Prevent mistakes and misdiagnoses

Havoc

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>beautifulsoul</b></i>

<div class="FTQUOTE"><begin quote>I believe it's You help me (patients giving doctor info. symptoms etc.), I help you (doctor analyze's, researches, treats symptoms etc.) sort of thing. I think it's pretty important to want to help yourself before you expect anyone else to help you. Self confidence and faith is a big issue in my opinion. I know, that may be especially hard for teenagers with CF. </end quote><br><br>You make a good point. I think there's a good bit of "white coat syndrome" where people feel intimidated and clam up for fear of saying something that sounds dumb. And every once in awhile you might, but believe me, the docs have heard worse. <br><br>The physical exam and labs are only about 25% of the diagnosis, the majority of the diagnosis comes from what you, the patient, tells the health care professional. We then come up with what's called a differential diagnosis, meaning: Here's a list of things that could be wrong based on what you told us. Then an exam is done as well as diagnostic tests to try and rule out those conditions. If one or more remains that cannot be ruled out, it's treated. If one never mentions anything, then there's no differential diagnosis and you have to hope something shows in routine labs or exams. <br>
 

Havoc

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>beautifulsoul</b></i>

<div class="FTQUOTE"><begin quote>I believe it's You help me (patients giving doctor info. symptoms etc.), I help you (doctor analyze's, researches, treats symptoms etc.) sort of thing. I think it's pretty important to want to help yourself before you expect anyone else to help you. Self confidence and faith is a big issue in my opinion. I know, that may be especially hard for teenagers with CF. </end quote><br><br>You make a good point. I think there's a good bit of "white coat syndrome" where people feel intimidated and clam up for fear of saying something that sounds dumb. And every once in awhile you might, but believe me, the docs have heard worse. <br><br>The physical exam and labs are only about 25% of the diagnosis, the majority of the diagnosis comes from what you, the patient, tells the health care professional. We then come up with what's called a differential diagnosis, meaning: Here's a list of things that could be wrong based on what you told us. Then an exam is done as well as diagnostic tests to try and rule out those conditions. If one or more remains that cannot be ruled out, it's treated. If one never mentions anything, then there's no differential diagnosis and you have to hope something shows in routine labs or exams. <br>
 

Havoc

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>beautifulsoul</b></i>

<div class="FTQUOTE"><begin quote>I believe it's You help me (patients giving doctor info. symptoms etc.), I help you (doctor analyze's, researches, treats symptoms etc.) sort of thing. I think it's pretty important to want to help yourself before you expect anyone else to help you. Self confidence and faith is a big issue in my opinion. I know, that may be especially hard for teenagers with CF. </end quote><br><br>You make a good point. I think there's a good bit of "white coat syndrome" where people feel intimidated and clam up for fear of saying something that sounds dumb. And every once in awhile you might, but believe me, the docs have heard worse. <br><br>The physical exam and labs are only about 25% of the diagnosis, the majority of the diagnosis comes from what you, the patient, tells the health care professional. We then come up with what's called a differential diagnosis, meaning: Here's a list of things that could be wrong based on what you told us. Then an exam is done as well as diagnostic tests to try and rule out those conditions. If one or more remains that cannot be ruled out, it's treated. If one never mentions anything, then there's no differential diagnosis and you have to hope something shows in routine labs or exams. <br>
 

ymikhale

New member
I agree with what you say Jonatahn. Where I am it is pretty uncommon to speak up during Dr's appointment, but having lived in the US, I took that habit and I am glad I did. My dd w/cf is only4 y/o, and on 2 occasions the doctors made a mistake (or was about to). I am sooo glad that I followed closely and stood up inspite of the white coat syndrom. It is true that I have a very bad reputation at the hospital, but what the hell, my dd's health is more important.
It might seem odd, but having a reputation of a "trouble maker" turns out to be a good thing, b/c the doctors know you are up todate and follow everything, so they pay close attention.
 

ymikhale

New member
I agree with what you say Jonatahn. Where I am it is pretty uncommon to speak up during Dr's appointment, but having lived in the US, I took that habit and I am glad I did. My dd w/cf is only4 y/o, and on 2 occasions the doctors made a mistake (or was about to). I am sooo glad that I followed closely and stood up inspite of the white coat syndrom. It is true that I have a very bad reputation at the hospital, but what the hell, my dd's health is more important.
It might seem odd, but having a reputation of a "trouble maker" turns out to be a good thing, b/c the doctors know you are up todate and follow everything, so they pay close attention.
 

ymikhale

New member
I agree with what you say Jonatahn. Where I am it is pretty uncommon to speak up during Dr's appointment, but having lived in the US, I took that habit and I am glad I did. My dd w/cf is only4 y/o, and on 2 occasions the doctors made a mistake (or was about to). I am sooo glad that I followed closely and stood up inspite of the white coat syndrom. It is true that I have a very bad reputation at the hospital, but what the hell, my dd's health is more important.
It might seem odd, but having a reputation of a "trouble maker" turns out to be a good thing, b/c the doctors know you are up todate and follow everything, so they pay close attention.
 
