Updates on Mel...

zoe4life

New member
Mel has a room....she is happy because it has internet access! But I was just informed that she can't get into chat.
They started her iv tobra and mera. She will also be starting tpn considering she has lost weight.
Her cultures, labs, etc....will determine whether or not they add another antibiotic to the mix.
She had a bad sore throat yesterday, then woke up today not able to talk and her throat feeling like it is on FIRE! They looked, but said it wasn't even RED?!!!??? Weird, huh? We are wondering if it has anything to do with the Prednisone she started a couple of days ago??
If anyone wants to send our Ms. Mel a card or gift....PM me...I'll give it to you....when you are in "lock-up" a small gesture brightens even the yuckiest of days!

I will be posting updates as needed....
take care,



Wednesday night update:
Mel had her picc placed this morning....after FOUR tries!!! Poor lady! Her right arm is pretty much shot....so they put it in the left. Other than that, she is doing treatments, cpt 3 X a day, because much to my distress, they do not have respit. after 5 pm anymore!! Can you believe that??? Tomorrow we should have some culture results etc....

Her throat feels better, she can at least talk some now!
She had an intern wake her up this morning....she let out her normal "morning cough", he looked at her and said "Oh, I see the cough isn't gone yet." OMG!!! I was mad! I told her, I would have said...."Nope...you know what *****....I'm 41 years old and have CF...I'm stuck with this F-ing cough." LOL..... Don't you love interns?????

Will keep you updated! Thank you for all prayers, cards, etc...

Saturday:
Culture came back just showing her PA...not her MRSA....doesn't mean it isn't there....just didn't show up.
Mel has had a rough couple of days. She is now on 5.0 liters of oxygen, using a full face mask. Using the cannula, she was only satting around 92...not good enough. With the mask, she is around 97-98. She has been running a fever, feeling nauseous, can't even go to the restroom without needing her oxygen. She is feeling pretty bad. I cried today after I hung up with her....please say a prayer for her....

Sunday:
Added one more antibiotic...total of 3 IV antibiotics now. Still on 5 liters oxygen with full face mask unless she is doing treatments, eating, talking.....
Feeling a little better today. She got to see some of the NY fireworks from her hospital window.....yeah...I was sooooo glad she could see them, I hated her missing out on 4th of July.
Jeanne, Graves and her oldest sister have been to visit in the last few days. I wish I could be there....

She had some hemoptysis also.....lots going on....the first week or so of being in the hospital loosens things up...gets things going....hopefully we will see a big turn around next week.
Please continue to pray for Mel....
Thank you all....

Monday night update:
Mel is sounding much better! Her voice is almost completely back to normal. She still has that darn cough though<img src="i/expressions/face-icon-small-wink.gif" border="0">(that's a joke if you missed that from earlier. They switched her oral Prednisone to IV Prednisone to see if it will work more effectively. Still on 5.0 liters oxygen. She feels like she has a lot of 'gunk' that doesn't want to move. So, between 3 IV antibiotics, IV TPN, IV Prednisone, IV fluids, she has something pumping into her 24/7. Hopefully things will start moving for her...please continue to pray....thank you!

Tuesday-Wednesday
Mel had quite a bit more hemoptysis on Tuesday evening. The intern(who actually seemed to know what he was doing)came in to see Mel...said.."What do they normally do when you have hemoptysis?". To which our sweet, quiet, little Mel replied "They give me the "shots"...but I don't want the "shots" because they hurt like a mother f*%#er." <img src="i/expressions/face-icon-small-happy.gif" border="0"> He responded with...."Well, let's make a deal, if the bleeding stays subsided like it is now, we won't give you the mother f#@*ing shots."!!!! I laughed so hard when she told me he called them what she had!<img src="i/expressions/face-icon-small-shocked.gif" border="0">
She is still having quite a hard time with headaches. They are giving her a mild pain med to take before her treatments & cpt, just so she can tolerate it. She feels like she isn't really getting anywhere with her CF treatments because of the 'other' stuff going on.
Please continue to pray for these 'other' issues to go away and for her spirits to be lifted.
All the other meds/treatments are the same as of last update.

