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lilmac7

New member
Ok now that I have some time I'll respond to what's going through my mind now. And this doesn't mean I'll be leaving here as the people on this forum and the information here I find invaluable. But I just gotta say what's on my mind now.First off I must say from years ago when I first came across this site I was apprehensive to join because I wondered and hoped that it wasn't a means of exploiting CFer for financial gain so I snooped around for a while here just taking in information and upon coming to the conclusion that there's allot of knowledge here and it's a nice place/means for us CFers to connect. All these years I've held back from researching into the owners or anything much other than just being on the forums for research purposes and to relate to other cfers - though couldn't help but noticing the nice very noticeable "Donate" button and wonder what all the donations, links and adverts are in aid of. I just convinced myself that it was for good and to stay away from asking or researching myself. Through the years of me being a member here I went quite a while of inactivity so missed the past drama or "exoduses" as I see it being referred to - Thank God, so the times I would come back to interact/research or whatever were free from this stuff.However, now that this is out (again I guess I can say though I missed the first instances of it happening) I too have a bad taste in my mouth. And my reasons are these tho firstly let me get out the way that I don't see anything wrong with making money from such a site as this as long as something is being given back to the community and or it is being used to run the site such as compensating moderators, tho I'm sure there's people that would do it for free for their association with the CF community but if it's necessary then so be it money will need to be made some way to keep it afloat.So anyway on to my reasons for the bitter taste in my mouth now... A domain name and website hosting is cheap and not that expensive so I see that cost being recovered easily especially being the domain name it is, the advertising and associations on it therefore I don't see those costs being a factor.I find two responses from Immogene particularly contradictory right here in this one thread and I never even had to search: "We always thought it would be good if one day cysticfibrosis.com could be a self sustaining site continuing to provide project based employment to members, except not from our personal funds as it does now"and "Even charitable sites run on the bottom line. Usually two bottom lines, meeting the needs of the community and keeping the site sustained!" Maybe I misread/misunderstood something in there but this on one hand says the site is being subsidized from your own pocket yet on another says and explain how it is sustained through bottom lines/donations or whatever the case may be - so which is it, or was that a "oops I didn't mean to say that" moment now?
The facebook thing that has been brought out here I find totally disgusting and appauling. Why in the world should she be blocked/banned because she started a facebook group to help in whatever way she can for other <strong>CFERS</strong> going through what she is/was going through? Like seriously? Unbelievable!!! But clearly it happened and speaks of the characters behind the scene to me.
Now knowing some history of how this site started, and this is the biggie for me, I cannot help but link some key factors that again bothers me ad is actually the basis of what I feared and didn't want to find out or know if it was the case when I originally found this site but hey now I know."Let me tell a little of how this site began. I didn't have a connection to CF in 1996, but my business partner did have CF. Having set up a business developing HealthCare websites, Medrise bought many key word domains, cysticfibrosis.com being one of them." - this is probably by far the most bothering for me - this shows that clearly and knowledgeably cysticfibrosis.com was bought at the boom of the dot com erra where people were coining money off dot com names - so no gripes with that but this throws a medical aspect into it (which we all know the medical industry is probably the most booming) which says to me to be exploiting for financial gain from illnesses - making money whether directly or indirectly from people who suffer from illnesses. This also states you had no connection to CF which is worse and another big lime in my mouth. You and your husband having a physical therapist business for me again links the way of how you could've/might've came to find out about CF cause back then physio therapy was often done at physio clinics/businesses. Makes me wonder if now you'd have prefered to have bought Pepsi.com or Oprahwhinfrey.com - see where I'm going and how I'm linking this all together? For those not educated enough to know people made a fortune back