Who are you in a nut shell
- Thread starter littledebbie
- Start date
I don't think I've done this before, so I'll do it now.
I'm Jason. I'm 23 years old, diagnosed with CF at birth, on SSI/SSDI, and stuck living in lovly new jersey atm.
My AIM is Cloud5527, FB is Jason Carpenito.
Can msg me any time if anyone wants to talk. No guarentees I won't be asleep, but you can always msg me still! lol
I'm Jason. I'm 23 years old, diagnosed with CF at birth, on SSI/SSDI, and stuck living in lovly new jersey atm.
My AIM is Cloud5527, FB is Jason Carpenito.
Can msg me any time if anyone wants to talk. No guarentees I won't be asleep, but you can always msg me still! lol
My name is Sam.
I'm a guy.
I'm 21.
I live in Wichita, KS.
I have CF since birth, but don't know the strain.
I weigh 160 and 5'9"--I love to weightlift and workout (when healthy..)
I love rock music--Korn is my all-time favorite band.
I have a thing for movies...Pulp Fiction is my number 1, but Kevin Smith and mob stuff is always welcome.
I love all animals--especially cats and my pet snake!
I like tattoos (on myself and others)...
I'm single.
Despite everything else I wrote, I'm in college with a 4.0 (after two years) so I'm also pretty bright but don't like to flaunt that...haha
I would love to meet some people struggling with the same problems I face so feel free to message or facebook me!
I'm a guy.
I'm 21.
I live in Wichita, KS.
I have CF since birth, but don't know the strain.
I weigh 160 and 5'9"--I love to weightlift and workout (when healthy..)
I love rock music--Korn is my all-time favorite band.
I have a thing for movies...Pulp Fiction is my number 1, but Kevin Smith and mob stuff is always welcome.
I love all animals--especially cats and my pet snake!
I like tattoos (on myself and others)...
I'm single.
Despite everything else I wrote, I'm in college with a 4.0 (after two years) so I'm also pretty bright but don't like to flaunt that...haha
I would love to meet some people struggling with the same problems I face so feel free to message or facebook me!
M
MiddleAgedLady
Guest
My name is Joan.
I'm a gal.
Aged 55.
I live in Texas.
Diagnosed at age 26 after being misdiagnosed for 11 years.
Sick with pseudonomas pneumonias since 15.
Four sinus surgeries.
Minimal pancreatic involvement.
I'm 5'7" and weigh 140 lbs.
I'm divorced, no kids.
I've had mononucleosis three times, always the Epstein-Barr virus. Bad osteoarthritis in knees, feet, hands. Fibromyalgia and an unspecified connective tissue disease (I take a lupus drug for that.)
Went on SSDI two years ago and learning to relax and try to enjoy life.
Periodic bouts with depression and anxiety.
Currently in the hospital for tune-up.
My "baby" is my 15-year-old miniature pinscher. We've grown up together. ;-)
I'm a gal.
Aged 55.
I live in Texas.
Diagnosed at age 26 after being misdiagnosed for 11 years.
Sick with pseudonomas pneumonias since 15.
Four sinus surgeries.
Minimal pancreatic involvement.
I'm 5'7" and weigh 140 lbs.
I'm divorced, no kids.
I've had mononucleosis three times, always the Epstein-Barr virus. Bad osteoarthritis in knees, feet, hands. Fibromyalgia and an unspecified connective tissue disease (I take a lupus drug for that.)
Went on SSDI two years ago and learning to relax and try to enjoy life.
Periodic bouts with depression and anxiety.
Currently in the hospital for tune-up.
My "baby" is my 15-year-old miniature pinscher. We've grown up together. ;-)
crystalina0814
New member
Hi Everyone!
I am female
27 years old next week
I have CF- diagnosed as a baby
I am happily married- 5years
I have two beautiful biological children-Caleb, 3 and Addy, 1
We live in Ohio
I am 5'7" and 130lbs
I have my degree in Early Childhood Education, but I now own my own photography business.
I 'try' to love exercise, but I do love how it makes me feel.
I struggle with my weight often. I am not a big eater- but have to force myself to.
I have not been hospitalized (other than giving birth) for over 3 years now. I am so happy!
I love reading everyone's posts and gathering tips and ideas!
