JennifersHope
New member
I have two questions...
First is anyone doing the amiloride study...I was told it is in clincal trial 1.. Patient saftey just established It is for ppl with Mild forms of CF..... My CF nurse was telling me about it... but then I was disqualifed for the study because I have a cardiac history........I am bummed.. I keep getting bumped out of all these studies... IF you are doing it.. I was wondering how it was going????
Second
UGGGGGGGGGGGG
I just got a letter from my insurance company telling me that they will only pay for 80 PERCENT OF MY home infusions plus I Have a THREE THOUSAND dollar deductable....They said they only will pay one hundered percent if I am in the hospital..... and that if I want to go home and I still need IVS I have to go to their outpatient infusion center for the infusion....
In Septemeber when I was on home IVS I did an IV infusion every three hours for over two weeks... This last time, I did one every eight hours.. for two weeks... I can't afford the three thousand dollars.. or the 20 percent.. I don't have to tell you how expensive even twenty percent of Vanco or Fortaz is.. much less paying for the nurse to come to the house.. I am in debt.,. PLus I am at least a good hour away from the hospital to begin with..by the time I got home I would have to turn around and come back.. to get another infusion
My question is, I am a health care worker and my insurance is considered one of the best or so I thought, I have blue cross blue shield PPO, How do you guys afford HOME IVS????
I think He LL will literally have froze over before I can spend two full weeks in the hospital every few months.. They will have to put me in coma, with a drip of the stongest sedative they can find before I could do it... EVen going in for one week every few months is a lot for me to take.. forget going in with no hope of Parole...
So what do you guys do..
Thanks so much..
Jennifer
First is anyone doing the amiloride study...I was told it is in clincal trial 1.. Patient saftey just established It is for ppl with Mild forms of CF..... My CF nurse was telling me about it... but then I was disqualifed for the study because I have a cardiac history........I am bummed.. I keep getting bumped out of all these studies... IF you are doing it.. I was wondering how it was going????
Second
UGGGGGGGGGGGG
I just got a letter from my insurance company telling me that they will only pay for 80 PERCENT OF MY home infusions plus I Have a THREE THOUSAND dollar deductable....They said they only will pay one hundered percent if I am in the hospital..... and that if I want to go home and I still need IVS I have to go to their outpatient infusion center for the infusion....
In Septemeber when I was on home IVS I did an IV infusion every three hours for over two weeks... This last time, I did one every eight hours.. for two weeks... I can't afford the three thousand dollars.. or the 20 percent.. I don't have to tell you how expensive even twenty percent of Vanco or Fortaz is.. much less paying for the nurse to come to the house.. I am in debt.,. PLus I am at least a good hour away from the hospital to begin with..by the time I got home I would have to turn around and come back.. to get another infusion
My question is, I am a health care worker and my insurance is considered one of the best or so I thought, I have blue cross blue shield PPO, How do you guys afford HOME IVS????
I think He LL will literally have froze over before I can spend two full weeks in the hospital every few months.. They will have to put me in coma, with a drip of the stongest sedative they can find before I could do it... EVen going in for one week every few months is a lot for me to take.. forget going in with no hope of Parole...
So what do you guys do..
Thanks so much..
Jennifer