Smoking Pot/RSO Oil

burnanator420

New member
I have been using Rick Simpson Oil now for 3 weeks and I have seen some amazing results.http://phoenixtears.ca/ I have also been smoking Marijuana for a year now. Ive found that it breaks and forces that mucus up. Sure the coughing hurts and is certainly not fun but if you can tough out the painful part smoking gets easier over time and the pain relief is almost instant! Anyone else experiencing great results with Marijuana use? I was not ever officially diagnosed with CF we started to suspect I had it a year ago. Over time I noticed my "asthma" attacks getting worse and worse and it feels like I have a lung infection constantly. I would take the inhalers and the steroids like I was prescribed but they did not work, the doctors did not know why, nor did anyone think to test for CF. I started getting the diaphram spasms and I constantly have pain down my left side. It has spasmed so bad before I have looked like I got kicked by a horse. Also as a kid I had protein in my urine but they tested me for diabetes. When I came back with no diabetes my mom told me the doctors were not worried so she never questioned it further.
I started doing my own research because the doctors did not have the answers to my questions. I felt like I just kept getting shipped around place after place. I do have a friend in the medical field who did tell me that all my symptoms do match CF. I am a little scared yes but at least I have an idea of what is going on and why the asthma meds dont work.
I started to take Kyolick Garlic Supplements, we moved back to the West Coast by the salty air, I eat a pure GMO free/Organic/wheat free diet. I also smoke every 2-4 hours or as needed and I take RSO oil twice a week. I want to take it more but its very expensive.... :( My symptoms started to decrease when I started treating myself for Cystic instead of asthma.
I wish I could say Marijuana takes it all away. It doesnt. But it keeps the mucus thin and the pain down and I can at least live a more normal life then I was last year. So if you have not checked it out please do so!
 

azdesertrat

New member
I'm seriously considering medicinal marijuana for chronic pain but I'll be damned if I'll smoke ANYTHING! If I do decide to pursue this, I would only do it under the auspices of my completemedical team.
Smoking, in my humble opinion is absolutely the worse thing a CF patient could do to themselves.
I would seriously reconsider what you're doing here.
When the smoke irritates your lungs & causes a coughing fit, they're trying to tell you something. I think Pulmozyme would probably do a better job of thinning mucous & helping you get rid of it. Its also a helluva lot better for you. Just my 2 cents worth.
Its probably worth exactly what you paid for it.
 

burnanator420

New member
azdesertrat calm down..there are many different strains to smoke. Some are designed so you do not cough off of them. I use oils and edibles more then I smoke plus there is a vaporizer option as well. You get the vapor not the smoke. Here is some information about how Marijuana helps..
Clinical research shows that THC acts as a bronchial dilator, clearing blocked air passageways and allowing free breathing.[2], [3] In one study, marijuana, “caused an immediate reversal of exercise-induced asthma and hyperinflation.”[4] Numerous cases of asthma have been treated successfully with both natural and synthetic THC. In one report, a young woman used marijuana with her doctor’s approval. Over the course of several years her attacks were almost completely cured with low doses of inhaled cannabis smoke.[5]
Some asthmatics who have found relief through the use of synthetic THC often voice a preference for natural cannabis over Marinol. Marinol is said to be less effective than natural cannabis and has far greater psychoactive properties.
Alternative methods of administration have been recommended by the Institute of Medicine [6] and other medical authorities. Plans for a noncombusting THC inhaler received attention for many years, yet designers have failed to produce a workable prototype.[7]
“Experiments examining the antiasthmatic effects of THC or cannabis date mainly from the 1970s, and are acute studies. The effects of a marijuana cigarette (2 percent THC) or oral THC (15 mg), respectively approximately correspond to those obtained with therapeutic does of common bronchodilators drugs (salbutamol, isoprenaline). Following inhalation, the effect lasts about two hours. Since inhalation of cannabis products may irritate the mucous membranes, oral administration or another alternative delivery system would be preferable. Very few patients developed brochoconstriction after inhalation of THC.” [8]
Related sections: Immune Responses, Muscle Spasms, Psychoactivity, Respiratory Disease, Smoking Methods, Stress Reduction.
[HR][/HR][1] Grinspoon, “Marijuana and asthma.” The Forbidden Medicine Website, www.rxmarijuana.com
[2] National Academy of Science, 1982
 

nocode

New member
Hi all. I have been eating THC for a few months (I never smoke) and the main advantage for me is increase of appetite (the munchies). As far as a respiratory relief, I am not sure yet. It's possible that it sometimes triggers a more productive cough, but I cannot be sure if the 2 are directly related yet.
My only concern about consuming THC is that my heart rate sees a slight increase while I'm stoned. Say from around 80 to 90s bpm, but not enough for me to stop because I still believe the advantages outweigh the disadvantages (if there are any). An increase of appetite and consequently food intake is a major plus for me, as I've always been on the thin side.
 

burnanator420

New member
I find my heart beat increases also but it decreases fairly quickly. Nocode what state do you live in? If its a medical state and you have a card get some RSO oil. You put it in a capsule and swallow it. I slept all day on it but had no attacks for 3 days afterward.
 

