Went to the Dr. today and this is what he said

Diane

New member
I went to my cf clinic today for my follow up visit. My fev1 was up 1 number i was sort of disappointed, but i figure one number up is better than one down. My fvc was up 2 points. My weight is up a pound and a half. This is all good.
About the sed rate level, my Dr. mentioned several things..... it could be something called "serum sickness", which can happen from being on iv antitiobics too often, which i have been the last 8 months. I normally do not need them every 2 - 3 months like i have recently.
He also said it could just be the cepacia.
He did another blood test to see if the sed rate has gone down since the last test. The last test was done while i was still on iv's, so if the rate is dramatically lower this time the serum sickness may be the culprit. He still wants me to see a reumatologist though to rule out other stuff. All in all it wasnt a bad visit i guess.
 

Diane

New member
I went to my cf clinic today for my follow up visit. My fev1 was up 1 number i was sort of disappointed, but i figure one number up is better than one down. My fvc was up 2 points. My weight is up a pound and a half. This is all good.
About the sed rate level, my Dr. mentioned several things..... it could be something called "serum sickness", which can happen from being on iv antitiobics too often, which i have been the last 8 months. I normally do not need them every 2 - 3 months like i have recently.
He also said it could just be the cepacia.
He did another blood test to see if the sed rate has gone down since the last test. The last test was done while i was still on iv's, so if the rate is dramatically lower this time the serum sickness may be the culprit. He still wants me to see a reumatologist though to rule out other stuff. All in all it wasnt a bad visit i guess.
 

Diane

New member
I went to my cf clinic today for my follow up visit. My fev1 was up 1 number i was sort of disappointed, but i figure one number up is better than one down. My fvc was up 2 points. My weight is up a pound and a half. This is all good.
About the sed rate level, my Dr. mentioned several things..... it could be something called "serum sickness", which can happen from being on iv antitiobics too often, which i have been the last 8 months. I normally do not need them every 2 - 3 months like i have recently.
He also said it could just be the cepacia.
He did another blood test to see if the sed rate has gone down since the last test. The last test was done while i was still on iv's, so if the rate is dramatically lower this time the serum sickness may be the culprit. He still wants me to see a reumatologist though to rule out other stuff. All in all it wasnt a bad visit i guess.
 

Diane

New member
I went to my cf clinic today for my follow up visit. My fev1 was up 1 number i was sort of disappointed, but i figure one number up is better than one down. My fvc was up 2 points. My weight is up a pound and a half. This is all good.
About the sed rate level, my Dr. mentioned several things..... it could be something called "serum sickness", which can happen from being on iv antitiobics too often, which i have been the last 8 months. I normally do not need them every 2 - 3 months like i have recently.
He also said it could just be the cepacia.
He did another blood test to see if the sed rate has gone down since the last test. The last test was done while i was still on iv's, so if the rate is dramatically lower this time the serum sickness may be the culprit. He still wants me to see a reumatologist though to rule out other stuff. All in all it wasnt a bad visit i guess.
 

Diane

New member
I went to my cf clinic today for my follow up visit. My fev1 was up 1 number i was sort of disappointed, but i figure one number up is better than one down. My fvc was up 2 points. My weight is up a pound and a half. This is all good.
<br /> About the sed rate level, my Dr. mentioned several things..... it could be something called "serum sickness", which can happen from being on iv antitiobics too often, which i have been the last 8 months. I normally do not need them every 2 - 3 months like i have recently.
<br /> He also said it could just be the cepacia.
<br /> He did another blood test to see if the sed rate has gone down since the last test. The last test was done while i was still on iv's, so if the rate is dramatically lower this time the serum sickness may be the culprit. He still wants me to see a reumatologist though to rule out other stuff. All in all it wasnt a bad visit i guess.
 

beleache

New member
Hey Diane,

You are so right. Up, even if it a little, is still up <img src="i/expressions/face-icon-small-wink.gif" border="0"> I hope the sed rate thing gets straightened out soon..

{{{{{{Hugs}}}}} to you, take care, keep us posted and God Bless..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hey Diane,

You are so right. Up, even if it a little, is still up <img src="i/expressions/face-icon-small-wink.gif" border="0"> I hope the sed rate thing gets straightened out soon..

{{{{{{Hugs}}}}} to you, take care, keep us posted and God Bless..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hey Diane,

You are so right. Up, even if it a little, is still up <img src="i/expressions/face-icon-small-wink.gif" border="0"> I hope the sed rate thing gets straightened out soon..

{{{{{{Hugs}}}}} to you, take care, keep us posted and God Bless..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hey Diane,

You are so right. Up, even if it a little, is still up <img src="i/expressions/face-icon-small-wink.gif" border="0"> I hope the sed rate thing gets straightened out soon..

{{{{{{Hugs}}}}} to you, take care, keep us posted and God Bless..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hey Diane,
<br />
<br />You are so right. Up, even if it a little, is still up <img src="i/expressions/face-icon-small-wink.gif" border="0"> I hope the sed rate thing gets straightened out soon..
<br />
<br />{{{{{{Hugs}}}}} to you, take care, keep us posted and God Bless..
<br />
<br /><img src="i/expressions/heart.gif" border="0"> joni
 

lightNlife

New member
Ah, good ol' "serum sickness." That's the word I was trying to think of the other day and couldn't. Hang in there, and keep drinking plenty of water!
 

lightNlife

New member
Ah, good ol' "serum sickness." That's the word I was trying to think of the other day and couldn't. Hang in there, and keep drinking plenty of water!
 

lightNlife

New member
Ah, good ol' "serum sickness." That's the word I was trying to think of the other day and couldn't. Hang in there, and keep drinking plenty of water!
 

lightNlife

New member
Ah, good ol' "serum sickness." That's the word I was trying to think of the other day and couldn't. Hang in there, and keep drinking plenty of water!
 

lightNlife

New member
Ah, good ol' "serum sickness." That's the word I was trying to think of the other day and couldn't. Hang in there, and keep drinking plenty of water!
 

Nightwriter

New member
Any up is good! Can I get a star for suggesting drugs as a possible culprit? Although it sounds like anything can cause this rate to go up. Hey, maybe wearing the color orange! At any rate, I like the name "serum sickness." Sounds so medieval.

Seriously though, I'm happy it's nothing bad.
 

Nightwriter

New member
Any up is good! Can I get a star for suggesting drugs as a possible culprit? Although it sounds like anything can cause this rate to go up. Hey, maybe wearing the color orange! At any rate, I like the name "serum sickness." Sounds so medieval.

Seriously though, I'm happy it's nothing bad.
 

Nightwriter

New member
Any up is good! Can I get a star for suggesting drugs as a possible culprit? Although it sounds like anything can cause this rate to go up. Hey, maybe wearing the color orange! At any rate, I like the name "serum sickness." Sounds so medieval.

Seriously though, I'm happy it's nothing bad.
 

Nightwriter

New member
Any up is good! Can I get a star for suggesting drugs as a possible culprit? Although it sounds like anything can cause this rate to go up. Hey, maybe wearing the color orange! At any rate, I like the name "serum sickness." Sounds so medieval.

Seriously though, I'm happy it's nothing bad.
 

Nightwriter

New member
Any up is good! Can I get a star for suggesting drugs as a possible culprit? Although it sounds like anything can cause this rate to go up. Hey, maybe wearing the color orange! At any rate, I like the name "serum sickness." Sounds so medieval.
<br />
<br />Seriously though, I'm happy it's nothing bad.
 
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