Thursday-Sunday:
Mel has had a couple more episodes of hemoptysis, but as of Sat. and Sun. none. Hopefully it will stay that way.
She sounds in much better spirits emotionally. She said it was because she got to see the METS play last night!
Still on 4 liters oxygen. Had to do blood gas tests for her carbon dioxide levels. They were a little high...so they will keep checking it. Poor thing apparantly looks like a pin cushion...they had to try many times before they got it(in the wrist mind you)
Hopefully we will see a great improvement this week....please keep praying for her! Thank you!

Monday thru Thursday:
Trying not to bog everyone down with daily updates....especially when not much changes...
She hasn't had any more hemoptysis as of late. She is taking walks now...but having an issue with getting enough O2, the tank she has runs either on 5 liters or 10. No in between, the 5 isn't enough to keep her SATS above around 92-93 while walking, but the 10 blows her nose away!
She is on the 4 liters while at rest with her SATS sitting pretty at 96-99. Obviously, the goal here is for her to be WITHOUT the O2. So many thoughts and prayers are still needed!
Her appetite is increasing (good sign). Her doc and her are discussing her discharging the 24th.
Her CT scan and x-ray all still have no changes....sooo...that is really good news!
Thanks for the prayers, thoughts, cards, etc.....

Tuesday 07/21:

Mel had some hemoptysis again today. So she had to get the dreaded shot. Poor thing. She is still on 3 liters of oxygen at rest. With her sats sitting around 95-96. When she takes it off, they drop immediately. So, looks like she will be on oxygen when she goes home. She is still planning on being released Friday. They will discontinue her TPN tonight, so they can check her sugar levels for 24 hours before she leaves. She had a major sugar drop, which made her very tired combined with the hemoptysis.
So, hopefully everything else will go smoothly the rest of the week.
She received her cards from everyone...I kept asking her..."any cards yet???" She kept saying, nope. Finally a nurse found a stack of cards for her at the other end of the floor, just sitting around on some desk.Uggh. At least they found them! She was very happy to get them! Thank you all!

Final update!!!!

Today, Friday, July 24th, Ms. Mel is going home!<img src="i/expressions/face-icon-small-smile.gif" border="0">
She will be going home with i.v.'s for 2 more weeks, switching her i.v. prednisone to oral, still on 2-3 liters of oxygen, but very HAPPY to be going home after almost a month in!!
Thank you again for the prayers, comments, card, etc...!

Signing out for the last time......<img src="i/expressions/face-icon-small-wink.gif" border="0">




Jada
 

zoe4life

New member
Mel has a room....she is happy because it has internet access! But I was just informed that she can't get into chat.
They started her iv tobra and mera. She will also be starting tpn considering she has lost weight.
Her cultures, labs, etc....will determine whether or not they add another antibiotic to the mix.
She had a bad sore throat yesterday, then woke up today not able to talk and her throat feeling like it is on FIRE! They looked, but said it wasn't even RED?!!!??? Weird, huh? We are wondering if it has anything to do with the Prednisone she started a couple of days ago??
If anyone wants to send our Ms. Mel a card or gift....PM me...I'll give it to you....when you are in "lock-up" a small gesture brightens even the yuckiest of days!

I will be posting updates as needed....
take care,



Wednesday night update:
Mel had her picc placed this morning....after FOUR tries!!! Poor lady! Her right arm is pretty much shot....so they put it in the left. Other than that, she is doing treatments, cpt 3 X a day, because much to my distress, they do not have respit. after 5 pm anymore!! Can you believe that??? Tomorrow we should have some culture results etc....

Her throat feels better, she can at least talk some now!
She had an intern wake her up this morning....she let out her normal "morning cough", he looked at her and said "Oh, I see the cough isn't gone yet." OMG!!! I was mad! I told her, I would have said...."Nope...you know what *****....I'm 41 years old and have CF...I'm stuck with this F-ing cough." LOL..... Don't you love interns?????

Will keep you updated! Thank you for all prayers, cards, etc...

Saturday:
Culture came back just showing her PA...not her MRSA....doesn't mean it isn't there....just didn't show up.
Mel has had a rough couple of days. She is now on 5.0 liters of oxygen, using a full face mask. Using the cannula, she was only satting around 92...not good enough. With the mask, she is around 97-98. She has been running a fever, feeling nauseous, can't even go to the restroom without needing her oxygen. She is feeling pretty bad. I cried today after I hung up with her....please say a prayer for her....

