Who are you in a nut shell

[sparklelilac]

who are you in a nut shell

Hi Everyone,
My name is Patty
I'm a girl
I'm 29
I live in Boston
I was dx at 3
I weigh about 95lbs I 'm 5'1
I hate PFT's and I no longer want to know my numbers, I focus more on how I feel
For exercise I do an aerobics class 2 times a week
I love love pocketbooks, I have over 100
I was working PT at a custom design purse store (it is closing due to $$$$ issue)
I have an amazing boyfriend of almost 4 years
I love Chihuahua's (I never had one but really want one)
I am a very happy person, most of the time and really have a positive outlook on life.
I love to giggle
I find friendships very valuable

So today is the first time I visited this site, it is great. I feel like I have so much in common with all of the profiles I have read in a short time.
I would really like to get into some conversations about CF issues in adulthood (i.e. financial independence)
Can't wait to start chatting with everyone
Thanks

 

[JenWren]

who are you in a nut shell

My Name is Jen
I am 48
I love birthdays.
I enjoy getting older
I love gaining wisdom of the years.
Married 26 years ,happily
My husband is my best friend
I love nature,animals, writing poetry,singing, song writing
Can't have any animals, but God provides me with a stray now and again.
Love to reinvent myself
Learning to play the Harp
CF is my friend not my enemy
I work at home,
Retired teacher ,love children worked with underprivaledged kids and extremely privaledged kids.
Home Body
Anxiety is my biggest challenge
CFRD perfectionist
Love to exercise with oxygen of course
Love to camp, fly fish, design gardens,
Lovvvvvvvvveeeeee to laugh and make people laugh.
Friendships are very important to me
I am a Christian, believe in Angels, and miracles
Walk test is more important to me than PFT's and I let the doctor and other care takers know that. It is too easy to become obsessed with the numbers.
Holistic Methods of healing really work for me.
I am active im meditation, hypnotic healing, Reiki, and tai chi. Love them and they work for pain management.

Well look forward to conversing. I don't know if this will fit in a nut shell, but I tried.

Jen<img src="i/expressions/rose.gif" border="0">

 

[JenWren]

who are you in a nut shell

Hi sparklelilac

Welcome to the CF forum.

Hope your experience is rewarding.

Jen<img src="i/expressions/rose.gif" border="0">

 

[JenWren]

who are you

Since you don't post often. I don't know you and this is one of few times I have been on being new to the Site.

I'll wish you a very Happy Birthday. Maybe you'll see this in time for your birthday..

I love Birthdays and most always spoiled by them. hee hee

I hope your Birthday is a blast.

I am also retired and volunteer as much as I can. I find it very rewarding.

i love my yoga and meditation and Harp music. Do you play and instrument? I find music to be very healing.

I think I can actually credit being a singer in a band when I was youger to being 48 year old . I just had my birthday and it felt great. I have loved the 40's.

Being an Aunt is so important as we didn't have children. I love being the cool Auntie.

Well, just thought I would say hello and Happy Birthday..

 

[21strong1131987]

who are you in a nut shell

hi debbie im new to the website and thought i would introduce myself to u.
my name is vanessa
im 21 years old.i was diganosed @ birth
i have cf and cfrd
im 5'3 and 110 pounds
i love purses and handbags
my pfts are around 160
i have a ? how do u do it? how were u able to move out on ur own and pay ur bills and take care of urself when u have cf? i mean how is it that u have enough money to support urself when working a full-time job isn't do-able? i ask this because im working on leaving my moms house and am finding it very hard to do with all the bills that an average person has plus having everything that comes with havig this disease. i cant work a 40 hr. week because i get sick easy and end up in the hospital and plus my body cant take that. it's a very stressful reality and since u have been throw this i just wondered if u had any advice for me. vanessa

 

[tacknjibe]

who are you in a nut shell

I'm a 37 yrs old female
Live in Washington State
Was diagnosed at age 3
Transplanted at age 32
Was married for 10 years
... hope to be again
Miss my Jack Russell
Work at a University as an IT System Specialist
Love the mountains, hiking and skiing
Never could spell...

 

[tacknjibe]

who are you

PFT= Pulmonary Function Test
They are used to measure the overal capacity and functionality of your lungs. There is the FVC (Forced Vital Capacity) which means the overal volumn of you lungs and FEV1 (??) meaning how much air you can blow out in the first second which is really more reflective of how functional your lungs are. PFT's are generally measured based on what is expected for you size and age group.

Hope that helps,
--h

 

[SarahJean1976]

who are you in a nut shell

My Name is Sarah
I am 31 years old
I have CF
I just founded a non profit that is going to change our community <a target=_blank class=ftalternatingbarlinklarge href="http://www.breathe4tomorrow.org">Breathe 4 Tomorrow Foundation</a>
I believe it was my life mission to help those who I share a common bond with
I love my horses
My last FEV1 was 73% YAY!!
I am blessed with my health
I am inspired by everyone I meet with CF
I love to eat
I am currently fighting off a cold
I believe in love and base my life around it
I am addicted to LOST
I love the 80s and refuse to let them die
My CF DOES NOT define me, or limit me, the only thing my CF does is make me STRONGER!!!

Thank you and I look so forward to meeting some new people on here...
Sarah

 

[Solo]

who are you in a nut shell

Let's see here,
My name is Shane, I'm 28, have CFRD. I have few friends, am basically a loner. I have had pretty good health as of far. (Knock on wood) I just wrote a novel that I published. Other then that I just work as an Automotive Technician.

I'm posting a reply because I couldn't figure out how to post a new topic.

