Latest activity
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Mmomofteen replied to the thread Liver Enzymes and CFTR Modulators?.Hi! I just saw your post. My 27 yr old son is still going back and forth with CF care team and liver specialist. His enzyme levels...
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MMaria55 replied to the thread Eyes Burning on Trikafta.73! Awesome. You were diagnosed real late. I'm assuming you have a mild condition.
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MAge 73. Not diagnosed until 2010. Have been on Trikafta for 3 months. I have experience some burning in the eyes and eyes watering...
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MMaria55 replied to the thread Possible Early Symptom.80 years old?? Wow! Bless you. You give hope.
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IImogene replied to the thread from Dr Francis Collins Blog.https://directorsblog.nih.gov/2020/09/17/experts-conclude-heritable-human-genome-editing-not-ready-for-clinical-applications/
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IFollow the Link to read Vertex Joining with Moderna to form a gene editing pact for Cystic Fibrosis...
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IImogene replied to the thread from Dr Francis Collins Blog.https://directorsblog.nih.gov/2020/09/03/citizen-scientists-take-on-the-challenge-of-long-haul-covid-19/ Coronaviruses are a frequent...
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PPrinter replied to the thread Possible Early Symptom.It depends upon the test. There are almost 3000 known mutations. If your husband was tested for anything less than the Full Cystic...
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MMkos1980 replied to the thread Eyes Burning on Trikafta.8 months on it now and I will say 80% of the burning has subsided. No issues and I have been med fee since June. No pills no nothing...
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PPrinter replied to the thread HELP! Public school is trying to force us to have my son skip a grade..Contact the LEGAL DEPARTMENT at the Cystic Fibrosis Foundation. www. ccf.org
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PPrinter replied to the thread HELP! Public school is trying to force us to have my son skip a grade..Discuss this issue with your CF Team. You can also contact the Cystic Fibrosis Foundation at cff.org. Bill
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PPrinter replied to the thread HELP! Public school is trying to force us to have my son skip a grade..I am 80 years of age and I have Cystic Fibrosis. I have been married for 57 years, and I have two College Degrees. I still do three...
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MMandyJane71 replied to the thread Trikafta and liver disease.Hi I had the same reaction and was put on ursodeoxycholic acid. This supports the liver and my liver function reverted to near-normal...
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IThanks to Miss AlexBP and all who posted their CF related tattoos for National Tattoo day!
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IIt is becoming apparent that our country is entering a new and troubling phase of the pandemic as SARS-CoV-2, the novel coronavirus that...
