Transplant Center question???

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markinohio

New member
Does anyone know if Cleveland or U of Mich list cepacia patients for transplant? I just found out that Nationwide in Columbus is not accepting patients because thier medical director is leaving. And of course, I just finished my evals and testing in Columbus.
I live near Toledo, so U of M and Cleveland are close and Pitt is about 4 hours away.
Any help would be appreciated.

Mark
 
M

markinohio

New member
Does anyone know if Cleveland or U of Mich list cepacia patients for transplant? I just found out that Nationwide in Columbus is not accepting patients because thier medical director is leaving. And of course, I just finished my evals and testing in Columbus.
I live near Toledo, so U of M and Cleveland are close and Pitt is about 4 hours away.
Any help would be appreciated.

Mark
 
M

markinohio

New member
Does anyone know if Cleveland or U of Mich list cepacia patients for transplant? I just found out that Nationwide in Columbus is not accepting patients because thier medical director is leaving. And of course, I just finished my evals and testing in Columbus.
<br />I live near Toledo, so U of M and Cleveland are close and Pitt is about 4 hours away.
<br />Any help would be appreciated.
<br />
<br />Mark
 
T

Transplantmommy

New member
Hey Mark...sorry that I am just getting to you. I don't come on this site very often. Yes, Cleveland Clinic does list patients who have Cepacia...or at least I'm pretty sure they do.
 
T

Transplantmommy

New member
Hey Mark...sorry that I am just getting to you. I don't come on this site very often. Yes, Cleveland Clinic does list patients who have Cepacia...or at least I'm pretty sure they do.
 
T

Transplantmommy

New member
Hey Mark...sorry that I am just getting to you. I don't come on this site very often. Yes, Cleveland Clinic does list patients who have Cepacia...or at least I'm pretty sure they do.
 
N

NYCLawGirl

New member
Pitt is widely known for accepting cepacia patients. I know of at least one woman with cepacia who received her lungs there. You can check out her blog at <a target=_blank class=ftalternatingbarlinklarge href="http://jamiebug.blogspot.com/">http://jamiebug.blogspot.com/</a>
 
N

NYCLawGirl

New member
Pitt is widely known for accepting cepacia patients. I know of at least one woman with cepacia who received her lungs there. You can check out her blog at <a target=_blank class=ftalternatingbarlinklarge href="http://jamiebug.blogspot.com/">http://jamiebug.blogspot.com/</a>
 
N

NYCLawGirl

New member
Pitt is widely known for accepting cepacia patients. I know of at least one woman with cepacia who received her lungs there. You can check out her blog at <a target=_blank class=ftalternatingbarlinklarge href="http://jamiebug.blogspot.com/">http://jamiebug.blogspot.com/</a>
 
J

jamiebug

New member
Piper is right. University of Pittsburgh will consider Cepacia. In fact I personally know 2 other Cepacia patients who also received transplants there. One just a few months before me and the other exactly one year after mine. I have also heard that Cleveland might consider Cepacia. The surgeon who did my transplant is now at Cleveland. . . so it would be worth looking into. Good Luck & feel free to contact me or ask me any questions.
<a target=_blank class=ftalternatingbarlinklarge href="http://jamiebug.blogspot.com">http://jamiebug.blogspot.com</a> or email me: jamiebug77@gmail.com
 
J

jamiebug

New member
Piper is right. University of Pittsburgh will consider Cepacia. In fact I personally know 2 other Cepacia patients who also received transplants there. One just a few months before me and the other exactly one year after mine. I have also heard that Cleveland might consider Cepacia. The surgeon who did my transplant is now at Cleveland. . . so it would be worth looking into. Good Luck & feel free to contact me or ask me any questions.
<a target=_blank class=ftalternatingbarlinklarge href="http://jamiebug.blogspot.com">http://jamiebug.blogspot.com</a> or email me: jamiebug77@gmail.com
 
J

jamiebug

New member
Piper is right. University of Pittsburgh will consider Cepacia. In fact I personally know 2 other Cepacia patients who also received transplants there. One just a few months before me and the other exactly one year after mine. I have also heard that Cleveland might consider Cepacia. The surgeon who did my transplant is now at Cleveland. . . so it would be worth looking into. Good Luck & feel free to contact me or ask me any questions.
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://jamiebug.blogspot.com">http://jamiebug.blogspot.com</a> or email me: jamiebug77@gmail.com
 
M

markinohio

New member
Thanks for the input. I found out that Cleveland won't accept me. I guess I have too many other problems. For a while my insurance company wouldn't go through Pittsburg, but now they have approved it. Now I just have to start the process in Pittsburg.

Mark
 
M

markinohio

New member
Thanks for the input. I found out that Cleveland won't accept me. I guess I have too many other problems. For a while my insurance company wouldn't go through Pittsburg, but now they have approved it. Now I just have to start the process in Pittsburg.

Mark
 
M

markinohio

New member
Thanks for the input. I found out that Cleveland won't accept me. I guess I have too many other problems. For a while my insurance company wouldn't go through Pittsburg, but now they have approved it. Now I just have to start the process in Pittsburg.
<br />
<br />Mark
 
J

jamiebug

New member
You'll love Pitt! The CF/Transplant team is amazing~ Dr. Pilewski is seriously one of the most sincere people I have ever met!! If you happen to get assigned to Paul he's great! He's in my top 5 favorite people list <img src="i/expressions/face-icon-small-smile.gif" border="0"> Good Luck!! I would love to know how things go Mark.

~Jamiebug <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

jamiebug

New member
You'll love Pitt! The CF/Transplant team is amazing~ Dr. Pilewski is seriously one of the most sincere people I have ever met!! If you happen to get assigned to Paul he's great! He's in my top 5 favorite people list <img src="i/expressions/face-icon-small-smile.gif" border="0"> Good Luck!! I would love to know how things go Mark.

~Jamiebug <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

jamiebug

New member
You'll love Pitt! The CF/Transplant team is amazing~ Dr. Pilewski is seriously one of the most sincere people I have ever met!! If you happen to get assigned to Paul he's great! He's in my top 5 favorite people list <img src="i/expressions/face-icon-small-smile.gif" border="0"> Good Luck!! I would love to know how things go Mark.
<br />
<br />~Jamiebug <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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