I am female
27 years old next week
I have CF- diagnosed as a baby
I am happily married- 5years
I have two beautiful biological children-Caleb, 3 and Addy, 1
We live in Ohio
I am 5'7" and 130lbs
I have my degree in Early Childhood Education, but I now own my own photography business.
I 'try' to love exercise, but I do love how it makes me feel.
I struggle with my weight often. I am not a big eater- but have to force myself to.
I have not been hospitalized (other than giving birth) for over 3 years now. I am so happy!
I love reading everyone's posts and gathering tips and ideas!
cfprincess19
New member
I'm Maddie.
I am 19 years old.
I live in Independence, MO.
I was diagnosed with CF at four months with failure to thrive and a bad case of pneumonia, and recently diagnosed with CFRD.
I'm 5'1" and 86 lbs.
I work two part time jobs and I'm a full time engineering student.
I love pasta.
I like shoes.
I like to write, read, draw, and design houses.
I am getting married June 2010 to a really supportive guy.
Joining the web site is my first attempt at talking to others with CF.
Nice to meet you all!
I am 19 years old.
I live in Independence, MO.
I was diagnosed with CF at four months with failure to thrive and a bad case of pneumonia, and recently diagnosed with CFRD.
I'm 5'1" and 86 lbs.
I work two part time jobs and I'm a full time engineering student.
I love pasta.
I like shoes.
I like to write, read, draw, and design houses.
I am getting married June 2010 to a really supportive guy.
Joining the web site is my first attempt at talking to others with CF.
Nice to meet you all!
my name is danny
i live in alabama
i was 2 yrs old when dx with cf
i weigh 127 pounds
i have a medi port
i have a peg tube
i have never had sinus surgery
my pfts are really bad
im waiting on the transplant list now
im married,married 2 yrs now
i have one little boy age 4 w/o cf
i have 2 dogs
i love ridding 4 wheelers
i live in alabama
i was 2 yrs old when dx with cf
i weigh 127 pounds
i have a medi port
i have a peg tube
i have never had sinus surgery
my pfts are really bad
im waiting on the transplant list now
im married,married 2 yrs now
i have one little boy age 4 w/o cf
i have 2 dogs
i love ridding 4 wheelers
CFkarmakid
New member
My name Is Shamus
I'm a male
18 years old
Grew up in the Midwest
Moved out To Hawaii, Freshman at Chaminade university
Diagnosed at Two weeks
Weigh around 145 to 150, 5ft10
My Pft's are 110
Used to Run Half-marathons for Cystic fibrosis
I'm a sucker for good Mexican food
I'm Irish Catholic
Just Got a mico bacterium infection in my Lung
I miss my family back home
I have many goals in the future
I'm a male
18 years old
Grew up in the Midwest
Moved out To Hawaii, Freshman at Chaminade university
Diagnosed at Two weeks
Weigh around 145 to 150, 5ft10
My Pft's are 110
Used to Run Half-marathons for Cystic fibrosis
I'm a sucker for good Mexican food
I'm Irish Catholic
Just Got a mico bacterium infection in my Lung
I miss my family back home
I have many goals in the future
pegsoninthepresent
New member
My is Arron but i go by the nickname PeGsOn
I was diagnosed at 6 weeks
im 23 years old
i live in Australia
I currently doing the work up for transplant
I hate flus
I like quirky interesting people (add me pegson1986@hotmail.com)
I have recently started blogging about me day to day like www.pegsoninthepresent.com
I weigh 88 kilos
i love milk
but love coca cola more..
I was diagnosed at 6 weeks
im 23 years old
i live in Australia
I currently doing the work up for transplant
I hate flus
I like quirky interesting people (add me pegson1986@hotmail.com)
I have recently started blogging about me day to day like www.pegsoninthepresent.com
I weigh 88 kilos
i love milk
but love coca cola more..
Hi everyone, i can't imagine why anyone would want to read about me but i did enjoy reading the other posts so maybe...!
I'm a 24 y/o female
genotype: 1717-1G-1Aa and DF508
I live in Ireland where it rains an awful lot, boo!
CF care here is far from adequate and the politicians lie about it a lot. Its heartbreaking really.
I have a thing for the sun and sea...looking forward to moving abroad after college!
I'm a PhD student.
