TOBI tolerance

catboogie

New member
do you guys notice that your ability to tolerate TOBI comes and goes?

i can't figure it out... i've been really sick before and had trouble with it; i've been really sick and been fine. last time i was on it longer than 4 weeks to coincide with iv treatment, my docs took me off it b/c they thought my airways were reacting to it.

i've been cycling tobi since then month on-month off, and the last week or so i'm again feeling slightly short of breath after my hypertonic and my TOBI.

time to stop?
 

catboogie

New member
do you guys notice that your ability to tolerate TOBI comes and goes?

i can't figure it out... i've been really sick before and had trouble with it; i've been really sick and been fine. last time i was on it longer than 4 weeks to coincide with iv treatment, my docs took me off it b/c they thought my airways were reacting to it.

i've been cycling tobi since then month on-month off, and the last week or so i'm again feeling slightly short of breath after my hypertonic and my TOBI.

time to stop?
 

catboogie

New member
do you guys notice that your ability to tolerate TOBI comes and goes?

i can't figure it out... i've been really sick before and had trouble with it; i've been really sick and been fine. last time i was on it longer than 4 weeks to coincide with iv treatment, my docs took me off it b/c they thought my airways were reacting to it.

i've been cycling tobi since then month on-month off, and the last week or so i'm again feeling slightly short of breath after my hypertonic and my TOBI.

time to stop?
 

catboogie

New member
do you guys notice that your ability to tolerate TOBI comes and goes?

i can't figure it out... i've been really sick before and had trouble with it; i've been really sick and been fine. last time i was on it longer than 4 weeks to coincide with iv treatment, my docs took me off it b/c they thought my airways were reacting to it.

i've been cycling tobi since then month on-month off, and the last week or so i'm again feeling slightly short of breath after my hypertonic and my TOBI.

time to stop?
 

catboogie

New member
do you guys notice that your ability to tolerate TOBI comes and goes?

i can't figure it out... i've been really sick before and had trouble with it; i've been really sick and been fine. last time i was on it longer than 4 weeks to coincide with iv treatment, my docs took me off it b/c they thought my airways were reacting to it.

i've been cycling tobi since then month on-month off, and the last week or so i'm again feeling slightly short of breath after my hypertonic and my TOBI.

time to stop?
 

jfarel

New member
I haven't been able to tolerate it fully for over 2 years. That said, nothing else seems to kill pseudo like it. For that reason I've tried it 3 or 4 times since then. Sometimes I only make it for 14-20 days. Other times a little longer. At any rate, my side effects i.e. shortness of breath, aren't always as bad, but they are always there. I tried it with the eflow and it seemed to be better. You might want to try that.
 

jfarel

New member
I haven't been able to tolerate it fully for over 2 years. That said, nothing else seems to kill pseudo like it. For that reason I've tried it 3 or 4 times since then. Sometimes I only make it for 14-20 days. Other times a little longer. At any rate, my side effects i.e. shortness of breath, aren't always as bad, but they are always there. I tried it with the eflow and it seemed to be better. You might want to try that.
 

jfarel

New member
I haven't been able to tolerate it fully for over 2 years. That said, nothing else seems to kill pseudo like it. For that reason I've tried it 3 or 4 times since then. Sometimes I only make it for 14-20 days. Other times a little longer. At any rate, my side effects i.e. shortness of breath, aren't always as bad, but they are always there. I tried it with the eflow and it seemed to be better. You might want to try that.
 

jfarel

New member
I haven't been able to tolerate it fully for over 2 years. That said, nothing else seems to kill pseudo like it. For that reason I've tried it 3 or 4 times since then. Sometimes I only make it for 14-20 days. Other times a little longer. At any rate, my side effects i.e. shortness of breath, aren't always as bad, but they are always there. I tried it with the eflow and it seemed to be better. You might want to try that.
 

jfarel

New member
I haven't been able to tolerate it fully for over 2 years. That said, nothing else seems to kill pseudo like it. For that reason I've tried it 3 or 4 times since then. Sometimes I only make it for 14-20 days. Other times a little longer. At any rate, my side effects i.e. shortness of breath, aren't always as bad, but they are always there. I tried it with the eflow and it seemed to be better. You might want to try that.
 

