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looking for a cf penpal
- Thread starter tiffanystar
- Start date
Hello Tiffanystar,
How are you? I have a 23 month old son Joshua with cf. We found out when he was 6 months old. At first I was scared, wanted to find out as much information about cf as I could so I have been looking on the internet. I also have been wanting ti talk with people who has cf, or has a child with cf to see what they have been through. I know everyone will not go through everything that someone has. My son had brain surgery at 7 months old, he had hydrocephalus, which is when the fluid around the brain does not drain down the spinal canal the way it should. Joshua had a shunt put in. Then when Joshua was 17 months old he had two different surgeries done at the same time. One was to stop the acid reflex, and the other part was to put a feeding tube in his stomach. Josh gains slow, and would not eat. Now he is eating more, not the amount for a 23 month old, but it is a start. Weighs 19 pounds 29 inches. Joshua and my first cousin are the only ones in my family with cf. I have 2 other kids. Joshua is a miracle baby. I cut tied and burned my tubes in 1997. I still got pregnant. If you would like to be cf penpals here is my e-mail address: matlockw@bellsouth.net My name is Renee
How are you? I have a 23 month old son Joshua with cf. We found out when he was 6 months old. At first I was scared, wanted to find out as much information about cf as I could so I have been looking on the internet. I also have been wanting ti talk with people who has cf, or has a child with cf to see what they have been through. I know everyone will not go through everything that someone has. My son had brain surgery at 7 months old, he had hydrocephalus, which is when the fluid around the brain does not drain down the spinal canal the way it should. Joshua had a shunt put in. Then when Joshua was 17 months old he had two different surgeries done at the same time. One was to stop the acid reflex, and the other part was to put a feeding tube in his stomach. Josh gains slow, and would not eat. Now he is eating more, not the amount for a 23 month old, but it is a start. Weighs 19 pounds 29 inches. Joshua and my first cousin are the only ones in my family with cf. I have 2 other kids. Joshua is a miracle baby. I cut tied and burned my tubes in 1997. I still got pregnant. If you would like to be cf penpals here is my e-mail address: matlockw@bellsouth.net My name is Renee
Hi.
I am 12yrs. old and I Have CF, asthma, and Diabetis. My life was pretty great up until about 1st grade. I was so healthy before that my doctor doughted I had CF. And about 6 th grade I was Diagnosed with Diabetis. Thats when I hit rock bottom . I thought it couldnt get any worse but now I am back on my feet and doing great!
Amber
P.S i would like to say good luck to you and your child. i hope she lives a long healthy life<img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/wine.gif" border="0">
I am 12yrs. old and I Have CF, asthma, and Diabetis. My life was pretty great up until about 1st grade. I was so healthy before that my doctor doughted I had CF. And about 6 th grade I was Diagnosed with Diabetis. Thats when I hit rock bottom . I thought it couldnt get any worse but now I am back on my feet and doing great!
Amber
P.S i would like to say good luck to you and your child. i hope she lives a long healthy life<img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/wine.gif" border="0">
hi everyone my mom found out 5 years ogo she might have cf, after they diegnosed her with it, they started testing my family, they found my cousin nikkie to have it he later died in 2003 it was hard but we still miss him.<img src="i/expressions/brokenheart.gif" border="0">
LilStrawberyShortness
New member
teeheehee Alyssa ='( you dont talk to me on AOL nomores!!!! thats heart breaking =(
hi my name is Nicholas O'Halloran. i'm from Irealnd. i'm 18 yrs. i ve cf. and i'm also deaf. i like this web site. i just started looking up today. i would like a cf pen pal. you can e.mail me n_o_halloran@hotmail.com. many thanks<img src="i/expressions/face-icon-small-smile.gif" border="0">
hi,
my name is annie wisenbaker and i'm 11. I've been addmitted over 20 times . i have lived in the hospital when i was a baby and when i was yonger but now its narrowed down to 1 visit every 3 months. but if anyone out there with CF wants to talk just e-mail me at missyloo@email.com
thanks annie.
my name is annie wisenbaker and i'm 11. I've been addmitted over 20 times . i have lived in the hospital when i was a baby and when i was yonger but now its narrowed down to 1 visit every 3 months. but if anyone out there with CF wants to talk just e-mail me at missyloo@email.com
thanks annie.
lilcutie05
New member
hi tiffany i am 10 i know it is a little younger but if you dont mind GREAT .....my e-mail is .... thats_just_me5455@hotmail.com
Hayley 10 female cf/cfrd
Hayley 10 female cf/cfrd
im a sophmore at red bluff high school, last week i was assigned to do an essay on cystic fibrosis. i have to interview someone and ask them 10 questions. im lost and confused about this disorder. from what iv heard its bad, and i hope you can take the time out of your day to help me with my essay, it woud help me,lt would be a great experience for me since i want to be a nurse. i would appprciate it so much and be so thatnkful if youd help me. my name is destiny. please!!!!!!!!!!!!!! my e mail is destiny96022@yahoo.com im a great friend and i try to be understanding as much as i can. And i LOVE to write!!!!!!!!!!
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>TO: Dustin
Hello,my name is lacie and Iam 22 yearsold. Im new to this website and just wanted to look for someone who can relate to me about cf. Last month I found out that I have cf related diabetes. My email add is lacie23_420@yahoo.com<hr></blockquote>
Hello,my name is lacie and Iam 22 yearsold. Im new to this website and just wanted to look for someone who can relate to me about cf. Last month I found out that I have cf related diabetes. My email add is lacie23_420@yahoo.com<hr></blockquote>
buggygurl321
New member
My name is Katie and I am 14 w/cf. You can email me if you want (email address in profile).
<img src="i/expressions/face-icon-small-happy.gif" border="0">
Katie
<img src="i/expressions/face-icon-small-happy.gif" border="0">
Katie