On a plane with another CF'er....what do you do?

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Scarlett81</b></i>

I suppose its different for me b/c I have cepacia, but I'd never knowingly go near anyone else with cf. I coulnd't live with myself if they caught my bugs and got worse. !</end quote></div>

Thank you for that.

I've known a few CFer friends of mine who didn't give a rat's @$$ and put others at risk.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Scarlett81</b></i>

I suppose its different for me b/c I have cepacia, but I'd never knowingly go near anyone else with cf. I coulnd't live with myself if they caught my bugs and got worse. !</end quote></div>

Thank you for that.

I've known a few CFer friends of mine who didn't give a rat's @$$ and put others at risk.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Scarlett81</b></i>

I suppose its different for me b/c I have cepacia, but I'd never knowingly go near anyone else with cf. I coulnd't live with myself if they caught my bugs and got worse. !</end quote></div>

Thank you for that.

I've known a few CFer friends of mine who didn't give a rat's @$$ and put others at risk.
 

NoExcuses

New member
1st let me say that I am perfectly aware that others have different points of view regarding this issue. i get it.


<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>



So, how would one explain the <b>FACT </b>that there are quite a number of us <b>OLD </b>CFers, here, who were diagnosed young, sat in waiting rooms with other CFers, set in hospital rooms with other CFers (there wasn't internet back then, so we went and visited each other in our rooms), lived through the period <b>BEFORE </b>the 'rules' (aren't they really guidelines?) about cross contamination were established, and YET we have lived to deal with it?
</end quote></div>

How do I explain it? Here's how I explain it - you older CFers represent 1% of all the CFers who were born the year you were born. <b> EVERYONE ELSE IS DEAD </b> Don't you see that?!

You do not represent the norm, the standard, or the typical. You have something, probably higher glutathione levels than other CFers, that protect you from catching the virulent bugs. You are the exception. All the others didn't reach your age because they did catch the bugs due to those waiting rooms, hospital rooms, etc. If you look at countries such as Denmark who have had cross-contamination rules for many years more than the US, their patients live well into their late 40s.

<div class="FTQUOTE"><begin quote>Do we feel badly about exposing <b>ANYBODY </b>to our bacteria. We don't know who's immune system is suppressed and sucseptible to our set of germs/bacteria. Do we wear a mask everywhere we go? Are we to be 'bubble boys' and girls? </end quote></div>

One of the 1st things I asked a person who lives in my city is where he shops, goes to the gym, etc. I would never knowingly pass my germs onto another CFer.

We're not talking about "wearing masks everywhere we go" - the topic was being on a plane KNOWINGLY next to someone who has CF. The issue of knowingly passing on bacteria is so completely different ....

<div class="FTQUOTE"><begin quote>What about our wonderful doctor's office? Do we really think that the piece of flimsy paper that they have covering only a small percentage of the exam table will actually in any way protect us from previous patients germs? Do they wipe them down with sterilizing solution between patients? <i>I think not! </i> </end quote></div>

Wrong - mine does. Wipes the door nobs down, the chairs, the exam tables, the talbe where he writes on the charts, etc. It's good practice coming from the Netherlands.



<div class="FTQUOTE"><begin quote> But what is this 3 feet thing anyway - how far do the droplets fly when a person sneezes? </end quote></div>

They fly less than 2 feet. Droplets are heavy and therefore fall to the ground quickly.
 

NoExcuses

New member
1st let me say that I am perfectly aware that others have different points of view regarding this issue. i get it.


<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>



So, how would one explain the <b>FACT </b>that there are quite a number of us <b>OLD </b>CFers, here, who were diagnosed young, sat in waiting rooms with other CFers, set in hospital rooms with other CFers (there wasn't internet back then, so we went and visited each other in our rooms), lived through the period <b>BEFORE </b>the 'rules' (aren't they really guidelines?) about cross contamination were established, and YET we have lived to deal with it?
</end quote></div>

How do I explain it? Here's how I explain it - you older CFers represent 1% of all the CFers who were born the year you were born. <b> EVERYONE ELSE IS DEAD </b> Don't you see that?!