in the day and still now but not as easily by buying domain names of popular things then when it's wanted by the interested party they either sold it for lots of money or even smarter leased it and collect a fortune over time cause like I say it's cheap to own a domain name. Other ways is also to get enough traffic and even better if it's a very catchy/high ranked name for searches of the topic then they can and chances are will be approched by advertizers, therefore make money. was this and others of Jeanne's domains profitable niches is questionable and I don't have the answer to that but what bugs me is the fact of those connections to that intent is VERY possible....worse so when I see what appears to be the top one www.mlburke.com which states this and I highlighted some points too that stood out to me
"ML<span style="font-size: 9pt; font-family: arial;">Burke Consulting, Inc. is a full service Web development, Women’s Business Enterprise (“<a href="http://www.wbenc.org" target="_blank">WBE</a>&rdquo<img src="i/expressions/face-icon-small-wink.gif" border="0"> founded in 1996. Jeanne Barnett, President, CEO is a visionary and a true pioneer in Internet website design, development and Internet marketing optimization. <strong>With 54 vertical medical and health domain sites, M.L. Burke Consulting, Inc. offers our portal sites as enhancements to dynamic Internet marketing strategies</strong>. We’re branded and extend this unparalleled Internet marketing opportunity to our clients. The professional staff at M.L. Burke Consulting, Inc. consists of Internet technologists, infrastructure technologists, physical therapists, occupational therapists, pediatric specialists, marketing strategists, educators, writers and artists. Our team has the capability to design, develop, maintain and optimally market crafted websites that are creative, functional and cutting edge. We pride ourselves on meeting and surpassing our clients’ needs and expectations. M.L. Burke Consulting, Inc. welcomes the opportunity to work together with medical and healthcare companies concerning their web presence."
This does not sound like an all caring and so concerned person interested in the CF community and to promote research, drug development, betterment of life or anything of the sort for CFers or any illnesses to be honest. I randomly checked domains on the list there and all I checked were owned by her company - Medrise. This all seems of a financal web for "Me me me, mine mine mine".
Again, how successfull all these domains are and all the links and stuff it questionable and I don't have the answer to that but it does look to me like the intent is to make money.
As for giving back with ipads and tablets and meeting with some people in NY/NJ almost means nothing to me and can anyone confirm this?...like I said I have no probelem with a site such as this making money just as long as it gives back to the community and what better way to come across as genuine than to have people here meet "you" but the question is are they meeting the real you or just a front to come back and give good word of their experience so to secure and promote the "genuine-ness" of the site and it's owners. Also the fact that some sponsors would quite possibly just drop out like a hot potato if they didn't see some giving back. I have no idea even if the ipads and tablets is a true thing and honestly yes it might be a nice gesture to kids but how about something like maybe now and then giving/donating a eFlow or something like that someone that doesn't have access to get one, something like that I would find way more beneficial/relevant and would say ALLOT for the intentions of this site!
Anyway I've said enough I think, lastly I'll just say the bitter taste I have for this now is kind of akin to how I feel sometimes when I see allot of foundations collecting to fight to cure this and that and to date I see no cure for anything other than Vitamin C to cure Lime disease - yet scientist have cloned sheep! You kidding me?! They can do something as complex as that so I can only come to the comclusion that at the end of it Pharma companies have no intention to cure anything, just to make therapies that either treat symptoms or underlying causes of diseases cause thay way they make tons of money - there's no way they'll make as much if they do cure then guess what eventually the disease will become nonexistent. And then the part of these foundations collecting money for to assist with these drugs coming out, never have I EVER heard these efforts and donations affecting the cost of a drug to be more affordable due to these causes/foundations/donations, we're just fed - Costs for drug development and to pass regulations are so expensive so is why we have to charge and arm a leg and a head for it. So just as we as people with illnesses are being exploited by the Phama industry I see this as a possible way for us CFers or people with illnesses to be exploited.
End Rant/
 
