Hey Amy,
Let me give some info about me my name is Ali and I'm a 29 male and had double lung transplant on Jan. 28, 2008 at UCSF in San Francisco. My older brother and I both have cystic Firbrosis but he past away when he was 20 in 1997. I start on the list about 4 years ago when my lung capacity went down to 20%. I was still able to work and care for my wife and two kids. In June 2007 my lung capacity came down to 8% and I went on full time oxygen and I couldn't work any more and all I did is just be stuck at home doing meds all day which I was use too. I worked out on the treadmill as much as I can which I think helped me alot even though I went very slow on it. I don't remember for some reason but my wife told me on January 21st this year my lungs were bleeding and I went to hospital and I had to go on life support and get on ecmo. My carbondyoxide was over 200% and the doctors did not know if they should do the surgery but I passed the test they gave me. Everone had UCSF said they had never seen a patient with carbondyoxide over 200% before??? I guess my lungs finally gave up and the person who donated their lungs save my family and I. They told be that I can write a letter in few months so I can give the donating family time to grieve. I want to thank them so much!!! I will be at great strides in Walnut Creek in April walking or maybe jogging <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thanks
Ali K
29 CF male
Tracy Ca