You do not represent the norm, the standard, or the typical. You have something, probably higher glutathione levels than other CFers, that protect you from catching the virulent bugs. You are the exception. All the others didn't reach your age because they did catch the bugs due to those waiting rooms, hospital rooms, etc. If you look at countries such as Denmark who have had cross-contamination rules for many years more than the US, their patients live well into their late 40s.

<div class="FTQUOTE"><begin quote>Do we feel badly about exposing <b>ANYBODY </b>to our bacteria. We don't know who's immune system is suppressed and sucseptible to our set of germs/bacteria. Do we wear a mask everywhere we go? Are we to be 'bubble boys' and girls? </end quote></div>

One of the 1st things I asked a person who lives in my city is where he shops, goes to the gym, etc. I would never knowingly pass my germs onto another CFer.

We're not talking about "wearing masks everywhere we go" - the topic was being on a plane KNOWINGLY next to someone who has CF. The issue of knowingly passing on bacteria is so completely different ....

<div class="FTQUOTE"><begin quote>What about our wonderful doctor's office? Do we really think that the piece of flimsy paper that they have covering only a small percentage of the exam table will actually in any way protect us from previous patients germs? Do they wipe them down with sterilizing solution between patients? <i>I think not! </i> </end quote></div>

Wrong - mine does. Wipes the door nobs down, the chairs, the exam tables, the talbe where he writes on the charts, etc. It's good practice coming from the Netherlands.



<div class="FTQUOTE"><begin quote> But what is this 3 feet thing anyway - how far do the droplets fly when a person sneezes? </end quote></div>

They fly less than 2 feet. Droplets are heavy and therefore fall to the ground quickly.
 

NoExcuses

New member
1st let me say that I am perfectly aware that others have different points of view regarding this issue. i get it.


<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>



So, how would one explain the <b>FACT </b>that there are quite a number of us <b>OLD </b>CFers, here, who were diagnosed young, sat in waiting rooms with other CFers, set in hospital rooms with other CFers (there wasn't internet back then, so we went and visited each other in our rooms), lived through the period <b>BEFORE </b>the 'rules' (aren't they really guidelines?) about cross contamination were established, and YET we have lived to deal with it?
</end quote></div>

How do I explain it? Here's how I explain it - you older CFers represent 1% of all the CFers who were born the year you were born. <b> EVERYONE ELSE IS DEAD </b> Don't you see that?!

You do not represent the norm, the standard, or the typical. You have something, probably higher glutathione levels than other CFers, that protect you from catching the virulent bugs. You are the exception. All the others didn't reach your age because they did catch the bugs due to those waiting rooms, hospital rooms, etc. If you look at countries such as Denmark who have had cross-contamination rules for many years more than the US, their patients live well into their late 40s.

<div class="FTQUOTE"><begin quote>Do we feel badly about exposing <b>ANYBODY </b>to our bacteria. We don't know who's immune system is suppressed and sucseptible to our set of germs/bacteria. Do we wear a mask everywhere we go? Are we to be 'bubble boys' and girls? </end quote></div>

One of the 1st things I asked a person who lives in my city is where he shops, goes to the gym, etc. I would never knowingly pass my germs onto another CFer.

We're not talking about "wearing masks everywhere we go" - the topic was being on a plane KNOWINGLY next to someone who has CF. The issue of knowingly passing on bacteria is so completely different ....

<div class="FTQUOTE"><begin quote>What about our wonderful doctor's office? Do we really think that the piece of flimsy paper that they have covering only a small percentage of the exam table will actually in any way protect us from previous patients germs? Do they wipe them down with sterilizing solution between patients? <i>I think not! </i> </end quote></div>

Wrong - mine does. Wipes the door nobs down, the chairs, the exam tables, the talbe where he writes on the charts, etc. It's good practice coming from the Netherlands.



<div class="FTQUOTE"><begin quote> But what is this 3 feet thing anyway - how far do the droplets fly when a person sneezes? </end quote></div>

They fly less than 2 feet. Droplets are heavy and therefore fall to the ground quickly.
 

dbtoo

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>
How do I explain it? Here's how I explain it - you older CFers represent 1% of all the CFers who were born the year you were born. <b> EVERYONE ELSE IS DEAD </b> Don't you see that?!</end quote></div>


<b>Post the study which supports your 1% claim</b> , I would like to read how they collected that data and on what basis these percentages are made.