Sunday:
Added one more antibiotic...total of 3 IV antibiotics now. Still on 5 liters oxygen with full face mask unless she is doing treatments, eating, talking.....
Feeling a little better today. She got to see some of the NY fireworks from her hospital window.....yeah...I was sooooo glad she could see them, I hated her missing out on 4th of July.
Jeanne, Graves and her oldest sister have been to visit in the last few days. I wish I could be there....

She had some hemoptysis also.....lots going on....the first week or so of being in the hospital loosens things up...gets things going....hopefully we will see a big turn around next week.
Please continue to pray for Mel....
Thank you all....

Monday night update:
Mel is sounding much better! Her voice is almost completely back to normal. She still has that darn cough though<img src="i/expressions/face-icon-small-wink.gif" border="0">(that's a joke if you missed that from earlier. They switched her oral Prednisone to IV Prednisone to see if it will work more effectively. Still on 5.0 liters oxygen. She feels like she has a lot of 'gunk' that doesn't want to move. So, between 3 IV antibiotics, IV TPN, IV Prednisone, IV fluids, she has something pumping into her 24/7. Hopefully things will start moving for her...please continue to pray....thank you!

Tuesday-Wednesday
Mel had quite a bit more hemoptysis on Tuesday evening. The intern(who actually seemed to know what he was doing)came in to see Mel...said.."What do they normally do when you have hemoptysis?". To which our sweet, quiet, little Mel replied "They give me the "shots"...but I don't want the "shots" because they hurt like a mother f*%#er." <img src="i/expressions/face-icon-small-happy.gif" border="0"> He responded with...."Well, let's make a deal, if the bleeding stays subsided like it is now, we won't give you the mother f#@*ing shots."!!!! I laughed so hard when she told me he called them what she had!<img src="i/expressions/face-icon-small-shocked.gif" border="0">
She is still having quite a hard time with headaches. They are giving her a mild pain med to take before her treatments & cpt, just so she can tolerate it. She feels like she isn't really getting anywhere with her CF treatments because of the 'other' stuff going on.
Please continue to pray for these 'other' issues to go away and for her spirits to be lifted.
All the other meds/treatments are the same as of last update.

Thursday-Sunday:
Mel has had a couple more episodes of hemoptysis, but as of Sat. and Sun. none. Hopefully it will stay that way.
She sounds in much better spirits emotionally. She said it was because she got to see the METS play last night!
Still on 4 liters oxygen. Had to do blood gas tests for her carbon dioxide levels. They were a little high...so they will keep checking it. Poor thing apparantly looks like a pin cushion...they had to try many times before they got it(in the wrist mind you)
Hopefully we will see a great improvement this week....please keep praying for her! Thank you!

Monday thru Thursday:
Trying not to bog everyone down with daily updates....especially when not much changes...
She hasn't had any more hemoptysis as of late. She is taking walks now...but having an issue with getting enough O2, the tank she has runs either on 5 liters or 10. No in between, the 5 isn't enough to keep her SATS above around 92-93 while walking, but the 10 blows her nose away!
She is on the 4 liters while at rest with her SATS sitting pretty at 96-99. Obviously, the goal here is for her to be WITHOUT the O2. So many thoughts and prayers are still needed!
Her appetite is increasing (good sign). Her doc and her are discussing her discharging the 24th.
Her CT scan and x-ray all still have no changes....sooo...that is really good news!
Thanks for the prayers, thoughts, cards, etc.....

Tuesday 07/21:

Mel had some hemoptysis again today. So she had to get the dreaded shot. Poor thing. She is still on 3 liters of oxygen at rest. With her sats sitting around 95-96. When she takes it off, they drop immediately. So, looks like she will be on oxygen when she goes home. She is still planning on being released Friday. They will discontinue her TPN tonight, so they can check her sugar levels for 24 hours before she leaves. She had a major sugar drop, which made her very tired combined with the hemoptysis.
So, hopefully everything else will go smoothly the rest of the week.
She received her cards from everyone...I kept asking her..."any cards yet???" She kept saying, nope. Finally a nurse found a stack of cards for her at the other end of the floor, just sitting around on some desk.Uggh. At least they found them! She was very happy to get them! Thank you all!

Final update!!!!

Today, Friday, July 24th, Ms. Mel is going home!<img src="i/expressions/face-icon-small-smile.gif" border="0">
She will be going home with i.v.'s for 2 more weeks, switching her i.v. prednisone to oral, still on 2-3 liters of oxygen, but very HAPPY to be going home after almost a month in!!
Thank you again for the prayers, comments, card, etc...!

