None of us have had it easy, we all have of our complications. I went through the work up, got the bottom line and decided, it's not a match for me. It was an informed decision. My family and friends know this and they respect it. I was just hoping to meet someone else who had felt the same for whatever reasons. With everyone always chatting about how great they are etc. (which they are - i am NOT anti-Tx ) i was just looking for someone who could maybe relate with me.
EB24-Thanks, glad to hear from you. I'm 26 and my PFT's are smiliar.<hr></blockquote>
Why would anyone chose not to keep living? Having a transplant doesn't take away from you; your spirit, or personality, in fact I'd say it makes it stronger, but again my opinion. I feel sorry for your family and friends; I really do, that is just sad to know that you would rather let the disease comsume you. The only thing I can think of why you would feel that way is if you are religious, and you believe a transplant will take your spirit away, or something. When sickness comes in play religion is completely out for me. I believe it's great for someone to have faith; I believe it makes them a stronger person, to be able to handle the things in life they are faced with, but also I know what it's like to loose someone close when something could have been done, or at least every option taken. As I said in my opinion, or maybe I didn't make that clear, I call it giving up.
I say this becuase I had a friend that thought the same thing until she got very, very sick, and by then she was sorry because she never really understood what it was like to be stuck in a house not able to move becuase you could'nt breath, or have to be hospitalized so much. Unfortunately reality hit her hard; she realized it was very unbearable not to be able to breath, and I'm talking at 20% lung capasity to where you can't even walk, and are on oxygen; she decided she still hadn't done all the things in life she wanted to do, but by then it was too late fore her. She was too sick, and died.
I was married before my transplant, and my husband gave me strength. You know I couldn't bare thinking of the sadness he would have if I had died. I don't say that because I'm c0cky about how much he loves me, but I know how much he loves me, and I love him the same way. Maybe you don't have something so wonderful to hang on to, but you can always find new things with a new restored life. Life is worth the try. Ya, sure something might happen during the operation, but that is slim, and even if it did then I'd say your chances weren't very good to begin with.
Again, I said I didn't want to sound rude, but I was shocked that someone would decide not to have a transplant and just die. Especially with a wife and child.
No need to jump on me and call me narrow minded. I just can't see it or understand it. I have done so many things since my transplant... more than I know you have done! I have been in your position breathing, and I was limited to extents, and it only got worse. Again there is no cure for CF.
Good luck!<hr></blockquote>
I only read part of supermanfan's response... but it was ignorant. So littledebbie, I just wanted to say... that I support your decision. Not that you know me, or it matters, but there it is anyway. It is a personal decision each of us needs to make. And each of us needs to make it for ourselves, not for anyone else. If that's the decision you wish to make, and are at peace with it, then good for you. I wish that you're as comfortable as possible while you're here.
Oh and... to assume Ry just didn't care enough to stay around to be with Allie and Ahava... would be laughable except that it's soooooooooo rude. And I might add, ridiculously incorrect.