Or was this just a typical made up number to support your personal observation that <div class="FTQUOTE"><begin quote><b> EVERYONE ELSE IS DEAD </b> </end quote></div>, cause I just can't see it.

- A zombified dbtoo
...... long live the 1%er !!!
 

dbtoo

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>
How do I explain it? Here's how I explain it - you older CFers represent 1% of all the CFers who were born the year you were born. <b> EVERYONE ELSE IS DEAD </b> Don't you see that?!</end quote></div>


<b>Post the study which supports your 1% claim</b> , I would like to read how they collected that data and on what basis these percentages are made.

Or was this just a typical made up number to support your personal observation that <div class="FTQUOTE"><begin quote><b> EVERYONE ELSE IS DEAD </b> </end quote></div>, cause I just can't see it.

- A zombified dbtoo
...... long live the 1%er !!!
 

dbtoo

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>
How do I explain it? Here's how I explain it - you older CFers represent 1% of all the CFers who were born the year you were born. <b> EVERYONE ELSE IS DEAD </b> Don't you see that?!</end quote></div>


<b>Post the study which supports your 1% claim</b> , I would like to read how they collected that data and on what basis these percentages are made.

Or was this just a typical made up number to support your personal observation that <div class="FTQUOTE"><begin quote><b> EVERYONE ELSE IS DEAD </b> </end quote></div>, cause I just can't see it.

- A zombified dbtoo
...... long live the 1%er !!!
 

Diane

New member
I agree with dbtoo also. I spent plenty of time in a childrens hospital when i was diagnosed with diabetes when i was 15. I semed to be in the hospital every 6 months or so for a few years because i had a hard time getting things right. I shared a room with another cf patient many times, we all went down to the cafeteria together some days, we also played in the play room and hung out in each others rooms and nobody was any worse for the wear. Then when i was 31 and had NO contact with any other cf patients for many years, i go in the hospital for a routine sinus surgery in a private room all by myself and Volia' i pick up cepacia.
~~ Kelli, you shouldnt be made to feel guilty for going on a plane with your neice,so ignore the request to do so.
If you lived your whole life in fear of catching something from other cf'ers or giving something to them you may as well not ever leave the house. There are probably cf'ers we all have come in contact with and never knew it, after all no one wears a sign that says " if you have cf stay away from me - i have it too and we dont want to cross infect " as long as you both have not cultured anything bad recently, just take the normal precautions .... the 3 foot rule, not sitting next to each other, the masks , and the handsanitizer . Keep in mind all the cf'rs who live in the same house as their siblings with cf or a parent with cf. Caution and common sense go a long way in helping avoid problems. To be honest i would worry more about the other people on the plane who may have , who knows what. You have no idea what the person sitting next to you has, so be as careful as you can (and your neice also)to protect yourself from what others may have. You and your neice <b>know</b> what each other has and can take the necessary precautions ,but, some other person on the plane might have something far worse for you to worry about.
 

Diane

New member
I agree with dbtoo also. I spent plenty of time in a childrens hospital when i was diagnosed with diabetes when i was 15. I semed to be in the hospital every 6 months or so for a few years because i had a hard time getting things right. I shared a room with another cf patient many times, we all went down to the cafeteria together some days, we also played in the play room and hung out in each others rooms and nobody was any worse for the wear. Then when i was 31 and had NO contact with any other cf patients for many years, i go in the hospital for a routine sinus surgery in a private room all by myself and Volia' i pick up cepacia.
~~ Kelli, you shouldnt be made to feel guilty for going on a plane with your neice,so ignore the request to do so.
If you lived your whole life in fear of catching something from other cf'ers or giving something to them you may as well not ever leave the house. There are probably cf'ers we all have come in contact with and never knew it, after all no one wears a sign that says " if you have cf stay away from me - i have it too and we dont want to cross infect " as long as you both have not cultured anything bad recently, just take the normal precautions .... the 3 foot rule, not sitting next to each other, the masks , and the handsanitizer . Keep in mind all the cf'rs who live in the same house as their siblings with cf or a parent with cf. Caution and common sense go a long way in helping avoid problems. To be honest i would worry more about the other people on the plane who may have , who knows what. You have no idea what the person sitting next to you has, so be as careful as you can (and your neice also)to protect yourself from what others may have. You and your neice <b>know</b> what each other has and can take the necessary precautions ,but, some other person on the plane might have something far worse for you to worry about.
 

