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  • K
    I left my old CF Clinic a while back because the great doctor who led the team, and whom I'd known my entire life, left the area...
  • D
    DougB replied to the thread Anxiety on Trikafta.
    I'm wondering how you are doing. I hope you are feeling good after taking Trikafta like I am. It's such a good feeling when they ship...
  • stephen
    stephen replied to the thread Our Survey Results!.
    Thanks. The survey results are very interesting.
  • K
    kgfrompa reacted to Simba15's post in the thread Covid19 vaccine and CF with Like Like.
    Hi All, my understanding is that we all fall into a class of CF. (see pic). Any idea how covid19 will react in CFers? The vaccine works...
  • B
    brutuscz replied to the thread Covid19 vaccine and CF.
    You will probably fell unwell for day or two but u will get through it. Having the vaccine will protect u that even if u got Covid u...
  • B
    brutuscz replied to the thread Anxiety on Trikafta.
    Good luck you will do amazing!!!!
  • Simba15
    Simba15 replied to the thread Covid19 vaccine and CF.
    Thanks for your reply. I got my first shot of Moderna after speaking to a cellular molecular biologist. No doctor could answer the...
  • Simba15
    Simba15 reacted to brutuscz's post in the thread Covid19 vaccine and CF with Like Like.
    Hi I’m 63 and got both shots of the moderna vaccine already. That’s because I’m a doctor. I researched everything and spoke to my CF...
  • R
    Rudyrose replied to the thread Anxiety on Trikafta.
    I too am 61 and have odd mutations that were approved in December. Took my insurance a while to approve but my delivery is scheduled for...
  • B
    brutuscz replied to the thread Anxiety on Trikafta.
    Bombard them with requests! I started 3 days ago. My fev1 is 30 percent I’m 63 years old and survived Covid! After the first day my dark...
  • B
    brutuscz replied to the thread Anxiety on Trikafta.
    I like you found out in December I qualified for Trikafta!! I have 3 rare genes for Cf and have been told I’m the only one in the world...
  • B
    brutuscz replied to the thread Covid19 vaccine and CF.
    Hi I’m 63 and got both shots of the moderna vaccine already. That’s because I’m a doctor. I researched everything and spoke to my CF...
  • Simba15
    Simba15 replied to the thread Covid19 vaccine and CF.
    thanks. I already know this information and find it very general. Have not heard CFF or any CF doc explain how RNA works with CF
  • I
    Imogene replied to the thread Covid19 vaccine and CF.
    Sorry~ Try...
  • Simba15
    Simba15 replied to the thread Covid19 vaccine and CF.
    page not found...
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