Who are you in a nut shell

caseybradford

New member
I'm Casey
32 yrs old
diagnosed @ age 17.
My sister 27 and Brother 20 also have CF
I have a milder case than most CF patients
I take floridil or pulmacourt for lungs
Ultrase MT-20 for digestive enzymes
Over the past 2 years I've had frequent bouts of pancreatitis.
 

ALecointre

New member
who are you in a nut shell

My name is Aimee.
I am a female.
I am 26 years of age.
I live in Southern CA and I LOVE LOVE LOVE it.
I was dx at three weeks due to failure to thrive.
I weigh around 110 lbs, and I'm 5'3"
My FEV1 hovers right around 58% or so.
My goal is to at least get it back to 70%
I have had two surgeries for scoliosis and now have metal rods in my back.
I just started college this past fall semester and love it.
I love cooking and reading.
I am happily married to a Marine that everyone calls Larry.
We have one cat named Jade, and are looking to adopt a black female pug puppy here soon.
I love love life and am so thankful for everyday!
 
Hi my name is Trent. I'm a guy. I'm 20. I live in Alabama. I was dx (diagnosed) when i was 4 cause they thought i had double pneumonia but found out it was cf instead. My PFTs are around 58%. I have psudomonis. I weigh around 170 i'm 5'7. I work for my dad sometimes at a recked car buesness. I race open wheel modifieds asphault round track . I'm engaged to my best friend. Well thats pretty much me =P.
 

Lungslikeamule

New member
Hello, My name is Andy. I will be 26 in April. I was diagnosed at 9 months. I have refrained from joining any CF forums all my life but now I feel the need to talk to others with CF for the first time. So, please bare with me I am new at this.

I am 6ft / 160
From TN but I have lived in St. Pete now for 6 years
I like to bike
Love to play tennis (Not very good)
I am an avid golfer (played one year in college)
I am a poker pro by trade (it has paid the bills for 3 years now)
I love to party with my friends
A beach bum during the summer
Looking forward to buying a boat for this summer!
In a two year relationship with my girlfriend
Hospitalized twice in the past 6 years (Just got out)
I am very diligent about my treatments (Was not until about age 20)
All in all I feel pretty good despite my neglect at times.

Feel free to shoot me message. I would love to hear from whoever wants to talk.
 

BaylorCrew07

New member
Hello! I've posted here for a while, but don't think I've ever had a formal intro, and I'm really bored at work right now, so here we go

My name is Debra
I'm 25 years old.
I live in Houston TX...very hot/humid.
I was failure to thrive at birth; sweat tests inconclusive (no genetic tests yet) and was not dxed until my sophomore year of college.
I weigh around 135 lbs, and I'm 5'6"...no pancreatic involvement
My FEV1 is around around 112% or so.
I love running, swimming, working out, etc. and am currently training for my first triathlon.
I have an amazingly supportive boyfriend (Jordan)... and love my life
 

Codysrt4

New member
My name is Cody
I'm a boy
I'm 23
I live in Oklahoma
I was diagnosed at 2 years of age
I weigh 115 and I'm 5'9
I had to stop working in April of 09
My FEV1 is 17%
I got listed for Tx 2 weeks ago
I'm in a car club called Twisted Illusions
My car is my passion and hobby
I like to play video games on my PS3
I love to text on my Blackberry
My Mom is my hero and number one source of strength
I cant wait to get my Tx
I'm ready for a new life
 

sally

New member
im sally...not sure if this is meant to be an american only site but i find it intersting, you always get the medical stuff before we do..anyway...
...im 19
...was diagnosed at 11 months
...just got accepted for a double lung transplant
...im 4ft11
...and i love my mini cooper
 

Momma3

New member
My name is Sarah
I am a Mom to 3
I live in Ohio
My daughter is undergoing testing for GI problems, the road is getting long and tiresome.
I still have my doubts about her sweat test being neg.
I will speak in person to her GI doc about it in March when we go back up.
 

ernie9

New member
Hi all,

My name is Kyle
Im 23
I live in Adelaide, South Australia
I weight about 62kg (at the moment)
I am 166 cm tall
I am Engaged and have been for 4 years but we are getting married in march 2011
I love music, this is what helps me get through the tough times
I love to dance
I have 2 Brother, one who also has CF
I love my cats

Eh if you wanna know more just ask
Hopefully get to know a few of you soon
 

normap

New member
Hi,
I just joined this group.
My name is Norma.
I am 48, and I have CF.
I live in Baker Lake, New Brunswick, Canada.
I get seen in CF Clinic in Quebec City, a 3 hour drive from my home.
I was diagnosed at age 5, mostly due to poor weight gain and steatorrhea.
I worked for 9 years as a Registered Nurse in a Hospital setting.
My job now is to take care of my self.
I have been married for 28 years.
I have a 26 year old daughter.
I am presently looking into getting evaluated for a lung transplant.
I also have a CF web site:
<a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/CF.htm
">http://www3.nbnet.nb.ca/normap/CF.htm
</a>I hope I can share with the people here...
 
