not so great clinic visit

Skye

New member
I had PFT's done today....they were low for me....down from the ones I did 4 weeks ago. We have a plan of attack though and we are on the same page. Normally I would be SUPER freaked out...look for reasons why it was happening....just bumbed out and freaked in general. I wasn't at all today. I was just kind of like...OK...what do we do. Went about my business for the day and I'll enjoy the rest of the day with my family. No biggie. That may not seem like a big deal to some of you; but, I have not yet learned to take changes in my FEV1 very well. Don't get me wrong....we are addressing the change and it may include IV's in the near future...I'm just over worrying about it. It doesn't contribute one ounce to my well-being to worry about it. So I focused on the positives...my weight is more than stable....I am not SOB....I'm not feeling ill.....my life has not changed one bit because my number is where it is at today compared to 4 weeks ago. So I will dig in, do what they tell me to do, make some extra efforts, and know that the number will be different next time I blow. It always seems to be.
 

Skye

New member
I had PFT's done today....they were low for me....down from the ones I did 4 weeks ago. We have a plan of attack though and we are on the same page. Normally I would be SUPER freaked out...look for reasons why it was happening....just bumbed out and freaked in general. I wasn't at all today. I was just kind of like...OK...what do we do. Went about my business for the day and I'll enjoy the rest of the day with my family. No biggie. That may not seem like a big deal to some of you; but, I have not yet learned to take changes in my FEV1 very well. Don't get me wrong....we are addressing the change and it may include IV's in the near future...I'm just over worrying about it. It doesn't contribute one ounce to my well-being to worry about it. So I focused on the positives...my weight is more than stable....I am not SOB....I'm not feeling ill.....my life has not changed one bit because my number is where it is at today compared to 4 weeks ago. So I will dig in, do what they tell me to do, make some extra efforts, and know that the number will be different next time I blow. It always seems to be.
 

Skye

New member
I had PFT's done today....they were low for me....down from the ones I did 4 weeks ago. We have a plan of attack though and we are on the same page. Normally I would be SUPER freaked out...look for reasons why it was happening....just bumbed out and freaked in general. I wasn't at all today. I was just kind of like...OK...what do we do. Went about my business for the day and I'll enjoy the rest of the day with my family. No biggie. That may not seem like a big deal to some of you; but, I have not yet learned to take changes in my FEV1 very well. Don't get me wrong....we are addressing the change and it may include IV's in the near future...I'm just over worrying about it. It doesn't contribute one ounce to my well-being to worry about it. So I focused on the positives...my weight is more than stable....I am not SOB....I'm not feeling ill.....my life has not changed one bit because my number is where it is at today compared to 4 weeks ago. So I will dig in, do what they tell me to do, make some extra efforts, and know that the number will be different next time I blow. It always seems to be.
 

Skye

New member
I had PFT's done today....they were low for me....down from the ones I did 4 weeks ago. We have a plan of attack though and we are on the same page. Normally I would be SUPER freaked out...look for reasons why it was happening....just bumbed out and freaked in general. I wasn't at all today. I was just kind of like...OK...what do we do. Went about my business for the day and I'll enjoy the rest of the day with my family. No biggie. That may not seem like a big deal to some of you; but, I have not yet learned to take changes in my FEV1 very well. Don't get me wrong....we are addressing the change and it may include IV's in the near future...I'm just over worrying about it. It doesn't contribute one ounce to my well-being to worry about it. So I focused on the positives...my weight is more than stable....I am not SOB....I'm not feeling ill.....my life has not changed one bit because my number is where it is at today compared to 4 weeks ago. So I will dig in, do what they tell me to do, make some extra efforts, and know that the number will be different next time I blow. It always seems to be.
 

Skye

New member
I had PFT's done today....they were low for me....down from the ones I did 4 weeks ago. We have a plan of attack though and we are on the same page. Normally I would be SUPER freaked out...look for reasons why it was happening....just bumbed out and freaked in general. I wasn't at all today. I was just kind of like...OK...what do we do. Went about my business for the day and I'll enjoy the rest of the day with my family. No biggie. That may not seem like a big deal to some of you; but, I have not yet learned to take changes in my FEV1 very well. Don't get me wrong....we are addressing the change and it may include IV's in the near future...I'm just over worrying about it. It doesn't contribute one ounce to my well-being to worry about it. So I focused on the positives...my weight is more than stable....I am not SOB....I'm not feeling ill.....my life has not changed one bit because my number is where it is at today compared to 4 weeks ago. So I will dig in, do what they tell me to do, make some extra efforts, and know that the number will be different next time I blow. It always seems to be.
 

