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Cherylwithone

Guest
Malora is in the hospital. She was admitted on the 10th after a clinic visit. Her weight dropped to 88 pounds and she is fighting an infection. We thought pop in get the PICC and all is well. Instead it's get endrocin, ENT, GI, Renal and Pulomnary all together on this stay. Her electrolites (sp) are messed up. The postassium levels are low and she is anemic.

12/19/2008 Malora got out today at 2pm. They were rushing to beat the storm. They released her at 89 Pounds.
Still low but we are working on it. They did take out the PICC and started her on inhaled Tobi and Cipro. We also got a new feeding pump. It is a Infinity pump. We love it!!
I have never seen a pump so small. It is 1.95 H x 5.65 W x
4.05 D and weighs just 14.4oz's. And they got her a Vest. Yes, Iam one of those moms that has been doing CPT. I want to thank everyone for there well wishes and prayers. This really hit us from left field.

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
Malora is in the hospital. She was admitted on the 10th after a clinic visit. Her weight dropped to 88 pounds and she is fighting an infection. We thought pop in get the PICC and all is well. Instead it's get endrocin, ENT, GI, Renal and Pulomnary all together on this stay. Her electrolites (sp) are messed up. The postassium levels are low and she is anemic.

12/19/2008 Malora got out today at 2pm. They were rushing to beat the storm. They released her at 89 Pounds.
Still low but we are working on it. They did take out the PICC and started her on inhaled Tobi and Cipro. We also got a new feeding pump. It is a Infinity pump. We love it!!
I have never seen a pump so small. It is 1.95 H x 5.65 W x
4.05 D and weighs just 14.4oz's. And they got her a Vest. Yes, Iam one of those moms that has been doing CPT. I want to thank everyone for there well wishes and prayers. This really hit us from left field.

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
Malora is in the hospital. She was admitted on the 10th after a clinic visit. Her weight dropped to 88 pounds and she is fighting an infection. We thought pop in get the PICC and all is well. Instead it's get endrocin, ENT, GI, Renal and Pulomnary all together on this stay. Her electrolites (sp) are messed up. The postassium levels are low and she is anemic.

12/19/2008 Malora got out today at 2pm. They were rushing to beat the storm. They released her at 89 Pounds.
Still low but we are working on it. They did take out the PICC and started her on inhaled Tobi and Cipro. We also got a new feeding pump. It is a Infinity pump. We love it!!
I have never seen a pump so small. It is 1.95 H x 5.65 W x
4.05 D and weighs just 14.4oz's. And they got her a Vest. Yes, Iam one of those moms that has been doing CPT. I want to thank everyone for there well wishes and prayers. This really hit us from left field.

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
Malora is in the hospital. She was admitted on the 10th after a clinic visit. Her weight dropped to 88 pounds and she is fighting an infection. We thought pop in get the PICC and all is well. Instead it's get endrocin, ENT, GI, Renal and Pulomnary all together on this stay. Her electrolites (sp) are messed up. The postassium levels are low and she is anemic.

12/19/2008 Malora got out today at 2pm. They were rushing to beat the storm. They released her at 89 Pounds.
Still low but we are working on it. They did take out the PICC and started her on inhaled Tobi and Cipro. We also got a new feeding pump. It is a Infinity pump. We love it!!
I have never seen a pump so small. It is 1.95 H x 5.65 W x
4.05 D and weighs just 14.4oz's. And they got her a Vest. Yes, Iam one of those moms that has been doing CPT. I want to thank everyone for there well wishes and prayers. This really hit us from left field.