It is hard work! But i am grateful for it.
I do ballet/ modern dance, running, cycling and weights classes...getting serious about exercise has lifted me out of a potentially sticky spot.
If I could offer only one piece of advice to a cfer/ parent it would be exercise...and Jerry Cahill is a legend; listen to him!
In the 3rd year of my degree i did a fashion show and got quite anorexic, never anticipating the effects it would have...that was a dark time.
Thank God I escaped that period and now love life and food
5'5" and 53kg ...um that's about 115lbs i think?
I love my friends more than they know.
I have an awesome family.
My grandmother and mom kept me very well as a kiddo and i never had an infection til the ripe old age of 17. My mom seemed to understand ahead of EVERYONE else in ireland that cfers should not mix...thanks mom!
I had surgery to correct scoliosis in 2005- great move, the surgeon was a gifted man and my scar is long but very skinny
I love clubbing!
I love smoking bans!
I love 80s music, electro, house, indie and have a lot of respect for Dire Straits
I love banana and peanut butter
My boyfriend doesn't know about my cf...will tell him soon i guess...yikes!
Ok that's enough from me...
I have read some astounding entries on this site, you guys are troopers and an altogether inspiring bunch!
I'm a 24 y/o female
genotype: 1717-1G-1Aa and DF508
I live in Ireland where it rains an awful lot, boo!
CF care here is far from adequate and the politicians lie about it a lot. Its heartbreaking really.
I have a thing for the sun and sea...looking forward to moving abroad after college!
I'm a PhD student.
It is hard work! But i am grateful for it.
I do ballet/ modern dance, running, cycling and weights classes...getting serious about exercise has lifted me out of a potentially sticky spot.
If I could offer only one piece of advice to a cfer/ parent it would be exercise...and Jerry Cahill is a legend; listen to him!
In the 3rd year of my degree i did a fashion show and got quite anorexic, never anticipating the effects it would have...that was a dark time.
Thank God I escaped that period and now love life and food
5'5" and 53kg ...um that's about 115lbs i think?
I love my friends more than they know.
I have an awesome family.
My grandmother and mom kept me very well as a kiddo and i never had an infection til the ripe old age of 17. My mom seemed to understand ahead of EVERYONE else in ireland that cfers should not mix...thanks mom!
I had surgery to correct scoliosis in 2005- great move, the surgeon was a gifted man and my scar is long but very skinny
I love clubbing!
I love smoking bans!
I love 80s music, electro, house, indie and have a lot of respect for Dire Straits
I love banana and peanut butter
My boyfriend doesn't know about my cf...will tell him soon i guess...yikes!
Ok that's enough from me...
I have read some astounding entries on this site, you guys are troopers and an altogether inspiring bunch!
My nickname is Annie
I'm a girl
I'm 31
I live in Pennsylvania
I was dx with bronchieactisis and COPD, I'm not sure the exact age.
I weigh around 118lbs and I'm 5'6"
I falied my PFT's
I am a stay at home mom/medical disability
I love my son, who is 2 and also has lung disease (not CF)
I am in a relationship with my boyfriend of ten months<img src="i/expressions/heart.gif" border="0">.
I'm stubborn
I'm sarcastic
I have a thing for shoes
I like to 4wheel ride
I'm a girl
I'm 31
I live in Pennsylvania
I was dx with bronchieactisis and COPD, I'm not sure the exact age.
I weigh around 118lbs and I'm 5'6"
I falied my PFT's
I am a stay at home mom/medical disability
I love my son, who is 2 and also has lung disease (not CF)
I am in a relationship with my boyfriend of ten months<img src="i/expressions/heart.gif" border="0">.