bittyhorse23

New member
I like your way of thinking. Worrying does nothing but cause unsightly wrinkles so why bother <img src="i/expressions/face-icon-small-happy.gif" border="0">

<img src="i/expressions/heart.gif" border="0">
 

bittyhorse23

New member
I like your way of thinking. Worrying does nothing but cause unsightly wrinkles so why bother <img src="i/expressions/face-icon-small-happy.gif" border="0">

<img src="i/expressions/heart.gif" border="0">
 

bittyhorse23

New member
I like your way of thinking. Worrying does nothing but cause unsightly wrinkles so why bother <img src="i/expressions/face-icon-small-happy.gif" border="0">

<img src="i/expressions/heart.gif" border="0">
 

bittyhorse23

New member
I like your way of thinking. Worrying does nothing but cause unsightly wrinkles so why bother <img src="i/expressions/face-icon-small-happy.gif" border="0">

<img src="i/expressions/heart.gif" border="0">
 

bittyhorse23

New member
I like your way of thinking. Worrying does nothing but cause unsightly wrinkles so why bother <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br />
<br /><img src="i/expressions/heart.gif" border="0">
 

jamie6girl

New member
I totally understand what you are saying, Skye. Same thing happened to me last week. I've been doing much better with treatments, exercise, etc, and even been feeling better. But my numbers went down a few points. No need to get upset - I KNOW that I'm doing well now, so that's all that matters. Just wanted to let you know that you are not alone!
 

jamie6girl

New member
I totally understand what you are saying, Skye. Same thing happened to me last week. I've been doing much better with treatments, exercise, etc, and even been feeling better. But my numbers went down a few points. No need to get upset - I KNOW that I'm doing well now, so that's all that matters. Just wanted to let you know that you are not alone!
 

jamie6girl

New member
I totally understand what you are saying, Skye. Same thing happened to me last week. I've been doing much better with treatments, exercise, etc, and even been feeling better. But my numbers went down a few points. No need to get upset - I KNOW that I'm doing well now, so that's all that matters. Just wanted to let you know that you are not alone!
 

jamie6girl

New member
I totally understand what you are saying, Skye. Same thing happened to me last week. I've been doing much better with treatments, exercise, etc, and even been feeling better. But my numbers went down a few points. No need to get upset - I KNOW that I'm doing well now, so that's all that matters. Just wanted to let you know that you are not alone!
 

jamie6girl

New member
I totally understand what you are saying, Skye. Same thing happened to me last week. I've been doing much better with treatments, exercise, etc, and even been feeling better. But my numbers went down a few points. No need to get upset - I KNOW that I'm doing well now, so that's all that matters. Just wanted to let you know that you are not alone!
 

Diane

New member
Your positive thinking is the best medicine you can give yourself.
I remember saying to my self years ago( when my numbers were much higher) that as long as i feel good, i shouldnt get so hung up on numbers. Its hard not to when that seems to be what the Dr.s focus on most. A lot of things can affect the outcome of pft's so who knows how "accurate" they really are from one day to the next. I'm just glad you are feeling ok <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Diane

New member
Your positive thinking is the best medicine you can give yourself.
I remember saying to my self years ago( when my numbers were much higher) that as long as i feel good, i shouldnt get so hung up on numbers. Its hard not to when that seems to be what the Dr.s focus on most. A lot of things can affect the outcome of pft's so who knows how "accurate" they really are from one day to the next. I'm just glad you are feeling ok <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Diane

New member
Your positive thinking is the best medicine you can give yourself.
I remember saying to my self years ago( when my numbers were much higher) that as long as i feel good, i shouldnt get so hung up on numbers. Its hard not to when that seems to be what the Dr.s focus on most. A lot of things can affect the outcome of pft's so who knows how "accurate" they really are from one day to the next. I'm just glad you are feeling ok <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Diane

New member
Your positive thinking is the best medicine you can give yourself.
I remember saying to my self years ago( when my numbers were much higher) that as long as i feel good, i shouldnt get so hung up on numbers. Its hard not to when that seems to be what the Dr.s focus on most. A lot of things can affect the outcome of pft's so who knows how "accurate" they really are from one day to the next. I'm just glad you are feeling ok <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Diane

New member
Your positive thinking is the best medicine you can give yourself.
<br /> I remember saying to my self years ago( when my numbers were much higher) that as long as i feel good, i shouldnt get so hung up on numbers. Its hard not to when that seems to be what the Dr.s focus on most. A lot of things can affect the outcome of pft's so who knows how "accurate" they really are from one day to the next. I'm just glad you are feeling ok <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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