PICC tomorrow

Skye

New member
I had a lovely day yesterday.....can you sense the sarcasm. It started with a trip to Urgent Care for an ear infection my daughter had. Later that night I had an episode of hemoptysis....hasn't happened in years, ughh and double ughh scarey. I did all the right things and made all the right calls. I called my local center because it was at night. He did not seem too concerned by the amount and gave me the protocol to follow with of course ER directions that we all know to do. He didn't say anything about needing to be seen or calling in the morning unless things got worse of course. I had also just been seen the day before at the big center I go to. Well it stopped fast and never came back. I should mention that I am on Cipro and inhaled AL already.

So I called my bigger center that next morning to let them know because I am on AL AND I had just seen them and also because my local doc is leaving for good tomorrow. He is moving and some doc I have not yet seen was taking over. Great timing. So the nurse at the bigger center was very concerned and thought an IV course was a must. So they offered to get the ball rolling and figure out how to handle things since my local doc was leaving. So I called my local center to give them a heads up to schedule an IV placement because sometimes it takes up to five days outpatient. I just left a voicemail message and told them that the other center was thinking IV's should probably be started so to please call me and let us see if we can get something scheduled. I even asked the bigger center nurse how to handle that call because remember my local doc didn't mention IV's or coming in to see him the next day. So I didn't want him to think I was going over his head. I just was making a simple call to the big center and I really didn't expect that they would really insist on IV's. So the nurse thought he would probably be relieved that someone else was handling things since he was moving tomorrow.

Well this caused some stepped on toes and my local doc called and I think was a little ticked that they had not called him. I know they probably would have that afternoon; but, probably had just not gotten around to it and nothing had been decided or even scheduled yet. I was just trying to get a jump on scheduling the PICC placement and letting my local center know what the bigger center was thinking.

This communication breakdown sucked for me. I have to look out for my best interests though and I felt it my responsibility to let both centers know. The big center just had a more proactive approach and as I look back on it, there is no way I would have felt comfortable with having a bleed like I had last night and not being seen going into the weekend. So I guess I just need to not care about hurt feelings or being too detailed or demanding too much of anyone's time. I am too sensitive that way and the fact remains that this is a CAREER for them only but for me it is my LIFE. So I will make some noise if it means I protect my health in the process. If I send an e-mail that didn't need to be sent or if I OVER communicate or make some requests....then so be it. It is MY life I am talking about.
 

Skye

New member
I had a lovely day yesterday.....can you sense the sarcasm. It started with a trip to Urgent Care for an ear infection my daughter had. Later that night I had an episode of hemoptysis....hasn't happened in years, ughh and double ughh scarey. I did all the right things and made all the right calls. I called my local center because it was at night. He did not seem too concerned by the amount and gave me the protocol to follow with of course ER directions that we all know to do. He didn't say anything about needing to be seen or calling in the morning unless things got worse of course. I had also just been seen the day before at the big center I go to. Well it stopped fast and never came back. I should mention that I am on Cipro and inhaled AL already.

So I called my bigger center that next morning to let them know because I am on AL AND I had just seen them and also because my local doc is leaving for good tomorrow. He is moving and some doc I have not yet seen was taking over. Great timing. So the nurse at the bigger center was very concerned and thought an IV course was a must. So they offered to get the ball rolling and figure out how to handle things since my local doc was leaving. So I called my local center to give them a heads up to schedule an IV placement because sometimes it takes up to five days outpatient. I just left a voicemail message and told them that the other center was thinking IV's should probably be started so to please call me and let us see if we can get something scheduled. I even asked the bigger center nurse how to handle that call because remember my local doc didn't mention IV's or coming in to see him the next day. So I didn't want him to think I was going over his head. I just was making a simple call to the big center and I really didn't expect that they would really insist on IV's. So the nurse thought he would probably be relieved that someone else was handling things since he was moving tomorrow.

Well this caused some stepped on toes and my local doc called and I think was a little ticked that they had not called him. I know they probably would have that afternoon; but, probably had just not gotten around to it and nothing had been decided or even scheduled yet. I was just trying to get a jump on scheduling the PICC placement and letting my local center know what the bigger center was thinking.

This communication breakdown sucked for me. I have to look out for my best interests though and I felt it my responsibility to let both centers know. The big center just had a more proactive approach and as I look back on it, there is no way I would have felt comfortable with having a bleed like I had last night and not being seen going into the weekend. So I guess I just need to not care about hurt feelings or being too detailed or demanding too much of anyone's time. I am too sensitive that way and the fact remains that this is a CAREER for them only but for me it is my LIFE. So I will make some noise if it means I protect my health in the process. If I send an e-mail that didn't need to be sent or if I OVER communicate or make some requests....then so be it. It is MY life I am talking about.
 

