My DS's sweat test results were given to me by his GI specialist the same day he had the test done. One arm was inconclusive because they couldn't get enough sweat and the other arm was a 10. Super low. When the lady doing the test took off the little disk thingy, she said "I think we've got enough sweat." She is apparently the lady that they have do all of the tests because they had to call her in from another department at the hospital (UVA and they do have a CF clinic). Hopefully it is accurate and we can move on to diagnose and treat whatever is going on with him. I'm going to have to start looking into other possibilities. He has an appointment with a pulmonologist on Sept. 10th so hopefully we can get down to the root of his persistant cough, which seems to be getting worse.
A couple of things I find funny 1) he sweats all the time (while playing, from just a little bit of sun, while sleeping) so why didn't he sweat very much with the sweat test? 2) Since a few days after his colonoscopy, his stomach and stools have been better. I'm thinking maybe the prep (miralax and liquid diet for two days) helped for some strange reason. He's never gone this long without having horrible loose bm's (2 weeks!), although he still complains of tummy aches, no clue. 3) He lost weight since his appt. 2 months ago, not much, about a half a pound. The GI doc says he wants to take a "wait and see" approach and when he gave me the sweat test reults he just said they were negative. I asked for the number and he told me 10. He never mentioned that the other arm was inconclusive, I found that out by having the results emailed to me. I could tell I wasn't going to get anywhere with him so I figured I'd talk more with the pulmo on the 10th.
I just keep questioning myself, I feel like there is definately something going on with DS, but then I'll doubt myself and think it's just allergies and his asthma and he has a sensitive stomach so therefore he doesn't eat as much as he should and that's why he's not gaining weight. I'm starting to think that it's probably not CF considering the negative sweat test. Also, when he had his hernia/hydrocele surgery the doctor never mentioned the absence of the vas deferrens. Maybe I'm just overreacting. I wish you all the best and thanks for all your support. I'll let you know what happens at the pulmo.
A couple of things I find funny 1) he sweats all the time (while playing, from just a little bit of sun, while sleeping) so why didn't he sweat very much with the sweat test? 2) Since a few days after his colonoscopy, his stomach and stools have been better. I'm thinking maybe the prep (miralax and liquid diet for two days) helped for some strange reason. He's never gone this long without having horrible loose bm's (2 weeks!), although he still complains of tummy aches, no clue. 3) He lost weight since his appt. 2 months ago, not much, about a half a pound. The GI doc says he wants to take a "wait and see" approach and when he gave me the sweat test reults he just said they were negative. I asked for the number and he told me 10. He never mentioned that the other arm was inconclusive, I found that out by having the results emailed to me. I could tell I wasn't going to get anywhere with him so I figured I'd talk more with the pulmo on the 10th.
I just keep questioning myself, I feel like there is definately something going on with DS, but then I'll doubt myself and think it's just allergies and his asthma and he has a sensitive stomach so therefore he doesn't eat as much as he should and that's why he's not gaining weight. I'm starting to think that it's probably not CF considering the negative sweat test. Also, when he had his hernia/hydrocele surgery the doctor never mentioned the absence of the vas deferrens. Maybe I'm just overreacting. I wish you all the best and thanks for all your support. I'll let you know what happens at the pulmo.