maybe callous to your situation?) I'm so new to this, I'm just overflowing with all of these questions. And (of course) my husband had retreated into an emotional bubble, surrounded by a barricade of work and football. Family and friends are trying to be supportive but are surprisingly tactless...

So, I guess what I'm wondering is what sort of wisdom y'all can provide. It sounds like some of you who have CF are trying the IVF route. Is this common in the CF community? How did you come to that decision? Did any of you who are parents of CF kids know you were carriers before you had them? If so, what influenced that decision?
 
R

rubyroselee

New member
Hi Christina,

I am so happy to see that you have found this forum and you have come to find out more information.

Firstly, I can't even imagine what you might be feeling right now. But I do know that my parents went through the same feelings when they were deciding on what to do with children. I was the first born, and back then they had no way of knowing they were carriers. It seems to be such a bittersweet blessing to know that information nowadays though because it puts you in the situation that you have right now. Anyhow, once I was born with CF, they knew that they were carriers and did not know what to do about the second child - a very similar situation to yours because now they knew that they were carriers. They looked into adoption because they did not want to risk having another child with CF. They waited on an adoption list for 3 years with hardly any progress and realized that wasn't the route for them. They decided to go ahead with getting pregnant. They figured that if the second child had CF that they would love the child regardless and they would be able to take care of us. So my brother was born - and he is a carrier.

From my perspective, my life has been (and still is) rich and wonderful. I have been very fortunate in that my CF has not yet inhibited my life much at all. I am able to work full-time in healthcare, play sports, get married, and be a mom. These things my parents would have never thought were possible back in the 80's when the average life expectancy was so much lower. On the flipside though, I have seen many friends succumb to this disease at a very young age.

Life is really what you make of it, and I believe my attitude comes from the way my parents raised me. They have never held me back and pushed me to be involved. I was as "normal" as everyone else. I had meds and treatments, but that was just something they considered routine (like brushing teeth).

I feel that CF has shaped who I am and I would be quite lost in a weird way if a cure suddenly came tomorrow.

But remember, there are so many genetic gambles out there. You know of one that you guys are involved with. This is a choice that you both with have to make as a couple and weigh the options. Hopefully you can get some good input from us on this website and make the choice that's right for you both.

Take care,
Leah 26 w/CF, mom to non-biological son, attempting to get pregnant with IUI currently
<img src="C:\Documents and Settings\Owner\Desktop\landon in tub.jpg">
 
R

rubyroselee

New member
Hi Christina,

I am so happy to see that you have found this forum and you have come to find out more information.

Firstly, I can't even imagine what you might be feeling right now. But I do know that my parents went through the same feelings when they were deciding on what to do with children. I was the first born, and back then they had no way of knowing they were carriers. It seems to be such a bittersweet blessing to know that information nowadays though because it puts you in the situation that you have right now. Anyhow, once I was born with CF, they knew that they were carriers and did not know what to do about the second child - a very similar situation to yours because now they knew that they were carriers. They looked into adoption because they did not want to risk having another child with CF. They waited on an adoption list for 3 years with hardly any progress and realized that wasn't the route for them. They decided to go ahead with getting pregnant. They figured that if the second child had CF that they would love the child regardless and they would be able to take care of us. So my brother was born - and he is a carrier.

From my perspective, my life has been (and still is) rich and wonderful. I have been very fortunate in that my CF has not yet inhibited my life much at all. I am able to work full-time in healthcare, play sports, get married, and be a mom. These things my parents would have never thought were possible back in the 80's when the average life expectancy was so much lower. On the flipside though, I have seen many friends succumb to this disease at a very young age.

Life is really what you make of it, and I believe my attitude comes from the way my parents raised me. They have never held me back and pushed me to be involved. I was as "normal" as everyone else. I had meds and treatments, but that was just something they considered routine (like brushing teeth).

I feel that CF has shaped who I am and I would be quite lost in a weird way if a cure suddenly came tomorrow.

But remember, there are so many genetic gambles out there. You know of one that you guys are involved with. This is a choice that you both with have to make as a couple and weigh the options. Hopefully you can get some good input from us on this website and make the choice that's right for you both.

