Hi there I am a Mom to an 11 year old CF boy. I don't get a chance to come here as often as I would like, but I do read some usually everyday. Most when I'm at work during breaks so I don't post often. I for one, of course can't talk for all parents, love to be able to read about older CFer's. I was definelty in more denial before I joined this board a couple of years ago. I feel at least now I will know what to expect as Tanner gets older - I might actually be able to figure out some of the signs and symptoms of things from reading on here so much. But I am going to enjoy these years where his health is good - but I truly know that it will not last forever! I think us parents definetly need all of you! Thanks!
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- Thread starter Necron99
- Start date
Hi there I am a Mom to an 11 year old CF boy. I don't get a chance to come here as often as I would like, but I do read some usually everyday. Most when I'm at work during breaks so I don't post often. I for one, of course can't talk for all parents, love to be able to read about older CFer's. I was definelty in more denial before I joined this board a couple of years ago. I feel at least now I will know what to expect as Tanner gets older - I might actually be able to figure out some of the signs and symptoms of things from reading on here so much. But I am going to enjoy these years where his health is good - but I truly know that it will not last forever! I think us parents definetly need all of you! Thanks!
Hi there I am a Mom to an 11 year old CF boy. I don't get a chance to come here as often as I would like, but I do read some usually everyday. Most when I'm at work during breaks so I don't post often. I for one, of course can't talk for all parents, love to be able to read about older CFer's. I was definelty in more denial before I joined this board a couple of years ago. I feel at least now I will know what to expect as Tanner gets older - I might actually be able to figure out some of the signs and symptoms of things from reading on here so much. But I am going to enjoy these years where his health is good - but I truly know that it will not last forever! I think us parents definetly need all of you! Thanks!
Hi there I am a Mom to an 11 year old CF boy. I don't get a chance to come here as often as I would like, but I do read some usually everyday. Most when I'm at work during breaks so I don't post often. I for one, of course can't talk for all parents, love to be able to read about older CFer's. I was definelty in more denial before I joined this board a couple of years ago. I feel at least now I will know what to expect as Tanner gets older - I might actually be able to figure out some of the signs and symptoms of things from reading on here so much. But I am going to enjoy these years where his health is good - but I truly know that it will not last forever! I think us parents definetly need all of you! Thanks!
Hi there I am a Mom to an 11 year old CF boy. I don't get a chance to come here as often as I would like, but I do read some usually everyday. Most when I'm at work during breaks so I don't post often. I for one, of course can't talk for all parents, love to be able to read about older CFer's. I was definelty in more denial before I joined this board a couple of years ago. I feel at least now I will know what to expect as Tanner gets older - I might actually be able to figure out some of the signs and symptoms of things from reading on here so much. But I am going to enjoy these years where his health is good - but I truly know that it will not last forever! I think us parents definetly need all of you! Thanks!
kayleesgrandma
New member
Necron, while we welcome new members, you haven't been here long enough to say that this is what has been happening (between cfmoms and cfrs). I haven't seen any cfmom's comments that says we are using "rose-colored glasses"--and I don't mean those exact words, but the attitude you are suggesting. If anything, we are more realistic, but have in the back of our hearts the hope that "our" child will be the one to beat the odds. We are all gamblers here--betting on the odds of survival. We moms, or in my case, grandmom--came here precisely BECAUSE OF THE ADULT CFRS!!! We were desparate for answers and ALL of the adult cfrs have always been helpful. So you don't really know what you are talking about...
Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
kayleesgrandma
New member
Necron, while we welcome new members, you haven't been here long enough to say that this is what has been happening (between cfmoms and cfrs). I haven't seen any cfmom's comments that says we are using "rose-colored glasses"--and I don't mean those exact words, but the attitude you are suggesting. If anything, we are more realistic, but have in the back of our hearts the hope that "our" child will be the one to beat the odds. We are all gamblers here--betting on the odds of survival. We moms, or in my case, grandmom--came here precisely BECAUSE OF THE ADULT CFRS!!! We were desparate for answers and ALL of the adult cfrs have always been helpful. So you don't really know what you are talking about...
Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
kayleesgrandma
New member
Necron, while we welcome new members, you haven't been here long enough to say that this is what has been happening (between cfmoms and cfrs). I haven't seen any cfmom's comments that says we are using "rose-colored glasses"--and I don't mean those exact words, but the attitude you are suggesting. If anything, we are more realistic, but have in the back of our hearts the hope that "our" child will be the one to beat the odds. We are all gamblers here--betting on the odds of survival. We moms, or in my case, grandmom--came here precisely BECAUSE OF THE ADULT CFRS!!! We were desparate for answers and ALL of the adult cfrs have always been helpful. So you don't really know what you are talking about...
Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
kayleesgrandma
New member
Necron, while we welcome new members, you haven't been here long enough to say that this is what has been happening (between cfmoms and cfrs). I haven't seen any cfmom's comments that says we are using "rose-colored glasses"--and I don't mean those exact words, but the attitude you are suggesting. If anything, we are more realistic, but have in the back of our hearts the hope that "our" child will be the one to beat the odds. We are all gamblers here--betting on the odds of survival. We moms, or in my case, grandmom--came here precisely BECAUSE OF THE ADULT CFRS!!! We were desparate for answers and ALL of the adult cfrs have always been helpful. So you don't really know what you are talking about...
Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
kayleesgrandma
New member
Necron, while we welcome new members, you haven't been here long enough to say that this is what has been happening (between cfmoms and cfrs). I haven't seen any cfmom's comments that says we are using "rose-colored glasses"--and I don't mean those exact words, but the attitude you are suggesting. If anything, we are more realistic, but have in the back of our hearts the hope that "our" child will be the one to beat the odds. We are all gamblers here--betting on the odds of survival. We moms, or in my case, grandmom--came here precisely BECAUSE OF THE ADULT CFRS!!! We were desparate for answers and ALL of the adult cfrs have always been helpful. So you don't really know what you are talking about...
<br />
<br />Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
<br />
<br />Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
<br />
<br />I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
<br />
<br />Based on the way you worded your opening comment, I wouldn't be surprised if this thread gets deleted either. You need to stop and take a breath before typing. Calling names will not win anyone over to your opinion, and it is not very respectful, nor does it portray you as a rational thinking person.
<br />
<br />Jeanne has kept many opposing opinions here, but it is always the moderators option to delete comments or threads. Read any other blogs, there is always a disclaimer by the owner of the blog. We can even delete comments from OUR blogs if we don't like them. Also, if a memeber is offended they will call attention to the mods, and they will make a decision to keep the material or delete.
<br />
<br />I appreciate your opinion, but it is hard to understand what you mean, when you don't provide an example, and then go on a tirade that is hard to understand.
<div class="FTQUOTE"><begin quote>I think one reason why moms of young ones with CF (such as myself) tend to have a different viewpoint is because the doctors tell us such 'wonderful things'. When A was diagnosed, it wasn't doom and gloom. It was more like "yeah, there will be roadbumps but he will live a full and normal life." Doctors are telling us very different things than 10 or 20 years ago and so I think we try to hold on to that. But I am not disillusioned about this illness and I feel sad that not everyone does as well as others or has been able to benefit from the newest treatments. </end quote></div>
That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
<div class="FTQUOTE"><begin quote>I think one reason why moms of young ones with CF (such as myself) tend to have a different viewpoint is because the doctors tell us such 'wonderful things'. When A was diagnosed, it wasn't doom and gloom. It was more like "yeah, there will be roadbumps but he will live a full and normal life." Doctors are telling us very different things than 10 or 20 years ago and so I think we try to hold on to that. But I am not disillusioned about this illness and I feel sad that not everyone does as well as others or has been able to benefit from the newest treatments. </end quote></div>
That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
<div class="FTQUOTE"><begin quote>I think one reason why moms of young ones with CF (such as myself) tend to have a different viewpoint is because the doctors tell us such 'wonderful things'. When A was diagnosed, it wasn't doom and gloom. It was more like "yeah, there will be roadbumps but he will live a full and normal life." Doctors are telling us very different things than 10 or 20 years ago and so I think we try to hold on to that. But I am not disillusioned about this illness and I feel sad that not everyone does as well as others or has been able to benefit from the newest treatments. </end quote></div>