A

alegris

Guest
I guess I'll be the first to say......
What the f***?!
This thread is crazy. Like really?
Couldn't we all be better spending our time doing physio or going for a run instead of arguing/reading about this s***?
 

lilmac7

New member
What? That more ppl will now chime in with stuff that bothers them or possibly bring more out to light? No offense but if people feel a way over this topic and got something to say then this might as well be the place rather than multiple threads coming up about it as people start more to say what they want on the topic. And the ones that don't want to have anything to do with it then just don't read it, simple.
 
M

Mommafirst

Guest
Come on Mark. In the 1990's domain names were purchased in bulk by many people with intents to own them, develop them, hold them or sell them. Just because you have a personal connection to CF (as we all do) doesn't mean that someone without a personal connection couldn't have found an interest in owning it. I don't get the bashing that this site is a business venture....what other sites do you frequent? Aren't most of them businesses? Do you Google? Do you Facebook? How about Twitter? All are multi million dollar companies started off a domain name.

And just because CF is a sucky disease doesn't mean that the site needs to be run as a charity. It needs to be sustainable and whatever business model the owners use is their business. They've been pretty transparent with the model....advertising for products CF patients may use mainly. When these companies want further information from this targeted audience, Jeanne and her company are insistent that they pay users for participation in questionnaires and similar information.

As for the donate button, it takes you to the non-profit 501(c) foundation Jeanne created called Tech CF that aims to get technology in the hands of CF patients. This foundation is a direct result of the charitable work Jeanne does because of the lives that have touched her here...in her BUSINESS...where she has seen the power of technology for "e-patients". I can attest to the iPads being for real and not some sham. My daughter was granted one two years ago, and this past spring my daughter's CF center was granted one as well to help with CF education and other in/out patient uses. I have not met Jeanne, but I have spoken with her on the phone and I can assure you that her mission has never been to take advantage of the members that use this site, but she does seek to find ways to keep the site funded.

Websites are a lot more than just the cost of the domain name.... this one has people that work for the company maintaining, developing and building it. Whether you think the tech savvy of this site is wonderful or not, it doesn't run itself and people and technology are not free.

I'm sorry people feel they need to leave, I have great respect for Jonathan and Frank and wish them well. I don't really need to discuss this part anymore, but with weird accusations flying that are the exact opposite of what I have see, I felt the need to speak up.
 
R

RytheStunner

Guest
@Mommafirst - just because you've only experienced the good side of things doesn't mean that's the only side that exists. Obviously people here HAVE been taken advantage of, unless you're implying that all of the negative stories and experiences shared here have been made up. There's clearly a different side here that you haven't seen or experienced.
 

Imogene

Administrator
Thanks for the replys. Yes, I do own many domain names, from the late 1990's. Community members have even had the opportunity to work on some of them with me.
My company Medrise is an on line medical company. I believe I gave the reasons for owning this domain and believing in this community.
Funny thing is: YES the iPads have gone out to community members...and many of the responders have received them from us and are using them for business and during hospital stays....Frank, Jonathan, Rye, Charlie and even Mark's family have each received an iPad2.
These came directly from donations to the community from my family and others. We continue to look for ways to send out digital to this community. At least four CF centers have received iPads. We have also sent out Kindle Fires.
Children in hospitals have received iPads. I believe the number is now at 24 and growing!
I continue to work diligently and on the front lines with this community in finding ways to use all the new digital devices.
I wish others well in their work. I am looking forward to hearing about the good things that you all will be doing with digital and otherwise.
Salt and Light!
Jeanne
 

Imogene

Administrator
I was at church today and the minister said something so interesting.

This may be a good response to Printer, Cherylwithone and Liza (so glad to see you again!)

What he said was:

Try to Respond and not React.
What a lesson for me! I have gone on so many "listening" retreats! I hope I can learn this lesson. I think it would be easy to close this thread down...but now it has become more a test of the sermon this morning.
Respond, don't react.
Thanks for both and the opportunity to tell my story.
Jeanne
 

static

New member
I can see both points of view (and please tell me if I'm wrong in my statements from either side):

Jeanne feels she has worked on this for so long and doesn't want this site to be a fan-base build-up for some other destination she has no part in. It is her website at the top of the Google search engine, and she has worked hard advocating for CF and building up a strong community base where people can seek the support they need.

