Recent content by allie1

My husband is a musician and music producer. He has worked with many musicians so this year he is planning his first benefit concert and CD. Everyone he has talked to about it will be doing everything for free so ALL the proceeds for the concert and CD will go to the Foundation. I'll let you...

I believe HPV is only transmitted sexually and it doesn't really pose a risk to men. Someone please correct me if I am wrong. Amy

It never fails.......there always has to be someone making a negative comment about something.

I'm getting my second tattoo as soon as I wean my daughter....which will be soon. I also have one daughter with CF and one without. I was going to get something to signify her CF but then a friend of mine pointed out "What about your other daughter"? So, I decided to get something to signify...

Dea, Have you ever tried to avoid dairy products? If so, does it help with your bloating? Is your abdomen flat when you wake up and get bigger as the day goes on? This is what happens with my daughter. Thanks. Amy

Hi mom to Avery! I am mom to Allie and I could swear it was me who posted your topic b/c we deal with this too and I have had the same questions. Allie was diagnosed 11 months ago and she STILL has the huge, bloated belly. She is so small everywhere else so it's almost impossible finding...

This year was our first walk so I'm going to email you a copy of our letter. We raised over $4000 in just our letter writing campaign and our team total was $6500. Not bad for our first try. I was very happy to see how generous people were. Let me know if you don't get my letter. Amy

I'm a little disappointed with how well the CF Foundation advertises about CF awareness. We just participated in our very first Great Strides and it was amazing how little the foundation did to promote it. I keep seeing ads about the MS walks and Breast cancer walks but nowhere was the Great...

Should I be worried about my daughter having contact with a Cf adult that has had a lung transplant? Are there still risks of cross infection if someone has had a transplant? Amy

Hey Blindhearted..........I actually lived in Greenville for several years and went and graduated from ECU. Go Pirates! I know exactly where Williamston is. Thanks for writing me back. I'm sure my daughter will love the beach and I'm planning on taking lots of sunscreen. She's not on Cipro...

My daughter started this today for a cough. This is the first time "treating" anything CF related. She has always cultured staph but this is the first time she's had any symptoms. What can I expect? Her dr told me Augmenten can give really bad diarrhea. I don't want her to lose any...

Where in NC do you live? We live in Durham and we love the Outer Banks. In fact, I'm in the process of organizing a trip for the summer. I'm curious to see how my daughter handles it. Amy

To rosesforCFinMich: I tried emailing you my Great Strides letter but it came back as undeliverable. Is your email address posted correctly? Thanks. I hope everyone else received theirs. To Kelli: Hi......our daughter was also diagnosed in June. June 9th to be exact and it was the...

Ok.......I have never voiced my opinion about daycare but I am going to now. Remember, this is just my opinion and I don't want to offend anyone that doesn't agree. I would not put my children in daycare whether or not they had CF. Personally, I want to stay at home with my children versus...

We were told the enzymes work exactly 30 mins and we have found this to be the case. We were also told to give all the enzymes right before she starts eating. We start out with her normal dose and if she eats more than expected or longer than we give her another one or half of one as soon as...