Take care,
Leah 26 w/CF, mom to non-biological son, attempting to get pregnant with IUI currently
<img src="C:\Documents and Settings\Owner\Desktop\landon in tub.jpg">
 
R

rubyroselee

New member
Hi Christina,

I am so happy to see that you have found this forum and you have come to find out more information.

Firstly, I can't even imagine what you might be feeling right now. But I do know that my parents went through the same feelings when they were deciding on what to do with children. I was the first born, and back then they had no way of knowing they were carriers. It seems to be such a bittersweet blessing to know that information nowadays though because it puts you in the situation that you have right now. Anyhow, once I was born with CF, they knew that they were carriers and did not know what to do about the second child - a very similar situation to yours because now they knew that they were carriers. They looked into adoption because they did not want to risk having another child with CF. They waited on an adoption list for 3 years with hardly any progress and realized that wasn't the route for them. They decided to go ahead with getting pregnant. They figured that if the second child had CF that they would love the child regardless and they would be able to take care of us. So my brother was born - and he is a carrier.

From my perspective, my life has been (and still is) rich and wonderful. I have been very fortunate in that my CF has not yet inhibited my life much at all. I am able to work full-time in healthcare, play sports, get married, and be a mom. These things my parents would have never thought were possible back in the 80's when the average life expectancy was so much lower. On the flipside though, I have seen many friends succumb to this disease at a very young age.

Life is really what you make of it, and I believe my attitude comes from the way my parents raised me. They have never held me back and pushed me to be involved. I was as "normal" as everyone else. I had meds and treatments, but that was just something they considered routine (like brushing teeth).

I feel that CF has shaped who I am and I would be quite lost in a weird way if a cure suddenly came tomorrow.

But remember, there are so many genetic gambles out there. You know of one that you guys are involved with. This is a choice that you both with have to make as a couple and weigh the options. Hopefully you can get some good input from us on this website and make the choice that's right for you both.

Take care,
Leah 26 w/CF, mom to non-biological son, attempting to get pregnant with IUI currently
<img src="C:\Documents and Settings\Owner\Desktop\landon in tub.jpg">
 
R

rubyroselee

New member
Hi Christina,

I am so happy to see that you have found this forum and you have come to find out more information.

Firstly, I can't even imagine what you might be feeling right now. But I do know that my parents went through the same feelings when they were deciding on what to do with children. I was the first born, and back then they had no way of knowing they were carriers. It seems to be such a bittersweet blessing to know that information nowadays though because it puts you in the situation that you have right now. Anyhow, once I was born with CF, they knew that they were carriers and did not know what to do about the second child - a very similar situation to yours because now they knew that they were carriers. They looked into adoption because they did not want to risk having another child with CF. They waited on an adoption list for 3 years with hardly any progress and realized that wasn't the route for them. They decided to go ahead with getting pregnant. They figured that if the second child had CF that they would love the child regardless and they would be able to take care of us. So my brother was born - and he is a carrier.

From my perspective, my life has been (and still is) rich and wonderful. I have been very fortunate in that my CF has not yet inhibited my life much at all. I am able to work full-time in healthcare, play sports, get married, and be a mom. These things my parents would have never thought were possible back in the 80's when the average life expectancy was so much lower. On the flipside though, I have seen many friends succumb to this disease at a very young age.

Life is really what you make of it, and I believe my attitude comes from the way my parents raised me. They have never held me back and pushed me to be involved. I was as "normal" as everyone else. I had meds and treatments, but that was just something they considered routine (like brushing teeth).

I feel that CF has shaped who I am and I would be quite lost in a weird way if a cure suddenly came tomorrow.

But remember, there are so many genetic gambles out there. You know of one that you guys are involved with. This is a choice that you both with have to make as a couple and weigh the options. Hopefully you can get some good input from us on this website and make the choice that's right for you both.

Take care,
Leah 26 w/CF, mom to non-biological son, attempting to get pregnant with IUI currently
<img src="C:\Documents and Settings\Owner\Desktop\landon in tub.jpg">
 
R

rubyroselee

New member
Hi Christina,

I am so happy to see that you have found this forum and you have come to find out more information.