Signing out for the last time......<img src="i/expressions/face-icon-small-wink.gif" border="0">




Jada
 

zoe4life

New member
Mel has a room....she is happy because it has internet access! But I was just informed that she can't get into chat.
They started her iv tobra and mera. She will also be starting tpn considering she has lost weight.
Her cultures, labs, etc....will determine whether or not they add another antibiotic to the mix.
She had a bad sore throat yesterday, then woke up today not able to talk and her throat feeling like it is on FIRE! They looked, but said it wasn't even RED?!!!??? Weird, huh? We are wondering if it has anything to do with the Prednisone she started a couple of days ago??
If anyone wants to send our Ms. Mel a card or gift....PM me...I'll give it to you....when you are in "lock-up" a small gesture brightens even the yuckiest of days!

I will be posting updates as needed....
take care,



Wednesday night update:
Mel had her picc placed this morning....after FOUR tries!!! Poor lady! Her right arm is pretty much shot....so they put it in the left. Other than that, she is doing treatments, cpt 3 X a day, because much to my distress, they do not have respit. after 5 pm anymore!! Can you believe that??? Tomorrow we should have some culture results etc....

Her throat feels better, she can at least talk some now!
She had an intern wake her up this morning....she let out her normal "morning cough", he looked at her and said "Oh, I see the cough isn't gone yet." OMG!!! I was mad! I told her, I would have said...."Nope...you know what *****....I'm 41 years old and have CF...I'm stuck with this F-ing cough." LOL..... Don't you love interns?????

Will keep you updated! Thank you for all prayers, cards, etc...

Saturday:
Culture came back just showing her PA...not her MRSA....doesn't mean it isn't there....just didn't show up.
Mel has had a rough couple of days. She is now on 5.0 liters of oxygen, using a full face mask. Using the cannula, she was only satting around 92...not good enough. With the mask, she is around 97-98. She has been running a fever, feeling nauseous, can't even go to the restroom without needing her oxygen. She is feeling pretty bad. I cried today after I hung up with her....please say a prayer for her....

Sunday:
Added one more antibiotic...total of 3 IV antibiotics now. Still on 5 liters oxygen with full face mask unless she is doing treatments, eating, talking.....
Feeling a little better today. She got to see some of the NY fireworks from her hospital window.....yeah...I was sooooo glad she could see them, I hated her missing out on 4th of July.
Jeanne, Graves and her oldest sister have been to visit in the last few days. I wish I could be there....

She had some hemoptysis also.....lots going on....the first week or so of being in the hospital loosens things up...gets things going....hopefully we will see a big turn around next week.
Please continue to pray for Mel....
Thank you all....

Monday night update:
Mel is sounding much better! Her voice is almost completely back to normal. She still has that darn cough though<img src="i/expressions/face-icon-small-wink.gif" border="0">(that's a joke if you missed that from earlier. They switched her oral Prednisone to IV Prednisone to see if it will work more effectively. Still on 5.0 liters oxygen. She feels like she has a lot of 'gunk' that doesn't want to move. So, between 3 IV antibiotics, IV TPN, IV Prednisone, IV fluids, she has something pumping into her 24/7. Hopefully things will start moving for her...please continue to pray....thank you!

Tuesday-Wednesday
Mel had quite a bit more hemoptysis on Tuesday evening. The intern(who actually seemed to know what he was doing)came in to see Mel...said.."What do they normally do when you have hemoptysis?". To which our sweet, quiet, little Mel replied "They give me the "shots"...but I don't want the "shots" because they hurt like a mother f*%#er." <img src="i/expressions/face-icon-small-happy.gif" border="0"> He responded with...."Well, let's make a deal, if the bleeding stays subsided like it is now, we won't give you the mother f#@*ing shots."!!!! I laughed so hard when she told me he called them what she had!<img src="i/expressions/face-icon-small-shocked.gif" border="0">
She is still having quite a hard time with headaches. They are giving her a mild pain med to take before her treatments & cpt, just so she can tolerate it. She feels like she isn't really getting anywhere with her CF treatments because of the 'other' stuff going on.
Please continue to pray for these 'other' issues to go away and for her spirits to be lifted.
All the other meds/treatments are the same as of last update.