Katie Low

New member
I use for headaches

I use marijuana 3X weekly for my headaches. Currently I smoke it, but I am looking into cooking with it. MA just legalized medical marijuana, so I believe it will be cheaper for me in the future to be able to eat it. Making food out of it takes a lot more of it, compared to how much I usually smoke. I have had sinus surgery to remove polyps twice, no sense of smell and chronic sinus headaches. Diagnosed two hours after birth
 

azdesertrat

New member
I'm very calm. All I'm trying to get across is that the idea of smoking anything that has tar in it is usually a pretty bad idea for someone with lung disease. It might be for you, but it aint for me. Even if I do decide to use marijuana medicinally, I will not smoke it.
 

LittleLab4CF

Super Moderator
Burnanator420

For the uninitiated, “420” is hippy happy hour or 4:20pm. I scanned over the link you placed in your post and will read it all thoroughly. For you, I suggest changing your handle because twenty years from now, when you are trying to get that killer job, you were once known by such a name. The ONE remaining scary fact about marijuana is to delay using it prior to age 16, give or take a year. The reason for this is in adolescence people are learning how to cope with adult situations and dulling rather than dealing is the start of a lifetime crutch.

I will probably burn in hell for this but I have been resisting posting anything publicly about cannabis. I have been experimenting (and I am talking about scientific research on myself) with medical marijuana for over three years. The first two years were spent testing various strains of medical marijuana (MM) to determine exactly what was in the new products. This was being done in a lab, not by personal evaluation. I will get to that.

I think the “Really?” response was prompted mostly by the word SMOKE. Get with the program, take your tax return and buy a decent vaporizer. Vapir NO2 is around $200 and as a digital temperature controlled vaporizer goes, it is a good choice. If you can’t get properly medicated with a small vaporizer you can buy vaporizers that cost as much as a kitchen stove. On second thought, take a pound of weed place it in the oven at 360 and have a party. Seriously, edible MM products generally constipate me. Some MM recipes use MM roughage along with other stimulating ingredients for bowel motility. I don’t eat it and if any CFer leans toward constipation, there are better solutions. Vaporizing MM at 360 degrees F. will volatilize all the cannabanoids and burn nothing. Breathing in marijuana smoke required “venting” in room temperature air and likewise something must cool the vapor before inhaling. Drawing it into a “bag” is a good way but personal vaporizers like Vapir are drawn on like a smoking pipe. Marijuana paraphernalia that burns the stuff, popularly have a vent hole, called a carburetor. The Vapir looks cool in the advertisements but they fail to show the short length of clear plastic tubing with a cigar mouthpiece stuffed on the end. Instead of sealing the mouthpiece to the tubing, a carburetor effect, cools the vapor. This however takes some fooling around with and although I have modified mine, sorry you’re on your own. I am not endorsing any vaporizer over another but two things are critical if a CFer has any hope of benefitting from cannabanoids. Only the vaporized cannabanoids should be inhaled. Those vapors must be cool enough not to burn your tissue.

In short with pot, Sativa dominant cannabis is loaded mostly with THC, the psychoactive drug in marijuana is the usual bad choice. Indica isn’t loaded with much of anything good but Sativa – Indica hybrids bring out complimentary cannabanoids known as CBD’s. This always yields something like 90 – 10 ratio of THC to CBD’s so ten percent CBD’s is very desirable even at the cost of higher total cannabanoids. THC is most of MM’s effect and it is a mixed bag. It mitigates tingling or stinging with neuropathy, replaces some lost dopamine uptake receptors and helps with nausea. It also can bring on short spates of paranoia that rushes through every so often. It does not deal with pain like morphine or similar narcotic analgesic. THC is a powerful dissociative which is to say you may hurt but are not focused on the pain or anything else, if you take enough. Hybrids that lean highest in CBD’s are best generally and justifiable as a medicine. CBD’s aren’t better than THC although as a group, they make MM a balanced medicine that has far less mental agitation like paranoid moments. The brain needs cannabanoids. Researchers have determined our brains have developed receptors to deal with chronic fight or flight response in modern civilizations.
Cannabanoid receptors in the brain are specialized for THC and another fifty or so CBD’s. Pain and immune-responses are forms of fight or flight stimulus like being wounded, you have to fight or run to stay alive. All of this is based on fairly slim research. As such, so far the research with MM has withheld scrutiny.

