Who are you in a nut shell
- Thread starter littledebbie
- Start date
K
katethekid
Guest
I'm Caitlin.
I'm a girl.
I'm 25 years old.
I am a Catholic.
Height: 5'2" Weight:175
I am an atypical CFer dx at 15 years old, but tried to dx CF since I was 2.
I have had over 30 surgeries in my life (yuck)
I have an amazing Fiance that never fails to impress me.
I have a baby boy Samuel who's adopted and I wouldn't have it any other way.
I am in the process of remodeling our 1940's home with my Fiance.
My Dad is my hero, he fought a hard fight with cancer and died on my 21st birthday. He promised he'd be there for my birthday and he was.
I live in North Georgia and am currently trying to get in at a CF adult center as I aged out of peds.
I feel at home here on the forum.
My favorite food is grilled cheese.
I live in a rural area on 3 acres and a fishing pond across the street in the woods.
I've learned to enjoy confusing doctors. I guess it's my way of coping to find some hilarity in life mixed with the chaos.
I have 4 cats and 4 dogs. Somehow they keep showing up and I don't have the heart to turn them away.
My CF mainly effects my pancreas, but have had severe sinus problems and lung problems when I was very young.
I have a lot to learn about CF, but I'm willing to learn.
I'm a girl.
I'm 25 years old.
I am a Catholic.
Height: 5'2" Weight:175
I am an atypical CFer dx at 15 years old, but tried to dx CF since I was 2.
I have had over 30 surgeries in my life (yuck)
I have an amazing Fiance that never fails to impress me.
I have a baby boy Samuel who's adopted and I wouldn't have it any other way.
I am in the process of remodeling our 1940's home with my Fiance.
My Dad is my hero, he fought a hard fight with cancer and died on my 21st birthday. He promised he'd be there for my birthday and he was.
I live in North Georgia and am currently trying to get in at a CF adult center as I aged out of peds.
I feel at home here on the forum.
My favorite food is grilled cheese.
I live in a rural area on 3 acres and a fishing pond across the street in the woods.
I've learned to enjoy confusing doctors. I guess it's my way of coping to find some hilarity in life mixed with the chaos.
I have 4 cats and 4 dogs. Somehow they keep showing up and I don't have the heart to turn them away.
My CF mainly effects my pancreas, but have had severe sinus problems and lung problems when I was very young.
I have a lot to learn about CF, but I'm willing to learn.
S
SassyGirl13
Guest
Hi,
I'm a 36 year old female with CF (diagnosed at 7 mos.)
I am married (going on 7 years) and my husband is absolutely wonderful and has been my rock the past few years.
I was diagnosed with CFRD at age 13 on Halloween Day.
I have had 2 sinus surgeries, upper lobe of right lung removed, and kidney stone surgery in the past few years.
I live in Maryland, and have been blessed with wonderful doctors in Philadelphia and Johns Hopkins my whole life.
Just looking to talk to others with CF for inspiration, advice....
My PFTs have ranged from 13% to 70% in the past year.
I work full-time from home (I am no longer able to handle a job out of the house)
I am looking for some friends with CF
My name is Lynne
I'm a 36 year old female with CF (diagnosed at 7 mos.)
I am married (going on 7 years) and my husband is absolutely wonderful and has been my rock the past few years.
I was diagnosed with CFRD at age 13 on Halloween Day.
I have had 2 sinus surgeries, upper lobe of right lung removed, and kidney stone surgery in the past few years.
I live in Maryland, and have been blessed with wonderful doctors in Philadelphia and Johns Hopkins my whole life.
Just looking to talk to others with CF for inspiration, advice....
My PFTs have ranged from 13% to 70% in the past year.
I work full-time from home (I am no longer able to handle a job out of the house)
I am looking for some friends with CF
My name is Lynne
My name is Royce
I'm male
I'm 30
I live in MN, US
I was diagnosed at 6 weeks
I weigh about 125lbs and about 5' 6" in height
My FEV1 is 26%
I have CFRD
I am on oxygen full time 3 liters. 4 on the bad days
On the transplant list
I finally bit the bullet and quit my job 10/2011
Married and have triplets born 9/11/08
I love computers/technology
I used to love water skiing, swimming, and all lake related activities.
I run my own tech company (Keeps me from going crazy sitting home all day!)
Just living life and enjoying what I have
I'm male
I'm 30
I live in MN, US
I was diagnosed at 6 weeks
I weigh about 125lbs and about 5' 6" in height
My FEV1 is 26%
I have CFRD
I am on oxygen full time 3 liters. 4 on the bad days
On the transplant list
I finally bit the bullet and quit my job 10/2011
Married and have triplets born 9/11/08
I love computers/technology
I used to love water skiing, swimming, and all lake related activities.
