Recent content by amykay1965

My daughter is 20. How old is your son?

I am desperate to know any others with the V520F mutation, or if anyone knows what class of mutation it is. The little bit of information I can find on it makes no sense to me. I'm just wanting to know if I can fight for Kalydeco for my daughter with it. Her other mutation is Delta F508...

So I have never seen this chart. Very interesting. My daughter has Delta F508 & v520F. From looking at the chart, it doesn't look like Kalydeco will help her. Is that correct?

Thank you so very much for the information. I have emailed Fredrick Van Goor.

My 19 year old daughter has the Delta F508 mutation and V520F. We attended CF family education day today and although they gave us the website to research mutations, I'm still confused. Which category does V520F fall in? Is it a mutation that the new medicines might help? I know with Delta...

My daughter also has V520F. I was doing some research on it and ran across your post. Have you heard anything about trials for Kalydeco with V520f?

I have a 19 year old daughter with CF. Her mutations are Delta F508 & V520F. We had CF Education day today and were given the website to look at the different mutations. Although I looked at the V520F, I still don't understand what type of mutation this is and if any of the new drugs might...