When do you see your family practitioner?

S

Seana30

New member
Hi all. Hope everyone is well.

Quick question.....We have arrived in the Austin area and I am setting up all of Courtney's medical care.

Living in a city without a CF center and going thru the military hospitals for Courtney's medical care we have never really used an official CF Center.

How does it work? Does Courtney see her family practitioner for colds, flus, etc and then go to her CF clinic for check ups every few months? Do you go to your CF doctor when you just need to see a doc if you have a cold, fever, etc?

I know it weird that I am asking this questions when we have known for 8 years that Courtney has CF but we have never been through this process.

We have researched and it looks like the best CF center in the Austin area is Dell Children's Hospital and they see children and adults which is good seeing Courtney will be 18 in September. Anyone know anything about Dell's CF Center?

Any advice would be great!

Seana
 
S

Seana30

New member
Hi all. Hope everyone is well.

Quick question.....We have arrived in the Austin area and I am setting up all of Courtney's medical care.

Living in a city without a CF center and going thru the military hospitals for Courtney's medical care we have never really used an official CF Center.

How does it work? Does Courtney see her family practitioner for colds, flus, etc and then go to her CF clinic for check ups every few months? Do you go to your CF doctor when you just need to see a doc if you have a cold, fever, etc?

I know it weird that I am asking this questions when we have known for 8 years that Courtney has CF but we have never been through this process.

We have researched and it looks like the best CF center in the Austin area is Dell Children's Hospital and they see children and adults which is good seeing Courtney will be 18 in September. Anyone know anything about Dell's CF Center?

Any advice would be great!

Seana
 
S

Seana30

New member
Hi all. Hope everyone is well.
<br />
<br />Quick question.....We have arrived in the Austin area and I am setting up all of Courtney's medical care.
<br />
<br />Living in a city without a CF center and going thru the military hospitals for Courtney's medical care we have never really used an official CF Center.
<br />
<br />How does it work? Does Courtney see her family practitioner for colds, flus, etc and then go to her CF clinic for check ups every few months? Do you go to your CF doctor when you just need to see a doc if you have a cold, fever, etc?
<br />
<br />I know it weird that I am asking this questions when we have known for 8 years that Courtney has CF but we have never been through this process.
<br />
<br />We have researched and it looks like the best CF center in the Austin area is Dell Children's Hospital and they see children and adults which is good seeing Courtney will be 18 in September. Anyone know anything about Dell's CF Center?
<br />
<br />Any advice would be great!
<br />
<br />Seana
 
H

hmw

New member
When do you see you family practitioner?

We have a 'sick plan' that we put into place as soon as Emily shows sign of illness. It is very important as soon as she is seen at her new clinic that you set up a protocol to use at the first sign of illness. Of course, you are already aware of the vital need for preventative care (daily vest/airway clearance and meds) but the sick plan gives you the protocol they want you to use for increased treatments that will help ward off more severe exacerbations and you start this before calling any doctors... sick plan will also tell you at what point you need to call and check in with them.

As far as what we do, we first start Emily's sick plan, then if after several days she is not improving, we check in with her cf clinic first. They are the ones that are the experts in respiratory health and are the ones that run cultures, so know better what abx to prescribe if she needs them than her regular dr would. If they want me to take her to the pediatrician, we do, but almost all the time they handle her illnesses (most often by phone.)

Wishing the best with the switch in clinics and doctors. Having a clinic to go to regularly will be good for Courtney's health and for helping her have the most success with her treatments.
 
H

hmw

New member
When do you see you family practitioner?

We have a 'sick plan' that we put into place as soon as Emily shows sign of illness. It is very important as soon as she is seen at her new clinic that you set up a protocol to use at the first sign of illness. Of course, you are already aware of the vital need for preventative care (daily vest/airway clearance and meds) but the sick plan gives you the protocol they want you to use for increased treatments that will help ward off more severe exacerbations and you start this before calling any doctors... sick plan will also tell you at what point you need to call and check in with them.

As far as what we do, we first start Emily's sick plan, then if after several days she is not improving, we check in with her cf clinic first. They are the ones that are the experts in respiratory health and are the ones that run cultures, so know better what abx to prescribe if she needs them than her regular dr would. If they want me to take her to the pediatrician, we do, but almost all the time they handle her illnesses (most often by phone.)