I have broken down the vapor components in several MM’s and isolated THC, CBD’s, chlorophyll, some organic oxides in the low parts per million (PPM) that are not carcinogenic. I also have some compounds that I have no idea if they are helpful or deadly. In fact I have tested a concentrate of MM vapor for carcinogenic action. I am comfortable with a huge reservation. My tests are preliminary at best and completely wrong at worst. Vapor hasn’t been proven to be carcinogenic marijuana smoke has been proven to be carcinogenic at a very high but sustainable level of use.

My motivation for testing cannabis initially had to do with my Parkinson’s disease. The disease and the drugs used to treat it added insult to injury when it came to my CF based constipation. Amazingly, and not, I have been able to go completely without my Parkinson’s medications. I have been off for almost a year. Before that I was nearly maxed out on the first drug of choice for managing Parkinson’s. This has made an improvement in my life that only somebody suddenly cured of Parkinson’s can understand!!!

My CF is by definition mild. I will turn 63 this year and though I have had dozens of hospitalizations for pneumonia, usually along with meningitis, the last three years have been without pneumonia or meningitis. I do have CF GI syndrome that involves the pancreas and every GI ailment in the book along with it. As a result I also have endured narcotics for many years along with their GI effects toward constipation. Being free of Parkinson’s symptoms and the side effects of the drugs has finally begun to normalize my GI tract.

With the understanding that relatively speaking, my lungs are not compromised I can say I have experienced pulmonary improvement. I fear to tread into the CFers that wonder about vaporizing MM. First if there is any way to get MM quality material, do that. Street pot needs a close look and a good sniff. Marijuana that has mildew and herbicides that can be detected by smell and is out. A magnifier to examine the product for signs of an amber sap, the cannabanoids, or crawly things like mites can help. Better yet if it isn’t available as MM, find something else to improve your health. All the ideas of MM being an expectorant so far is valid. I have not seen anything harmful in my way of MM use.

As a matter of dosage, it depends on the individual. I use less than two ounces per year. That amounts to about a gram per month. A good stoner would go through this much before going over to friends to really get stoned. Honestly, with objective thinking and caution, MM could do wonders for CF. Taken properly, it quiets my lungs, where they used to spasm for hours with each screeching, screaming breath.

LL
 
D

DmT145

Guest
LittleLab,

That's one of the most reasonable posts on Marijuana and CF I have ever seen. Well done and thank you for avoiding a knee jerk reaction and actually putting some effort into studying MM.
 

LittleLab4CF

Super Moderator
DmT145,
Thank you, I think? Grammar sometimes is confusing for me. If I get it I avoided a knee jerk reaction. And I did make some effort into my research. If so, that certainly was my intent. Marijuana will lose its legal punishments fairly soon and it is and has been used as a medicine for eons literally. The Romans also sweetened wine in lead goblets so yeah, convention doesn't imply correctness. By the same token the world is full of self deceived drug addicts, thinking they could handle that balloon or drink. Marijuana probably is addictive to a few living people but not anywhere close to be considered addictive. Sitting around willingly intoxicated beyond disease management smacks of a sloppy habit. We all are close to out of control alcoholics or other poor suffering drug addicts. Medicate as needed. Intoxicate on occasion. Using moderation is relative and taking personal responsibility is what I'm hearing.

LL
 
D

DmT145

Guest
Yup, sorry if I was unclear. I applaud your efforts and rational thinking.
 

MMBinNC

New member
Throwing this out there. Vaporizing marijuana will get the anti-inflammatory stuff to your lungs without the bed stuff like tar that can cause occlusion and cancer.
 

LittleLab4CF

Super Moderator
That was a pretty good throw. I won't go so far as to say vaporizing marijuana will NEVER result in cancer. It has been established that carcinogens exist in marijuana smoke. Vapor condensed and concentrated was placed on 21 lab rats of juvenile age for 444 days using various methods of skin smears applying MM vapor concentrate. In some of the animals a new compress was applied daily with periodic skin biopsies. The other extreme was a group of animals with a single compress worn for 444 days. After the test period the lab animals were observed and biopsied as needed for 123 days following the removal and cleaning of the animal skin. No abnormal cells were found compared placebo animals. That is to say that five animals developed abnormal skin cells within the test and observation period. None of those animals had more abnormal cells or dysplastic cells known to be pre-cancerous at times in the tested area compared to a non tested area. Included in the five were three control animals that developed dyspastic cells with NO contact with MM vapor concentrate. MM smoke concentrate was not tested.

This is far from conclusive and nobody should take it for anything more. It is adequate for me but I know I am taking a calculated risk. If it is a choice of how to injest MM then vapor wins hands down.