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
Malora is in the hospital. She was admitted on the 10th after a clinic visit. Her weight dropped to 88 pounds and she is fighting an infection. We thought pop in get the PICC and all is well. Instead it's get endrocin, ENT, GI, Renal and Pulomnary all together on this stay. Her electrolites (sp) are messed up. The postassium levels are low and she is anemic.
<br />
<br />12/19/2008 Malora got out today at 2pm. They were rushing to beat the storm. They released her at 89 Pounds.
<br />Still low but we are working on it. They did take out the PICC and started her on inhaled Tobi and Cipro. We also got a new feeding pump. It is a Infinity pump. We love it!!
<br />I have never seen a pump so small. It is 1.95 H x 5.65 W x
<br />4.05 D and weighs just 14.4oz's. And they got her a Vest. Yes, Iam one of those moms that has been doing CPT. I want to thank everyone for there well wishes and prayers. This really hit us from left field.
<br />
<br />Cheryl mom to Malora 15 w/cf
 
J

JORDYSMOM

New member
Cheryl, I'm so sorry Malora is struggling. I'll be thinking of you guys. Please keep us posted.
<br />
<br />Stacey
 
K

kayleesgrandma

New member
It was so nice to finally get to talk to you the other night! I am thinking and praying for you and Malora, and hoping you will be out in time for Christmas<img src="i/expressions/heart.gif" border="0">
 
K

kayleesgrandma

New member
It was so nice to finally get to talk to you the other night! I am thinking and praying for you and Malora, and hoping you will be out in time for Christmas<img src="i/expressions/heart.gif" border="0">
 
K

kayleesgrandma

New member
It was so nice to finally get to talk to you the other night! I am thinking and praying for you and Malora, and hoping you will be out in time for Christmas<img src="i/expressions/heart.gif" border="0">
 
K

kayleesgrandma

New member
It was so nice to finally get to talk to you the other night! I am thinking and praying for you and Malora, and hoping you will be out in time for Christmas<img src="i/expressions/heart.gif" border="0">
 
K

kayleesgrandma

New member
It was so nice to finally get to talk to you the other night! I am thinking and praying for you and Malora, and hoping you will be out in time for Christmas<img src="i/expressions/heart.gif" border="0">
 
C

Cherylwithone

Guest
She dropped another pound over night. Down to 87. For someone that is 5 3/4 and is almost 16 that is not agood weight. The PICC is her new best friend. They keep pulling labs every few hours. She will be in all weekend and they have not said a release date. Terri thanks so much for calling and checking up. It was so nice to have someone to talk to. Stacy thanks for the post. It's nice after watching your daughter cry because she is back on the night time feeds. She HATES THEM!

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
She dropped another pound over night. Down to 87. For someone that is 5 3/4 and is almost 16 that is not agood weight. The PICC is her new best friend. They keep pulling labs every few hours. She will be in all weekend and they have not said a release date. Terri thanks so much for calling and checking up. It was so nice to have someone to talk to. Stacy thanks for the post. It's nice after watching your daughter cry because she is back on the night time feeds. She HATES THEM!

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
She dropped another pound over night. Down to 87. For someone that is 5 3/4 and is almost 16 that is not agood weight. The PICC is her new best friend. They keep pulling labs every few hours. She will be in all weekend and they have not said a release date. Terri thanks so much for calling and checking up. It was so nice to have someone to talk to. Stacy thanks for the post. It's nice after watching your daughter cry because she is back on the night time feeds. She HATES THEM!

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
She dropped another pound over night. Down to 87. For someone that is 5 3/4 and is almost 16 that is not agood weight. The PICC is her new best friend. They keep pulling labs every few hours. She will be in all weekend and they have not said a release date. Terri thanks so much for calling and checking up. It was so nice to have someone to talk to. Stacy thanks for the post. It's nice after watching your daughter cry because she is back on the night time feeds. She HATES THEM!

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
She dropped another pound over night. Down to 87. For someone that is 5 3/4 and is almost 16 that is not agood weight. The PICC is her new best friend. They keep pulling labs every few hours. She will be in all weekend and they have not said a release date. Terri thanks so much for calling and checking up. It was so nice to have someone to talk to. Stacy thanks for the post. It's nice after watching your daughter cry because she is back on the night time feeds. She HATES THEM!
<br />
<br />Cheryl mom to Malora 15 w/cf
 
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