At the same time, many of the top posters feel confined, free to express some ideas but limited on others when in the grant scheme of things it all comes from wanting to help the community.

Seems to me people want more of a Youtube model where top video makers (posters in this case) are rewarded and feel part owner of the site. That would be a great way to keep the core posters here without them feeling taken advantage of.

Just a thought.


Oh also, Charity is great and all but when things need to be cut that is usually the first to go(if it is funded by the govt). If it expects to live off of donations, well, you better be pleading to the richest society with the biggest population of the disease.
 
M

Mommafirst

Guest
Rythestunner. . . I can't possibly speak to what others have been through and I do not wish to affirm or deny what I can't know. ALL my post was about is the fact that there are LOTS of businesses all over the web and to expect this one to run differently because the topic is around people with disease is unreasonable and unrealistic. That is all.

I have great respect for many of the people who have left over the years. I'm sure they have good reasons for leaving. I don't deny them those reasons.
 

JennifersHope

New member
I can personally say when I lived in NJ I met Jeanne, her husband, her daughter Sarah and Sarah's children. I also was a part of Jeanne giving away a free bounce house to a child on here to help him do his CPT.

Every time I met with Jeanne she brought me flowers, gifts, and paid for everything . I have seen her heart. I can attest to her kindness.

When our very sweet Mel (jaxxysmom) passes away. Jeanne was in that city at the hospital at her bedside loving her. Making a way for Mels very best friend to fly in and be there. So no Jeanne does not have CF ..she is a business women who saw a business opportunity. That does not mean she does not care.


I have no idea what happen between anyone. I would not judged. A while back when my dip stick doctor undiaganosed me with CF I was so judged and so hurt. I was called all kinds of names ..none of it was true. Then I was rediagnosed recently and was almost afraid to post it because of how judgemental some people were to me...( though I k ow at the time they were just burned by a fake person) anyway. That said...very few people on the CF forum even people I knew stood up for me. One girl in particular that I shared a hotel room with and suffered great losses of friends together didn't stand up..tomthis day i am still hirt by her. It took me showing pictures of my Tobi, pulmozyme, vest, port and other CF meds for people to.and actually finally a girl I knew I went to clinic with spoke up and said yes what i said is true.

I promised if I could ever testify to someone I would ..so I am. unless we know be careful .

I don't know what happen but the things I said about Jeanne I k ow to be true.

We are all such a small community. We need each other. our knowledge, our understanding and compassion. I think any site that will help another CFer SHOULD be advertised to the high Heavens.

There is power in numbers, research, and stories. My story alone is enough cause. It should be available to anyone so it can save one person the sheer hell,of being diagnosed. Undiagnosed and the. Rediagnosed again.

We need each other. I personally want to be a part of any site that has information, ideas, compassion. All of them...anywhere...Facebook private sites...anywhere

That is where I disagree. I think I'm spite of money or what advertising other sites would do, i personally if I owned this site would spread the word and share


Not my site though


I hope there is a resolution . We need this site, but this site is nothing without the CFers.


I pray for a resolution and not another split.
 

Havoc

New member
Well, this all has been quite an eye-opening experience. I never thought my announcing my leaving would lead to such an outrage and flood of comments and emotions. Rather than accusations and misinterpretations, allow me to clear the air once and for all and then we can all be done with this.

Approximately a year ago, I was approached by Jeanne to serve on the board of directors of Jeanne's new non-profit. We were later dubbed Health Opinion Leaders. The HOLs were hand selected by Jeanne (with the exception of a few) for their leadership in the CF community and knowledge or skills. All the HOLs were given iPads to review apps relevant to CF. It was originally the goal of the non-profit (as I understood it) to receive funding and continue it's philanthropic endeavors.

After a few months a brainstorming session was held, during which I came up with an idea that would greatly benefit the CF community. Talks were started between a company and Jeanne, but ultimately never went anywhere. On my own, I contacted another company, which I felt would be a better fit for what we were trying to accomplish. The company was very excited and within a month we were having very serious meetings and continuing to develop ideas. These ideas came directly from Frank and myself. Jeanne and I were in near-constant contact via phone, email and Skype during this period.