Firstly, I can't even imagine what you might be feeling right now. But I do know that my parents went through the same feelings when they were deciding on what to do with children. I was the first born, and back then they had no way of knowing they were carriers. It seems to be such a bittersweet blessing to know that information nowadays though because it puts you in the situation that you have right now. Anyhow, once I was born with CF, they knew that they were carriers and did not know what to do about the second child - a very similar situation to yours because now they knew that they were carriers. They looked into adoption because they did not want to risk having another child with CF. They waited on an adoption list for 3 years with hardly any progress and realized that wasn't the route for them. They decided to go ahead with getting pregnant. They figured that if the second child had CF that they would love the child regardless and they would be able to take care of us. So my brother was born - and he is a carrier.

From my perspective, my life has been (and still is) rich and wonderful. I have been very fortunate in that my CF has not yet inhibited my life much at all. I am able to work full-time in healthcare, play sports, get married, and be a mom. These things my parents would have never thought were possible back in the 80's when the average life expectancy was so much lower. On the flipside though, I have seen many friends succumb to this disease at a very young age.

Life is really what you make of it, and I believe my attitude comes from the way my parents raised me. They have never held me back and pushed me to be involved. I was as "normal" as everyone else. I had meds and treatments, but that was just something they considered routine (like brushing teeth).

I feel that CF has shaped who I am and I would be quite lost in a weird way if a cure suddenly came tomorrow.

But remember, there are so many genetic gambles out there. You know of one that you guys are involved with. This is a choice that you both with have to make as a couple and weigh the options. Hopefully you can get some good input from us on this website and make the choice that's right for you both.

Take care,
Leah 26 w/CF, mom to non-biological son, attempting to get pregnant with IUI currently
<img src="C:\Documents and Settings\Owner\Desktop\landon in tub.jpg">
 
T

TonyaH

Guest
Leah, very well said!
Christina, I can repeat everything in Leah's post except the adoption waiting list. I, however, am the mom. After our son was born we struggled with the decision of wether or not to have more children. After 3 1/2 years of considering our options we, too, decided that we would love our second child with or without CF. CF is not the same as it was 20 years ago and with the right medication, treatments, etc., we expect Andrew to live a very full life!

Follow your heart. The fact that you are proacting and learning about your carrier status shows that you will be very committed parents regardless of your CF results. And remember..odds are in your favor.

Oh, and by the way...our daughter is now 5 years old, just started kindergarten, and is the healthies little girl I've ever known!

Good luck as you make your decision and keep up posted!
Tonya
 
T

TonyaH

Guest
Leah, very well said!
Christina, I can repeat everything in Leah's post except the adoption waiting list. I, however, am the mom. After our son was born we struggled with the decision of wether or not to have more children. After 3 1/2 years of considering our options we, too, decided that we would love our second child with or without CF. CF is not the same as it was 20 years ago and with the right medication, treatments, etc., we expect Andrew to live a very full life!

Follow your heart. The fact that you are proacting and learning about your carrier status shows that you will be very committed parents regardless of your CF results. And remember..odds are in your favor.

Oh, and by the way...our daughter is now 5 years old, just started kindergarten, and is the healthies little girl I've ever known!

Good luck as you make your decision and keep up posted!
Tonya
 
T

TonyaH

Guest
Leah, very well said!
Christina, I can repeat everything in Leah's post except the adoption waiting list. I, however, am the mom. After our son was born we struggled with the decision of wether or not to have more children. After 3 1/2 years of considering our options we, too, decided that we would love our second child with or without CF. CF is not the same as it was 20 years ago and with the right medication, treatments, etc., we expect Andrew to live a very full life!

Follow your heart. The fact that you are proacting and learning about your carrier status shows that you will be very committed parents regardless of your CF results. And remember..odds are in your favor.

Oh, and by the way...our daughter is now 5 years old, just started kindergarten, and is the healthies little girl I've ever known!