 

[JenWren]

who are you in a nut shell

Hey Solo: Welcome, If you go to the top of the page right above the old guys picture is words :"new topic , just click on that. it kind of hard to see but look in that area of the person in a block.

What did you publish your book on what subject. What a wonderful accomplishmentn,

Talk to you soon.

JenWren<img src="i/expressions/rose.gif" border="0">


48 Cf CFRD

 

[JenWren]

who are you in a nut shell

Dear Chuck: Welcome.

Your life sounds intresting and full. Im glad for you. My husband I a love to fish as well and camp. We'll have to talk abou those travels. Mike and I have been married 26 years and still happy. We chose not to have children but God provided lots of children in our lives whom we love. What is the biggest fish that you have caught?

JenWren<img src="i/expressions/rose.gif" border="0">

 

[Solo]

who are you in a nut shell

Originally posted by: JenWren

Hey Solo: Welcome, If you go to the top of the page right above the old guys picture is words :"new topic , just click on that. it kind of hard to see but look in that area of the person in a block.



What did you publish your book on what subject. What a wonderful accomplishmentn,



Talk to you soon.



JenWren





48 Cf CFRD

Hello Jen. Yesterday I seen the "new topic" button, but today I can't seem to locate it. This forum seems like it's alot different than any other. Anyways my book was just published a few weeks ago, and it's basic genere is science fiction. I figured if I stay indoors and be a recluse, I might as well do something productive. So writing is my escape outlet.

Wow, I see your 48. I have had so many struggles in my life, I'm not going to lie, there's times where I felt like deepthroating a rifle, but it's great to know that there's people out there that are going through the exact same thing that I am and have the intestinal fortitude to keep on going. You guys are truly an inspiration.

Cheers

 

[JenWren]

who are you in a nut shell

Hey Shane: I love your name. You are an inspiration as well. My friend I have been wanting to publish a book for years. Never gotten around to it. Bravo to you. I write poetry on all sorts of subjects. Been writing it for years. I hope to publish it before to long. I have this thing about publishing something after a person is dead and gone. hee hee.ya know what I mean.

Thank you for your inspiring story and pesonality. Keep up the good work and maybe we can talk more . I visit evey day recently.

I also spend a lot of time at home and when Im feeling good I try to volunteer and spend time with friends. Even spending time with friends now , can be exhausting. I can't seem to keep up with them. It truly is about re inventing ones self. I am Thankful God has given me that opportunity, '




JenWren<img src="i/expressions/rose.gif" border="0"> CF CFRD

 

[TinyGreenTurtles]

who are you in a nut shell

Okay, I'm way new - as in this is my first post- but I thought I would jump right in.

I'm Cindy
I'm a girl
I'm 27 years old
I was dx'd at a year old, failure to thrive
I have a sister that is 6 years younger that also has CF, and she's MUCH healthier than I, though I do well.
I live in Illinois, but I'm a transplant from Nebraska
I've been with my husband for 10 years, we've been married 6 1/2.
We have two healty little girls, ages 5 and 3. They are my entire life.
We have a rabbit named Miles, and a Russian Tortoise named Cucumber
I'm totally obsessed with turtles and tortoises.
I'm very sarcastic, brutally honest, and often times inappropriate. That offends some.
I am also loyal to a fault, I will do ANYTHING for a friend or a loved one. When I make a friend, it's forever.

I am so excited to talk to more adults with CF. Glad I found this forum!

 

[JenWren]

who are you in a nut shell

Welcome Tinygreenturtles:

Hope you enjoy your experience.

JenWren
48yrs. cf cfrd

 

[Buxxfan]

who are you in a nut shell

My name is Kevin
I am male
I am 31 yrs old
I am single
I live in Tampa, FL
I have cf
I was diagnosed near birth (meconium ileus) & failure to thrive
I had a double lung tx 12/06
I love my Jack Russell Terrier, Puck
I love comedies
I love laughing
I love The Tampa Bay Buccaneers
I love sleeping
I love sleeping in
I love watching TV
I love Papa Johns Hawaiin Chicken Pizza
I love life!

- Kevin

 

[kayleesgrandma]

who are you in a nut shell

Hello Kevin, welcome! Love all of you new ones coming on board! The e-patient of Jeanne's (Imogene-the site founder) dream is growing!<img src="i/expressions/heart.gif" border="0">

 

[ginandbrea]

who are you in a nut shell

My name is Gina
I'm a Chick
Age, not important!
I live in San Diego
Mommie of Breanna, age 9 years w/ CF

Dx at 9 y/o (yes, only a few months ago), chronic coughing and failure to thrive
DF508, 3849+10kbC>T, PS, MRSA, FEV1 81%

Breanna loves chocolate and Sashimi
She takes Gymnastics, Jazz and Acting 5 days a week
She ignores her dog "ChaChi" most of the time hates cleaning her room! How typical

We love doing everything outdoors from bike riding to deep sea fishing!

 

[cfgirl38]

who are you in a nut shell

My name is Becky.
I'm 38.
Diagnosed at age 30.
Been on here for a few years on and off.
average weight. do not have failure to thrive.
Lungs are 38%.
O2 at night.
Had to stop working 4 yrs ago.
Have dog, Bailey
Cat Sam.
The cat and I have the same birthday. Hehehehe.
No kids.
Love shoes also!

 

[GavinLP]

Name: Gavin
Age: 19
Location: Australia, South Australia
Marital Status: single
Diagnosed: within the first week of birth
CF severity: moderate lung damage
Occupation: student
Current health: below average (in hospital as we speak)
Hobbies: anything fun!
Proudest moment: owning a Holden VL Commodore turbo