AnD

New member
I have a similar problem with Tobi. I had to quit using it for a couple of years, due to SOB. I also have had problems with Tobra since then too. But I discovered that if I do my Advair right before my Tobi, I can tolerate it. If I forget it <i>once</i>, that's the end- the SOB won't go away after that unless I stop the Tobi. Ask your doctor though if you are on Advair and want to try it <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

The other thing that seems to have helped is the oral GSH. I have been doing it for a few months now, and last time I did Tobi (I don't cycle, I just do it when I am sick, due to the SOB issue), I did the whole dose from the beginning, instead of the 2/3s to 3/4 dose I have been having to do. And I did that dose for 3 weeks, until I forgot my Advair...*slaps forehead*
 

AnD

New member
I have a similar problem with Tobi. I had to quit using it for a couple of years, due to SOB. I also have had problems with Tobra since then too. But I discovered that if I do my Advair right before my Tobi, I can tolerate it. If I forget it <i>once</i>, that's the end- the SOB won't go away after that unless I stop the Tobi. Ask your doctor though if you are on Advair and want to try it <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

The other thing that seems to have helped is the oral GSH. I have been doing it for a few months now, and last time I did Tobi (I don't cycle, I just do it when I am sick, due to the SOB issue), I did the whole dose from the beginning, instead of the 2/3s to 3/4 dose I have been having to do. And I did that dose for 3 weeks, until I forgot my Advair...*slaps forehead*
 

AnD

New member
I have a similar problem with Tobi. I had to quit using it for a couple of years, due to SOB. I also have had problems with Tobra since then too. But I discovered that if I do my Advair right before my Tobi, I can tolerate it. If I forget it <i>once</i>, that's the end- the SOB won't go away after that unless I stop the Tobi. Ask your doctor though if you are on Advair and want to try it <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

The other thing that seems to have helped is the oral GSH. I have been doing it for a few months now, and last time I did Tobi (I don't cycle, I just do it when I am sick, due to the SOB issue), I did the whole dose from the beginning, instead of the 2/3s to 3/4 dose I have been having to do. And I did that dose for 3 weeks, until I forgot my Advair...*slaps forehead*
 

AnD

New member
I have a similar problem with Tobi. I had to quit using it for a couple of years, due to SOB. I also have had problems with Tobra since then too. But I discovered that if I do my Advair right before my Tobi, I can tolerate it. If I forget it <i>once</i>, that's the end- the SOB won't go away after that unless I stop the Tobi. Ask your doctor though if you are on Advair and want to try it <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

The other thing that seems to have helped is the oral GSH. I have been doing it for a few months now, and last time I did Tobi (I don't cycle, I just do it when I am sick, due to the SOB issue), I did the whole dose from the beginning, instead of the 2/3s to 3/4 dose I have been having to do. And I did that dose for 3 weeks, until I forgot my Advair...*slaps forehead*
 

AnD

New member
I have a similar problem with Tobi. I had to quit using it for a couple of years, due to SOB. I also have had problems with Tobra since then too. But I discovered that if I do my Advair right before my Tobi, I can tolerate it. If I forget it <i>once</i>, that's the end- the SOB won't go away after that unless I stop the Tobi. Ask your doctor though if you are on Advair and want to try it <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

The other thing that seems to have helped is the oral GSH. I have been doing it for a few months now, and last time I did Tobi (I don't cycle, I just do it when I am sick, due to the SOB issue), I did the whole dose from the beginning, instead of the 2/3s to 3/4 dose I have been having to do. And I did that dose for 3 weeks, until I forgot my Advair...*slaps forehead*
 

spacemom

New member
My son had a bad effect from TOBI, after some two years OK. So his doctor told him to have 2 inhales of Ventilan (salbutamol) prior to the TOBi, and he's much better now! :)
 

spacemom

New member
My son had a bad effect from TOBI, after some two years OK. So his doctor told him to have 2 inhales of Ventilan (salbutamol) prior to the TOBi, and he's much better now! :)
 

spacemom

New member
My son had a bad effect from TOBI, after some two years OK. So his doctor told him to have 2 inhales of Ventilan (salbutamol) prior to the TOBi, and he's much better now! :)
 

spacemom

New member
My son had a bad effect from TOBI, after some two years OK. So his doctor told him to have 2 inhales of Ventilan (salbutamol) prior to the TOBi, and he's much better now! :)
 

spacemom

New member
My son had a bad effect from TOBI, after some two years OK. So his doctor told him to have 2 inhales of Ventilan (salbutamol) prior to the TOBi, and he's much better now! :)
 
Top