Good luck as you make your decision and keep up posted!
Tonya
 
T

TonyaH

Guest
Leah, very well said!
Christina, I can repeat everything in Leah's post except the adoption waiting list. I, however, am the mom. After our son was born we struggled with the decision of wether or not to have more children. After 3 1/2 years of considering our options we, too, decided that we would love our second child with or without CF. CF is not the same as it was 20 years ago and with the right medication, treatments, etc., we expect Andrew to live a very full life!

Follow your heart. The fact that you are proacting and learning about your carrier status shows that you will be very committed parents regardless of your CF results. And remember..odds are in your favor.

Oh, and by the way...our daughter is now 5 years old, just started kindergarten, and is the healthies little girl I've ever known!

Good luck as you make your decision and keep up posted!
Tonya
 
T

TonyaH

Guest
Leah, very well said!
Christina, I can repeat everything in Leah's post except the adoption waiting list. I, however, am the mom. After our son was born we struggled with the decision of wether or not to have more children. After 3 1/2 years of considering our options we, too, decided that we would love our second child with or without CF. CF is not the same as it was 20 years ago and with the right medication, treatments, etc., we expect Andrew to live a very full life!

Follow your heart. The fact that you are proacting and learning about your carrier status shows that you will be very committed parents regardless of your CF results. And remember..odds are in your favor.

Oh, and by the way...our daughter is now 5 years old, just started kindergarten, and is the healthies little girl I've ever known!

Good luck as you make your decision and keep up posted!
Tonya
 
M

mneville

Guest
Christina--- My husband and I are both carriers of the Delta F508. We had no idea until our firstborn son was diagnosed with CF at 8 days old. It was devastating. Not to say that I wish Aidan wasn't here but had we known prior that we were carriers, we would have looked at other options. There are other options!

After much research, we found out about IVF with PGD. We chose this route to have our second child, Gavin who is now 4 months old and does NOT have Cystic Fibrosis. It is not easy but it is a great option for couples like us who face some very difficult decisions about taking the chance with CF and bearing children.

Here's how it works:: You would go through IVF which involves stimulating your ovaries to produce lots of eggs. Once you have produced the eggs, your husband's sperm will fertilize the egg through a process called ICSI. The embryos will then develop for three days. On Day three, one cell from each embryo will be taken out and biopsied to see CF status. IF you have embryos that do not have CF, they will be transferred back to your uterus and hopefully you will become pregnant!

Obviously it was not our preferred way to have children. Our son Aidan was conceived very easily so to go through all this was hard. But it was so worth it!! Please email me if you want contact information....You can have biological children without taking the 1 in 4 chance. Let me say that PGD is not 100% accurate but it's about 96-98% from quotes that I've read. My email is
meganeneville@hotmail.com

Best of luck and have faith. Tell your husband it is very possible! We are even considering doing it again.
Megan
 
M

mneville

Guest
Christina--- My husband and I are both carriers of the Delta F508. We had no idea until our firstborn son was diagnosed with CF at 8 days old. It was devastating. Not to say that I wish Aidan wasn't here but had we known prior that we were carriers, we would have looked at other options. There are other options!

After much research, we found out about IVF with PGD. We chose this route to have our second child, Gavin who is now 4 months old and does NOT have Cystic Fibrosis. It is not easy but it is a great option for couples like us who face some very difficult decisions about taking the chance with CF and bearing children.

Here's how it works:: You would go through IVF which involves stimulating your ovaries to produce lots of eggs. Once you have produced the eggs, your husband's sperm will fertilize the egg through a process called ICSI. The embryos will then develop for three days. On Day three, one cell from each embryo will be taken out and biopsied to see CF status. IF you have embryos that do not have CF, they will be transferred back to your uterus and hopefully you will become pregnant!

Obviously it was not our preferred way to have children. Our son Aidan was conceived very easily so to go through all this was hard. But it was so worth it!! Please email me if you want contact information....You can have biological children without taking the 1 in 4 chance. Let me say that PGD is not 100% accurate but it's about 96-98% from quotes that I've read. My email is
meganeneville@hotmail.com

Best of luck and have faith. Tell your husband it is very possible! We are even considering doing it again.
Megan
 
M

mneville

Guest
Christina--- My husband and I are both carriers of the Delta F508. We had no idea until our firstborn son was diagnosed with CF at 8 days old. It was devastating. Not to say that I wish Aidan wasn't here but had we known prior that we were carriers, we would have looked at other options. There are other options!

