Recent content by alexnw

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    ABPA and Xolair

    I take Xolair shots every two weeks (375mg). In response to Diana Blue, you should also be aware that IGE levels are elevated during Xolair treatment so that testing these levels for indication of allergic reaction or fungal infection is not reliable and so no longer really necessary.
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    ABPA and Xolair

    Your symptoms sound similar to my own. I was on Prednisone for more than 2 years to control ABPA. I have been on Xolair now for over 18 months and it has worked wonders for me. It enabled me to get off the Prednisone and stay off it. That has the added benefit of clearing up the nasty side...
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    request for information on invasive aspergillosis in cf patients

    Aspergillosis I have had a similar experience to the previous post, dealing with acute bronco-pulmonary aspergillosis. The initial treatment after a final diagnosis was with itraconazole and prednisone. The anti-fungal did nothing, but the prednisone kept it under control. Every time we...
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    Halo therapy - salt room

    I have been taking one hour of halotherapy every 2 weeks since being diagnosed at age 49 (The Salt Room in Centerville, Ohio). I find it helps almost immediately with sinus and any upper respiratory symptoms. I treat it like part of my maintenance regime. It also happens to be pretty relaxing...
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    Coughing up small, hard, brown balls

    One way I found that was unique to ABPA versus old mucus was that there was a distinctive bitter taste to the pieces coughed up with ABPA.
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    Coughing up small, hard, brown balls

    Abpa This sounds like ABPA which is a fungal infection (Aspergillosis). The initial test is to check IGE level and the treatment is usually Prednisone. I suffered long term from ABPA. I was on Prednisone for a long time (2 and half years), but was then switched to Xolair (injections every 2...
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    Xolair vs. other Steriods

    Xolair I was on Prednisone for more than 2 years treating ABPA. Every time the dosage was tapered it would flair up again. I have been receiving Xolair injections every 2 weeks for the last 10 months and have now been off the Prednisone completely for 5 months. The Xolair apparently takes a...
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    Amphotericin B for ABPA

    ABPA - Xolair works for me After two visits to the ER with ABPA, I was given Voriconazole and Prednisone. The Voriconazole did nothing and was discontinued after a few months. The Prednisone worked if the dosage was kept up (20-40 mg daily). As soon as the Prednisone dosage was reduced to lower...
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