Wishing the best with the switch in clinics and doctors. Having a clinic to go to regularly will be good for Courtney's health and for helping her have the most success with her treatments.
 
H

hmw

New member
When do you see you family practitioner?

We have a 'sick plan' that we put into place as soon as Emily shows sign of illness. It is very important as soon as she is seen at her new clinic that you set up a protocol to use at the first sign of illness. Of course, you are already aware of the vital need for preventative care (daily vest/airway clearance and meds) but the sick plan gives you the protocol they want you to use for increased treatments that will help ward off more severe exacerbations and you start this before calling any doctors... sick plan will also tell you at what point you need to call and check in with them.
<br />
<br />As far as what we do, we first start Emily's sick plan, then if after several days she is not improving, we check in with her cf clinic first. They are the ones that are the experts in respiratory health and are the ones that run cultures, so know better what abx to prescribe if she needs them than her regular dr would. If they want me to take her to the pediatrician, we do, but almost all the time they handle her illnesses (most often by phone.)
<br />
<br />Wishing the best with the switch in clinics and doctors. Having a clinic to go to regularly will be good for Courtney's health and for helping her have the most success with her treatments.
 
R

Ratatosk

Administrator
Staff member
When do you see you family practitioner?

With DS he goes to the pediatrician for well child visits -- meaning vaccinations, lab work, physicals, rash, injury... Our CF clinic is 250 miles away in the City, so if DS gets sick, we call. Usually they call a script into the local pharmacy with other instructions -- increased CPT and nebs, call back if he's not better within a certain time period.

It'd be nice if our clinic would work with the one in the City, but that just hasn't happened. We go where we can get the best possible care for DS.
 
R

Ratatosk

Administrator
Staff member
When do you see you family practitioner?

With DS he goes to the pediatrician for well child visits -- meaning vaccinations, lab work, physicals, rash, injury... Our CF clinic is 250 miles away in the City, so if DS gets sick, we call. Usually they call a script into the local pharmacy with other instructions -- increased CPT and nebs, call back if he's not better within a certain time period.

It'd be nice if our clinic would work with the one in the City, but that just hasn't happened. We go where we can get the best possible care for DS.
 
R

Ratatosk

Administrator
Staff member
When do you see you family practitioner?

With DS he goes to the pediatrician for well child visits -- meaning vaccinations, lab work, physicals, rash, injury... Our CF clinic is 250 miles away in the City, so if DS gets sick, we call. Usually they call a script into the local pharmacy with other instructions -- increased CPT and nebs, call back if he's not better within a certain time period.
<br />
<br />It'd be nice if our clinic would work with the one in the City, but that just hasn't happened. We go where we can get the best possible care for DS.
 
H

hmw

New member
When do you see you family practitioner?

I agree with Liza~ if it's an illness or injury that is obviously nothing related to cf, we go straight to her regular dr. But if it's respiratory we always call cf first. We even call them for gi stuff since Emily has had cf-related problems there.
 
H

hmw

New member
When do you see you family practitioner?

I agree with Liza~ if it's an illness or injury that is obviously nothing related to cf, we go straight to her regular dr. But if it's respiratory we always call cf first. We even call them for gi stuff since Emily has had cf-related problems there.
 
H

hmw

New member
When do you see you family practitioner?

I agree with Liza~ if it's an illness or injury that is obviously nothing related to cf, we go straight to her regular dr. But if it's respiratory we always call cf first. We even call them for gi stuff since Emily has had cf-related problems there.
 
C

chrissyd

New member
When do you see you family practitioner?

I go to CF clinic ever 3 months but I also have a primary care doc that I see on a regular basis as well. I don't know much about Dell's but just wanted to throw my plan out there!

I would also suggest that if you can find a primary care doc who is willing to keep in touch with her clinic. My primary does it for me, and I feel like my problems are covered. Either way you definately want a doc who has knowledge of CF. If you like the doc but their knowledge is limited, you can always 'teach' them about what Courtney needs. I got lucky with my doc because she is very interested in all aspects of my care, even though she is an internal medicine doctor.
Good Luck!

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
When do you see you family practitioner?

I go to CF clinic ever 3 months but I also have a primary care doc that I see on a regular basis as well. I don't know much about Dell's but just wanted to throw my plan out there!