After much research, we found out about IVF with PGD. We chose this route to have our second child, Gavin who is now 4 months old and does NOT have Cystic Fibrosis. It is not easy but it is a great option for couples like us who face some very difficult decisions about taking the chance with CF and bearing children.

Here's how it works:: You would go through IVF which involves stimulating your ovaries to produce lots of eggs. Once you have produced the eggs, your husband's sperm will fertilize the egg through a process called ICSI. The embryos will then develop for three days. On Day three, one cell from each embryo will be taken out and biopsied to see CF status. IF you have embryos that do not have CF, they will be transferred back to your uterus and hopefully you will become pregnant!

Obviously it was not our preferred way to have children. Our son Aidan was conceived very easily so to go through all this was hard. But it was so worth it!! Please email me if you want contact information....You can have biological children without taking the 1 in 4 chance. Let me say that PGD is not 100% accurate but it's about 96-98% from quotes that I've read. My email is
meganeneville@hotmail.com

Best of luck and have faith. Tell your husband it is very possible! We are even considering doing it again.
Megan
 
M

mneville

Guest
Christina--- My husband and I are both carriers of the Delta F508. We had no idea until our firstborn son was diagnosed with CF at 8 days old. It was devastating. Not to say that I wish Aidan wasn't here but had we known prior that we were carriers, we would have looked at other options. There are other options!

After much research, we found out about IVF with PGD. We chose this route to have our second child, Gavin who is now 4 months old and does NOT have Cystic Fibrosis. It is not easy but it is a great option for couples like us who face some very difficult decisions about taking the chance with CF and bearing children.

Here's how it works:: You would go through IVF which involves stimulating your ovaries to produce lots of eggs. Once you have produced the eggs, your husband's sperm will fertilize the egg through a process called ICSI. The embryos will then develop for three days. On Day three, one cell from each embryo will be taken out and biopsied to see CF status. IF you have embryos that do not have CF, they will be transferred back to your uterus and hopefully you will become pregnant!

Obviously it was not our preferred way to have children. Our son Aidan was conceived very easily so to go through all this was hard. But it was so worth it!! Please email me if you want contact information....You can have biological children without taking the 1 in 4 chance. Let me say that PGD is not 100% accurate but it's about 96-98% from quotes that I've read. My email is
meganeneville@hotmail.com

Best of luck and have faith. Tell your husband it is very possible! We are even considering doing it again.
Megan
 
M

mneville

Guest
Christina--- My husband and I are both carriers of the Delta F508. We had no idea until our firstborn son was diagnosed with CF at 8 days old. It was devastating. Not to say that I wish Aidan wasn't here but had we known prior that we were carriers, we would have looked at other options. There are other options!

After much research, we found out about IVF with PGD. We chose this route to have our second child, Gavin who is now 4 months old and does NOT have Cystic Fibrosis. It is not easy but it is a great option for couples like us who face some very difficult decisions about taking the chance with CF and bearing children.

Here's how it works:: You would go through IVF which involves stimulating your ovaries to produce lots of eggs. Once you have produced the eggs, your husband's sperm will fertilize the egg through a process called ICSI. The embryos will then develop for three days. On Day three, one cell from each embryo will be taken out and biopsied to see CF status. IF you have embryos that do not have CF, they will be transferred back to your uterus and hopefully you will become pregnant!

Obviously it was not our preferred way to have children. Our son Aidan was conceived very easily so to go through all this was hard. But it was so worth it!! Please email me if you want contact information....You can have biological children without taking the 1 in 4 chance. Let me say that PGD is not 100% accurate but it's about 96-98% from quotes that I've read. My email is
meganeneville@hotmail.com

Best of luck and have faith. Tell your husband it is very possible! We are even considering doing it again.
Megan
 
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