Smoking Pot/RSO Oil

burnanator420

New member
Here it goes when I was little I was told asthma my entire life. Whether or not my parents actually got a diagnosis done or not I do not know I moved around so much as a kid I dont even know where to begin to get those medical reports. At 13 they did a urine test for a physical. It popped positive for to much protein. They ran diabetes tests they came back negative my parents didnt think it was a big deal because the doctor did not seem to worried. When I was 17 I randomly had a bad attack and I have not been the same since...here are my symptoms
1. Mucus coming out of every end possible.
2. Gargling sounds in my lungs
3. Albuteral, Prednisone etc never took away the asthma symptoms for more then a few hours. It seemed like I could never control it.
4. Cannot regulate body temp well
5. Nausea when eating. Cannot eat certain vegetables they are to hard to digest
6. Random exhaustion and dizziness
7. Random unexplained attacks
8. Gluten and chemical sensitivities
9. Side spasms in my ribs started out in my left side only then slowly progressed into my right side.

I did find a great doctor in my area. Got hit by a drunk driver two weeks ago so she is trying to get the inflammation in my body down right now from the wreck. Then we are going to discuss getting tested.
 

rmotion

New member
Cannabinoids and Cystic Fibrosis:

http://cannabis.cluster005.ovh.net/data/pdf/2002-01-2.pdf


Cannabinoids and Cystic Fibrosis:
A Novel Approach to Etiology and Therapy

Ester Fride
ABSTRACT. Cannabis stimulates appetite and food intake. This property


has been exploited to benefit AIDS and cancer patients suffering
from wasting disease, by administering the whole plant or its major active

ingredient Δ9-tetrahydrocannabinol (THC).


Endogenous cannabinoids (“endocannabinoids”) are found in maternal
milk. We have recently shown that endocannabinoids are critical for

milk ingestion and survival of newborns because blocking CB1 receptors


resulted in death from malnutrition.
Lack of appetite resulting in malnutrition is a contributing factor to
mortality in many Cystic Fibrosis (CF) patients. It is proposed here for
the first time, to administer THC to CF patients. It is hoped that the
cannabinoid will alleviate malnutrition and thus help prevent wasting in
CF patients.

 

LittleLab4CF

Super Moderator

RobbieKay
"I am a mom of a cfer who is 22 yrs old his name is Michael. I personal do smoke mm for anziety to help me sleep. Michael has benn on a decline for about a year, and has gotten very thin I have been wondering my self if mm would be a good choice for him to maybe stimulate his appetite. Him and I have talked about it but how do bring it up with your cf team ?"


Candidly, honestly and without feeling as if you are looking for a fix. I won't go into quoting scripture aobout the use of plants, but marijuana really has been used for a very long time as medicine. Several pharmaceutical companies make drugs like Marinol, that contain THC or other canabanoids. In fact this may be a good way to go if you hit a wall on MM. Doctors are generally informed about marijuana but due to the fact that a loose remark could cost a medical license, you must initiate and lead the conversation by asking questions. Be prepared for one or two offhand remarks like, "marijuana doesn't resolve nausea". At a level, just like alcohol or any potential intoxicant, you get overwhelmed and the world starts to spin and.... Just nod and keep on asking your questions. If you or anybody wants an outline on talking pot with your doctor, pm me and I will try to put one together.

LL​
 

LittleLab4CF

Super Moderator
Burnnator420,

It's good to see you back, sorry to hear about the auto accident. As for getting tested you are right, it's time. Hopefully you have followed the topic posts involving CF tests over the last year or so. A sweat chloride test is simple, low tech and confirms CF. Have this test but be prepared either way on the results. Confirmation that you apparently don't have CF can sting as much as a positive diagnosis. Sweat tests have often been repeated up to a dozen or more times looking for a positive result. I can't say whether so many repeats are at the behest of parents or doctors but the reason is corny. When clinical symptoms say CF, doctors know that one confirming test out of ten means CF for certain. I am skeptical about how certain this diagnosis would be without clinical symtoms. Clinical symptoms, nine marginal or low tests and one confirming test really does confirm CF. Failure is always an option. This is a highly subjective test and a dozen good reasons exist to throw the test off.

Genetic testing needs to be a full panel of the 2400+/- possible mutations. Since you have really bad asthma and a good sense it is CF, it is almost required. Right now the chances of a genetic drug awaiting your mutation is less than three percent, but there will be one soon. Again this test, like the sweat chloride is somewhat subjective. People with no symptoms of CF are in the CF community because of their genetic profile alone. They likely will never present symptoms while a sibling with an identical CFTR gene mutation set could be ravaged by CF.