I would also suggest that if you can find a primary care doc who is willing to keep in touch with her clinic. My primary does it for me, and I feel like my problems are covered. Either way you definately want a doc who has knowledge of CF. If you like the doc but their knowledge is limited, you can always 'teach' them about what Courtney needs. I got lucky with my doc because she is very interested in all aspects of my care, even though she is an internal medicine doctor.
Good Luck!

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
When do you see you family practitioner?

I go to CF clinic ever 3 months but I also have a primary care doc that I see on a regular basis as well. I don't know much about Dell's but just wanted to throw my plan out there!
<br />
<br />I would also suggest that if you can find a primary care doc who is willing to keep in touch with her clinic. My primary does it for me, and I feel like my problems are covered. Either way you definately want a doc who has knowledge of CF. If you like the doc but their knowledge is limited, you can always 'teach' them about what Courtney needs. I got lucky with my doc because she is very interested in all aspects of my care, even though she is an internal medicine doctor.
<br />Good Luck!
<br />
<br /><img src="i/expressions/rose.gif" border="0">
 
B

bethylove

Guest
Honestly I stopped going to my family doctor when I turned about 17/18. After I received my immunizations needed for college I used my pulmonologist for mostly everything. The only thing I would even consider using a family doctor for is broken bones or allergies. Anything else I go to my CF team. Heck, even for allergies I go to my CF team because its more than just simple allergies - it has nasal involvement which in-turn for me creates lung involvement.

I recently started seeing a new family doctor after 4 years or so just so when all the medical people ask "Who's your primary care physician" I have a name. I hardly see her. No need -- I feel.
 
B

bethylove

Guest
Honestly I stopped going to my family doctor when I turned about 17/18. After I received my immunizations needed for college I used my pulmonologist for mostly everything. The only thing I would even consider using a family doctor for is broken bones or allergies. Anything else I go to my CF team. Heck, even for allergies I go to my CF team because its more than just simple allergies - it has nasal involvement which in-turn for me creates lung involvement.

I recently started seeing a new family doctor after 4 years or so just so when all the medical people ask "Who's your primary care physician" I have a name. I hardly see her. No need -- I feel.
 
B

bethylove

Guest
Honestly I stopped going to my family doctor when I turned about 17/18. After I received my immunizations needed for college I used my pulmonologist for mostly everything. The only thing I would even consider using a family doctor for is broken bones or allergies. Anything else I go to my CF team. Heck, even for allergies I go to my CF team because its more than just simple allergies - it has nasal involvement which in-turn for me creates lung involvement.
<br />
<br />I recently started seeing a new family doctor after 4 years or so just so when all the medical people ask "Who's your primary care physician" I have a name. I hardly see her. No need -- I feel.
 
M

MCGrad2006

Guest
<div class="FTQUOTE"><begin quote>Honestly I stopped going to my family doctor when I turned about 17/18. After I received my immunizations needed for college I used my pulmonologist for mostly everything. The only thing I would even consider using a family doctor for is broken bones or allergies. Anything else I go to my CF team. Heck, even for allergies I go to my CF team because its more than just simple allergies - it has nasal involvement which in-turn for me creates lung involvement. </end quote></div>

Same thing for me. I never see my primar care doctor. My CF center is about an hour away but usually if I am sick I call and they just give me a prescription. I see them every three months, no matter what. I dont even usually need to actually see them when I am sick, since they know what I culture.

Good luck getting things squared away! I am assuming this means everything worked out and you got the job? (I had not seen an update since you told about the interview). I am sure things will go smoothly and you will figure it all out! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

MCGrad2006

Guest
<div class="FTQUOTE"><begin quote>Honestly I stopped going to my family doctor when I turned about 17/18. After I received my immunizations needed for college I used my pulmonologist for mostly everything. The only thing I would even consider using a family doctor for is broken bones or allergies. Anything else I go to my CF team. Heck, even for allergies I go to my CF team because its more than just simple allergies - it has nasal involvement which in-turn for me creates lung involvement. </end quote>

Same thing for me. I never see my primar care doctor. My CF center is about an hour away but usually if I am sick I call and they just give me a prescription. I see them every three months, no matter what. I dont even usually need to actually see them when I am sick, since they know what I culture.

Good luck getting things squared away! I am assuming this means everything worked out and you got the job? (I had not seen an update since you told about the interview). I am sure things will go smoothly and you will figure it all out! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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