That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
<div class="FTQUOTE"><begin quote>I think one reason why moms of young ones with CF (such as myself) tend to have a different viewpoint is because the doctors tell us such 'wonderful things'. When A was diagnosed, it wasn't doom and gloom. It was more like "yeah, there will be roadbumps but he will live a full and normal life." Doctors are telling us very different things than 10 or 20 years ago and so I think we try to hold on to that. But I am not disillusioned about this illness and I feel sad that not everyone does as well as others or has been able to benefit from the newest treatments. </end quote>
That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
<div class="FTQUOTE"><begin quote>I think one reason why moms of young ones with CF (such as myself) tend to have a different viewpoint is because the doctors tell us such 'wonderful things'. When A was diagnosed, it wasn't doom and gloom. It was more like "yeah, there will be roadbumps but he will live a full and normal life." Doctors are telling us very different things than 10 or 20 years ago and so I think we try to hold on to that. But I am not disillusioned about this illness and I feel sad that not everyone does as well as others or has been able to benefit from the newest treatments. </end quote>
<br />
<br />That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
<br />
<br />However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
<br />
<br />I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
<br />
<br />That is exactly what happened to us too. We figured out that Ian had CF and we mourned the fact our child had CF. Than the doctor comes in and says. "Don't worry with the new treatments your child will have a normal life span." Everything is so positive in the CF clinic now. That is why all the Mom's sound like our kids have a completely different diesease.
<br />
<br />However coming on here has given me a different perspective and sobered me up to a few things. I would of done things differently had I known how the adult CFers felt.
<br />
<br />I don't get involved in the adult threads because I have a lot to learn. I don't know everything and won't pretend to.
MargaritaChic
New member
Like many of the other moms have said, I truely appreciate and value the adult CF'ers on this board. They provide a perspective that no one else can.
<img src="i/expressions/heart.gif" border="0">
That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<img src="i/expressions/face-icon-small-confused.gif" border="0">
<img src="i/expressions/heart.gif" border="0">
That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<img src="i/expressions/face-icon-small-confused.gif" border="0">
MargaritaChic
New member
Like many of the other moms have said, I truely appreciate and value the adult CF'ers on this board. They provide a perspective that no one else can.
<img src="i/expressions/heart.gif" border="0">
That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<img src="i/expressions/face-icon-small-confused.gif" border="0">
<img src="i/expressions/heart.gif" border="0">
That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<img src="i/expressions/face-icon-small-confused.gif" border="0">
MargaritaChic
New member
Like many of the other moms have said, I truely appreciate and value the adult CF'ers on this board. They provide a perspective that no one else can.
<img src="i/expressions/heart.gif" border="0">
That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<img src="i/expressions/face-icon-small-confused.gif" border="0">
<img src="i/expressions/heart.gif" border="0">
That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<img src="i/expressions/face-icon-small-confused.gif" border="0">
MargaritaChic
New member
Like many of the other moms have said, I truely appreciate and value the adult CF'ers on this board. They provide a perspective that no one else can.
<img src="i/expressions/heart.gif" border="0">
That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<img src="i/expressions/face-icon-small-confused.gif" border="0">
<img src="i/expressions/heart.gif" border="0">
That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<img src="i/expressions/face-icon-small-confused.gif" border="0">
MargaritaChic
New member
Like many of the other moms have said, I truely appreciate and value the adult CF'ers on this board. They provide a perspective that no one else can.
<br /><img src="i/expressions/heart.gif" border="0">
<br />
<br />That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<br /><img src="i/expressions/face-icon-small-confused.gif" border="0">
<br /><img src="i/expressions/heart.gif" border="0">
<br />
<br />That being said... no 2 people will ever agree 100% of the time. But I have not noticed any moms blatantly attacking any of the Adult CF'ers.
<br /><img src="i/expressions/face-icon-small-confused.gif" border="0">