Diane

New member
I agree with dbtoo also. I spent plenty of time in a childrens hospital when i was diagnosed with diabetes when i was 15. I semed to be in the hospital every 6 months or so for a few years because i had a hard time getting things right. I shared a room with another cf patient many times, we all went down to the cafeteria together some days, we also played in the play room and hung out in each others rooms and nobody was any worse for the wear. Then when i was 31 and had NO contact with any other cf patients for many years, i go in the hospital for a routine sinus surgery in a private room all by myself and Volia' i pick up cepacia.
~~ Kelli, you shouldnt be made to feel guilty for going on a plane with your neice,so ignore the request to do so.
If you lived your whole life in fear of catching something from other cf'ers or giving something to them you may as well not ever leave the house. There are probably cf'ers we all have come in contact with and never knew it, after all no one wears a sign that says " if you have cf stay away from me - i have it too and we dont want to cross infect " as long as you both have not cultured anything bad recently, just take the normal precautions .... the 3 foot rule, not sitting next to each other, the masks , and the handsanitizer . Keep in mind all the cf'rs who live in the same house as their siblings with cf or a parent with cf. Caution and common sense go a long way in helping avoid problems. To be honest i would worry more about the other people on the plane who may have , who knows what. You have no idea what the person sitting next to you has, so be as careful as you can (and your neice also)to protect yourself from what others may have. You and your neice <b>know</b> what each other has and can take the necessary precautions ,but, some other person on the plane might have something far worse for you to worry about.
 

Kelli

New member
First of all let me thank all of you who have valid advice on keeping my niece and myself healthy for this flight. That is what I came on here for. To see what others do to protect themselves and to protect OTHERS from what I may have. My niece for example, I would be SO upset if I gave something to HER.

Now, Sakasuka, I am not going to waste my time even giving you the time of day of replying to your comments. Give it a rest. PLEASE! And don't bother even replying to this, I will not check it. I HATE how everything turns into a fight. Certain people make this forum not fun for others.

And I am not posting about some stranger with CF being on my flight. I'm talking about my niece and myself. We know what we culture, we know what we could pass, we know all of this. I was simply asking what others do.

Once again, thanks to those who posted valid & helpful info (which is about 99% of you).

Now, I need to go frolic in the sun and surf!!!!
<img src="i/expressions/sun.gif" border="0">
 

Kelli

New member
First of all let me thank all of you who have valid advice on keeping my niece and myself healthy for this flight. That is what I came on here for. To see what others do to protect themselves and to protect OTHERS from what I may have. My niece for example, I would be SO upset if I gave something to HER.

Now, Sakasuka, I am not going to waste my time even giving you the time of day of replying to your comments. Give it a rest. PLEASE! And don't bother even replying to this, I will not check it. I HATE how everything turns into a fight. Certain people make this forum not fun for others.

And I am not posting about some stranger with CF being on my flight. I'm talking about my niece and myself. We know what we culture, we know what we could pass, we know all of this. I was simply asking what others do.

Once again, thanks to those who posted valid & helpful info (which is about 99% of you).

Now, I need to go frolic in the sun and surf!!!!
<img src="i/expressions/sun.gif" border="0">
 

Kelli

New member
First of all let me thank all of you who have valid advice on keeping my niece and myself healthy for this flight. That is what I came on here for. To see what others do to protect themselves and to protect OTHERS from what I may have. My niece for example, I would be SO upset if I gave something to HER.