I made 2 trips to CF.com HQ and it is true that some of my expenses were reimbursed. Particularly hotels, some travel and some meals. Of course, this was offered freely as it was my ideas that were going to have the potential for enormous profit. After our first in-person meeting with a representative of the company we were speaking with, Frank and I went to Philadelphia to continue meetings with doctors who we wanted to have on-board for the project. Jeanne went on vacation. It was then that expense accounts were suggested as obviously more expenses were incurred by myself and Frank and we were paying out of pocket. We did not suggest carte blanche debit cards, rather a simple account (perhaps a refillable greendot card) where anticipated expenses would be calculated and funds deposited to remove the extra step of reimbursement. Not too much to ask in my opinion, but evidently it was.

Whilst in Philly, we met with a few physicians and they inquired about purchasing a particular product. I didn't give it too much thought, as physicians don't make buying decisions for the hospital, but in passing made a comment in an email about it to Jeanne. I was sternly informed that I was not a free agent and that any and all business was to be conducted through Medrise.

Upon returning home, the distance grew. Until one night the company we were dealing with phoned me and wanted clarification of my relationship with Jeanne. I was a bit perplexed, but through several conversations with him, I learned that there had been several meetings to which Frank and I were not invited or made aware of. When I questioned her about this I received a very condescending and threatening email. While I could quote some of it here, suffice it to say that I was told this was HER company and I was not to interfere in any way, including speaking with my own contacts about my own ideas.

It was around this time that my Admin and moderator rights were stripped away on this forum. Later my TechCF.org email account was deleted as was my profile over at TechCF.org. The app reviews that I had written were copied word-for-word and placed under another HOL's profile as if he wrote them. It seemed all traces of Frank and I were being erased.

It was at this point that Frank and I, having been totally pushed out, started our own company. I also felt that the next thing to go would be my account here and I announced my leaving, so that I could keep in touch with the friends I have met here.

There is the story, in a nutshell and from my perspective.

You might ask yourself why such a thing that would benefit CFers around the world would cause such an upheaval between Jeanne Frank and I. Apparently, control and money. When it became clear that Frank and I had the wherewithal to complete this project without any outside help, that's when we were pushed out. I have heard this story echoed by others as well. Furthermore, based on Jeanne's earlier responses (in which she references things we never discussed directly with her), I have to conclude that not only is it possible for them to read Private Messages, it is done on a regular basis.

If everything were rainbows and giggles, I wouldn't be leaving a forum I have devoted countless hours to. Nor would I be leaving people that I have come to love and respect. I think that validates my position more than anything, having been at the pinnacle of leadership (as far as being an admin and a mod), only to be treated like nothing when I began to insist that I have some involvement with my own ideas.

If this were not about money and control, then why was I pushed out just when the deal was about to be closed?

I wish all of you well and hope that this entire episode does not jeopardize the project that we had planned.