I'm stubborn
I'm sarcastic
I have a thing for shoes
I like to 4wheel ride
Hi everyone. I am not sure if I am doing this right or am I just responding to a an individual message but...
here I come
I am Sasha
I am 33 next week
I weight 130 and am 5'7"
I am guy whos into guys
and I have a boyfriend
I am kinda crazy
I am Vegeterian
I am from Sarajevo, Bosnia but I live in L.A.
my PFT's are messed up
I am old school raver
I love horror movies
I have a pit bull
I love fashion, music and photography
I go to AA and am sober for almost a year
....
and there is a nut shell. Hope I can make some friends here because I dont know anyone else with CF and there are days when people who dont have it just dont get it.
love to all
Sasa
here I come
I am Sasha
I am 33 next week
I weight 130 and am 5'7"
I am guy whos into guys
and I have a boyfriendI am kinda crazy
I am Vegeterian
I am from Sarajevo, Bosnia but I live in L.A.
my PFT's are messed up
I am old school raver
I love horror movies
I have a pit bull
I love fashion, music and photography
I go to AA and am sober for almost a year
....
and there is a nut shell. Hope I can make some friends here because I dont know anyone else with CF and there are days when people who dont have it just dont get it.
love to all
Sasa
J
john73
Guest
Hi my name is John
I am 55 which makes me the oldest one responding.
I was dianosed in 1973 my senior year of here school.
I still work as a securtiy officer at Sparrow Hospital in Lansing Michigan for 28 long years 2 years left I hope I can make it.
I live in Mason Michigan.
I love Baseball (go Detroit Tigers).
I like watching Football,college mostly
I like to play basketball.
I am married to a beautifull women Diane. who always their when I need her.
I love Pizza,steaks and a good cold beer. not all the time.
I love to joke around.
Its hard to find people like my self at my age so if any ones out there let me know.
Thank for the opportunity to say hi john
I am 55 which makes me the oldest one responding.
I was dianosed in 1973 my senior year of here school.
I still work as a securtiy officer at Sparrow Hospital in Lansing Michigan for 28 long years 2 years left I hope I can make it.
I live in Mason Michigan.
I love Baseball (go Detroit Tigers).
I like watching Football,college mostly
I like to play basketball.
I am married to a beautifull women Diane. who always their when I need her.
I love Pizza,steaks and a good cold beer. not all the time.
I love to joke around.
Its hard to find people like my self at my age so if any ones out there let me know.
Thank for the opportunity to say hi john
My name is Aaron, My nick name is Crash.
I'm a guy
I'm 23
I live in Yukon, Oklahoma.
I was diagnosed at 11 years old ~winter time cough that would not go away~ Found it was in my lungs.
I weigh 118 lbs, and I'm 5'8- 5'9
My PFT's stink in my opinion.
I stopped working 4 years after high school and it took me 2 years to get another job. I find it hard for me to do my job but push on despite how I feel so I can gain my endurance and keep my job.
I have a thing for Cars and ofcourse girls.
I have always put others before myself sometimes even at the cost of my own health. I have a older brother who has C/F as well but was lucky enough to get it only in his stomach. He very rarely has any upsets and stop doing his medicane years ago with no major issues.
I'm single
I like cats and dogs, I have two cats and will not get rid of them till they pass on even if it upsets my cough.
I have a friend named Cody who has worse C/F then I and I have been helpin him with his fight against SSI. I have never missed a fundraiser for him and never will. I look up to him cause he's up front about his C/F to people.
I'm sarcastic cause I like to have fun, I know why I was put on this earth and it was to help others, I've never really been scared of anything and fought tooth and nail against my C/F just so I could have a life and have hid it from many people and made excuses.
I've been doin my meds as I should and feeling great but here lately I've had a hard time breathin as well as doin my job, and coughin up more blood then mucas which worries me. I'm going in monday and if I have to get rude with my doctor I am because I am tired of him telling me it's "nothing".
I'm in a fight with Medicare because they claim their doctors say I only need Pulmozyme once a day and will send me only one box a month. My doctor says I need it twice a day and I agree. I'm the patient here not the Medicare doctor I know what is workin and what isn't.
Well guess I went a little over board...but that's me.
I'm a guy
I'm 23
I live in Yukon, Oklahoma.
I was diagnosed at 11 years old ~winter time cough that would not go away~ Found it was in my lungs.
I weigh 118 lbs, and I'm 5'8- 5'9
My PFT's stink in my opinion.
I stopped working 4 years after high school and it took me 2 years to get another job. I find it hard for me to do my job but push on despite how I feel so I can gain my endurance and keep my job.
I have a thing for Cars and ofcourse girls.
I have always put others before myself sometimes even at the cost of my own health. I have a older brother who has C/F as well but was lucky enough to get it only in his stomach. He very rarely has any upsets and stop doing his medicane years ago with no major issues.