Thursday-Sunday:
Mel has had a couple more episodes of hemoptysis, but as of Sat. and Sun. none. Hopefully it will stay that way.
She sounds in much better spirits emotionally. She said it was because she got to see the METS play last night!
Still on 4 liters oxygen. Had to do blood gas tests for her carbon dioxide levels. They were a little high...so they will keep checking it. Poor thing apparantly looks like a pin cushion...they had to try many times before they got it(in the wrist mind you)
Hopefully we will see a great improvement this week....please keep praying for her! Thank you!

Monday thru Thursday:
Trying not to bog everyone down with daily updates....especially when not much changes...
She hasn't had any more hemoptysis as of late. She is taking walks now...but having an issue with getting enough O2, the tank she has runs either on 5 liters or 10. No in between, the 5 isn't enough to keep her SATS above around 92-93 while walking, but the 10 blows her nose away!
She is on the 4 liters while at rest with her SATS sitting pretty at 96-99. Obviously, the goal here is for her to be WITHOUT the O2. So many thoughts and prayers are still needed!
Her appetite is increasing (good sign). Her doc and her are discussing her discharging the 24th.
Her CT scan and x-ray all still have no changes....sooo...that is really good news!
Thanks for the prayers, thoughts, cards, etc.....

Tuesday 07/21:

Mel had some hemoptysis again today. So she had to get the dreaded shot. Poor thing. She is still on 3 liters of oxygen at rest. With her sats sitting around 95-96. When she takes it off, they drop immediately. So, looks like she will be on oxygen when she goes home. She is still planning on being released Friday. They will discontinue her TPN tonight, so they can check her sugar levels for 24 hours before she leaves. She had a major sugar drop, which made her very tired combined with the hemoptysis.
So, hopefully everything else will go smoothly the rest of the week.
She received her cards from everyone...I kept asking her..."any cards yet???" She kept saying, nope. Finally a nurse found a stack of cards for her at the other end of the floor, just sitting around on some desk.Uggh. At least they found them! She was very happy to get them! Thank you all!

Final update!!!!

Today, Friday, July 24th, Ms. Mel is going home!<img src="i/expressions/face-icon-small-smile.gif" border="0">
She will be going home with i.v.'s for 2 more weeks, switching her i.v. prednisone to oral, still on 2-3 liters of oxygen, but very HAPPY to be going home after almost a month in!!
Thank you again for the prayers, comments, card, etc...!

Signing out for the last time......<img src="i/expressions/face-icon-small-wink.gif" border="0">




Jada
 

zoe4life

New member
Mel has a room....she is happy because it has internet access! But I was just informed that she can't get into chat.
They started her iv tobra and mera. She will also be starting tpn considering she has lost weight.
Her cultures, labs, etc....will determine whether or not they add another antibiotic to the mix.
She had a bad sore throat yesterday, then woke up today not able to talk and her throat feeling like it is on FIRE! They looked, but said it wasn't even RED?!!!??? Weird, huh? We are wondering if it has anything to do with the Prednisone she started a couple of days ago??
If anyone wants to send our Ms. Mel a card or gift....PM me...I'll give it to you....when you are in "lock-up" a small gesture brightens even the yuckiest of days!

I will be posting updates as needed....
take care,



Wednesday night update:
Mel had her picc placed this morning....after FOUR tries!!! Poor lady! Her right arm is pretty much shot....so they put it in the left. Other than that, she is doing treatments, cpt 3 X a day, because much to my distress, they do not have respit. after 5 pm anymore!! Can you believe that??? Tomorrow we should have some culture results etc....

Her throat feels better, she can at least talk some now!
She had an intern wake her up this morning....she let out her normal "morning cough", he looked at her and said "Oh, I see the cough isn't gone yet." OMG!!! I was mad! I told her, I would have said...."Nope...you know what *****....I'm 41 years old and have CF...I'm stuck with this F-ing cough." LOL..... Don't you love interns?????

Will keep you updated! Thank you for all prayers, cards, etc...

Saturday:
Culture came back just showing her PA...not her MRSA....doesn't mean it isn't there....just didn't show up.
Mel has had a rough couple of days. She is now on 5.0 liters of oxygen, using a full face mask. Using the cannula, she was only satting around 92...not good enough. With the mask, she is around 97-98. She has been running a fever, feeling nauseous, can't even go to the restroom without needing her oxygen. She is feeling pretty bad. I cried today after I hung up with her....please say a prayer for her....

