In Case Anyone's Interested

hmw

New member
The CFF site has updated it's <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/">Care Center Network</a> data to now include 2008 statistics. I know I find this data valuable & I'm sure many of you do too in researching clinics and knowing what to keep on top of with your child's care if there's something they may lag behind in. Up until recently (I think the last time I checked was just in the last few weeks) it was only showing up through 2007 ...I've been wondering when it would be updated!

I was thrilled to see our center has achieved the national goal for Lung Function in children... 98% <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

hmw

New member
The CFF site has updated it's <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/">Care Center Network</a> data to now include 2008 statistics. I know I find this data valuable & I'm sure many of you do too in researching clinics and knowing what to keep on top of with your child's care if there's something they may lag behind in. Up until recently (I think the last time I checked was just in the last few weeks) it was only showing up through 2007 ...I've been wondering when it would be updated!

I was thrilled to see our center has achieved the national goal for Lung Function in children... 98% <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

hmw

New member
The CFF site has updated it's <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/">Care Center Network</a> data to now include 2008 statistics. I know I find this data valuable & I'm sure many of you do too in researching clinics and knowing what to keep on top of with your child's care if there's something they may lag behind in. Up until recently (I think the last time I checked was just in the last few weeks) it was only showing up through 2007 ...I've been wondering when it would be updated!

I was thrilled to see our center has achieved the national goal for Lung Function in children... 98% <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

hmw

New member
The CFF site has updated it's <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/">Care Center Network</a> data to now include 2008 statistics. I know I find this data valuable & I'm sure many of you do too in researching clinics and knowing what to keep on top of with your child's care if there's something they may lag behind in. Up until recently (I think the last time I checked was just in the last few weeks) it was only showing up through 2007 ...I've been wondering when it would be updated!

I was thrilled to see our center has achieved the national goal for Lung Function in children... 98% <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

hmw

New member
The CFF site has updated it's <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/">Care Center Network</a> data to now include 2008 statistics. I know I find this data valuable & I'm sure many of you do too in researching clinics and knowing what to keep on top of with your child's care if there's something they may lag behind in. Up until recently (I think the last time I checked was just in the last few weeks) it was only showing up through 2007 ...I've been wondering when it would be updated!
<br />
<br />I was thrilled to see our center has achieved the national goal for Lung Function in children... 98% <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br />
 
M

Mommafirst

Guest
Of course we are interested! Thanks for sharing!! I have seen our center's data already because I'm involved at the center -- but I'm eager to see it all together.
 
M

Mommafirst

Guest
Of course we are interested! Thanks for sharing!! I have seen our center's data already because I'm involved at the center -- but I'm eager to see it all together.
 
M

Mommafirst

Guest
Of course we are interested! Thanks for sharing!! I have seen our center's data already because I'm involved at the center -- but I'm eager to see it all together.
 
M

Mommafirst

Guest
Of course we are interested! Thanks for sharing!! I have seen our center's data already because I'm involved at the center -- but I'm eager to see it all together.
 
M

Mommafirst

Guest
Of course we are interested! Thanks for sharing!! I have seen our center's data already because I'm involved at the center -- but I'm eager to see it all together.
 

hmw

New member
We have our annual education day in a few weeks and I am sure they will be talking about this info then, too. I'll be happy to tell them I already have it when I see them at Emily's clinic next week! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like the multi-center link you can utilize on the left sidebar... you can compare ALL centers respiratory data, for example, and then at the bottom see an overall chart of 'outcome ranges'.

I am extremely pleased with our center's performance & care overall (4th highest in both lung function and nutritional status), but this set of information gives me another valuable piece of information: it tells me they are well below average in screening for cfrd. It's valuable for me to know this, since it ensures that I will be vigilant Emily doesn't slip through the cracks and gets tested when she should, even if *they* don't initiate it.
 

hmw

New member
We have our annual education day in a few weeks and I am sure they will be talking about this info then, too. I'll be happy to tell them I already have it when I see them at Emily's clinic next week! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like the multi-center link you can utilize on the left sidebar... you can compare ALL centers respiratory data, for example, and then at the bottom see an overall chart of 'outcome ranges'.

I am extremely pleased with our center's performance & care overall (4th highest in both lung function and nutritional status), but this set of information gives me another valuable piece of information: it tells me they are well below average in screening for cfrd. It's valuable for me to know this, since it ensures that I will be vigilant Emily doesn't slip through the cracks and gets tested when she should, even if *they* don't initiate it.
 

hmw

New member
We have our annual education day in a few weeks and I am sure they will be talking about this info then, too. I'll be happy to tell them I already have it when I see them at Emily's clinic next week! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like the multi-center link you can utilize on the left sidebar... you can compare ALL centers respiratory data, for example, and then at the bottom see an overall chart of 'outcome ranges'.

I am extremely pleased with our center's performance & care overall (4th highest in both lung function and nutritional status), but this set of information gives me another valuable piece of information: it tells me they are well below average in screening for cfrd. It's valuable for me to know this, since it ensures that I will be vigilant Emily doesn't slip through the cracks and gets tested when she should, even if *they* don't initiate it.
 

hmw

New member
We have our annual education day in a few weeks and I am sure they will be talking about this info then, too. I'll be happy to tell them I already have it when I see them at Emily's clinic next week! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like the multi-center link you can utilize on the left sidebar... you can compare ALL centers respiratory data, for example, and then at the bottom see an overall chart of 'outcome ranges'.

I am extremely pleased with our center's performance & care overall (4th highest in both lung function and nutritional status), but this set of information gives me another valuable piece of information: it tells me they are well below average in screening for cfrd. It's valuable for me to know this, since it ensures that I will be vigilant Emily doesn't slip through the cracks and gets tested when she should, even if *they* don't initiate it.
 

hmw

New member
We have our annual education day in a few weeks and I am sure they will be talking about this info then, too. I'll be happy to tell them I already have it when I see them at Emily's clinic next week! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like the multi-center link you can utilize on the left sidebar... you can compare ALL centers respiratory data, for example, and then at the bottom see an overall chart of 'outcome ranges'.
<br />
<br />I am extremely pleased with our center's performance & care overall (4th highest in both lung function and nutritional status), but this set of information gives me another valuable piece of information: it tells me they are well below average in screening for cfrd. It's valuable for me to know this, since it ensures that I will be vigilant Emily doesn't slip through the cracks and gets tested when she should, even if *they* don't initiate it.
 

3LilFightersmom

New member
hmw- our clinic starts screening for cfrd at age 6. My oldest will be screened this year. Do you know what the CFF guidelines say about what age it should start being done?
 

3LilFightersmom

New member
hmw- our clinic starts screening for cfrd at age 6. My oldest will be screened this year. Do you know what the CFF guidelines say about what age it should start being done?
 

3LilFightersmom

New member
hmw- our clinic starts screening for cfrd at age 6. My oldest will be screened this year. Do you know what the CFF guidelines say about what age it should start being done?
 

3LilFightersmom

New member
hmw- our clinic starts screening for cfrd at age 6. My oldest will be screened this year. Do you know what the CFF guidelines say about what age it should start being done?
 

3LilFightersmom

New member
hmw- our clinic starts screening for cfrd at age 6. My oldest will be screened this year. Do you know what the CFF guidelines say about what age it should start being done?
 
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