why ??

C

Cherylwithone

Guest
Actually you were ptting the cf moms against the cfer's. Not a very nice thing to do. Your opening statemnt said it. What you hav'nt been doing is listening to the cfers tell you they learn from the moms and the moms learn form the cfers. It is a two way street here. We hare information, ideas. Our ups and downs. I feel so bad when I hear another cfer is admitted in the hospital. I cry for Garren and his family for what they are going through. We sometimes get to a point that we agree to disagree. But, in the end we have one thing in common "CF"

I would be lost without the moms and the cfers and the dads<img src="i/expressions/face-icon-small-smile.gif" border="0"> Everybody here helps everybody. Like they have all stated no two cfers are alike. That is why we need to share the information and get it out there. My daughter was told that the cf would never affect her lungs. It was all GI. Guess what? It did affect her lungs. I feel like a pro with the GI part but I stubble with the lungs. So, yes I count on everybody to find my way to help her and keep her going on her road to life.

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
Actually you were ptting the cf moms against the cfer's. Not a very nice thing to do. Your opening statemnt said it. What you hav'nt been doing is listening to the cfers tell you they learn from the moms and the moms learn form the cfers. It is a two way street here. We hare information, ideas. Our ups and downs. I feel so bad when I hear another cfer is admitted in the hospital. I cry for Garren and his family for what they are going through. We sometimes get to a point that we agree to disagree. But, in the end we have one thing in common "CF"

I would be lost without the moms and the cfers and the dads<img src="i/expressions/face-icon-small-smile.gif" border="0"> Everybody here helps everybody. Like they have all stated no two cfers are alike. That is why we need to share the information and get it out there. My daughter was told that the cf would never affect her lungs. It was all GI. Guess what? It did affect her lungs. I feel like a pro with the GI part but I stubble with the lungs. So, yes I count on everybody to find my way to help her and keep her going on her road to life.

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
Actually you were ptting the cf moms against the cfer's. Not a very nice thing to do. Your opening statemnt said it. What you hav'nt been doing is listening to the cfers tell you they learn from the moms and the moms learn form the cfers. It is a two way street here. We hare information, ideas. Our ups and downs. I feel so bad when I hear another cfer is admitted in the hospital. I cry for Garren and his family for what they are going through. We sometimes get to a point that we agree to disagree. But, in the end we have one thing in common "CF"

I would be lost without the moms and the cfers and the dads<img src="i/expressions/face-icon-small-smile.gif" border="0"> Everybody here helps everybody. Like they have all stated no two cfers are alike. That is why we need to share the information and get it out there. My daughter was told that the cf would never affect her lungs. It was all GI. Guess what? It did affect her lungs. I feel like a pro with the GI part but I stubble with the lungs. So, yes I count on everybody to find my way to help her and keep her going on her road to life.

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
Actually you were ptting the cf moms against the cfer's. Not a very nice thing to do. Your opening statemnt said it. What you hav'nt been doing is listening to the cfers tell you they learn from the moms and the moms learn form the cfers. It is a two way street here. We hare information, ideas. Our ups and downs. I feel so bad when I hear another cfer is admitted in the hospital. I cry for Garren and his family for what they are going through. We sometimes get to a point that we agree to disagree. But, in the end we have one thing in common "CF"

I would be lost without the moms and the cfers and the dads<img src="i/expressions/face-icon-small-smile.gif" border="0"> Everybody here helps everybody. Like they have all stated no two cfers are alike. That is why we need to share the information and get it out there. My daughter was told that the cf would never affect her lungs. It was all GI. Guess what? It did affect her lungs. I feel like a pro with the GI part but I stubble with the lungs. So, yes I count on everybody to find my way to help her and keep her going on her road to life.

Cheryl mom to Malora 15 w/cf
 
C

Cherylwithone

Guest
Actually you were ptting the cf moms against the cfer's. Not a very nice thing to do. Your opening statemnt said it. What you hav'nt been doing is listening to the cfers tell you they learn from the moms and the moms learn form the cfers. It is a two way street here. We hare information, ideas. Our ups and downs. I feel so bad when I hear another cfer is admitted in the hospital. I cry for Garren and his family for what they are going through. We sometimes get to a point that we agree to disagree. But, in the end we have one thing in common "CF"
<br />
<br />I would be lost without the moms and the cfers and the dads<img src="i/expressions/face-icon-small-smile.gif" border="0"> Everybody here helps everybody. Like they have all stated no two cfers are alike. That is why we need to share the information and get it out there. My daughter was told that the cf would never affect her lungs. It was all GI. Guess what? It did affect her lungs. I feel like a pro with the GI part but I stubble with the lungs. So, yes I count on everybody to find my way to help her and keep her going on her road to life.
<br />
<br />Cheryl mom to Malora 15 w/cf
 
C

CFHockeyMom

New member
<div class="FTQUOTE"><begin quote>As for the parents out there dealing with CF before there kids let me ask you this , have you ever had to deal with not breathing , or taking boat loads of meds . DO you have to deal with pic lines ..no you dont so the statment that the parents have been dealing with it longre is a farse. Besides when we move out you parents are no longer dealing with it are you ?? </end quote></div>

You're right, that is certainly not our perspective on this disease. However, have you ever sat next to your childs crib listening to make sure they are breathing? Have you have ever had to pin your child down while they are screaming because they are terrified but you know it's for their own good? Have you ever mourned the death of your child? Have you ever mourned for the healthy child you expected when you were preparing to welcome a new life into your life? Clearly your experience isn't the same as a parents and visa versa. Neither is better nor worse than the other. To say that a parent stops dealing with CF once their child moves out is ignorant. Once a parent always a parent; no matter how far away your child is you always worry and wonder.

