Ok, My post went up before I was done....
#1. Ask for a second set of textbooks to have at home. Many teachers in middle school don't give texts to kids, they keep them in class. This will allow you to be able to work from home should your kiddo get sick and miss class. Also less tiring than carrying heavy backpacks back and forth.
#2. Ask to be able to modify or delete assignments should your kiddo be having a hard time and not be able to keep up.
#3. Make sure ALL staff knows that your kiddo is able to leave the classroom, gym, lunchroom, etc to visit restroom or nurse with no wait. (not waiting till passing period, etc)
#4. Make sure lunchroom knows that your kid AND THE TABLE THEY SIT AT should be first in line every day. Often my son's table wouldn't eat till later and kids with CF need every minute they get to get enough nutrition and calories. For a while they were singling my son out and having him go to the line first, but his table was later in the line, this made him feel awkward and different. Now the lunchroom randomly picks tables to go, but my son's table is always first. Little issue but it meant a lot to him socially.
#5. Occasionally your kid may need more time to eat than the time provided. Ask if it's possible to remain in the lunchroom or to take their tray to the nurse's office to finish. (this rarely happened, but when my son didn't feel well, it was harder for him to get his food down and he's a slow eater anyway, I've heard this from other parents of kids with CF).
#6. Ask for teachers not to ask "are you ok" or "do you need to go to the nurse" etc. unless they are truly concerned about your child. Teachers that haven't had someone with CF in their class may not be used to the scary sound of heavy coughing. Once they spend some time with your child, they will most likely get a good sense of when that child is in distress and should be encouraged to go rest in the nurse's office, etc. If that's the case, ok. But if not, it was making my son feel embarrased.
#7. Please meet with each of the teachers (or send an email) and let them know you truly appreciate the extra time and care they're showing to your child, but to please always remember that these kids want to be treated as every other kid, they are kids that happen to have this extra burden, but they're not CF Kids.
#8. One other issue that arises is often kids with CF don't look like they're sick most of the time. My son bounces about and then later crashes, then is back to bouncing about often within a few hours. It's hard for someone not used to CF and its effects to realize just how much that kid is doing, the number of pills, air clearance therapies, needing more rest, etc. It's often called an "Invisible Disease" because of this. Explaining this plus showing the list of meds/treatments my son does daily really helped the teachers understand. This sometimes becomes an issue when needing to modify homework etc so if they know your kid is working harder and sleeping less than the healthier kids, it just helps overall for them to have some kind of an idea.
#9. Ask if the homeroom teacher will be a primary contact. This allows you to send one email when your kid is having issues and it also helps teachers not be bombarded with multiple emails.
#10 have fun! We've found middle school to be a good experience.