Skye

New member
I had a lovely day yesterday.....can you sense the sarcasm. It started with a trip to Urgent Care for an ear infection my daughter had. Later that night I had an episode of hemoptysis....hasn't happened in years, ughh and double ughh scarey. I did all the right things and made all the right calls. I called my local center because it was at night. He did not seem too concerned by the amount and gave me the protocol to follow with of course ER directions that we all know to do. He didn't say anything about needing to be seen or calling in the morning unless things got worse of course. I had also just been seen the day before at the big center I go to. Well it stopped fast and never came back. I should mention that I am on Cipro and inhaled AL already.

So I called my bigger center that next morning to let them know because I am on AL AND I had just seen them and also because my local doc is leaving for good tomorrow. He is moving and some doc I have not yet seen was taking over. Great timing. So the nurse at the bigger center was very concerned and thought an IV course was a must. So they offered to get the ball rolling and figure out how to handle things since my local doc was leaving. So I called my local center to give them a heads up to schedule an IV placement because sometimes it takes up to five days outpatient. I just left a voicemail message and told them that the other center was thinking IV's should probably be started so to please call me and let us see if we can get something scheduled. I even asked the bigger center nurse how to handle that call because remember my local doc didn't mention IV's or coming in to see him the next day. So I didn't want him to think I was going over his head. I just was making a simple call to the big center and I really didn't expect that they would really insist on IV's. So the nurse thought he would probably be relieved that someone else was handling things since he was moving tomorrow.

Well this caused some stepped on toes and my local doc called and I think was a little ticked that they had not called him. I know they probably would have that afternoon; but, probably had just not gotten around to it and nothing had been decided or even scheduled yet. I was just trying to get a jump on scheduling the PICC placement and letting my local center know what the bigger center was thinking.

This communication breakdown sucked for me. I have to look out for my best interests though and I felt it my responsibility to let both centers know. The big center just had a more proactive approach and as I look back on it, there is no way I would have felt comfortable with having a bleed like I had last night and not being seen going into the weekend. So I guess I just need to not care about hurt feelings or being too detailed or demanding too much of anyone's time. I am too sensitive that way and the fact remains that this is a CAREER for them only but for me it is my LIFE. So I will make some noise if it means I protect my health in the process. If I send an e-mail that didn't need to be sent or if I OVER communicate or make some requests....then so be it. It is MY life I am talking about.
 

Skye

New member
I had a lovely day yesterday.....can you sense the sarcasm. It started with a trip to Urgent Care for an ear infection my daughter had. Later that night I had an episode of hemoptysis....hasn't happened in years, ughh and double ughh scarey. I did all the right things and made all the right calls. I called my local center because it was at night. He did not seem too concerned by the amount and gave me the protocol to follow with of course ER directions that we all know to do. He didn't say anything about needing to be seen or calling in the morning unless things got worse of course. I had also just been seen the day before at the big center I go to. Well it stopped fast and never came back. I should mention that I am on Cipro and inhaled AL already.

So I called my bigger center that next morning to let them know because I am on AL AND I had just seen them and also because my local doc is leaving for good tomorrow. He is moving and some doc I have not yet seen was taking over. Great timing. So the nurse at the bigger center was very concerned and thought an IV course was a must. So they offered to get the ball rolling and figure out how to handle things since my local doc was leaving. So I called my local center to give them a heads up to schedule an IV placement because sometimes it takes up to five days outpatient. I just left a voicemail message and told them that the other center was thinking IV's should probably be started so to please call me and let us see if we can get something scheduled. I even asked the bigger center nurse how to handle that call because remember my local doc didn't mention IV's or coming in to see him the next day. So I didn't want him to think I was going over his head. I just was making a simple call to the big center and I really didn't expect that they would really insist on IV's. So the nurse thought he would probably be relieved that someone else was handling things since he was moving tomorrow.

Well this caused some stepped on toes and my local doc called and I think was a little ticked that they had not called him. I know they probably would have that afternoon; but, probably had just not gotten around to it and nothing had been decided or even scheduled yet. I was just trying to get a jump on scheduling the PICC placement and letting my local center know what the bigger center was thinking.

This communication breakdown sucked for me. I have to look out for my best interests though and I felt it my responsibility to let both centers know. The big center just had a more proactive approach and as I look back on it, there is no way I would have felt comfortable with having a bleed like I had last night and not being seen going into the weekend. So I guess I just need to not care about hurt feelings or being too detailed or demanding too much of anyone's time. I am too sensitive that way and the fact remains that this is a CAREER for them only but for me it is my LIFE. So I will make some noise if it means I protect my health in the process. If I send an e-mail that didn't need to be sent or if I OVER communicate or make some requests....then so be it. It is MY life I am talking about.
 