Now, Sakasuka, I am not going to waste my time even giving you the time of day of replying to your comments. Give it a rest. PLEASE! And don't bother even replying to this, I will not check it. I HATE how everything turns into a fight. Certain people make this forum not fun for others.

And I am not posting about some stranger with CF being on my flight. I'm talking about my niece and myself. We know what we culture, we know what we could pass, we know all of this. I was simply asking what others do.

Once again, thanks to those who posted valid & helpful info (which is about 99% of you).

Now, I need to go frolic in the sun and surf!!!!
<img src="i/expressions/sun.gif" border="0">
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

How do I explain it? Here's how I explain it - you older CFers represent 1% of all the CFers who were born the year you were born. <b> EVERYONE ELSE IS DEAD </b> Don't you see that?!</end quote></div>





<b>Post the study which supports your 1% claim</b> , I would like to read how they collected that data and on what basis these percentages are made.



Or was this just a typical made up number to support your personal observation that <div class="FTQUOTE"><begin quote><b> EVERYONE ELSE IS DEAD </b> </end quote></div>, cause I just can't see it.



- A zombified dbtoo

...... long live the 1%er !!!</end quote></div>

Look at the CFF annual report
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

How do I explain it? Here's how I explain it - you older CFers represent 1% of all the CFers who were born the year you were born. <b> EVERYONE ELSE IS DEAD </b> Don't you see that?!</end quote></div>





<b>Post the study which supports your 1% claim</b> , I would like to read how they collected that data and on what basis these percentages are made.



Or was this just a typical made up number to support your personal observation that <div class="FTQUOTE"><begin quote><b> EVERYONE ELSE IS DEAD </b> </end quote></div>, cause I just can't see it.



- A zombified dbtoo

...... long live the 1%er !!!</end quote></div>

Look at the CFF annual report
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

How do I explain it? Here's how I explain it - you older CFers represent 1% of all the CFers who were born the year you were born. <b> EVERYONE ELSE IS DEAD </b> Don't you see that?!</end quote></div>





<b>Post the study which supports your 1% claim</b> , I would like to read how they collected that data and on what basis these percentages are made.



Or was this just a typical made up number to support your personal observation that <div class="FTQUOTE"><begin quote><b> EVERYONE ELSE IS DEAD </b> </end quote></div>, cause I just can't see it.



- A zombified dbtoo

...... long live the 1%er !!!</end quote></div>

Look at the CFF annual report
 

dbtoo

New member
I guess I'm still not seeing, the only reference to my birth year (1957) in the <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/ID=4449/TYPE=1688/2005%20CFF%20Annual%20Report.pdf">CFF Annual Report </a> that I could find was " 1957 Median age of survival reached 5 years" on page 38. Of course, the quote on page 10 is interesting: " Looking back over 50 years of changes in care, Doenshuk marvels at the increase in the median age of survival for people with CF. "Seeing children that we treated now in their 30's, 40's and 50's is exactly what we had hoped for. It is extroadinarily gratifying to see adults with CF getting gray hair and beards, going bald and wearing bifocals.""


Cheeses man,.... let me go get my walker.... <img src=""> , I'm feeling old...! Now where did I put my readers...?

(Amy, I do applaud your physician if they do in fact, sterilize after each patient. That's great. I wish I had docs that did that. Maybe I would live longer.)
 

dbtoo

New member
I guess I'm still not seeing, the only reference to my birth year (1957) in the <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/ID=4449/TYPE=1688/2005%20CFF%20Annual%20Report.pdf">CFF Annual Report </a> that I could find was " 1957 Median age of survival reached 5 years" on page 38. Of course, the quote on page 10 is interesting: " Looking back over 50 years of changes in care, Doenshuk marvels at the increase in the median age of survival for people with CF. "Seeing children that we treated now in their 30's, 40's and 50's is exactly what we had hoped for. It is extroadinarily gratifying to see adults with CF getting gray hair and beards, going bald and wearing bifocals.""


Cheeses man,.... let me go get my walker.... <img src=""> , I'm feeling old...! Now where did I put my readers...?

(Amy, I do applaud your physician if they do in fact, sterilize after each patient. That's great. I wish I had docs that did that. Maybe I would live longer.)
 
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