I run my own tech company (Keeps me from going crazy sitting home all day!)
Just living life and enjoying what I have
lilmac1177
New member
<span style="font-family: tahoma, arial, helvetica, sans-serif; font-size: small; color: #3366ff;">Sassy, <span style="font-family: tahoma, arial, helvetica, sans-serif; font-size: small; color: #3366ff;">if you don't mind my asking, what part of Maryland are you from? i also live in MD...
S
SassyGirl13
Guest
Hi, I live in Crofton. Where do you live?
Hi. My name is maggie.
I'm 24.
I have cfrd.
I'm married (almost three years) to a man who is in the air force and disarms explosives for a living.
I have the best dog.ever, penelope.
My PFTs are good 80-100%.
I live in Arizona even though i hate hot weather.
I have an associates degree in nothing and what to get a BS in kinesiology, then.move on to a masters in physical therapy so I can work with injured soldiers
I'm 24.
I have cfrd.
I'm married (almost three years) to a man who is in the air force and disarms explosives for a living.
I have the best dog.ever, penelope.
My PFTs are good 80-100%.
I live in Arizona even though i hate hot weather.
I have an associates degree in nothing and what to get a BS in kinesiology, then.move on to a masters in physical therapy so I can work with injured soldiers
R
rainsmom
Guest
I really need to contact livingstrong it is really important
randomgirl
New member
My names Patty.
I'm a 23 yr old girl.
Lived in Texas my whole life.
I'm 5'2 and around 100 lbs.
Diagnosed with cf before I was born.
Older sister also has cf.
Diagnosed with cfrd at age 14.
I've had liver problems since I was about 10 yrs old.
Currently on the transplant list for a double lung and liver.
I sit at home all day and do pretty much nothing which drives me nuts.
I love animals and I wish I could help them all.
I also like jigsaw puzzles, candy, icecream, being with people...
I really want to do something with my life and make myself useful but I'm still trying to find out how to do that.
I'm pretty easy going, laid back, and open minded
I'm a 23 yr old girl.
Lived in Texas my whole life.
I'm 5'2 and around 100 lbs.
Diagnosed with cf before I was born.
Older sister also has cf.
Diagnosed with cfrd at age 14.
I've had liver problems since I was about 10 yrs old.
Currently on the transplant list for a double lung and liver.
I sit at home all day and do pretty much nothing which drives me nuts.
I love animals and I wish I could help them all.
I also like jigsaw puzzles, candy, icecream, being with people...
I really want to do something with my life and make myself useful but I'm still trying to find out how to do that.
I'm pretty easy going, laid back, and open minded
My name is John
I'm a 23 yr. old male
Live in Texas, was born in Peru, South America
Am 5'2'' and ~120 lbs.
Diagnosed with CF at 2.5 yrs.
Have a BS in Biology, finishing a MS in Biotechnology and plan to go to medical school in 2013.
Always had good lung function (75%+ FEV1)
Also currently teach freshmen intro biology
CF is my passion and am currently researching retinitis pigmentosa mutations in hopes of learning relevant techniques to some day begin work on a cure for CF
I'm a 23 yr. old male
Live in Texas, was born in Peru, South America
Am 5'2'' and ~120 lbs.
Diagnosed with CF at 2.5 yrs.
Have a BS in Biology, finishing a MS in Biotechnology and plan to go to medical school in 2013.
Always had good lung function (75%+ FEV1)
Also currently teach freshmen intro biology
CF is my passion and am currently researching retinitis pigmentosa mutations in hopes of learning relevant techniques to some day begin work on a cure for CF
kerynmliss
New member
My name is Keryn.
I am 27 years old.
I have two beautiful well behaved daughters.
I live in North eastern PA.
I am a RN in graduate school for my MBA.
I have a wonderful husband and two dogs.
My favorite bands are Mumford and Sons, Of Monsters and Men, and Kings of Leon.
I am short and chubby (never had problems gaining weight).
I love sushi, hot wings, PA Dutch foods, apple dumplings, honestly everything.
I love to hunt, fish, garden, and shop.
I have been very sick for the past 8 years. I have had 4 sinus surgeries and severe pain in my sinues. I had a lot of URI as a child. I have bad stool problems all my life. Was dx with "mild IBS" as a teenager from stress. on 4/12/12 I was finally given the correct dx of mild CF and seen at a CF clinic. I am finally getting the medical attention I deserve. My youngest daughter (12 months) has classic signs of CF and is being tested on tuesday. My oldest daughter (4) has no signs. I am getting tested for my mutations and very excited for the right treatment for me and possibly my daughter. I am looking for others to talk to that understand where I am in life.
