VX-770 (Vertex Pharmaceuticals, Inc.)
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I just did some web searching on this drug and can't find much info on who qualifies for Ph II and who does not. Were you sent any criteria? Do you know where the research sites are...at the very least what state are you in? Also if you don't mind sharing what are your mutations, your FEV1 and age? Do you know what kind of mutations this will treat...deletion, missense, nonsense, stop, etc?
If you decide to participate I applaud you. Thanks for helping to make a difference for all of us
If you decide to participate I applaud you. Thanks for helping to make a difference for all of us
I just did some web searching on this drug and can't find much info on who qualifies for Ph II and who does not. Were you sent any criteria? Do you know where the research sites are...at the very least what state are you in? Also if you don't mind sharing what are your mutations, your FEV1 and age? Do you know what kind of mutations this will treat...deletion, missense, nonsense, stop, etc?
If you decide to participate I applaud you. Thanks for helping to make a difference for all of us
If you decide to participate I applaud you. Thanks for helping to make a difference for all of us
I just did some web searching on this drug and can't find much info on who qualifies for Ph II and who does not. Were you sent any criteria? Do you know where the research sites are...at the very least what state are you in? Also if you don't mind sharing what are your mutations, your FEV1 and age? Do you know what kind of mutations this will treat...deletion, missense, nonsense, stop, etc?
If you decide to participate I applaud you. Thanks for helping to make a difference for all of us
If you decide to participate I applaud you. Thanks for helping to make a difference for all of us
I have G551D and live in Philadelphia. This city is listed as a test site. Do you guys know when the trial is to begin? I would possibly consider it but I saw breastfeeding is not allowed while in the trial so depending when it starts it will or will not work for me. Also, do you anything else about the medicine or the trial such as requirements for the study and how the med is taken (pill, IV, etc.) Did you get an idea of how long you'd be involved with the testing and what the time commitment would be?
I have G551D and live in Philadelphia. This city is listed as a test site. Do you guys know when the trial is to begin? I would possibly consider it but I saw breastfeeding is not allowed while in the trial so depending when it starts it will or will not work for me. Also, do you anything else about the medicine or the trial such as requirements for the study and how the med is taken (pill, IV, etc.) Did you get an idea of how long you'd be involved with the testing and what the time commitment would be?
I have G551D and live in Philadelphia. This city is listed as a test site. Do you guys know when the trial is to begin? I would possibly consider it but I saw breastfeeding is not allowed while in the trial so depending when it starts it will or will not work for me. Also, do you anything else about the medicine or the trial such as requirements for the study and how the med is taken (pill, IV, etc.) Did you get an idea of how long you'd be involved with the testing and what the time commitment would be?
This seems pretty interesting..my kids all have G551D...does anyone know anything more about it? I've just done a google search but have only come up with the trial info.
A journal article would be good. Okay, I found this on the cff.org site...
VX-770 (Vertex Pharmaceuticals, Inc.) - This new compound is called a "potentiator" and it may act upon the CFTR protein and help to open the chloride channel in CF cells. Phase 1 dosing has been completed in patients. Researchers are evaluating results and Phase 2 could begin in early 2007.
A journal article would be good. Okay, I found this on the cff.org site...
VX-770 (Vertex Pharmaceuticals, Inc.) - This new compound is called a "potentiator" and it may act upon the CFTR protein and help to open the chloride channel in CF cells. Phase 1 dosing has been completed in patients. Researchers are evaluating results and Phase 2 could begin in early 2007.
This seems pretty interesting..my kids all have G551D...does anyone know anything more about it? I've just done a google search but have only come up with the trial info.
A journal article would be good. Okay, I found this on the cff.org site...
VX-770 (Vertex Pharmaceuticals, Inc.) - This new compound is called a "potentiator" and it may act upon the CFTR protein and help to open the chloride channel in CF cells. Phase 1 dosing has been completed in patients. Researchers are evaluating results and Phase 2 could begin in early 2007.
A journal article would be good. Okay, I found this on the cff.org site...
VX-770 (Vertex Pharmaceuticals, Inc.) - This new compound is called a "potentiator" and it may act upon the CFTR protein and help to open the chloride channel in CF cells. Phase 1 dosing has been completed in patients. Researchers are evaluating results and Phase 2 could begin in early 2007.
This seems pretty interesting..my kids all have G551D...does anyone know anything more about it? I've just done a google search but have only come up with the trial info.
A journal article would be good. Okay, I found this on the cff.org site...
VX-770 (Vertex Pharmaceuticals, Inc.) - This new compound is called a "potentiator" and it may act upon the CFTR protein and help to open the chloride channel in CF cells. Phase 1 dosing has been completed in patients. Researchers are evaluating results and Phase 2 could begin in early 2007.
A journal article would be good. Okay, I found this on the cff.org site...
VX-770 (Vertex Pharmaceuticals, Inc.) - This new compound is called a "potentiator" and it may act upon the CFTR protein and help to open the chloride channel in CF cells. Phase 1 dosing has been completed in patients. Researchers are evaluating results and Phase 2 could begin in early 2007.