Liver issues, continued...

azdesertrat

New member
I hope everybody is well & enjoying life to the fullest.
I spoke with my transplant coordinator yesterday. I had blood work done so she called me to let me know about my Gengraf levels. All is well. I asked her about my liver numbers, she said they're OK.
My problem is this: she also told me that I'm 8 years out of my transplant; she said that the meds that keep me alive are causing my liver to degenerate.
In other words, eventually I'm looking at a liver transplant.
Has anybody had to have a liver trans after having a double lung trans?
I'm more than a little concerned as to what the future may hold for Becky & me. I'm not sure we could endure another transplant.
Thank you for reading this little rant,
'Pat'.
 

4hats

New member
I'm so sorry that you have this anxiety about your liver as well. I currently am on a number of meds to treat MAC. At first my liver numbers were high. Then my doctor suggested milk thistle, a great liver detox. I take it every day along with dandelion root and it has gotten my liver numbers back to normal range while I'm on all these meds. Plus I drink a ton of water constantly all day. If you are interested, I can share with you what I take, etc...
 
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