Skye

New member
I had a lovely day yesterday.....can you sense the sarcasm. It started with a trip to Urgent Care for an ear infection my daughter had. Later that night I had an episode of hemoptysis....hasn't happened in years, ughh and double ughh scarey. I did all the right things and made all the right calls. I called my local center because it was at night. He did not seem too concerned by the amount and gave me the protocol to follow with of course ER directions that we all know to do. He didn't say anything about needing to be seen or calling in the morning unless things got worse of course. I had also just been seen the day before at the big center I go to. Well it stopped fast and never came back. I should mention that I am on Cipro and inhaled AL already.
<br />
<br />So I called my bigger center that next morning to let them know because I am on AL AND I had just seen them and also because my local doc is leaving for good tomorrow. He is moving and some doc I have not yet seen was taking over. Great timing. So the nurse at the bigger center was very concerned and thought an IV course was a must. So they offered to get the ball rolling and figure out how to handle things since my local doc was leaving. So I called my local center to give them a heads up to schedule an IV placement because sometimes it takes up to five days outpatient. I just left a voicemail message and told them that the other center was thinking IV's should probably be started so to please call me and let us see if we can get something scheduled. I even asked the bigger center nurse how to handle that call because remember my local doc didn't mention IV's or coming in to see him the next day. So I didn't want him to think I was going over his head. I just was making a simple call to the big center and I really didn't expect that they would really insist on IV's. So the nurse thought he would probably be relieved that someone else was handling things since he was moving tomorrow.
<br />
<br />Well this caused some stepped on toes and my local doc called and I think was a little ticked that they had not called him. I know they probably would have that afternoon; but, probably had just not gotten around to it and nothing had been decided or even scheduled yet. I was just trying to get a jump on scheduling the PICC placement and letting my local center know what the bigger center was thinking.
<br />
<br />This communication breakdown sucked for me. I have to look out for my best interests though and I felt it my responsibility to let both centers know. The big center just had a more proactive approach and as I look back on it, there is no way I would have felt comfortable with having a bleed like I had last night and not being seen going into the weekend. So I guess I just need to not care about hurt feelings or being too detailed or demanding too much of anyone's time. I am too sensitive that way and the fact remains that this is a CAREER for them only but for me it is my LIFE. So I will make some noise if it means I protect my health in the process. If I send an e-mail that didn't need to be sent or if I OVER communicate or make some requests....then so be it. It is MY life I am talking about.
 

Landy

New member
I'm sorry you've had some hemoptysis! That can be scary. I'm glad that they are doing some IVs, hopefully that will take care of the hemoptsis issues.
There's no chance the AL is the cause, is there?

I can so relate to your dilema with your doctors. I recently had to tell my CF doctor that I wanted my medical doctor handling my blood clot issues because I felt that he may be more well-versed in how to treat them. I hope that's going to be to my advantage!! But, it is hard--you don't want to offend anyone, but like you said, your health is of utmost importance here, so lets the chips fall where they may...
 

Landy

New member
I'm sorry you've had some hemoptysis! That can be scary. I'm glad that they are doing some IVs, hopefully that will take care of the hemoptsis issues.
There's no chance the AL is the cause, is there?

I can so relate to your dilema with your doctors. I recently had to tell my CF doctor that I wanted my medical doctor handling my blood clot issues because I felt that he may be more well-versed in how to treat them. I hope that's going to be to my advantage!! But, it is hard--you don't want to offend anyone, but like you said, your health is of utmost importance here, so lets the chips fall where they may...
 

Landy

New member
I'm sorry you've had some hemoptysis! That can be scary. I'm glad that they are doing some IVs, hopefully that will take care of the hemoptsis issues.
There's no chance the AL is the cause, is there?

I can so relate to your dilema with your doctors. I recently had to tell my CF doctor that I wanted my medical doctor handling my blood clot issues because I felt that he may be more well-versed in how to treat them. I hope that's going to be to my advantage!! But, it is hard--you don't want to offend anyone, but like you said, your health is of utmost importance here, so lets the chips fall where they may...
 

Landy

New member
I'm sorry you've had some hemoptysis! That can be scary. I'm glad that they are doing some IVs, hopefully that will take care of the hemoptsis issues.
There's no chance the AL is the cause, is there?

I can so relate to your dilema with your doctors. I recently had to tell my CF doctor that I wanted my medical doctor handling my blood clot issues because I felt that he may be more well-versed in how to treat them. I hope that's going to be to my advantage!! But, it is hard--you don't want to offend anyone, but like you said, your health is of utmost importance here, so lets the chips fall where they may...
 