These tests should be tools for your doctor. They help determine a diagnosis and develop a course of treatment. Just be treated for your needs and leave the concern over the inevitable contradictions for your CF specialist to ponder. You may find yourself in a new catagory called CRMS or CF Related Metabolic Syndrome. Heterozygous CFTR "carriers" that have milder CF symptoms or confirmed CF genetics and milder CF seem to be filling the catagory unless or until they get worse. It makes sense.

LL
 
B

badweather

Guest
Cannabinoids and Cystic Fibrosis: A Novel Approach to Etiology and Therapy

Ester Fride ABSTRACT.

Cannabis stimulates appetite and food intake. This property has been exploited to benefit AIDS and cancer patients suffering from wasting disease, by administering the whole plant or its major active ingredient ∆ 9 -tetrahydrocannabinol (THC). Endogenous cannabinoids (“endocannabinoids”) are found in maternal milk.

We have recently shown that endocannabinoids are critical for milk ingestion and survival of newborns because blocking CB 1 receptors resulted in death from malnutrition.

Lack of appetite resulting in malnutrition is a contributing factor to mortality in many Cystic Fibrosis (CF) patients.

It is proposed here for the first time, to administer THC to CF patients. It is hoped that the cannabinoid will alleviate malnutrition and thus help prevent wasting in CF patients. Recent findings suggest that a lipid imbalance (high arachidonic acid/low DHA) is a primary factor in the etiology of CF and that defective CFTR (CF transmembrane conductor regulator) that characterizes the CF condition is responsible for the dysregulation. Endocannabinoids are all fatty acid derivatives. Therefore, it is further proposed here that the CFTR gene product also modulates endocannabinoid synthesis, through regulation of fatty acid biosynthesis. According to this hypothesis, CF patients display decreased levels of endocannabinoids and by elevating these levels, symptoms may improve. Indeed, a number of physiological mechanisms of cannabinoids and endocannabinoids coincide with the pathology of CF. Thus it is suggested that potential benefits from THC treatment, in addition to appetite stimulation, will include Ester Fride, PhD, is Senior Lecturer at the Department of Behavioral Sciences and Head of the Laboratory of Behavioral Biology at the College of Judea and Samaria, Ariel, Israel 44837.

This paper is dedicated to Ies Fride (1952-2000) who fought to better the life of all CF patients Journal of Cannabis Therapeutics, Vol. 2(1) 2002  2002 by The Haworth Press, Inc. All rights reserved.



http://www.cannabis-med.org/data/pdf/2002-01-2.pdf
 

JakeS

New member
What I find critical for managing cf

This thread is like reading my life story and having it confirmed. There are three key componants to me managing CF. If I don't have cannabinoids in system I get infections. Viokase, Creon, digestive enzymes, for pancreatic insufficiency, of course. The third component, I only have just recently found a mechanism to control, and that is electrolyte imbalance which of course are magnesium, potassium, zinc, and calcium. We need all of these, but magnesium is the catalyst of all electrolytes, and without it the body is dehydrated on a cellular level. Grew up drinking Gatorade, and eating bannanas, but by about 22 that was not enough. My doctors could not identify it, even though it was clear I was suffering from severe electrolyte imbalance, because I was taking a solid pill form of calcium/magnesium supplement. I finally found coconut water(Gatorade has no signifigant amounts of magnesium) so absorption is critical, and at least for me, the electrolytes have to be in an instantly absorbable (liquid) form. After a decade of muscle cramps, spasms getting worse and worse, I have finally turned things around, and am absorbing food again. I honestly think that the three things CF patients need, for absorption issues are endocannabinoids, electrolytes, and digestive enzymes. If I am missing any of these three, all hell breaks loose. I love the article from study of endocannabinoids, and CF...can't wait to give it to my CF docs, who clearly view pot suspiciously,because of carcinogenic factors. Use a vaporizer, and you eliminate the carcinogens.
 

KingJames

New member
Any garbage you're introducing into your airways is bad, period. It's bad for a healthy person, and can be a death sentence for somebody with CF. If you must utilize any form of THC/CBD/etc., then at least do yourself a favor and never smoke it.

Smoke = bad news for the airways of most living organisms, and that's really all there is to it.
 
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