Yes, there are plenty of mom's on here who don't want to hear the dark side (I call them the blow sunshine up my butt moms) but they are no less important to our community than you or I. So, get off your high horse and realize that this disease affects many people in many different ways. You can embrace our differences and teach those who will learn or close your mind and keep wallowing in self pitty.
 
C

CFHockeyMom

New member
<div class="FTQUOTE"><begin quote>As for the parents out there dealing with CF before there kids let me ask you this , have you ever had to deal with not breathing , or taking boat loads of meds . DO you have to deal with pic lines ..no you dont so the statment that the parents have been dealing with it longre is a farse. Besides when we move out you parents are no longer dealing with it are you ?? </end quote></div>

You're right, that is certainly not our perspective on this disease. However, have you ever sat next to your childs crib listening to make sure they are breathing? Have you have ever had to pin your child down while they are screaming because they are terrified but you know it's for their own good? Have you ever mourned the death of your child? Have you ever mourned for the healthy child you expected when you were preparing to welcome a new life into your life? Clearly your experience isn't the same as a parents and visa versa. Neither is better nor worse than the other. To say that a parent stops dealing with CF once their child moves out is ignorant. Once a parent always a parent; no matter how far away your child is you always worry and wonder.

Yes, there are plenty of mom's on here who don't want to hear the dark side (I call them the blow sunshine up my butt moms) but they are no less important to our community than you or I. So, get off your high horse and realize that this disease affects many people in many different ways. You can embrace our differences and teach those who will learn or close your mind and keep wallowing in self pitty.
 
C

CFHockeyMom

New member
<div class="FTQUOTE"><begin quote>As for the parents out there dealing with CF before there kids let me ask you this , have you ever had to deal with not breathing , or taking boat loads of meds . DO you have to deal with pic lines ..no you dont so the statment that the parents have been dealing with it longre is a farse. Besides when we move out you parents are no longer dealing with it are you ?? </end quote></div>

You're right, that is certainly not our perspective on this disease. However, have you ever sat next to your childs crib listening to make sure they are breathing? Have you have ever had to pin your child down while they are screaming because they are terrified but you know it's for their own good? Have you ever mourned the death of your child? Have you ever mourned for the healthy child you expected when you were preparing to welcome a new life into your life? Clearly your experience isn't the same as a parents and visa versa. Neither is better nor worse than the other. To say that a parent stops dealing with CF once their child moves out is ignorant. Once a parent always a parent; no matter how far away your child is you always worry and wonder.

Yes, there are plenty of mom's on here who don't want to hear the dark side (I call them the blow sunshine up my butt moms) but they are no less important to our community than you or I. So, get off your high horse and realize that this disease affects many people in many different ways. You can embrace our differences and teach those who will learn or close your mind and keep wallowing in self pitty.
 
C

CFHockeyMom

New member
<div class="FTQUOTE"><begin quote>As for the parents out there dealing with CF before there kids let me ask you this , have you ever had to deal with not breathing , or taking boat loads of meds . DO you have to deal with pic lines ..no you dont so the statment that the parents have been dealing with it longre is a farse. Besides when we move out you parents are no longer dealing with it are you ?? </end quote>

You're right, that is certainly not our perspective on this disease. However, have you ever sat next to your childs crib listening to make sure they are breathing? Have you have ever had to pin your child down while they are screaming because they are terrified but you know it's for their own good? Have you ever mourned the death of your child? Have you ever mourned for the healthy child you expected when you were preparing to welcome a new life into your life? Clearly your experience isn't the same as a parents and visa versa. Neither is better nor worse than the other. To say that a parent stops dealing with CF once their child moves out is ignorant. Once a parent always a parent; no matter how far away your child is you always worry and wonder.

Yes, there are plenty of mom's on here who don't want to hear the dark side (I call them the blow sunshine up my butt moms) but they are no less important to our community than you or I. So, get off your high horse and realize that this disease affects many people in many different ways. You can embrace our differences and teach those who will learn or close your mind and keep wallowing in self pitty.
 
C

CFHockeyMom

New member
<div class="FTQUOTE"><begin quote>As for the parents out there dealing with CF before there kids let me ask you this , have you ever had to deal with not breathing , or taking boat loads of meds . DO you have to deal with pic lines ..no you dont so the statment that the parents have been dealing with it longre is a farse. Besides when we move out you parents are no longer dealing with it are you ?? </end quote>
<br />
<br />You're right, that is certainly not our perspective on this disease. However, have you ever sat next to your childs crib listening to make sure they are breathing? Have you have ever had to pin your child down while they are screaming because they are terrified but you know it's for their own good? Have you ever mourned the death of your child? Have you ever mourned for the healthy child you expected when you were preparing to welcome a new life into your life? Clearly your experience isn't the same as a parents and visa versa. Neither is better nor worse than the other. To say that a parent stops dealing with CF once their child moves out is ignorant. Once a parent always a parent; no matter how far away your child is you always worry and wonder.
<br />
<br />Yes, there are plenty of mom's on here who don't want to hear the dark side (I call them the blow sunshine up my butt moms) but they are no less important to our community than you or I. So, get off your high horse and realize that this disease affects many people in many different ways. You can embrace our differences and teach those who will learn or close your mind and keep wallowing in self pitty.
 
You must log in or register to reply here.
Top