New Guy

texnation

New member
Hi everyone, I'm a 20 year old male with CF living in Columbia SC. A little about myself...

FEV1 has hung around 20-25 since 2007
B Cepacia (Duke is only place that will transplant me)
5'10" 110 lbs. Never been able to gain weight, only on steroids

2/2006 Started having pneumos, 4 to date
9/2006 G-Tube put in
2/2008 Had pleurodesis (right lung)
9/2009 Had consult week at Duke
10/2009 Started pulmonary rehab
5/2010 Decided not to get transplant
11/2010 Last major hospitalization
1/2011 Decided TO GET transplant
2/2011 Restarted pulmonary rehab

I'm to a point with CF I couldn't prepare myself for, it's such a significant part of every second now and I guess I need to join a community to read about, and hopefully help out some of my questions. Finally had to put on the oxygen for good in November, and finally had to buy a wheelchair in the last month. My interests are in transplant and post transplant, fitness for the shape I'm in now and hopefully post transplant, and nutrition before/after. I regret waiting this long to try and gain knowledge but hopefully within a year I can lead a productive life again. Personally I like racing and golf, all my favorite TV shows are comedies, and I sim race online a lot. Thanks for having me.
 

texnation

New member
Hi everyone, I'm a 20 year old male with CF living in Columbia SC. A little about myself...

FEV1 has hung around 20-25 since 2007
B Cepacia (Duke is only place that will transplant me)
5'10" 110 lbs. Never been able to gain weight, only on steroids

2/2006 Started having pneumos, 4 to date
9/2006 G-Tube put in
2/2008 Had pleurodesis (right lung)
9/2009 Had consult week at Duke
10/2009 Started pulmonary rehab
5/2010 Decided not to get transplant
11/2010 Last major hospitalization
1/2011 Decided TO GET transplant
2/2011 Restarted pulmonary rehab

I'm to a point with CF I couldn't prepare myself for, it's such a significant part of every second now and I guess I need to join a community to read about, and hopefully help out some of my questions. Finally had to put on the oxygen for good in November, and finally had to buy a wheelchair in the last month. My interests are in transplant and post transplant, fitness for the shape I'm in now and hopefully post transplant, and nutrition before/after. I regret waiting this long to try and gain knowledge but hopefully within a year I can lead a productive life again. Personally I like racing and golf, all my favorite TV shows are comedies, and I sim race online a lot. Thanks for having me.
 

texnation

New member
Hi everyone, I'm a 20 year old male with CF living in Columbia SC. A little about myself...
<br />
<br />FEV1 has hung around 20-25 since 2007
<br />B Cepacia (Duke is only place that will transplant me)
<br />5'10" 110 lbs. Never been able to gain weight, only on steroids
<br />
<br />2/2006 Started having pneumos, 4 to date
<br />9/2006 G-Tube put in
<br />2/2008 Had pleurodesis (right lung)
<br />9/2009 Had consult week at Duke
<br />10/2009 Started pulmonary rehab
<br />5/2010 Decided not to get transplant
<br />11/2010 Last major hospitalization
<br />1/2011 Decided TO GET transplant
<br />2/2011 Restarted pulmonary rehab
<br />
<br />I'm to a point with CF I couldn't prepare myself for, it's such a significant part of every second now and I guess I need to join a community to read about, and hopefully help out some of my questions. Finally had to put on the oxygen for good in November, and finally had to buy a wheelchair in the last month. My interests are in transplant and post transplant, fitness for the shape I'm in now and hopefully post transplant, and nutrition before/after. I regret waiting this long to try and gain knowledge but hopefully within a year I can lead a productive life again. Personally I like racing and golf, all my favorite TV shows are comedies, and I sim race online a lot. Thanks for having me.
 

rubyroselee

New member
Hi there,

Welcome! I'm sure you will find a lot of valuable information from people who are going through the same things as you, as well as people who have gone through the transplant process already. Hopefully you will find it enlightening and a great place for support <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

rubyroselee

New member
Hi there,

Welcome! I'm sure you will find a lot of valuable information from people who are going through the same things as you, as well as people who have gone through the transplant process already. Hopefully you will find it enlightening and a great place for support <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

rubyroselee

New member
Hi there,
<br />
<br />Welcome! I'm sure you will find a lot of valuable information from people who are going through the same things as you, as well as people who have gone through the transplant process already. Hopefully you will find it enlightening and a great place for support <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

JORDYSMOM

New member
Welcome! This is a great community. I hope you find it to be everything you need. I'm sure you have a lot to offer others as well. It sounds like you've been through quite a bit lately.

Looking forward to hearing more from you.

Stacey
 

JORDYSMOM

New member
Welcome! This is a great community. I hope you find it to be everything you need. I'm sure you have a lot to offer others as well. It sounds like you've been through quite a bit lately.

Looking forward to hearing more from you.

Stacey
 

JORDYSMOM

New member
Welcome! This is a great community. I hope you find it to be everything you need. I'm sure you have a lot to offer others as well. It sounds like you've been through quite a bit lately.
<br />
<br />Looking forward to hearing more from you.
<br />
<br />Stacey
 

BaylorCrew07

New member
Welcome! I hope you find everything you are looking for here; there are so many amazing people here with such a wealth of knowledge...I think you will find it to be very informative & supportive <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

BaylorCrew07

New member
Welcome! I hope you find everything you are looking for here; there are so many amazing people here with such a wealth of knowledge...I think you will find it to be very informative & supportive <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

BaylorCrew07

New member
Welcome! I hope you find everything you are looking for here; there are so many amazing people here with such a wealth of knowledge...I think you will find it to be very informative & supportive <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

CountryGirl

New member
Hey nice to meet you. Like everyone else said, I think you will find the support you need and everything else you are looking for! Definitely take a look at the Transplant section too, there is tons of info on there and plenty of people who are pre and post tx.

Good luck, hoping and praying your lungs come soon fellow waiter.
 

CountryGirl

New member
Hey nice to meet you. Like everyone else said, I think you will find the support you need and everything else you are looking for! Definitely take a look at the Transplant section too, there is tons of info on there and plenty of people who are pre and post tx.

Good luck, hoping and praying your lungs come soon fellow waiter.
 

CountryGirl

New member
Hey nice to meet you. Like everyone else said, I think you will find the support you need and everything else you are looking for! Definitely take a look at the Transplant section too, there is tons of info on there and plenty of people who are pre and post tx.
<br />
<br />Good luck, hoping and praying your lungs come soon fellow waiter.
 

mag6125

New member
Welcome! I am 22 and listed for a double lung transplant right now. If you have any questions feel free to ask or you can email me mag6125@yahoo.com
 

mag6125

New member
Welcome! I am 22 and listed for a double lung transplant right now. If you have any questions feel free to ask or you can email me mag6125@yahoo.com
 
Top