After my evaluation my doctor basically said I was too healthy to be listed for transplant. They will put me on the list in the future, but not unless I get sicker.
Basically, I felt like it was the right decision. However, sometime I have bad days and feel like I should be on the list. I also wish they would do the transplant before I get so I can barely walk and function. I don't want to get that sick, but I'm afraid that might happen.
My lung function was 27 percent yesterday. Co2 was around 35 percent. Resting O2 was 92-94. During 6 minute walk I dropped slowly from 92-87. I guess based on the rest of the tests my doctor didn't think I should be listed. I am all for listening to the doctor, especially with the success rate at my clinic. I am just wondering if the reason they aren't listing me is because my clinic/hospital only does 20-25 lung tx per year.
If I went to the Univ. of Pittsburgh where they do over 100 tx per year, do you guys think they would put me on the list. I am not really considering going there right now, but like I said, I don't want be stuck waiting and bedridden.
I think if you can walk into the hospital on the day of your transplant your recovery is probably going to be much quicker. Maybe I am wrong. Again, I am not ready yet, but I just don't want to wait too long.
What to you'll think?
John
Basically, I felt like it was the right decision. However, sometime I have bad days and feel like I should be on the list. I also wish they would do the transplant before I get so I can barely walk and function. I don't want to get that sick, but I'm afraid that might happen.
My lung function was 27 percent yesterday. Co2 was around 35 percent. Resting O2 was 92-94. During 6 minute walk I dropped slowly from 92-87. I guess based on the rest of the tests my doctor didn't think I should be listed. I am all for listening to the doctor, especially with the success rate at my clinic. I am just wondering if the reason they aren't listing me is because my clinic/hospital only does 20-25 lung tx per year.
If I went to the Univ. of Pittsburgh where they do over 100 tx per year, do you guys think they would put me on the list. I am not really considering going there right now, but like I said, I don't want be stuck waiting and bedridden.
I think if you can walk into the hospital on the day of your transplant your recovery is probably going to be much quicker. Maybe I am wrong. Again, I am not ready yet, but I just don't want to wait too long.
What to you'll think?
John