I am 27 years old.
I have two beautiful well behaved daughters.
I live in North eastern PA.
I am a RN in graduate school for my MBA.
I have a wonderful husband and two dogs.
My favorite bands are Mumford and Sons, Of Monsters and Men, and Kings of Leon.
I am short and chubby (never had problems gaining weight).
I love sushi, hot wings, PA Dutch foods, apple dumplings, honestly everything.
I love to hunt, fish, garden, and shop.
I have been very sick for the past 8 years. I have had 4 sinus surgeries and severe pain in my sinues. I had a lot of URI as a child. I have bad stool problems all my life. Was dx with "mild IBS" as a teenager from stress. on 4/12/12 I was finally given the correct dx of mild CF and seen at a CF clinic. I am finally getting the medical attention I deserve. My youngest daughter (12 months) has classic signs of CF and is being tested on tuesday. My oldest daughter (4) has no signs. I am getting tested for my mutations and very excited for the right treatment for me and possibly my daughter. I am looking for others to talk to that understand where I am in life.
My name is Kyla
I'm 27
I'm Catholic
I was dx at 2
I'm 5'6'' and about 130lbs (<--thank you J-tube)
FEV1 about 35%
I have CFRD, cirrhosis of the liver, sinusitis, 2L oxygen full time
I have a Masters in Deaf Education and was teaching until this past January
I live in AZ but am moving back to FL to be with family
I have a sister (non carrier) and two nieces and a nephew
I read like it is going out of style, my guilty pleasure being YA sci-fi/fantasy
I love dancing but haven't been able go in a while.
I love to travel and have discovered the headache that is traveling with oxygen. ugh.
I'm 27
I'm Catholic
I was dx at 2
I'm 5'6'' and about 130lbs (<--thank you J-tube)
FEV1 about 35%
I have CFRD, cirrhosis of the liver, sinusitis, 2L oxygen full time
I have a Masters in Deaf Education and was teaching until this past January
I live in AZ but am moving back to FL to be with family
I have a sister (non carrier) and two nieces and a nephew
I read like it is going out of style, my guilty pleasure being YA sci-fi/fantasy
I love dancing but haven't been able go in a while.
I love to travel and have discovered the headache that is traveling with oxygen. ugh.
My name is Lena
I'm 21.
I was diagnosed at 1 year old. I have DF508 and an unknown gene.
My fev1 was 79% two weeks ago.
I have a fatty liver thanks to good ole CF.
No one else in my family has CF, thankfully.
I have a boyfriend who is 24 and takes such good care of me and seems to know my medications and whatnot better than I do sometimes. His name is Ryan.
I'm infatuated with body modification and all aspects of it, from tattoos and piercings, to plastic surgery and the cultures behind it all.
I love to read, and learn.
I spend too much time on my computer.
I am a really lucky person, and I have a great support system behind me.
I'm 21.
I was diagnosed at 1 year old. I have DF508 and an unknown gene.
My fev1 was 79% two weeks ago.
I have a fatty liver thanks to good ole CF.
No one else in my family has CF, thankfully.
I have a boyfriend who is 24 and takes such good care of me and seems to know my medications and whatnot better than I do sometimes. His name is Ryan.
I'm infatuated with body modification and all aspects of it, from tattoos and piercings, to plastic surgery and the cultures behind it all.
I love to read, and learn.
I spend too much time on my computer.
I am a really lucky person, and I have a great support system behind me.
Howdy! I am Zach!
I'm 19 (be 20 this Dec) and I was diagnosed with CF at 6 months of age. I live in the Show Me State (Missouri).
I am the only person in my entire family to have CF. A lot of family are carriers of the gene though.
Friends and family have always been there for me and I don't know what I would do with out them.
Quick little facts about me-
I like to be outside.
Love to chase storms.
I am going to college to be certified to be a train conductor.
I love trains.
Big history buff.
Love fishing.
I'm 19 (be 20 this Dec) and I was diagnosed with CF at 6 months of age. I live in the Show Me State (Missouri).
I am the only person in my entire family to have CF. A lot of family are carriers of the gene though.
Friends and family have always been there for me and I don't know what I would do with out them.
Quick little facts about me-
I like to be outside.
Love to chase storms.
I am going to college to be certified to be a train conductor.
I love trains.
Big history buff.
Love fishing.
bgchastain
New member
My name is Bonnie
I'm a girl
I'm 33 years old
I was diagnosed @ 5 yrs. old
My FEV1 is 41%
I weigh 119 and I'm 5'3"
I live is Georgia
I'm no longer working, but I was a real estate agent (and loved it)
Married for 10 years
Have 2 dogs- Lucy and Tucker
Love traveling, reading, and the beach.
