Latest activity

I'm so sorry for your loss. My advice would be to see if you can contact the respiratory therapist at your sister's clinic and see if...

My sister passed from CF and left behind a gently used Hill-Rom vest. She also left behind a year's worth of Symdeko and I'm not sure...

I am approaching one month on Trikafta. I already feel I have more energy and don't get SOB climbing up hills or swimming my laps. I am...

Well I finally went for my first appt after starting Dec 4th. Although I feel great, my baseline was 70-72 fev1. Ive always been...

My teen has indicated he is able to breath deeper, better stamina during his phy ed classes.

Could be a correlation between sinuses, tear ducts, etc. No CF here, but I have sinus issues and have had plugged tear ducts, dry eyes...

I am wondering if anyone has experienced increases in their exercise tolerance and strength after getting on Trikafta? For me, I have...

Hey there Mkos, I've had the strange occurence of my eyes watering (like I am crying) in the middle of the night and yes also some...

DS had this initially and used some rewetting drops, but hasn't had issues since.

My teen had been on Actigall (Urisidiol) since he was an infant due to higher liver function test results. Since he was doing well on...

Noticed my teens nose has had more breakouts, a couple larger blemishes. Areas of his skin that have always been a bit oilier have...

My hair has always been kinda oily even before Trikafta, but I will say invest in dry shampoo. It helps.

Yes I have had oily hair since on Trikafta just three weeks. I was on Ivacaftor for 5 years and noticed oily hair then but now it is...

It's been a little over 3 years since we released our first product Indrepta in a joint project between Sharktank Research Foundation...