Jonathan
 

lilmac7

New member
Heather, I'm not bashing or accusing anyone of anything just stating how this seems to me now that I've read all this and was really kind of on guard/skeptical of such from day one. Now it's just disappointing to me that I've now found this web of linking that I can't help but think that this site is and/or was intended for financial gain from us CFers - whether directly or indirectly. That's all I was saying and also disappointing of how evidently people are pushed out here over money. Now that the iPad and Kindle Fires has been confirmed then great, awesome and commendable! That's the kind of stuff I'd like to hear and see. Like I said before I don't see an issue with making money with a site as this for sustaining it and what not but if it's happening then I feel it only justified that some form of return should be given back to the community. Personally I think there's better options for giving back but that's my opinion and to each their own - like iPads and Kindle giveaways would be more suited for a tech site but again my personal opinion and that's evidently a part of your passion so probably why you chose items as such. Heck even car forums I frequent do giveaways every so often, that's what keeps people there and giving money to it which drives traffic and therefore sponsors wanting to get their company recognized which leads to customers. I'm sorry but the comment about someone not having a connection to CF and wanting to own the domain name just for so....yeah right I just don't see that - it's either to own it for money/profit/financial gain w/e you want to call it or to actually do a site for something they are interested in, I don't see it any other way and as said at the time this started there was no CF connection. Maybe over the years after seeing what people go through and actually getting to know some of the people here the intent changed and the motive went to good then that would be fine too but that has not yet been stated, at least not that I've seen. It's just suspicious to me that, with at least one instance that has been made public here, members if they come up with an idea for doing something that could potentially make money or broaden the reach of such efforts that if they decline to join it along with this site and/or endeavors then they are thrown out/banned. Jeanne, I hope you are referring to another Mark and not me when you say "and even Mark's family have each received an iPad2" cause I certainly have not and I'm the only one in my family with my CF nor would I want one - I'm an Android guy <img src="i/expressions/face-icon-small-wink.gif" border="0"> (totally off topic but I had to put some humor into this dull subject) and I can assure you I have not received one, I'm quite a ways out of the US and doubt you'll be sending to people overseas. Anywho, like I said I'm not leaving here but I'll also be on theirs and am on other forums. This community has and offers allot to us CFers and I've also gotten to know some folks here (digitally <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and would not give that up, unless of course I'm forced to and banned
Edit: Geez Jonathan! You must've posted that as I was writing this...well WOW is all I gotta say!
 

Imogene

Administrator
thanks again for the great responses.. I believe many good things happen when people move along and start their own sites, maybe a YouTube or other CF sites. A "split" is a good thing in gardening! When there are different goals, a split is a must.
This site has always been open...to lurkers and to anyone concerned with CF. (me included!). Some of the most poignant members are the partners (just my opinion). Other sites, have vetting. Perhaps it is just a site for CFers or Parents or Pregnancy. Lurkers not allowed! That is fine and needed, just not this site. This site is open to all and for this reason, there may be holes, or disappointments or ownership questions. Peter and I just have to make sure the lights are on and then we look for better ways to serve this community.
These are incredibly exciting times for epatients and Technology. We are glad for all who want to stay..and for those who want to do big things on their own!
 

Imogene

Administrator
We personally paid to find out the single most important thing....there are different goals and (different styles) as may be obvious in the above posts. Best of luck to Sixth Sense as they move on to CF2Chat...We wish you well and expect great solutions. We all have ideas and dreams for changing healthcare... It is almost Monday...time to work!
 

dasjsmum

New member
<div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>Havoc</strong></em> Well, this all has been quite an eye-opening experience. I never thought my announcing my leaving would lead to such an outrage and flood of comments and emotions. Rather than accusations and misinterpretations, allow me to clear the air once and for all and then we can all be done with this. Approximately a year ago, I was approached by Jeanne to serve on the board of directors of Jeanne's new non-profit. We were later dubbed Health Opinion Leaders. The HOLs were hand selected by Jeanne (with the exception of a few) for their leadership in the CF community and knowledge or skills. All the HOLs were given iPads to review apps relevant to CF. It was originally the goal of the non-profit (as I understood it) to receive funding and continue it's philanthropic endeavors. After a few months a brainstorming session was held, during which I came up with an idea that would greatly benefit the CF community. Talks were started between a company and Jeanne, but ultimately never went anywhere. On my own, I contacted another company, which I felt would be a better fit for what we were trying to accomplish. The company was very excited and within a month we were having very serious meetings and continuing to develop ideas. These ideas came directly from Frank and myself. Jeanne and I were in near-constant contact via phone, email and Skype during this period. I made 2 trips to CF.com HQ and it is true that some of my expenses were reimbursed. Particularly hotels, some travel and some meals. Of course, this was offered freely as it was my ideas that were going to have the potential for enormous profit. After our first in-person meeting with a representative of the company we were speaking with, Frank and I went to Philadelphia to continue meetings with doctors who we wanted to have on-board for the project. Jeanne went on vacation. It was then that expense accounts were suggested as obviously more expenses were incurred by myself and Frank and we were paying out of pocket. We did not suggest carte blanche debit cards, rather a simple account (perhaps a refillable greendot card) where anticipated expenses would be calculated and funds deposited to remove the extra step of reimbursement. Not too much to ask in my opinion, but evidently it was. Whilst in Philly, we met with a few physicians and they inquired about purchasing a particular product. I didn't give it too much thought, as physicians don't make buying decisions for the hospital, but in passing made a comment in an email about it to Jeanne. I was sternly informed that I was not a free agent and that any and all business was to be conducted through Medrise.
End of Quote! I can never work the quote option correctly meh!