Sunday:
Added one more antibiotic...total of 3 IV antibiotics now. Still on 5 liters oxygen with full face mask unless she is doing treatments, eating, talking.....
Feeling a little better today. She got to see some of the NY fireworks from her hospital window.....yeah...I was sooooo glad she could see them, I hated her missing out on 4th of July.
Jeanne, Graves and her oldest sister have been to visit in the last few days. I wish I could be there....

She had some hemoptysis also.....lots going on....the first week or so of being in the hospital loosens things up...gets things going....hopefully we will see a big turn around next week.
Please continue to pray for Mel....
Thank you all....

Monday night update:
Mel is sounding much better! Her voice is almost completely back to normal. She still has that darn cough though<img src="i/expressions/face-icon-small-wink.gif" border="0">(that's a joke if you missed that from earlier. They switched her oral Prednisone to IV Prednisone to see if it will work more effectively. Still on 5.0 liters oxygen. She feels like she has a lot of 'gunk' that doesn't want to move. So, between 3 IV antibiotics, IV TPN, IV Prednisone, IV fluids, she has something pumping into her 24/7. Hopefully things will start moving for her...please continue to pray....thank you!

Tuesday-Wednesday
Mel had quite a bit more hemoptysis on Tuesday evening. The intern(who actually seemed to know what he was doing)came in to see Mel...said.."What do they normally do when you have hemoptysis?". To which our sweet, quiet, little Mel replied "They give me the "shots"...but I don't want the "shots" because they hurt like a mother f*%#er." <img src="i/expressions/face-icon-small-happy.gif" border="0"> He responded with...."Well, let's make a deal, if the bleeding stays subsided like it is now, we won't give you the mother f#@*ing shots."!!!! I laughed so hard when she told me he called them what she had!<img src="i/expressions/face-icon-small-shocked.gif" border="0">
She is still having quite a hard time with headaches. They are giving her a mild pain med to take before her treatments & cpt, just so she can tolerate it. She feels like she isn't really getting anywhere with her CF treatments because of the 'other' stuff going on.
Please continue to pray for these 'other' issues to go away and for her spirits to be lifted.
All the other meds/treatments are the same as of last update.

Thursday-Sunday:
Mel has had a couple more episodes of hemoptysis, but as of Sat. and Sun. none. Hopefully it will stay that way.
She sounds in much better spirits emotionally. She said it was because she got to see the METS play last night!
Still on 4 liters oxygen. Had to do blood gas tests for her carbon dioxide levels. They were a little high...so they will keep checking it. Poor thing apparantly looks like a pin cushion...they had to try many times before they got it(in the wrist mind you)
Hopefully we will see a great improvement this week....please keep praying for her! Thank you!

Monday thru Thursday:
Trying not to bog everyone down with daily updates....especially when not much changes...
She hasn't had any more hemoptysis as of late. She is taking walks now...but having an issue with getting enough O2, the tank she has runs either on 5 liters or 10. No in between, the 5 isn't enough to keep her SATS above around 92-93 while walking, but the 10 blows her nose away!
She is on the 4 liters while at rest with her SATS sitting pretty at 96-99. Obviously, the goal here is for her to be WITHOUT the O2. So many thoughts and prayers are still needed!
Her appetite is increasing (good sign). Her doc and her are discussing her discharging the 24th.
Her CT scan and x-ray all still have no changes....sooo...that is really good news!
Thanks for the prayers, thoughts, cards, etc.....

Tuesday 07/21:

Mel had some hemoptysis again today. So she had to get the dreaded shot. Poor thing. She is still on 3 liters of oxygen at rest. With her sats sitting around 95-96. When she takes it off, they drop immediately. So, looks like she will be on oxygen when she goes home. She is still planning on being released Friday. They will discontinue her TPN tonight, so they can check her sugar levels for 24 hours before she leaves. She had a major sugar drop, which made her very tired combined with the hemoptysis.
So, hopefully everything else will go smoothly the rest of the week.
She received her cards from everyone...I kept asking her..."any cards yet???" She kept saying, nope. Finally a nurse found a stack of cards for her at the other end of the floor, just sitting around on some desk.Uggh. At least they found them! She was very happy to get them! Thank you all!