B

bethylove

Guest
Hello,
I've been around for about a year or so, but I figured it's never too late to introduce myself. I spent so long reading this thread it was actually a little ridiculous! haha

My name is Elizabeth, or Beth -- but not Liz.
I am *almost* 21 (2 weeks)
I have an older sister with CF (she's on here somewhere)
I was diagnosed at age 4 due to my sister being diagnosed.
My FEV1 is about 65%
I am 5'4" and weigh about 110 lbs
I grew up in Rhode Island
I live in Williamsburg, Virginia
I LOVE the VCU medical team in VA (sorry RI it puts you to shame)
I have a boyfriend named Kyle and we'll probably get married
I hate school, but go to school online to keep health insurance
I also hate SSI because its a pain in the you-know-what
I like odd forms of exercise (such as pole fitness, wii fit, and power dancing)
I love when things are clean, but I hate cleaning. (go figure)
I have a ferret named Goose, and he's adorable.
I can't wait to someday have a house of my own and a family of my own too.
 

Orangebear

New member
My name is Michelle
I'm 19
I live in New York City
I was diagnosed at 6 months
I weigh 100. I'm 5'3
dude, my PFT's suck too.
I'm in college
I have a "thing" for chicken
I'm single :(
I want to stay single
I like hot coco with whipped cream
I am an introvert
I go to NYU
 

cll424

New member
Hi, I'm Chloe
I'm 20 years old, and I live in Canada
I was diagnosed when I was 6 months old.

Right now, I'm a university student in communications, and I plan on becoming a counselor or social worker.

I am a huge movie/tv show buff. I play violin, and like doing puzzles in my free time.
Otherwise, I love my family and friends, and I love them all so much.
I'm single, always have been.

And I don't know anyone else with CF, which is why I just joined: because I want to get to know more fellow CFers.
 

tacos99

New member
Hi. My name is Teresa
We live in Birmingham, AL
I am a mom of 5 (Todd, Andrew, Christopher, Olivia, Shelby)
and I have been married for 23 years.
Shelby, 10, was diagnosed at 9 years old so we're still very new and wanting to learn as much as possible.
Her mutations are df508 and 2184insA
She is funny, smart, and a huge Hannah Montana fan.
She is PS so no enzymes.
She is wanting CF friends so She will probably post on the teen site.
 

LezlyH

New member
My name is Lezly
I'm a girl
I'm 19
I was diagnosed at 5 months
I live in small town Oklahoma
My brother also had CF, and was 24 yrs old when he passed away
My sister is a carrier, but has two beautiful babies that do not have CF.
My nephew and niece are my life!
I have a huge soft spot for any kind of animals, and wanted to be a vet.
I have a short haired Chihuahua named Pransi, and a Long haired Chihuahua named Penni.
I am currently in college studying Nutrition. (Maybe that will help me gain weight!)
I am a very skinny mini. (Barely 80 lbs, and 5'0 tall)
I love reading Dean Koontz books when I am not spoiling the kids or doing homework.
I still live with my mom and dad (yeah I know, I just lost my cool badge. LOL)
I am single, mostly because the boys around where I live are really stupid.
I am super sarcastic. All my conversations are about 95% sarcastic.
I love reading things about other CFers because it makes me feel not so alone.
I don't have any actual friends because they don't believe me when I say I don't feel good.
I only have friends online because I know they won't hurt me.
I enjoy having new friends, so if anyone has a Facebook, please feel free to add me! My email is lezly913@yahoo.com
And this concludes the Lezly in a nutshell episode! ((Hugs to all)) =)
 

Ricky123

New member
Iam a male 30 years of age.Living in London England ,my fev 1 was 77 in February.I love dogs,and my favorite breed are boxers.I also love sport and my favorites are football and boxing
 
D

Deb

Guest
Hi, I'm Debbie. New here.
I will be 50 in May.
Diagnosed at 24 after years of misdiagnosis.
DF508 and R117H.
No digestive problems so I won't share my weight.
College graduate, married almost 27 years, 2 healthy children (22 and 19)
Currently working full time and trying to juggle it all.
Relatively healthy until the last 4 months but hoping to be on the upswing soon.
Love animals, reading, cooking and gardening.
"Life isn't about waiting for the storm to pass; it's about learning to dance in the rain"
 
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