Landy

New member
I'm sorry you've had some hemoptysis! That can be scary. I'm glad that they are doing some IVs, hopefully that will take care of the hemoptsis issues.
<br />There's no chance the AL is the cause, is there?
<br />
<br />I can so relate to your dilema with your doctors. I recently had to tell my CF doctor that I wanted my medical doctor handling my blood clot issues because I felt that he may be more well-versed in how to treat them. I hope that's going to be to my advantage!! But, it is hard--you don't want to offend anyone, but like you said, your health is of utmost importance here, so lets the chips fall where they may...
 

Skye

New member
Thanks Landy......no I have been on AL for a year with no problems. If anything it may have been a Collistin trial I did the day before. Also, heat can tend to set that off for me and I was in a hot car that day. It was not too bad and subsided within a few seconds. Just a bit freaky! I guess I am use to freaky<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think that when I am in a situation like that and I am also on a high dose of oral antibiotics, I can tend to be a bit paranoid or over sensitive to things that are said and done. I can read into things when really people are just busy or maybe minimally annoyed by something. It also may be close to that time of the month.....that would explain the hemoptysis and sensitivity, ughh!

I get my PICC today around noon. My daughter has a slumber party to go to and my husband is working tonight. So tonight will just have to be all about me and taking care of myself<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Skye

New member
Thanks Landy......no I have been on AL for a year with no problems. If anything it may have been a Collistin trial I did the day before. Also, heat can tend to set that off for me and I was in a hot car that day. It was not too bad and subsided within a few seconds. Just a bit freaky! I guess I am use to freaky<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think that when I am in a situation like that and I am also on a high dose of oral antibiotics, I can tend to be a bit paranoid or over sensitive to things that are said and done. I can read into things when really people are just busy or maybe minimally annoyed by something. It also may be close to that time of the month.....that would explain the hemoptysis and sensitivity, ughh!

I get my PICC today around noon. My daughter has a slumber party to go to and my husband is working tonight. So tonight will just have to be all about me and taking care of myself<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Skye

New member
Thanks Landy......no I have been on AL for a year with no problems. If anything it may have been a Collistin trial I did the day before. Also, heat can tend to set that off for me and I was in a hot car that day. It was not too bad and subsided within a few seconds. Just a bit freaky! I guess I am use to freaky<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think that when I am in a situation like that and I am also on a high dose of oral antibiotics, I can tend to be a bit paranoid or over sensitive to things that are said and done. I can read into things when really people are just busy or maybe minimally annoyed by something. It also may be close to that time of the month.....that would explain the hemoptysis and sensitivity, ughh!

I get my PICC today around noon. My daughter has a slumber party to go to and my husband is working tonight. So tonight will just have to be all about me and taking care of myself<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Skye

New member
Thanks Landy......no I have been on AL for a year with no problems. If anything it may have been a Collistin trial I did the day before. Also, heat can tend to set that off for me and I was in a hot car that day. It was not too bad and subsided within a few seconds. Just a bit freaky! I guess I am use to freaky<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think that when I am in a situation like that and I am also on a high dose of oral antibiotics, I can tend to be a bit paranoid or over sensitive to things that are said and done. I can read into things when really people are just busy or maybe minimally annoyed by something. It also may be close to that time of the month.....that would explain the hemoptysis and sensitivity, ughh!

I get my PICC today around noon. My daughter has a slumber party to go to and my husband is working tonight. So tonight will just have to be all about me and taking care of myself<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Skye

New member
Thanks Landy......no I have been on AL for a year with no problems. If anything it may have been a Collistin trial I did the day before. Also, heat can tend to set that off for me and I was in a hot car that day. It was not too bad and subsided within a few seconds. Just a bit freaky! I guess I am use to freaky<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think that when I am in a situation like that and I am also on a high dose of oral antibiotics, I can tend to be a bit paranoid or over sensitive to things that are said and done. I can read into things when really people are just busy or maybe minimally annoyed by something. It also may be close to that time of the month.....that would explain the hemoptysis and sensitivity, ughh!
<br />
<br />I get my PICC today around noon. My daughter has a slumber party to go to and my husband is working tonight. So tonight will just have to be all about me and taking care of myself<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Landy

New member
I hope it goes well tomorrow and that you've had a nice, quiet evening<img src="i/expressions/moon.gif" border="0">
 

Landy

New member
I hope it goes well tomorrow and that you've had a nice, quiet evening<img src="i/expressions/moon.gif" border="0">
 

Landy

New member
I hope it goes well tomorrow and that you've had a nice, quiet evening<img src="i/expressions/moon.gif" border="0">
 

Landy

New member
I hope it goes well tomorrow and that you've had a nice, quiet evening<img src="i/expressions/moon.gif" border="0">
 

Landy

New member
I hope it goes well tomorrow and that you've had a nice, quiet evening<img src="i/expressions/moon.gif" border="0">
 
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