Final update!!!!

Today, Friday, July 24th, Ms. Mel is going home!<img src="i/expressions/face-icon-small-smile.gif" border="0">
She will be going home with i.v.'s for 2 more weeks, switching her i.v. prednisone to oral, still on 2-3 liters of oxygen, but very HAPPY to be going home after almost a month in!!
Thank you again for the prayers, comments, card, etc...!

Signing out for the last time......<img src="i/expressions/face-icon-small-wink.gif" border="0">




Jada
 

zoe4life

New member
Mel has a room....she is happy because it has internet access! But I was just informed that she can't get into chat.
<br />They started her iv tobra and mera. She will also be starting tpn considering she has lost weight.
<br />Her cultures, labs, etc....will determine whether or not they add another antibiotic to the mix.
<br />She had a bad sore throat yesterday, then woke up today not able to talk and her throat feeling like it is on FIRE! They looked, but said it wasn't even RED?!!!??? Weird, huh? We are wondering if it has anything to do with the Prednisone she started a couple of days ago??
<br />If anyone wants to send our Ms. Mel a card or gift....PM me...I'll give it to you....when you are in "lock-up" a small gesture brightens even the yuckiest of days!
<br />
<br />I will be posting updates as needed....
<br />take care,
<br />
<br />
<br />
<br />Wednesday night update:
<br />Mel had her picc placed this morning....after FOUR tries!!! Poor lady! Her right arm is pretty much shot....so they put it in the left. Other than that, she is doing treatments, cpt 3 X a day, because much to my distress, they do not have respit. after 5 pm anymore!! Can you believe that??? Tomorrow we should have some culture results etc....
<br />
<br />Her throat feels better, she can at least talk some now!
<br />She had an intern wake her up this morning....she let out her normal "morning cough", he looked at her and said "Oh, I see the cough isn't gone yet." OMG!!! I was mad! I told her, I would have said...."Nope...you know what *****....I'm 41 years old and have CF...I'm stuck with this F-ing cough." LOL..... Don't you love interns?????
<br />
<br />Will keep you updated! Thank you for all prayers, cards, etc...
<br />
<br />Saturday:
<br />Culture came back just showing her PA...not her MRSA....doesn't mean it isn't there....just didn't show up.
<br />Mel has had a rough couple of days. She is now on 5.0 liters of oxygen, using a full face mask. Using the cannula, she was only satting around 92...not good enough. With the mask, she is around 97-98. She has been running a fever, feeling nauseous, can't even go to the restroom without needing her oxygen. She is feeling pretty bad. I cried today after I hung up with her....please say a prayer for her....
<br />
<br />Sunday:
<br />Added one more antibiotic...total of 3 IV antibiotics now. Still on 5 liters oxygen with full face mask unless she is doing treatments, eating, talking.....
<br />Feeling a little better today. She got to see some of the NY fireworks from her hospital window.....yeah...I was sooooo glad she could see them, I hated her missing out on 4th of July.
<br />Jeanne, Graves and her oldest sister have been to visit in the last few days. I wish I could be there....

