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Hello Imogene. I don't know if you've heard the sad news that Jricci passed away on February 1st. As she was a great contributor here I thought you should know. I was a friend of hers.
Patti Rowland
I am so sorry for the loss of your friend

I was very saddened and surprised to hear about the passing of Jeannie Ricci. She will be missed on this forum, and at CF Roundtable.

Like her, I was also on Kalydeco off-label for quite a while. I had been in contact with her several times about our experiences.

Please extend my condolences to her family. May her memory be for a blessing.

Ed Fleischman
OMG...as even I have a hard time reading these forums! Of course I am shocked and saddened. Jeannine and I even met a few times in south Jersey. I always respected her opinion! And I am so sorry, I am just seeing this now.
I would love to reach out to her family, her daughters especially. my email is jeanne@medrise.com for any information you have. So Sad!
I am deeply sorry for the loss of your sister. I lost my sister to CF over 20 years ago and it is still painful. I also have CF and could use the Symdeko. I would be happy to pay you to ship it. Thank you!