Dear Harriett,,,,,
That is so great!!!!!!! Makailyn has had three different subs this week and she told me it makes her nervous because she has to go to the bathroom alot and the subs don't know anything about CF.......I asked her how does she know they don't know anything about CF,,,,, and she said ,,she went to one and said I need to go to the bathroom again and she said you need to wait.Makailyn said, please I can't wait ,,,,and the teacher said why?
Makailyn said I have CF and the teacher said ,,what does that mean,,and she said 65 roses,,,,and the teacher said ,,what does that mean,,, and she said Cystic Fibrosis....
And one of her classmates said ,,, she really needs to go to the bathroom....So she got to go.
When I was talking to her ,,, I told her she might need to let more people know about CF when situations come up like that,,and not to be so nervous..
She said in a very soft toned voice ,,,people just don't understand or know anything about CF ( I wanted to cry)...
Shawn,,,you are my hero,, thankyou for educating people about CF...........Many Blessings to you ,,,Karla
That is so great!!!!!!! Makailyn has had three different subs this week and she told me it makes her nervous because she has to go to the bathroom alot and the subs don't know anything about CF.......I asked her how does she know they don't know anything about CF,,,,, and she said ,,she went to one and said I need to go to the bathroom again and she said you need to wait.Makailyn said, please I can't wait ,,,,and the teacher said why?
Makailyn said I have CF and the teacher said ,,what does that mean,,and she said 65 roses,,,,and the teacher said ,,what does that mean,,, and she said Cystic Fibrosis....
And one of her classmates said ,,, she really needs to go to the bathroom....So she got to go.
When I was talking to her ,,, I told her she might need to let more people know about CF when situations come up like that,,and not to be so nervous..
She said in a very soft toned voice ,,,people just don't understand or know anything about CF ( I wanted to cry)...
Shawn,,,you are my hero,, thankyou for educating people about CF...........Many Blessings to you ,,,Karla