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MissAlexsBP posted the thread Inhaled Tobi vs. Tobramycin in Adults.

Hi everyone! My insurance recently made me switch from Tobi brand Tobramycin to generic Tobramycin (both inhaled). During the last...

Thursday at 2:06 PM
MissAlexsBP replied to the thread Liver Enzymes and CFTR Modulators?.

Thanks @kenna2!

Wednesday at 1:58 PM
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kgfrompa replied to the thread Francis Collins speaks of Covid Vaccines and Faith.

This is making me smile I think we all need hope that something will come out so we can live outside our homes

Monday at 4:14 PM
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Imogene posted the thread Francis Collins speaks of Covid Vaccines and Faith in Adults.

Hi All: Remember Francis Collins as one of the founders of the CFTR in 1989? He even sang for us if you remember Lauren Beyenhoff...

Jul 4, 2020
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momofteen replied to the thread Trikafta and liver disease.

I’ve read that and so we’re hoping that will be an option for him. Thank you for your input!😊

Jul 2, 2020
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kenna2 replied to the thread Liver Enzymes and CFTR Modulators?.

These meds are hard on your liver. So this is a possible reaction. If he was taking the morning and night time dose, the issue could be...

Jul 2, 2020
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kenna2 replied to the thread Trikafta and liver disease.

These meds are hard on your liver. So this is a possible reaction. If he was taking the morning and night time dose, the issue could be...

Jul 2, 2020
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momofteen posted the thread Trikafta and liver disease in Adults.

My 27 year old son started Trikafta a few months ago. His recent bloodwork showed one of his liver enzymes (not sure which one) were 5x...

Jul 2, 2020
MissAlexsBP replied to the thread Liver Enzymes and CFTR Modulators?.

Thanks @Ratatosk!

Jul 1, 2020
MissAlexsBP reacted to Ratatosk's post in the thread Liver Enzymes and CFTR Modulators? with Like.

Not that high, but my teen's were elevated. Went from mid-normal, to high. We were told not to be concerned until three times above...

Jul 1, 2020
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Ratatosk replied to the thread Liver Enzymes and CFTR Modulators?.

Not that high, but my teen's were elevated. Went from mid-normal, to high. We were told not to be concerned until three times above...

Jul 1, 2020
MissAlexsBP posted the thread Liver Enzymes and CFTR Modulators? in Adults.

Hello! I am a moderator on the cysticfibrosis.com Facebook page and posting on behalf of one of the members of our community. Our...

Jul 1, 2020
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Imogene posted the thread NHS England agrees deal for Vertex CF Triple in Adults.

NHS England has agreed a deal with Vertex for its three-drug cystic fibrosis therapy Kaftrio, just days after the EMA’s human medicines...

Jul 1, 2020
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Imogene posted the thread NHS England agrees deal for Vertex CF Triple! in Adults.

https://pharmaphorum.com/news/celebrations-as-nhs-england-agrees-deal-for-vertex-cystic-fibrosis-triple/?utm_source=pharmaphorum+Daily+Ne...

Jul 1, 2020
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Imogene commented on nocode's profile post.

OMG...as even I have a hard time reading these forums! Of course I am shocked and saddened. Jeannine and I even met a few times in...

Jun 22, 2020

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