I'm single
I like cats and dogs, I have two cats and will not get rid of them till they pass on even if it upsets my cough.
I have a friend named Cody who has worse C/F then I and I have been helpin him with his fight against SSI. I have never missed a fundraiser for him and never will. I look up to him cause he's up front about his C/F to people.
I'm sarcastic cause I like to have fun, I know why I was put on this earth and it was to help others, I've never really been scared of anything and fought tooth and nail against my C/F just so I could have a life and have hid it from many people and made excuses.
I've been doin my meds as I should and feeling great but here lately I've had a hard time breathin as well as doin my job, and coughin up more blood then mucas which worries me. I'm going in monday and if I have to get rude with my doctor I am because I am tired of him telling me it's "nothing".
I'm in a fight with Medicare because they claim their doctors say I only need Pulmozyme once a day and will send me only one box a month. My doctor says I need it twice a day and I agree. I'm the patient here not the Medicare doctor I know what is workin and what isn't.
Well guess I went a little over board...but that's me.
iamnina3178
New member
My name is Christina friends call me Nina
I'm 20 and my birthday is on October 15th
Diagnosed at 8 months due to lots of misdiagnosing at different local hospitals
Have an 18 year old brother with CF
Love to exercise when I can run/walk/bike/etc
Snowboarding is my favorite sport
Recently went skydiving
Love camping, hiking, being outside
FEV1 51%
I love animals
I love swimming
Lost my hearing 3 years ago due to Tobra IV
Finally getting out of the house again after getting used the hearing aids
Stopped going to school after the hearing thing but have been working for the last 4 years
I have had a port for 18 years my current port is 11 years old
I have a G-Tube
5'5" 120 lbs
I've done the work up and been on the TX list twice when PFT's were in the 20%'s but managed to fight back after 6-8 months each time gaining more than 30% of my lung function back to 60% which is my highest FEV1!
I am not a quiter!
Message me! I am happy to answer questions or just talk. I have aim and am usually on most the time doing my vest dnsase and the like!
I'm 20 and my birthday is on October 15th
Diagnosed at 8 months due to lots of misdiagnosing at different local hospitals
Have an 18 year old brother with CF
Love to exercise when I can run/walk/bike/etc
Snowboarding is my favorite sport
Recently went skydiving
Love camping, hiking, being outside
FEV1 51%
I love animals
I love swimming
Lost my hearing 3 years ago due to Tobra IV
Finally getting out of the house again after getting used the hearing aids
Stopped going to school after the hearing thing but have been working for the last 4 years
I have had a port for 18 years my current port is 11 years old
I have a G-Tube
5'5" 120 lbs
I've done the work up and been on the TX list twice when PFT's were in the 20%'s but managed to fight back after 6-8 months each time gaining more than 30% of my lung function back to 60% which is my highest FEV1!
I am not a quiter!
Message me! I am happy to answer questions or just talk. I have aim and am usually on most the time doing my vest dnsase and the like!
dawnaliz65
New member
My name is Dawn
24 yrs old
Diagnosed at birth due to a meconium ileus bowel obstruction(they were also on the look out for CF since my older sister was already diagnosed with CF)
I reside in Indianapolis,IN
My PFT's are generally in the 70's
I'm a personal trainer and a full time student studying exercise science/Pre- physical therapy
Healthwise I'm currently going through a bit of a rough patch
I love sports(go colts!)& anything that involves the outdoors esp. wakeboarding & snowboarding
Addicted to beef jerky nuggets, chinese food, thai food, coco covered almonds, and dark chocolate and carmel Zone protein bars
And I agree with Patch Adams...laughter is the best medicine!
24 yrs old
Diagnosed at birth due to a meconium ileus bowel obstruction(they were also on the look out for CF since my older sister was already diagnosed with CF)
I reside in Indianapolis,IN
My PFT's are generally in the 70's
I'm a personal trainer and a full time student studying exercise science/Pre- physical therapy
Healthwise I'm currently going through a bit of a rough patch
I love sports(go colts!)& anything that involves the outdoors esp. wakeboarding & snowboarding
Addicted to beef jerky nuggets, chinese food, thai food, coco covered almonds, and dark chocolate and carmel Zone protein bars
And I agree with Patch Adams...laughter is the best medicine!