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BikerEd

Guest
I look at this way. I pay for my health insurance through work, I pay co-pay at the clinic; I pay whatever that stupid other bill is that the hospital sends. So they are MY employees, they are working for me. Just like a mechanic you wouldn't take your car to the shop and when the Mechanic asks how is it, your going to mention the wobble in the steering wheel the squeaking when you hit the brakes, because he is there to fix it. He can't look at your car and guess what's wrong with it. Or when you pick it up oh hey we also had to replace that doohickey, are you going to ask why or just say okay?
 
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BikerEd

Guest
I look at this way. I pay for my health insurance through work, I pay co-pay at the clinic; I pay whatever that stupid other bill is that the hospital sends. So they are MY employees, they are working for me. Just like a mechanic you wouldn't take your car to the shop and when the Mechanic asks how is it, your going to mention the wobble in the steering wheel the squeaking when you hit the brakes, because he is there to fix it. He can't look at your car and guess what's wrong with it. Or when you pick it up oh hey we also had to replace that doohickey, are you going to ask why or just say okay?
 
B

BikerEd

Guest
I look at this way. I pay for my health insurance through work, I pay co-pay at the clinic; I pay whatever that stupid other bill is that the hospital sends. So they are MY employees, they are working for me. Just like a mechanic you wouldn't take your car to the shop and when the Mechanic asks how is it, your going to mention the wobble in the steering wheel the squeaking when you hit the brakes, because he is there to fix it. He can't look at your car and guess what's wrong with it. Or when you pick it up oh hey we also had to replace that doohickey, are you going to ask why or just say okay?
 

vivsmom

New member
I absolutely agree. My CF Care Center calls me a week prior to my appointment and asks for any questions or med refill scripts I need ahead of time. Well, they may be sorry they do this with me because I always email them at least 8 - 10 questions on research that I found, inquiries to any lab test info I am waiting for, etc. When I get there, they have gone through them all and either have answers or we discuss the next steps. Actually, they are grateful that I am so involved with my care.
 

vivsmom

New member
I absolutely agree. My CF Care Center calls me a week prior to my appointment and asks for any questions or med refill scripts I need ahead of time. Well, they may be sorry they do this with me because I always email them at least 8 - 10 questions on research that I found, inquiries to any lab test info I am waiting for, etc. When I get there, they have gone through them all and either have answers or we discuss the next steps. Actually, they are grateful that I am so involved with my care.
 

vivsmom

New member
I absolutely agree. My CF Care Center calls me a week prior to my appointment and asks for any questions or med refill scripts I need ahead of time. Well, they may be sorry they do this with me because I always email them at least 8 - 10 questions on research that I found, inquiries to any lab test info I am waiting for, etc. When I get there, they have gone through them all and either have answers or we discuss the next steps. Actually, they are grateful that I am so involved with my care.
 

Mistyjo

New member
Wholeheartedly agree!! I researched for hours and still do for both of my girls. If I hadn't we wouldn't be where we are today. We were at one of the best childrens in teh nation and not getting answers. I always have my list of questions and any articles I've read in hand when we go to dr. The cf specialist is getting use to me now and knows that I'm paranoid and have to know everything!!
 

Mistyjo

New member
Wholeheartedly agree!! I researched for hours and still do for both of my girls. If I hadn't we wouldn't be where we are today. We were at one of the best childrens in teh nation and not getting answers. I always have my list of questions and any articles I've read in hand when we go to dr. The cf specialist is getting use to me now and knows that I'm paranoid and have to know everything!!
 

Mistyjo

New member
Wholeheartedly agree!! I researched for hours and still do for both of my girls. If I hadn't we wouldn't be where we are today. We were at one of the best childrens in teh nation and not getting answers. I always have my list of questions and any articles I've read in hand when we go to dr. The cf specialist is getting use to me now and knows that I'm paranoid and have to know everything!!
 
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