Immunodeficiency treatment options

kenna2

Member
So I recently found out in my search for answers in treatment for the swelling and fevers that happen before I get sick that I have an immunodeficiency that mimics Lupus. I have a CF clinic appointment tomorrow that I will be asking for recommendations on doctors to see. I was curious though as to what kind of treatment others have gotten for this. What medication you are taking and would recommend. Thanks!
 

Ratatosk

Administrator
Staff member
When DS was first diagnosed wcf, I "met" a woman online whose child was diagnosed wcf and had a vest, but later because the because his mutations were so rare or not considered disease causing, it was determined he didn't have cf and they were searching for other answers to his issues. Anyway, he also was being treated for immunodeficiency and would go to the hospital for IVIG or IV Immunoglobulin therapy
 
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