LL
 

PJMak1985

New member
Wow this is very interesting to me. i smoked pot for many years, since I was a young boy actually and I was convinced for the longest time that it was the cure!! Haha! I find that pretty funny now. I turned out to be a drug addict though, almost died from needles. Now ive been sober, dont smoke, dont drink, and I have never been healthier. I say, if it helps you, more power to ya. If it doesnt, recognize that and stop. Marijuana is addictive. Bottom line. It can cause a lot of adverse affects in someone with CF. Look at all the facts about burning one down, not just all the positive info you read. Make a conscious decision and be honest about it with your loved ones. I loved smoking pot. Really loved it. Id probably still be smoking herb if I never got into other stuff. But All i can say is be safe, eat it if you can. Oh and never swallow 60 mg of marinol at once. I think my heart rate went up to 240 for a half an hour and i hallucinated for way too long. May sound fun, but is not recommended from personal experience. Peace and Love
PJ
 

azdesertrat

New member
I hadn't even thought about the cancer potential involved with marijuana.
Since I've had a transplant, obviously I'm taking immuno-supressants. Those damn things are KNOWN to cause cancer.
In fact, I've already had Melanoma. Even though I've pretty much 'hidden' from the AZ. sun all my life, I STILL got Melanoma. I attribute this to the anti-rejection meds.
I smoked my share of pot when I was a kid, somebody else's too, probably!
If I knew I wouldn't get cancer from using pot via vaporizing, I might consider that.
However, I still wouldn't use marijuana in any form unless I consulted with my CF doc & my transplant team.
I just don't think that would be wise.
 

LittleLab4CF

Super Moderator
Sadly many attemps by authorities insulted people's intelligence with anti drug messages concerning marijuana. To that end most people threw the baby out with the bath water by ignoring both the dirty lies and the genuine issues alike. Most propaganda on marijuana is exactly that. Burning any whole plant and inhaling the smoke deeply will result in some amount of carcinogens. I have "government studies" from decades back that state that the non drug tar from a marijuana cigarette is equal to a carton of unfiltered tobacco cigarettes. Then it was declared equivalent to a pack of 20 cigarettes and finally set to a joint having the carcinogenic tar equivalent three cigarettes. Bleah!!!

I don't care if it is home made saline, colloidal silver or medical marijuana vapor, your medical team should be on board if you are considering self medicating over CF. If my lungs were a gift replacing my originals or/and having a compromised immune system every doctor should be informed about a planned change in your medical management. Before I applied for a Colorado Medical Marijuana Registry card all six of my doctors gave me the go ahead for MM consumption. My pain management specialist was resistant stating that in my case MM would not resolve my pain. This was my main reason for considering MM and I dropped it for a couple years. When I ran the idea by all my doctors again, I got a green light across the board. The doctor was correct that MM was no replacement for fentanyl. Then again, nothing can compare.

Injesting MM from a "bag" assures the safest product all around. A digitally controlled vaporizer holds the air passing through the MM to a precise temperature set close to 360F degrees. The temperature is set by the user. Vaporizers that fill an inhaling bag deliver all the cannabanoids in a couple of cool deep breaths. This style of vaporizer gets expensive fast but keep in mind you don't need capacity you need cool, controlled MM vapor.

Carcinogens as such in MM vapor are no greater than edible MM and cancer patients have been treating nausea w/MM for centuries. The argument for palliative use of last resort drugs includes CFers. MM may do nothing more than provide peace for a couple hours. I get nausea that could power my neighborhood and if nothing else the consistent relief from nausea would also be fine.

Transplanted lungs, major pulmonary issues and all but what sensibly should be important must include your doctor(s) agreement. If your doctor can't give you medical conraindications to MM use, confirm that there is no medical objection. Then enlist you doctor to monitor you for any signs of change in your health.

LL
 

robbiekay

New member
I am a mom of a cfer who is 22 yrs old his name is Michael. I personal do smoke mm for anziety to help me sleep. Michael has benn on a decline for about a year, and has gotten very thin I have been wondering my self if mm would be a good choice for him to maybe stimulate his appetite. Him and I have talked about it but how do bring it up with your cf team ?
 

nocode

New member
I find my heart beat increases also but it decreases fairly quickly. Nocode what state do you live in? If its a medical state and you have a card get some RSO oil. You put it in a capsule and swallow it. I slept all day on it but had no attacks for 3 days afterward.
I am an expat in the Netherlands, where you can buy cannabis legally.
I used it again last night and I noticed 2 things. One is that I was suddenly able to get rid of mucus very easily, I didn't even have to cough, only a slight clearing of the throat was enough to bring it all up. Another is that my heart rate increased from about 70s/ 80 at rest to over 100 (max 111). This is above where I would like to see it, but not sure how to deal with it. Does anyone know why this happens?
 
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