MRSA

[dream2live]

I am 37 years old and was just diagnosed with MRSA for the first time. I was curious to know about the effects of how you feel if you have had MRSA. All I want to do is sleep and have no energy to do anything. Besides the MRSA, my pseudomonas has "flared up" again. I know I am not alone in this, but I was curious to hear from others.

Thanks.

 

[Emily65Roses]

I had MRSA when I was 16. It dropped my PFTs from 90s to 44%. But immediately thereafter, I went on IVs, and have since been pretty well. I haven't cultured MRSA again since 2001. I don't remember much of my symptoms for it except that I felt like poop. <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Lots of coughing.

 

[anonymous]

Thanks for the info. I have not done PFT's in over 4 years. I have to ask my doctor to order it, but I have slacked off doing that. I think I am doing pretty good considering my age, and the fact that I did not have to do IV treatments until I was 25 years old, and my first hospitaliziation I was 30 years old. But, I have noticed that as I am getting closer to 40, my body has slowed down, and it takes longer for me to bounce back after having a "tune up" or just being sick with sinuses.

 

[serendipity730]

I had MRSA when I was 18. It was probably the sickest I have ever felt. I couldn't walk up a flight of stairs without coughing ALOT! Like Emily, my pft's went from like the 70's to 28. But, after 3 wks of IV meds, they came back up.

 

[JazzysMom]

I cultured MRSA in my last culture before being admitted this year. I cant say I feel any worse then I did last year at this time. As a matter fact I feel better than last year, but I was really bad last year. I am currently on home iv's so maybe I will have more to tell you after they are stopped!

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

Thanks for the info. I have not done PFT's in over 4 years. I have to ask my doctor to order it, but I have slacked off doing that. I think I am doing pretty good considering my age, and the fact that I did not have to do IV treatments until I was 25 years old, and my first hospitaliziation I was 30 years old. But, I have noticed that as I am getting closer to 40, my body has slowed down, and it takes longer for me to bounce back after having a "tune up" or just being sick with sinuses.</end quote></div>

CF Foundation recommends PFT's at least once a year.

If you are going to a CFF accredited center, I would quesiton them...

 

[ej0820]

I ALWAYS culture MRSA. It's in me and it's not leaving! When I first got it I was getting very low grade fevers. I went on doxycycline which pretty much kept it under control. Now I'm on bactrim and cipro for other bugs...and about once a year the MRSA kinda joins forces with another bug and I end up on IV's (vancomycin for the MRSA). It's a pain in the butt, but with airway clearance and antibiotics, it shouldn't drag you down too too much.


erin
20/f/cf

 

[Bozo]

I also have it and shows up every once and a while..like now.. zyvox 600 mg twice..seem to do the trick

 

[anonymous]

Both of my children have mrsa. They are 5 and 9. The only thing different is that total isolation when in the hospital. MY daughter is never in the hospital but my son over 20 times in 4 years. He was diagnosed with cf at 1 my daughter was alomost 5 they were diagnosed a few days apart of each other. Last year they both started to culture mrsa every time it has not gone away.

 

[princessjdc]

sorry for being ignorant but what is MRSA? I know I have read it before but, i cant remember

 

[Emily65Roses]

Methicillin Resistant Staphylococcus Aureus.

 

[debs2girls]

My turn to act ignorant...if they say "she is culturing staph" is that the same thing? or will/should they specify MRSA if that is what it is?
Thank in advance and sorry for the ignorance.

 

[blindhearted]

Deb, usually they tell you if it is just staph or MRSA. I culture both along with pseudo. If you are not sure, ask them "just staph?" or for them to read out the full name scientific name.

For the original poster, I ususally know my MRSA is acting up when I start to sleep a lot more than usual. It becames harder to breathe when walking short distances. I dont want to eat like normal. No energy what so ever. When I start sleeping more and eating less, I ususally call the doctor up and start the ball rolling. And like you when MRSA starts a "party" pseudo usually likes to join in....and vise versa. Sometimes my staph is even "invited".

 

[Emily65Roses]

Danyell is right... If someone is culturing staph, they'll say staph. If it's MRSA, they'll say MRSA specifically. There's a difference there. If it MRSA and they only say staph, I'd severely question their... credentials.