From what I understand here Jonothan, you and Frank were acting as a representatives of this new endeavour - HOLS - through Medrise? If you were acting as representatives of Medrise it would be considered highly unethical in the business world to conduct personal business with networks you have been introduced to via the company you are representing. It sounds to me that you and Frank began to approach the networks as independent business people rather than as representatives of a business endeavour.

Even if the idea you had was yours, the fact that it was flagged by you to purchases/networks/interested parties - as a representive of Medrise would seem you presented the idea to the business networks as an agent for Medrise. Unless Im misunderstanding this I would consider that to be unethical.
 

JennifersHope

New member
Jonathon....I am sorry. I feelso bad for you and I hope your idea can remain just that your idea.
Please let me know if I can do anything to promote your site ..it would be my honor!

Best of luck .
 

Incomudrox

New member
That would be incorrect.
As HOLs are through TechCF (non-profit) and ML Burke DBA Medrise is a for profit company. There can be no direct interaction for benefit through a non-profit to help a profit in such a way would be illegal. Further more we have/had no agreement with the for profit company (ML Burke BDA Medrise). You have it backwards, the contacts we have spoken about are Jonathan's and mine not the other way around. Jeanne and ML Burke DBA Medrise are the ones who started to contact our contacts on their own terms without our knowledge. Again we were not and are not represenatives of ML Burke DBA Medrise so that is debunked. We were only assocaited as HOLs and since there can be no realtionship between a for profit and non-profit we have no relation. I would suggest you look up the term "itellectual property".
 

Imogene

Administrator
Thanks Joanna! Bingo! Ethics matter! It's also silly to claim ideas are yours alone, when all of healthcare is moving in the same direction. If you Patent something or invent a solution then great and wonderful....you may have ownership...I think people can see where this is heading. Kevin Kelly on his book "what technology wants" says if you have a new idea...at least 7 people are thinking of the same thing at the same time! Again, let's get the solutions! The world is waiting....on to work!
 

Havoc

New member
<div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>dasjsmum</strong> From what I understand here Jonothan, you and Frank were acting as a representatives of this new endeavour - HOLS - through Medrise? If you were acting as representatives of Medrise it would be considered highly unethical in the business world to conduct personal business with networks you have been introduced to via the company you are representing. It sounds to me that you and Frank began to approach the networks as independent business people rather than as representatives of a business endeavour. Even if the idea you had was yours, the fact that it was flagged by you to purchases/networks/interested parties - as a representive of Medrise would seem you presented the idea to the business networks as an agent for Medrise. Unless Im misunderstanding this I would consider that to be unethical.</end quote></em>

You do misunderstand. I was never an agent or under the employ of Medrise (which is the company they are trying to make a profit from, not TechCF) The agreement that I had with TechCF included a non-grant clause, meaning that any information, contacts and ideas I brought to them did not give them ownership thereof.

At the end of our meeting with the other company, I made the comment to Jeanne that I waas not an employee of Medrise. She said that we would work out an contract the next day, which didn't happen. And then she stopped returning my calls and emails
I told the story from my perspective to avoid further assumption. To that end, please stop assuming.
 
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