Maddy, Would you mind giving a little of your son's history? Like when he was diagnosed, symptoms, treatments, etc? My ds will be tested for primary ciliary dyskinesia when they do his next sinus surgery. His first was 1-1/2 yrs ago at 3-1/2 yrs. His drs (pulmonolgist, ENT) all thought he had cf due to his symptoms (and what they found when they did his sinus surgery) but his sweat tests were negative and they didn't find any genes for it. Now they think it may be pcd. We know he doesn't have kartageners. I lurk here just because there are a lot of similiarities in his symptoms/treatment with cf. Is your son small for his age? My son is in the 10% for ht/wt down from 95%. He's been gradually losing ground every year. Thank you!!!