I'm a girl
I'm 33 years old
I was diagnosed @ 5 yrs. old
My FEV1 is 41%
I weigh 119 and I'm 5'3"
I live is Georgia
I'm no longer working, but I was a real estate agent (and loved it)
Married for 10 years
Have 2 dogs- Lucy and Tucker
Love traveling, reading, and the beach.
Slateskies
New member
Testing 1, 2, 3...will post more if my second doesn't get eaten like my first.
P
pixiedust71
Guest
My name is Stacy. I am 40 years young. Married to my high school sweetheart for 16 years. I had a son at 35 without IvF. He is healthy, no CF. I was diagnosed at 2 due to multiple pneumonia episodes. I have double D508 mutation. I am 4'11 and weigh about 100 lbs. I have a porta cath which is only accessed when necessary. FEV 1 around 50. Onset CFDR.Chronic cdiff. I died at 23 due to Legionnaires disease (from cf) but was brought back and now have a cardiac defibrillator. I wasnt ready to die when i was pregnant but God tried to take me again i keep fighting! You would not know I had anything wrong with me if you looked at me until i coughed I'm disabled but had a successful career for 20 years. I love music, have a dog, and I am a bit of a smart ass. I love cartoons and have a bachelors degree even though the two do not seem to go together. I loooove shoes have 125 pairs and I'm a fashion freak. Catholic
Misslove1027
New member
I'm Kelli.
I'm 34.
I live in Ohio.
I have a chihuahua, named Chai Chai Maria Rodriguez.
I work part time as a chiropractic assistant.
My FEV and PFT's stink, I try not to focus on numbers.
I have commitment issues, I am divorced and THINKING about getting married again.
I love to read.
I'm talented at writing.
I sometimes like to make excuses rather than take responsibility for myself.
I like to hang out with funny people.
My church, church friends and my religion are important to me.
I'm probably going to go back to school, that scares me.
I have a sister without CF and a niece with CF. And 3 nephews without CF.
I like to eat too much, I'm 5'5" and weigh 135 +
I feel like I'm rambling.
I'm 34.
I live in Ohio.
I have a chihuahua, named Chai Chai Maria Rodriguez.
I work part time as a chiropractic assistant.
My FEV and PFT's stink, I try not to focus on numbers.
I have commitment issues, I am divorced and THINKING about getting married again.
I love to read.
I'm talented at writing.
I sometimes like to make excuses rather than take responsibility for myself.
I like to hang out with funny people.
My church, church friends and my religion are important to me.
I'm probably going to go back to school, that scares me.
I have a sister without CF and a niece with CF. And 3 nephews without CF.
I like to eat too much, I'm 5'5" and weigh 135 +
I feel like I'm rambling.
D
dyzaman
Guest
Well i'm craig from scotland, most of you should already know me as Dyza.
I had to re-register to be able to post on the forums, strangely, I can still post on my blog as dyza.
I had to re-register to be able to post on the forums, strangely, I can still post on my blog as dyza.
My name is Sabrina.
I am a 26 y/o female.
I was diagnosed at 4 years old.
I am a cancer survivor(7 years in remission).
I am a quarter Tlingit indian (Alaska Native).
I live in Anchorage, AK
I am 5'3 - 120 lbs.
I recently go married this past new years eve. Adam and I met in high school.
I run to stay healthy and I like to raise money for CF.
I will be running a half marathon this Saturday. I want to beat my previous time of 2 hours and 2 minutes!
I have had kidney stones, blood clots, sinus surgery for polyps, and biopsies for cancer.
I work at an Alaska Native art gallery in Anchorage, AK/
I have two mini-dachshunds named Oscar and Lola.
My fev1 is in the low 80's.
I love to travel, read, run, raise money, eat, and push myself to stay active and healthy
I am a 26 y/o female.
I was diagnosed at 4 years old.
I am a cancer survivor(7 years in remission).
I am a quarter Tlingit indian (Alaska Native).
I live in Anchorage, AK
I am 5'3 - 120 lbs.
I recently go married this past new years eve. Adam and I met in high school.
I run to stay healthy and I like to raise money for CF.
I will be running a half marathon this Saturday. I want to beat my previous time of 2 hours and 2 minutes!
I have had kidney stones, blood clots, sinus surgery for polyps, and biopsies for cancer.
I work at an Alaska Native art gallery in Anchorage, AK/
I have two mini-dachshunds named Oscar and Lola.
My fev1 is in the low 80's.
I love to travel, read, run, raise money, eat, and push myself to stay active and healthy