<br />She had some hemoptysis also.....lots going on....the first week or so of being in the hospital loosens things up...gets things going....hopefully we will see a big turn around next week.
<br />Please continue to pray for Mel....
<br />Thank you all....
<br />
<br />Monday night update:
<br />Mel is sounding much better! Her voice is almost completely back to normal. She still has that darn cough though<img src="i/expressions/face-icon-small-wink.gif" border="0">(that's a joke if you missed that from earlier. They switched her oral Prednisone to IV Prednisone to see if it will work more effectively. Still on 5.0 liters oxygen. She feels like she has a lot of 'gunk' that doesn't want to move. So, between 3 IV antibiotics, IV TPN, IV Prednisone, IV fluids, she has something pumping into her 24/7. Hopefully things will start moving for her...please continue to pray....thank you!
<br />
<br />Tuesday-Wednesday
<br />Mel had quite a bit more hemoptysis on Tuesday evening. The intern(who actually seemed to know what he was doing)came in to see Mel...said.."What do they normally do when you have hemoptysis?". To which our sweet, quiet, little Mel replied "They give me the "shots"...but I don't want the "shots" because they hurt like a mother f*%#er." <img src="i/expressions/face-icon-small-happy.gif" border="0"> He responded with...."Well, let's make a deal, if the bleeding stays subsided like it is now, we won't give you the mother f#@*ing shots."!!!! I laughed so hard when she told me he called them what she had!<img src="i/expressions/face-icon-small-shocked.gif" border="0">
<br />She is still having quite a hard time with headaches. They are giving her a mild pain med to take before her treatments & cpt, just so she can tolerate it. She feels like she isn't really getting anywhere with her CF treatments because of the 'other' stuff going on.
<br />Please continue to pray for these 'other' issues to go away and for her spirits to be lifted.
<br />All the other meds/treatments are the same as of last update.
<br />
<br />Thursday-Sunday:
<br />Mel has had a couple more episodes of hemoptysis, but as of Sat. and Sun. none. Hopefully it will stay that way.
<br />She sounds in much better spirits emotionally. She said it was because she got to see the METS play last night!
<br />Still on 4 liters oxygen. Had to do blood gas tests for her carbon dioxide levels. They were a little high...so they will keep checking it. Poor thing apparantly looks like a pin cushion...they had to try many times before they got it(in the wrist mind you)
<br />Hopefully we will see a great improvement this week....please keep praying for her! Thank you!
<br />
<br />Monday thru Thursday:
<br />Trying not to bog everyone down with daily updates....especially when not much changes...
<br />She hasn't had any more hemoptysis as of late. She is taking walks now...but having an issue with getting enough O2, the tank she has runs either on 5 liters or 10. No in between, the 5 isn't enough to keep her SATS above around 92-93 while walking, but the 10 blows her nose away!
<br />She is on the 4 liters while at rest with her SATS sitting pretty at 96-99. Obviously, the goal here is for her to be WITHOUT the O2. So many thoughts and prayers are still needed!
<br />Her appetite is increasing (good sign). Her doc and her are discussing her discharging the 24th.
<br />Her CT scan and x-ray all still have no changes....sooo...that is really good news!
<br />Thanks for the prayers, thoughts, cards, etc.....
<br />
<br />Tuesday 07/21:
<br />
<br />Mel had some hemoptysis again today. So she had to get the dreaded shot. Poor thing. She is still on 3 liters of oxygen at rest. With her sats sitting around 95-96. When she takes it off, they drop immediately. So, looks like she will be on oxygen when she goes home. She is still planning on being released Friday. They will discontinue her TPN tonight, so they can check her sugar levels for 24 hours before she leaves. She had a major sugar drop, which made her very tired combined with the hemoptysis.
<br />So, hopefully everything else will go smoothly the rest of the week.
<br />She received her cards from everyone...I kept asking her..."any cards yet???" She kept saying, nope. Finally a nurse found a stack of cards for her at the other end of the floor, just sitting around on some desk.Uggh. At least they found them! She was very happy to get them! Thank you all!
<br />
<br />Final update!!!!
<br />
<br />Today, Friday, July 24th, Ms. Mel is going home!<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />She will be going home with i.v.'s for 2 more weeks, switching her i.v. prednisone to oral, still on 2-3 liters of oxygen, but very HAPPY to be going home after almost a month in!!
<br />Thank you again for the prayers, comments, card, etc...!
<br />
<br />Signing out for the last time......<img src="i/expressions/face-icon-small-wink.gif" border="0">
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<br />
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<br />
<br />Jada
<br />
 

JennifersHope

New member
Thanks for the update Jada.. That happens to me all the time on Prednisone, I get a really bad sore throat and I don't think my throat is even red..

At least you can read this Mel, Love you feel better..
 

JennifersHope

New member
Thanks for the update Jada.. That happens to me all the time on Prednisone, I get a really bad sore throat and I don't think my throat is even red..

At least you can read this Mel, Love you feel better..
 

JennifersHope

New member
Thanks for the update Jada.. That happens to me all the time on Prednisone, I get a really bad sore throat and I don't think my throat is even red..

At least you can read this Mel, Love you feel better..
 

JennifersHope

New member
Thanks for the update Jada.. That happens to me all the time on Prednisone, I get a really bad sore throat and I don't think my throat is even red..

At least you can read this Mel, Love you feel better..
 

JennifersHope

New member
Thanks for the update Jada.. That happens to me all the time on Prednisone, I get a really bad sore throat and I don't think my throat is even red..
<br />
<br />At least you can read this Mel, Love you feel better..
 
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