Recent content by amber_cf85

Sorry for leaving everyone hanging.. I did talk to my Dr and at this time, no treatment for the candida. Just said that they will keep an eye on it and if my sputum culture grows next time, we may treat it then. I'm still feeling good.

Thanks Melissa! I haven't been feeling worse. My last PFTs weren't exactly stellar but I had just had a short hospitalization to have gallstones removed so I was under anesthesia - that of course took a bit for me to get back to my normal self.

I've heard Kalydeco is a miracle drug! I have DDF508 so Kalydeco is not an option for me. The RE that had the reservations was a 2nd opinion. I then sought a 3rd opinion from an RE that was linked to the University where I get my CF care. He said he agreed with the other doctor. He said they...

Has anyone had a positive sputum culture for Candida dublinesis? What did your CF team do to treat it? I had a sputum culture done over a month ago at my clinic and they just came back with the final results

Thanks Ssharkey : ) It's definitely weighing heavy on my heart as I've always wanted kids and of course didn't realize how hard it could be with my CF until I was older. My RE also does not want to do injectables because of the risk of multiples. I'm not too concerned about the egg retrieval but...

Thanks Meg! Were the first 2 IUIs also with Femara? We tried clomid + trigger / IUI both times and our RE has now switched us to Femara. I didn't like the side effects from the clomid not to mention that I read it can cause a hostile environment and thin the uterine lining. Right now we are...

Hi There... I moved to Florida in 2003 (I was 17) from Michigan and have been here ever since... 1. I tried to apply for SSI once and was turned down. I am able to keep a full time job. But I've heard that SSI is hard to get down here 2. I go to the CF clinic at Shands in Gainesville. I see Dr...

I'd like to get some feedback from anyone that has gone through IUI with femara or injectables and had success. My husband and I have been struggling with infertility for over 3 years now. Not only is my CF an issue, but he also has mild male factor. We did 2 IUIs in 2013 that were unsuccessful...

Thanks for the feedback everyone! I'm not in birth control as I'm on Zithromax 3 days a week and I've heard that being on antibiotics can make birth control ineffective. Also, hubby and I are actively trying to conceive. I do think that me being sick along with the antibiotics is causing my...

Hi everyone! Just wondering if there are any other cf women out there that have experienced or are experiencing late menstrual cycles due to antibiotics? I've done some research and I'm pretty sure this is why my cycle is 8 days late. I was in the hospital for 2 days and had gallstones removed...

Hello!! My husband and I just received news last week that the fertility clinic we were working with cannot help us achieve pregnancy. Their anesthesiologist is not comfortable with me having the procedure in their office due to them being an outpatient clinic. They suggested I check out USF...