My name is Jeremy, I am a 19-year-old with CF. I have a vest at home that I've had for about 5 years. I do not use it, I only used it for about 6 months, I prefer other airway clearance methods. The vest is an EXTREMELY expensive device, and I am looking to give it to anyone who may need it the most according to financial problems or insurance problems. I know where you stand. If anyone out there is interested, please send me a message at reddragoon17@hotmail.com and I will get back with you. I do not have b. cepacia and the equipment will be clean. Thank you.
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Vest Available
- Thread starter anonymous
- Start date
Hi Jeremy,My name is Dea...I am 30 with CF, but I have a friend who lives in the UK. She is 23 with CF..she is on disability and lives on her own...so she cannot afford to buy one. They are not available in the UK. Her docs tell her that she needs something more than just chest percussion therapy. The vest would be great for her! It is so strange that u posted this message...she was just asking me about how to get one...my email is deamason@msn.com. Please...I hope we can help! Thanks....I will also email you...but if you see this before I do...email me please...Dea
Hi jeremy,My name is Charlotte, I am the 23 yr old girl from the UK who Dea is on about. I have CF, Chronic Bronchiectasis and Chronic Astma, I am on disability as Dea said and also we don't have this type of equipement over here in the UK. My dr is very concerened about the state of my lungs and the amount of persistent mucus I am producing. It was only today when I saw my dr when he stated that the CPT is not effective and I need a lot more, I also take mucalytic drugs again not effective. A vest was mentioned but as already said here in the UK such device is not available and funding is also out of the question and a costly and timley thing <img src="i/expressions/face-icon-small-sad.gif" border="0">Both myself and my Dr's are in desperate need of a such device to help maintain a good air way and therefore to also enable to prevent my amount of infections and hosipatl admissions and the double lung transplant they are wanting to do can not go ahead because of the state my health is in. I do hope you can help, both my dr's and myself are at the end of the road now as to what to do and there are no other options or routes we can take this is our last and only hope.I do hope you can me also thank you Dea for posting a message as well bless you my sweetheart.As Dea has given you her email address I will let you respond to hers if you do want mine just send me a reply to this message.Take care, Charlotte xx